Dr. E is a great LLMD Jackson New Jersey....
Dr. E in Jackson, NJ is a highly respected Lyme Literate MD. She saved my life! She does not take any insurance except Medicare. You can contact me....
West Chester County, Pa. Hospital is in an area with a very high Lyme rate. They are Lyme Patient friendly. I had a SPECT Scan done there that convinced Lyme doubter doctors that there was a Lyme...
You should check West Chester County Hospital for leads on a good Lyme Literate Doctor(LLMD) referral. I live in Bucks County, Pa. but go to a LLMD in New Jersey near Great Adventure. It is worth the...
I think you should try Dr. E. in Jackson, NJ. She uses most therapies you mentioned. Saxmar...
Once you get through all this ( months of antibiotics followed by months of herbals) You can actually expect this stuff to go into remission and to feel healthy again. It takes time. Rifampin kicked...
I did get disability because of health problems caused by Lyme. I strongly recommend getting a lawyer to help you get disability. The lawyer should be a disabilty specialist. I can't type too well or...
Oops, just saw Travelers post about the same thing. saxmar...
Check out Advance Labs Spirochetal Culture Test. Please google it, I don't have a link. It could be a break through for Lyme testing. I was informed of this test by Dr. S. in Northampton Township,...
I had to share this. I don't know if this has been posted here before. The only macrolide antibiotic that crosses the blood brain barrier. Used to treat Lymes Disease.[/color] Roxithromycin is a...
An LLMD recommended I get one but my cardiolist said no. I don't even remember what it proves or disproves....
Everyone Thanks for the Congratulations regarding my getting SSD. I will have to go through a review in 5 to 7 years. I also can now collect from my union pension. It is not a lot because I am taking...
Greetings There is an older posting about Social Security Disabilty that was revived recently but I wanted to share with everyone my good news and how it happened. I was just awarded Social Security...
+Lyme I was just awarded Social Security Disability (SSD). GET A LAWYER WHO SPECIALIZES IN SOCIAL SECURITY DISABILITY! I hope you don't think the use of all capital letter is rude but this is the way...
Hello Hippie This is a great forum to learn and share info about Lyme Disease. My LLMD also likes her patients to do Chiropractic and naturopatrhic treatments. I also saw a shrink. My shrink also had...
Get a SPECT scan of your brain done if possible. An MRI shows how your brain Looks. A SPECT scan shows how your brain is functioning. Google SPECT Scan and Lyme Disease to get all the info. I was...
Thanks for the replies. I have been dealing with Chronic Lyme for four and a half years now. Just when I think things have stabilized something new pops up. saxmar...
PattiB I also saw their 2 doctors and was denied. I am doing my Social Security claim through a law firm that specializes in SS and workmans Comp claims. I hope what you and others have said about...
In a few weeks I have a hearing with the Social Securty administration for disability. Any advice or sharing of the experiences of others who have gone through this is appreciated. saxmar...
On June 15th I had my Gallbladder removed. Yesterday at my follow up with the surgeon he mentioned that the only other pateint he recently did a Gallbladder removal on because of Biliary Dyskinesia...
Ambien eh? Yes I've taken it in the past. I now take Restoril prescribed by my LLMD so I didn't get dependent on Ambien. I've got to sleep so I have the strength to deal with Lyme issues. I Ordered...
One of the first signs that I had a problem was after playing the guitar my two pinkies were numb and not as flexible as usual. I stopped playing for a while. Even left a band I was in. I still have...
Razzle As I research my cravings issue it is mentioned a lot about B vitamin deficiency. I am taking Metanx. My LLMD prescribed it for my neuropathy issues. It does help with the neuropathy. My...
Thank You ttlittlestar and peace soul for giving me some guidance. I will research both of your suuggested causes....
Anybody have any issues like that. I'm being treated for Lyme just over three years, mis-diagnosed for two years. I know it sounds strange but it is almost uncontrollable. Last night I ate half a...
I had a very bad experience with Cymbalta. I would cut that out first. I also did not tolerate Lyrica very well. I can't focus well so did Neurontin come up. It works for me for pain. Investigate...
I had high Liver enzymes on a blood test about 2 months ago. Probably due to meds (Biaxin, Spectracef, plaquenil, celebrex, neurontin, crestor, plavix). I upped the amount of Milk Thistle and the...
I've had that problem too. Pain meds help. What I've been told is that the soft tissue at the base of your skull and neck are very attractive to the Lyme bugs. My pain is in my neck now. I wear a...
Jenn This is very amazing info regarding More Lyme deaths in 300 days than Swine Flu. I would like to know their source for that info. That would be very helpful in our pursuit of educating everyone...
Zee1965 Start a new posting with the subject LLMD in Vermont needed. Someone should get you the info you need. To protect doctors we do not use and or give LLMD names here where we post. Good Luck...
good question. I've always used cyanocobalamin. saxmar...
Welcomezee1965 I've had many of the pains, symptoms etc. you've described. I also had an initial diagnosis of MS. If I was you I would ask my neuro dr. why you had a lesion on the cerebellum. Also...
I am a 55 year old man. I got my clinical diagnosis of Lyme in Nov. of 2006. I believe I was originally infected in August 2004. We are taught through sports and just because we are men not to admit...
I have been on oral abx for three years. I also followed a diet based on blood type prescribed by a naturopath. I have 4 to 6 good hours a day. The other hours are for rest and sleep. Some of the...
I couldn't tolerate Lyrica or Cymbalta. I have been on Cymbalta for 6 months. Once I got over the balance and dizzines I got from early stages of taking Cymbalta I am fine. saxmar...
I see Dr. E who is in Jackson NJ. I like her evry much. saxmar...
I have a bad stomach and can't take aspirin, Ibuprofen etc. I did take Tramadol for a while. I now take Neurontin (generic is Gabapentin) and it works very well for me. I take 1500mg spread out...
I see Dr. E in Jackson NJ. She saved my life. She does take Medicare & Medicaid but no other Health Insurance. I had to pay her out of my pocket but it was well worth it. I live in Bucks County Pa....
I tried Lyrica and hated it . For me the side effects are worse than Lyme symptoms. I had the same experience with Cymbalta. I am on 1500 mg of Gabapentin (Neurontin) daily. 300 at each meal time and...
I also get round circles filled with light in my peripheral vision. The are not floaters. saxmar...
Kristina I take B12 shots when I have fatigue. Three years ago when I first started LLMD treatment I gave myself B12 shots everyday. I see Dr. E in New Jersey. She gives you the B12 at a very good...
During one of my Lyme related hospitalizations I had gall bladder ultrasound and other GI tests. I was told my gall bladder was only functioning at about 20%. The GI doctor sent me to a surgeon. The...
R When I had air hunger my LLMD did talk to me about babesia being a cause. saxmar...
Sunshine The first LLMD I saw was a psychiatrist who also had Lyme. Are you having problems thinking, getting lost, Feeling like you are in a fog. If so tell the psychiatrist that you are seeing that...
Mom If you can't see an LLMD my advice would be to have your internist contact a LLMD in your area for a consultation. Also see if there is a Lyme support group in your area. Sometimes you can find...
I had what you describe. I think its what my LLMD called air hunger. I remember being in a hospital ER concentrating on breathing. I felt like if I didn't mentally and physically concentrate on my...
hope-_29 On the East Coast I know they do SPECT scans at Columbia or Presbyterian hospital in New York. I had my SPECT scan done at West Chester Hospital in West Chester, Pa. which is outside of...
Cajungirl I am not sure. My lawyer said it was not unusual for them to schedule physical exam. He said they have a form from the state that they fill out. I'll let you know how it goes. saxmar...
I am trying to get Social Security Disability since I haven't worked in two years because of Lyme issues. I started the process in May 09. I am going through a law firm that specializes in SSDI...
Strongmom See if you can get the neurologist to schedule you a SPECT scan of your brain. The SPECT scan shows how your brain is functioning. A CAT scan only shows a picture of your brain. Do some...