Hi everyone, I havent been here in forever! I used to be a moderator abt 10 years ago. Have chronic lyme along w my hubby. My son also has but we are all feeling well these days (knock on wood). My...
Just finished reading This is How I Save My Life by Amy Scher. It is a good read. True story of a woman with lyme disease and her adventures in trying to find a cure, learning how to deal with it...
I have been suffering from lyme now for 18 years, diagnosed 9 years ago. It is a constant battle to stay ahead of symptoms. However, I have found GREAT relief when you address your mind symptoms as...
Magnesium is crucial with lyme and will definitely cause all kinds of twitching....
I too have neuropathy from lyme and bartonella. Am currently dealing with intense nerve/neuropathy pain in my forearm, buttock and various places here and there. I am already on gralise (a time...
I have numerous neuropathies from chronic lyme. Currently dealing with terrible burning right side buttock. Tried chiro, did nothing. Dr. and chiro don't seem to think it is sciatic cause doesn't go...
My neuropathy has been probably my most lingering symptom. Started with extreme itching in upper arms and burning in forearms. I now started with burning in my buttocks and trying to figure out if...
My family is no newcomber to lyme. However, many of my extended family and friends have had tick bites in the last few weeks. Some have had the ticks tests, some just a bullseye and others took the...
Your symptoms are very similar to my symptoms over the years and with a known bite, I certainly would rule out lyme. Do you have a copy of your test results? What tests did they run? If you can post...
My llmd described it to me as a climb up a mountain - as you make progress you will fall a little bit back down each time but as long as you don't fall all the way back to the bottom, you are making...
No bedside manner AT ALL. I need to be able to communicate w my dr....
I dont think so cuz i take it regularly for years as maintenance. Wondering if it could be a change of seasons herx. But i can tell my arms and legs are still on fire! 🤪 HOPPY EASTER EVERYONE!!...
Still so puzzled. I do take cats claw everyday....
Thanx everyone. The weird thing is i feel great otherwise. Mind is super clear. Anxiety good. Energy great. Only reason i went back on the doxy was we figured it was the lyme causing the trigrminal...
Hi everyone - I’m back! Lol Just recently stopped doryx again after being put back on after trigeminal neuralgia put me in rhe Hospital. just as happened 4 years ago, my armd and legs are burning...