Thanks tickbite and Traveler, I had taken prednisone two or three other times during my remission (for another chronic health issue) without problem. I'm surprised that it would suddenly be an issue...
It's been awhile since I've been on here. I've been off meds for ~2 years (after a multi-year bout with Lyme). I went to urgent care last week and was diagnosed with a pinched nerve in my neck ---...
Awesome! Congrats. I recall a overwhelming moment of joy when I was able to make it back to the AT after a long hiatus b/c of my illness. I still can't do what I use to but I'm much, much better than...
I've been having problems with my feet/toes (off and on for ~2 years). At one point my hands/fingers were also bothered. Oddly, these issues seemed to have gotten worse as my overall condition has...
Hi Traveler, Thanks for the input. Very interesting. In many ways, I wish I would have pursued herbs sooner. I think Abx really can take a toll on the body after a long course of treatment. What...
IHL, I had the same issues when I was really sick. I had bad night sweats and sometime bad day sweats (especially under my armpits). Sometimes, I would be drenched almost immediately after getting...
Thanks, ToddPaul. I'm not too familiar with herbal approaches (including monolaurin). I need to research this more and talk to my LLMD. I have heard/read herbs work best for individuals that are in...
Hi Revive, I removed an imbedded tick from my leg about ~18-19 months prior to getting treatment. I never got a bulls-eye rash and didn't have any symptoms during the first 7-8 months. I slowly...
Thanks for the input, Chloe! I was REALLY sick. It was a long, slow process. During a majority of of the year I was off all medications, I felt nearly 100%. However, I slowly noticed symptoms...
Hi all, It's been awhile since I posted (probably around a year). After ~4 years of intense abx treatment, I seemed to be doing quite well. I was off abx for nearly a year (without any major issues)...
Traveler, will do! ;) Cat53, I will definitely try to get on here more often. I feel bad that I haven't contributed on this forum recently. Especially, since it was such a valuable resource for me...
Traveler, Thanks for the kind words!!! Sorry to hear your daughter is having to deal with these problems. It's really disappointing. I loved doing research for so many years but due to current policy...
opugirl, I do basic research (i.e. understanding what makes ID pathogens pathogenic and discovery of potential drug targets). I grew up in the DC suburbs and briefly had a position with NIH after I...
TheWryter, The joint pain is very minimal and doesn't have a big impact on my life on a day-to-day basis. Over the counter meds are sufficient but I rarely even bother. Garden Peace, I'm still...
Garden Peace, Thanks! I wanted to come back and let people know that it really can get better. It's a long, hard journey for some of us. I never thought it would end! I just hope I don't have to do...
Hi everyone, I've been lurking on the board lately but haven't posted in quite a long time. I first had symptoms in January of 2008. Like most of you, the symptoms got worse and I endured a long...
I think it is nice that Lyme is getting some media attention. However, it seems that they tend to focus on the usual cases (as was demonstrated in the 20/20 segment). I feel it would be more...
Thanks for the comments. Sorry to hear about your husband Allienann. I'm on coumadin and getting my INR levels checked 2X/week (they are finally in a theurapeutic range after 2 months!). However,...
I started IV rocephin (2g/day) in March. After 2 months, I developed a clot. My PICC line was moved to my other arm but after a month I got a clot in that arm! Now my GP is worried I have some other...
I have constant underarm sweating (presumably because my lymph nodes are so swollen). Has anyone else had this happen? Any suggestions. Currently, I'm going through several shirts a day....
I'm relapsing very hard after showing a fair amount of improvement (during most of 2010). I'm thinkin of going back on IV. I could afford to pay out of pocket for the meds but probably not for the...
Everybody, thanks for the suggestions. I will pick up some Kefir next time I'm at the grocery store and give it a try. I talked to my LLMD. She wants me to stop all of my antibiotics for 1 week and...
Sorry for my previous post. I'm sorry my spelling and grammer are so bad. I actually have a PhD. HAHA. So they tell me. ;) I meant to say I'm no where near better...but better than I was at one...
bucci, I've been on orals and IV for two years (IV for only 2 months). I know where near better. I'm better than I was but life is still pretty much hellish. I think I had Lyme before treatment for...
I've been having GI problems the last 4-5 months. I'm currently taking Ceftin and Biaxin (and pulsing Flagyl-3 weeks on and 3 weeks off). I've tried a variety of supplements (fiber, digestive...
I know many of us have struggled with relationship issues. My engagement fell apart quickly after I started to deteriorate (although Lyme wasn't the only factor that caused the relationship to end)....
IV rocephin was GREAT. I loved it. I got on it after a very hard relapse.....I was in horrible pain prior to the IV. I responded very quickly to the rocephin. Unfortunately, it didn't last. Several...
I take a pretty good probiotic. The one my previous LLMD recommends. Can't remember what it's called at the moment and don't feel like getting out of bed and going to the fridge. ;) Traveler, if I...
I was wondering what the consensus is on how to deal with the side-effects of prolonged antibiotics. After 2 years of various antibiotics (doxy, mino, ceftin, rocephin, biaxin, flagyl) I'm really...
Thanks CG, I would like to hear your thoughts (as I haven't seen it)....
Can someone post a summary of the Lyme episode after it airs? I don't have cable these days. I would appreciate it. Also, if anyone finds a link to watch it online let me know....
I attended the meeting on both Monday and Tuesday. General thoughts: -The attendance was relatively low (approximately 120 people on Monday and 90 on Tuesday). - However, I felt that a vast majority...
I just got an email saying the DC metro will be doing repairs on Monday and that it will cause major delays getting to the conference location. Unfortunately, this may deter people from going. Sounds...
From my understanding XMRV might not just be confined to CFS but many chronic illnesses (or so I'm told). We'll see how it plays out. I was skeptical about it at first but the latest paper by NIH...
I tried a combination of antivirals and antibiotics for a few months. I didn't notice a difference after adding the anti-virals. They were added to my meds because of highly elevated EBV titers. It's...
Writer girl, Which lab did you use? I only had one band using a standard lab (Quest) but when I sent my blood to IgeneX (a lab that specializes in tick-borne infections) I had 7 or 8 bands. Testing...
Has anyone purchased this book? If so did you find it to be useful? Is it worth buying? Thanks...
Trav, What kind of detox do you recommend?...
Trav, I do detoxing with chlorella (sp?) although probably not as much as I should. Missy Joy, Yeah I tend to agree with you. I think I'll wait until I return to start the Flagyl. Thanks for your...
Simela, I think you can find information about watching the meeting online if you click the link in Trav's original post (above). I will definitely post a topic on the events that transpire during...
Yeah. I got sick about 3 years ago. I've was on a Doxy/Biaxin combo for the first two years with the exception of a 2-month period of IV antibiotics (rocephin for 1 month followed by IV Doxy for 1...
I just booked my flights and registered for the workshop. I'll post a report (i.e. highlights) of the meeting if anyone is interested. Apparently, the meeting can also be viewed online. Trav, I just...
Traveler, Thanks for posting this. I'm thinking about going. I need to make a trip home to visit my family (they live about 45 mins from DC). Is there any cost to attend? I didn't see anything about...
I've had the same problem off and on during the last year. It's annoying. But apparently (in my case) wasn't gout. Gout is so painful that putting on a shoe is near impossible (so I'm told)....
I use to go to Dr. S. His rates are very reasonable and were mostly covered by my insurance. He wants his patients to take a HUGE amount of supplements (some were very expensive). He also does a lot...
My LLMD just put me on Chlorella to detox. Does this really help?? I'm suppose to take 10 chewable pills 1-2 per day. The taste is horrible!! Can I just swallow instead of chewing?...
Ineisa, That was really very insensitive. Cowards? If you can't understand why someone with Lyme would commit suicide, you certainly aren't as sick as many of us on this forum (including myself)....
Thanks for the suggestions GWB and achievinggrace. I would like to do the co-infections test through IgeneX but not sure I want to pay for it. Haha. We'll see what this new LLMD thinks. Thanks again....
Gary, I wanted my last LLMD to do bicillin shots. He acted like the shots needed to be given by a MD or nurse....is this true or can they be done at home?...
I've never been a good sleeper....but my problems have been horrible since I've had Lyme. Oddly, my pain meds make me wired (which is the opposite effect it has on most people) adding to my sleep...