P.S. I should say that if it does turn out to be scleritis, the prednisolone eye drops and avoiding triggers (such as overexposure to sun or bright lights or too much computer time) should help with...
Dear k_taz, I should preface this posting with the fact that I am not a doctor and this is not intended to replace or override any information or advice you may have received from a doctor. I'm very...
Hi Sedwards, I've been on prednisone for a long time and have also had problems with restless leg syndrome, but in my case I don't believe there was any connection between the two. But you should...
Rose, I'm not a doctor, and I'm glad you're planning to see a doctor, but what you describe sounds like it could be an optical migraine....migraines sometimes occur without pain, just weird optical...
My eyes are very much affected by Lyme....blurry and double vision. Is this what you mean, Rose?...
I've had two MRIs of the brain, plus 3 of different portions of my spine: cervical, thoracic, lumbar. The brain MRIs were both normal, but the cervical and lumbar MRIs show degenerative disk disease,...
I had to post this....saw it in a lupus forum on Facebook and it just describes me to a "T": I AM WONDER WOMAN: I wonder where I put my keys, I wonder what day it is, I wonder where I left my purse,...
I get rashes most of the time, but whether or not I get a rash, I always feel nauseated in direct sunlight. If I continue to sit in the sun for more than a few minutes, I begin to feel exhausted,...
I had to post this....saw it in another lupus forum and it just describes me to a "T": I AM WONDER WOMAN: I wonder where I put my keys, I wonder what day it is, I wonder where I left my purse, I...
Hi 123abc, Sorry to say that the B12 has NOT been helpful, nor has anything else really. The condition just seems to get better and worse on its own, just like Raynaud's does. Well, that's not...
Hi Lynn24, welcome! I do understand....those sound just like the symptoms I had when I was first diagnosed. I'm so sorry that you are trying to deal with a new job and a new language at the same time...
Hi Pete, I'm a "hose head" too! I've developed sleep apnea after I started prednisone 2 1/2 years ago because I gained a lot of weight around my face and neck. I've had the CPAP for over a year now...
Roses, yes, I crave them but most of the time I manage to avoid them. I just know that if I eat carbs of any kind I gain and if I do a low carb diet I lose (or at least stay the same, which is better...
Yes, thanks lindaca! After reading it I'm now seriously considering going back on Rocephin...I may be able to afford it after all!...
Hi Allie, I started a separate thread for you so that you could get your questions answered more quickly. :) Welcome to the forum! I'm sorry that you are suffering from a lot of symptoms, though. You...
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To save money we just did the what Razzle suggested for my husband, the Western Blot IgM and IgG. It was $260, I think. If you include the IFA and PCR it's definitely more expensive....
Cali-Girl, I too am in CA....lived most of my life in Southern CA although I'm now on the Central Coast. A round rash, whether or not there is a "clearing" in the middle, that slowly expands over...
Hi Mamyou, I did find an article that refers to the antibiotic properties of horseradish (as well as the pesticidal properties of the plant), at this website:...
P.S. Ask your infectious disease specialist if he/she belongs to the IDSA and/or ILADS. You want to have a doctor who belongs to ILADS, if at all possible! Those are the good guys! :smilewinkgrin:...
Hi Chicksinger, Those results ARE confusing! I think I know what might be going on.....but someone please correct me if I'm wrong! Lyme IgG/IgM Ab RESULT 1.09 being POSITIVE Lyme Ab, IgM, Interp.,...
Masters disease and Lyme disease are basically the same, just caused by different type of Borrelia. Masters disease is caused by Borrelia lonestari. They're still Borrelia spirochetes. I don't know...
You can definitely have both! HGE is caused by Anaplasma phagocytohphila, and HME is caused by Ehrlichia chafeensis, two different bugs. IGeneX coinfection testing does test for both types of...
Human granulocytic ehrlichiosis (HGE) occurs when the bacteria infect granulocytes, specific cells involved in immune responses and allergies. Human monocytic ehrlichiosis (HME) occurs when a...
Mamyou, Lyme has triggered several autoimmune diseases in me, including dangerous ones like lupus and autoimmune hepatitis which attack major organs. I suspect that Lyme can trigger pretty much ANY...
The importance and specificity of some of the bands is still a bit controversial, I think....
CajunGrl, I sent you an email. JoAnn...
Hi mentalcompass, welcome to the forum! I'm really sorry for the reasons that bring you here, though! If you haven't done so yet, you might want to read through the first "introductory" post for...
Dear Roses, I can no longer tolerate heat OR cold. I've moved very near the coast (less than 2 miles) so that the high temperature during the day is usually somewhere between 55 and 75 and the lows...
Check out the Spitzer website, it may be smaller than Hubble but it's done great things! http://www.spitzer.caltech.edu I know what you mean....I will probably never be able to go up Mauna Kea...
@ex_hacker, I think you perhaps you should create a separate, informative post on the Western Blot blood versus synovial fluid issue. Although I was tested with a Western Blot on blood (IGeneX...
In another thread I posted a statement about Bartonella being capable of turning off your immune system responses to itself and Lyme. This was challenged (rightly so) and so I started digging deeper....
By the way, I found another web site that refers to the "immunosuppressive" effects of Bartonella, although it IS a veterinary site and they are talking about dogs....
ex_hacker, sorry to have sounded snippy. You're right, of course, to verify sources and make sure that there is a scientific study behind everything. I didn't realize that ONLY Schaller had said that...
@ex_hacker Well, I certainly hope that you never have an experience in your family with a spouse or partner who ends up testing positive for Lyme as my husband has. I am now FIRMLY convinced that...
Absolutely! Relapses after stopping meds happens quite frequently. I'm so sorry that you're going through this and I hope that you find a program that will help you get back on your meds! Take care,...
I too would like to know your thoughts on this question. As a scientist with a Ph.D., albeit in a different field, I believe that A LOT more research on this topic is needed, and that the question...
Dear Anita, Here is the same explanation I just posted for someone else who had a positive test then a negative one a few weeks or months later: As you probably know, the ELISA and Western Blot tests...
Dear ex-hacker, The idea of sexual transmission between humans is neither "confusion" nor "misinformation". We actually are very aware of what the so-called "experts" like the IDSA and the CDC (and...
Dear Willie, I'm so sorry that you're having to go through this! I know that the ins-and-outs of Lyme testing can be VERY frustrating!! Springsjean gave you very good advice about getting a copy of...
Traveler, I was thinking along the same lines as bucci. Has your hubby ever been tested for Lyme? Just wondering............? Take care, JoAnn P.S. I told my rheumy about your concern about clots in...
Hi dcraver, I have Lyme, plus a lot of coinfections, six autoimmune diseases and fibromyalgia, so I'm dealing with severe pain in many areas: joints, muscles, rib cage, lower back, upper back, neck,...
Chicksinger, we're very grateful to have you here! This forum is made up of people just like you and your husband....people who began knowing absolutely nothing about Lyme who eventually know more...
Actually, we just found out my husband has Lyme now. I was the first one infected, and I think he got it from me. So it IS contagious! Not air-borne of course, but it seems to pass from human to...
Springsjean, I'm so sorry to hear that your husband won't get tested....I understand! And Cat, yes, I would like to shout it from the house-tops too!! It's so frightening to realize the people just...
Hi Homer, Welcome to the forum! Very sorry for the circumstances that bring you here though! Who did your Western Blot test...IGeneX? I ask because most labs don't report an "indeterminate" result,...
Thanks bucci, I appreciate the love and encouragement! I think this is an important issue, and yes, maybe spouses have been passing Lyme back and forth to each other. My husband had symptoms, which...
We just got back from the doctor (my LLND); he gave us the results of my husband's recent IGeneX Western Blot: IgM: bands 31, 41, and 83-93 positive IgG: bands 28, 30, 41, and 66 positive The IgM...
Oh Kat, I'm so sorry....my rheumy has done the same thing to me from time to time!! First he'll tell me I have lupus, then he'll say, no, it's not lupus, it's some other connective tissue disease!! I...
Cathy and her family are in my thoughts and prayers....Michael, you, your wife, and tmj are too, as you are all losing your close friend. JoAnn...