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justascarf2

HealingWell Forum
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Member Profile
Display Name
justascarf2
Profile Created
10/22/2012 6:35 PM
Last Seen
6/1/2013 3:10 PM
Total Posts
128

Last 50 Posts

Weight gain

Hey lyme mompi - I just wanted to share what my doc and a few other member's have shared over the years about detoxing without a gallbladder. It is an added challenge for me so maybe some of the...

6/1/2013 3:10 PM

Lyme Disease
Weight gain

Just wanted to post that I was told by my LLMD that if you don't have a gallbladder, you need to be careful with enemas. Apparently coffee enemas are not advised if you don't have a gallbladder. If...

5/31/2013 9:12 PM

Lyme Disease
Sponaugle wellness

Hey wellbeautifulspirit - Thanks for your kind words. Let me be completely honest. I have been battling this for a long time (like many) but I did have some testing done at Sponaugle and they said I...

5/31/2013 8:51 PM

Lyme Disease
Sponaugle wellness

Hey all - I just got back from Sponaugle Wellness and was actually there while Yolanda was there. I can tell you that the program is ever evolving so things are constantly changing based on new...

5/31/2013 6:57 PM

Lyme Disease
Mycoplasma pneumonia

Hey Samantha - It seems like we have a lot of the same struggles we are dealing with. I too have mycoplasma. My first doc put me on minocycline and told me that would help. My next llmd switched me...

2/24/2013 8:26 PM

Lyme Disease
Infer Red Sauna , and pain

I wanted to chime in about the FIR saunas. I have a horrible time detoxing. I can't do baths but I have found that the sauna helps a lot. I have to say that I have always hated heat and hate...

2/24/2013 8:13 PM

Lyme Disease
HLA TEST RESULTS!! SOMEONE PLEASE HELP!!

Hey Samantha - Glad that I hope I helped. I think I'm correct based on what I remember from science class but genes and the human genome are much above my head, yet still fascinating! As for my...

2/22/2013 11:20 PM

Lyme Disease
Could use some treatment advice...

It's the Florida Detox and Wellness center under Dr S. He posts his results on his website if you'd like to learn more. I think this is why I can talk about him because he is open about it. Don't get...

2/20/2013 3:18 PM

Lyme Disease
HLA TEST RESULTS!! SOMEONE PLEASE HELP!!

Hey Samantha- I hate to tell you the wrong thing as it appears that the test results have changed slightly. If I were reading this the way I understand it, here is what I think it says Parent 1 gave...

2/20/2013 3:11 PM

Lyme Disease
Could use some treatment advice...

This is gonna be long. Sorry ! I have been treating with a combo if pulsing abx, homeopathics and herbals/supplements for over a year now. Over Christmas I back slid after doing a run of...

2/19/2013 5:15 PM

Lyme Disease
hair and nails almost stopped growing

My hair used to grow a little under 2" a month. Over the past 2 years it grew maybe 2" total. Last month it started growing again. It grew almost 3". It's still nit as full, still falling out but...

2/3/2013 1:28 PM

Lyme Disease
Bart foot pain

I have the same feelings of my skin being too tight for my foot. The only time I have night sweats is when I use the sauna. The rest of the nights, no sweating so my doc thinks I don't have night...

1/31/2013 10:36 AM

Lyme Disease
Bart foot pain

Wwjd- do your feet hurt all day? Mine ache but its for 20 mins to an hour or two at a time. They also have pins and needles from time to time (usually on my worst herxing days). It happens even when...

1/30/2013 8:57 PM

Lyme Disease
Anyone know what HLA DRB1 & DRB345 results mean?

Thanks Garfield- It looked like what I suspected. I assumed that no matter which parent you got your genes from, the combo of the numbers would indicate that on your test results you have the lyme...

1/30/2013 8:50 PM

Lyme Disease
Bart foot pain

For me it feels like my inside arch is really tight and the outer edge of my foot hurts like a foot cramp along with the back of my heel, not the bottom of the heel. I was told by a primary care doc...

1/30/2013 8:40 PM

Lyme Disease
ISO Bartonella Help. Or maybe this is a Detox issue. Anyone?

Hey ecotick - My doc had said that based on my survey I may have Babesia but he definately thought Lyme and Bartonella. We haven't even addressed this yet. I have an appt. next week and am building...

1/30/2013 7:42 PM

Lyme Disease
ISO Bartonella Help. Or maybe this is a Detox issue. Anyone?

Hey Trav - Thanks for the info. I never thought about the colon. Funny thing happened. While sitting at the computer the lumps disappeared but I got pain up higher around the right rib and then about...

1/30/2013 5:42 PM

Lyme Disease
Who has lyme and/or co-infections without a gallbladder?

Thanks Traveler for the reply. I am just having a bad run of it. I get frustrated that after I year I still can't do what I think I should be able to do. These crazy lumps that appear and disappear...

1/30/2013 5:12 PM

Lyme Disease
Hair Vitamins? does this one seem ok

I can't speak to the above but from what I've been told is that low levels of biotin are often the cause. Are you on an anti candida diet? I find that if I cheat on my diet and eat something with...

1/30/2013 12:57 PM

Lyme Disease
Opinions and knowledge please!!

Samantha - I have probably read a lot of the same things. What I read is that the binding often occurs with detoxing with things like chlorella (something I'm currently taking), but if your detox...

1/30/2013 12:52 PM

Lyme Disease
Who has lyme and/or co-infections without a gallbladder?

So I'm into year 25+ of Lyme and co-infections but the start of year 2 of treatment. I have struggled something fierce with detoxing. I feel that not having a gallbladder has made things harder for...

1/30/2013 12:35 PM

Lyme Disease
ISO Bartonella Help. Or maybe this is a Detox issue. Anyone?

Thanks for the info Marie. For me the Bart stuff has always seemed to be the worst of my symptoms. I have mostly muscle pains and my joint pains are pretty mild if at all. They make their presence...

1/30/2013 11:45 AM

Lyme Disease
ISO Bartonella Help. Or maybe this is a Detox issue. Anyone?

Any Bartonella suffers out there who are struggling? After the sauna last night (where I didn't sweat at all during but am trying to take it slow) I sweated in bed and awoke with some sweat (but not...

1/30/2013 9:45 AM

Lyme Disease
Anyone know what HLA DRB1 & DRB345 results mean?

Feel free to contact me. I would love to help out as much as I can. I actually had a fun time doing it the first time. If you need help I'm here. I am hoping to get a hold of the copy of the book to...

1/30/2013 9:31 AM

Lyme Disease
New doctor new hope

Congrats JustMe for finding a doctor who believes in you and you believe in him. That's very exciting. I believe we all can get better. It is just a long path for some of us. So glad to hear that you...

1/29/2013 7:02 PM

Lyme Disease
Hard day- anyone do glutathione IV's?

From one lymie who is having a hard day to another, it does get better. I remember a year ago having Traveler tell me that before I know it I would be telling others that it will get better. It does....

1/29/2013 6:59 PM

Lyme Disease
Anyone know what HLA DRB1 & DRB345 results mean?

I will be curious to see what your doctor tells you. I think you are correct though I had thought that maybe you had one of the lyme alleles. Keep me posted on how things go for you. Maybe we can...

1/29/2013 4:04 PM

Lyme Disease
ISO Bartonella Help. Or maybe this is a Detox issue. Anyone?

Hey All - I have been having a horrible struggle since I did a round of cholestyramine. My LLMD's intentions were to see if the cholestyramine would clear everything up and that my issues were more...

1/29/2013 3:55 PM

Lyme Disease
Anyone know what HLA DRB1 & DRB345 results mean?

Maybe my test results will help. The dreaded ones are 4-3-53 and 11(12)-3-52B. If you hav both you struggle Chrinic lyme ones are: 15-6-51 or 16-5-51. If you have both you also struggle and one with...

1/28/2013 4:52 PM

Lyme Disease
Anyone know what HLA DRB1 & DRB345 results mean?

Hey Garfield. Hope this helps you. This is the Rosetta Stone that you need to interpret everything. It's pretty neat. I used it to interpret mine long after my doc had told me the basic results. I...

1/27/2013 10:16 PM

Lyme Disease
Sore tight neck and chin

Thanks springs jean- I have noticed that when I use the magnesium oil on my neck it does feel better for a while. I also do yoga regularly but that hasn't helped much. Maybe just some meditation. I...

1/18/2013 5:31 PM

Lyme Disease
Stopped meds., 3 days in, and no improvement

Hey Mystery- I struggled a lot like you. I still am but finally turned a corner around 11 months. I took cholestyramine and Actos which helped memory then anything with detoxing. With it came what is...

1/18/2013 4:34 PM

Lyme Disease
cholestyramine; helpful or not?

I just got off cholestyramine. I struggle big time with detoxing which my HLA test confirmed. I did not get constipated as I gradually increased. It was actually the best bowel movements ive ever...

1/18/2013 4:23 PM

Lyme Disease
Sore tight neck and chin

Hey Samjones- Thanks for the article. I do grind my teeth at night but a wear a custom mouth gaurd. I know that doesn't change the fact that I clinch and grind! I just find it odd that I had extreme...

1/17/2013 5:21 PM

Lyme Disease
Sore tight neck and chin

I have never checked out an osteopath. That sounds cool. I'll have to look into that. I've never even heard of an osteopath. Thanks for the suggestion. I do cranial sacral, accupuncture and a few...

1/17/2013 12:52 PM

Lyme Disease
Sore tight neck and chin

Hoping that someone out there has had this and has found something to help it. I have been getting a very stiff neck. No swollen glands and no lymph nodes palpable in my neck and chin. Basically the...

1/17/2013 11:53 AM

Lyme Disease
Anyone else have Interstitial Cystitis??

Hey Anducan - How long do you believe you've had lyme? Are you done with treatment? Did your ICC get worse or better or stay the same with your lyme treatment? I'm curious as ICC seems to be a...

1/17/2013 11:44 AM

Lyme Disease
Anyone else have Interstitial Cystitis??

Hey Shabby - Sorry to jump in late but I thought I had ICC. I was running to the bathroom every 45 mins to 1 hour for a week. All of my urine tests showed no issues. I ended up at an endocrinologist...

1/17/2013 9:48 AM

Lyme Disease
Gene that makes it difficult to detox?

Hey Mystery- I have one of the gene pairs. There are two of them. If you have one set it makes it more difficult to detox and get rid of lyme, if you have two of the pairs/sets it makes it very...

1/16/2013 5:35 PM

Lyme Disease
Recipe Thread!! Healthy or not so healthy...

Just saw some interesting recipes on a website I thought I'd share. They are healthy and most can be modified to fit your specific diets and if you can do peppers and eat some goat cheese (hint,...

1/9/2013 9:42 AM

Lyme Disease
To tell or not to tell....

Funny you bring this up. I've debated for months on what to do. I am honest about my meds with any doctor who will be prescribing meds. I think that's important but I do get hassled. I do tell docs I...

1/9/2013 9:36 AM

Lyme Disease
does the detox baths and sauna therapy accomplish the same thing? One better than other

I have a portable fir sauna. It is great. I have difficulty detoxing so the baths were making it worse. I do the sauna on level 2 of my sauna of 5 levels, every other day for now 20 mins. I slowly...

1/3/2013 7:25 AM

Lyme Disease
Untreated lyme ... Does it always mean congenital transfer?

Hey nervous mummy - There is another mom on here who was sharing with me how her child manifested the symptoms. They had a fever and complained as they got older. If you don't have a positive lyme...

1/3/2013 7:19 AM

Lyme Disease
Test results back

Good luck just me. I think that it's important for you to find a good doc at this point as they will help you tremendously....

1/2/2013 5:40 PM

Lyme Disease
Untreated lyme ... Does it always mean congenital transfer?

It sounds like good news for you and your son. If I were you I'd enjoy him. You are now armed with the knowledge you need to identify issues in the future which makes you ahead of the game. As for...

1/2/2013 5:39 PM

Lyme Disease
Test results back

Hey just me - It's funny about the ebv. When I look back at my childhood records after the tick bite, the doc suspected chronic ebv. He ruled it out after a test and said I was healthy and must be...

1/2/2013 3:30 PM

Lyme Disease
Untreated lyme ... Does it always mean congenital transfer?

Hey nervous mummy - I assume you've had your child now. If so, congrats. I only have one child but that is likely due to lyme not allowing me to carry the pregnancy to term or causing a still birth....

1/2/2013 2:58 PM

Lyme Disease
Hi, old member sick again with Lyme

Hi bluebyyou, So sorry to hear you are dealing with this again. I have a friend who was treated 3 years ago but has come back with both acute and chronic infections. Do you think you were bitten...

12/29/2012 9:36 PM

Lyme Disease
Half moons and finger nail ridges

Hey WWJD- I too have heard thyroid but then read other vitamin and minerals. I'm confused!...

12/29/2012 6:28 PM

Lyme Disease
Half moons and finger nail ridges

I notice that after every hospitalization due to either pregnancy or gallbladder removal, I also got small pin sized indents in the middle of the nail. I had a doctor who said it could be a sign of...

12/29/2012 5:17 PM

Lyme Disease
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