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Profile Created
5/22/2008 8:27 AM
Last Seen
10/11/2020 8:10 AM
Total Posts
475

Last 50 Posts

After 20 years - how often do you c-scope?

I'm 22 years and 17 colonoscopies into this journey and I have a colonoscopy every year....

10/10/2020 7:58 AM

Ulcerative Colitis
Generic Mesalamine vs Lialda

I checked into this some more and CVS/Caremark was quoting a price for 360 pills for 90 days instead of my prescription requirement of 180 pills for 90 days. I guess that means that the cost would...

9/10/2017 5:29 AM

Ulcerative Colitis
Generic Mesalamine vs Lialda

I went to refill my Lialda yesterday at the CVS/Caremark site as usual for the 90 day supply and they wanted to charge me $1225.26 with my insurance plan not covering any of the cost. My previous...

9/3/2017 4:40 AM

Ulcerative Colitis
psyllium seed pow pow - where are you ???

I buy whatever is cheapest after delivery charges. I usually buy ten pounds at a time and keep it in my freezer....

8/27/2014 5:36 AM

Ulcerative Colitis
psyllium seed pow pow - where are you ???

That is where I bought my powder the last two times. Here are a couple of other sites I have used in the past. http://www.starwest-botanicals.com/category/psyllium-seed/...

8/26/2014 6:14 AM

Ulcerative Colitis
Oil for frying

If I make French fries then I use tallow. I use lard when frying on the stove unless I'm out in which case coconut oil is the used....

8/26/2014 6:04 AM

Ulcerative Colitis
Fermented food, who uses it and what?

I consume fermented cod liver oil as well as kombucha and sauerkraut. I used to consume kefir and yogurt as well but I moved to "America's Dairy Land" and can no longer buy raw milk....

8/8/2014 5:54 AM

Ulcerative Colitis
Fistula surgery tomorrow one question

I sure wish my memory would perform better but I don't recall his recommendations. I am certain I didn't take any Metamucil before or after the surgery since I just don't use it. I do consume...

8/5/2014 6:40 AM

Ulcerative Colitis
Has anyone almost cut sugar out of their diet?

I typically do not eat sugar but lately I have been making ice cream out of coconut milk where I add some sugar (dextrose specifically) to sweeten it. Otherwise just having fruit is sufficient for...

7/30/2014 2:36 PM

Ulcerative Colitis
Going for fistula surgery on 5th of August

I developed a perianal abscess back in 2009 that eventually turned into a fistula. For me it took a couple of years and numerous surgeries but my butt is now back to the pre-perianal abscess state....

7/24/2014 6:10 AM

Ulcerative Colitis
The fundamental basis of inflammatory bowel disease

I feel like I have been a canary in a coal mine. We are more sensitive to something(s) and it causes us much distress that the general population does not experience. As long as I control what goes...

7/19/2014 11:36 AM

Ulcerative Colitis
Cooking from scratch all the time/limited diet

There are a lot of good suggestions in this thread and I make use of most of them since I make all of my meals from scratch. I also make use of my pressure cooker periodically to accelerate the...

7/7/2014 6:23 AM

Ulcerative Colitis
UC & Endurance Exercise

Although I do nothing as demanding as you note, I have learned that when I'm flaring that I must cease all exercising so that my body can use all of its capabilities to heal otherwise the flare will...

6/16/2014 7:05 AM

Ulcerative Colitis
Grapefruit seed extract brand

I'm being treated for Lyme disease and my doctor has me taking Pure Encapsulations brand of Grapefruit Seed extract. I take one pill in the morning with the antibiotics and one in the afternoon with...

6/12/2014 7:06 AM

Ulcerative Colitis
Any UC'ers with lyme?

I'm currently being treated for Lyme disease. I was diagnosed last July and immediately treated with 3 weeks of Doxy. I felt much better but eventually had a pain return to my mid-back that would...

5/30/2014 6:21 AM

Ulcerative Colitis
Increased risk for heart failure

Oh well, this disease just keeps giving... Heart failure hospitalization more than doubles in IBD flares ...

5/19/2014 4:40 AM

Ulcerative Colitis
Did UC got worse with aging ?

I have gotten it from www.acuatlanta.net but it is out of stock presently and from www.kamwo.com which is more expensive. My understanding is the Qing Dai is not for long term use so I have only...

5/18/2014 11:18 AM

Ulcerative Colitis
Did UC got worse with aging ?

hateuc, I could only wish that my body and mind was like a fine bottle of wine that has gotten better with age. The short answer to your question is I primarily eliminated foods from my diet to...

5/18/2014 8:50 AM

Ulcerative Colitis
Did UC got worse with aging ?

The OP's question appeared to be only directed at those that are getting worse as they age so I assumed she was not interested in the comments of those of us that have gotten better as we age....

5/18/2014 5:03 AM

Ulcerative Colitis
Anybody here with Low Testosterone

I was diagnosed with hypogonadism about two years ago at age 46 by my urologist. My GP wanted to just prescribe me some Viagra once I told him my symptoms but I insisted that I wanted to have a...

5/8/2014 6:33 AM

Ulcerative Colitis
Colonoscopy prep with back pain side effect

Doing the prep this time seemed exceptionally simple for some reason. Maybe it was because the Dulcolax got things moving sooner than usual. I had to go to the bathroom twice before I even started...

5/7/2014 4:03 PM

Ulcerative Colitis
Fish oil

I searched around for a nutritious fish oil and I end up getting Green Pasture Fermented Cod Liver Oil . Unfortunately, it's rather expensive. Has it helped me? Hard to say but it definitely has not...

5/7/2014 4:47 AM

Ulcerative Colitis
How Microbes In The Gut Influence Anxiety, Depression

I'm on doxy currently to treat Lyme disease but when I'm finally over it then I plan to supplement with the bacteria noted in the following PubMed article....

5/7/2014 4:28 AM

Ulcerative Colitis
Colonoscopy prep with back pain side effect

I did my colonoscopy prep yesterday and I noticed lower left back pain while consuming the Polyethylene Glycol 3350/Gatorade mixture. I have no UC symptoms presently so I was surprised to experience...

5/7/2014 3:53 AM

Ulcerative Colitis
how is it possible...

I don't believe that your experience is a normal Gastrocolic reflex response. Wikipedia has a reference to irritable bowel syndrome which it notes can provoke an overreaction of the gastrocolic...

4/30/2014 6:25 AM

Ulcerative Colitis
Wisconsin

I'm over in the west central area. Google shows me as being about 4 hours almost directly west of Green Bay. I was also born and raised near where I'm at now although we are much closer to where my...

4/29/2014 7:37 AM

Ulcerative Colitis
30,000-fold difference

I am thankful for antibiotics. Although it may have kicked off this disease for me 15 years ago or so, it was been a blessing for treating my Lyme disease last summer. Getting Lyme disease has taught...

4/29/2014 7:24 AM

Ulcerative Colitis
Wisconsin

I just moved back to Wisconsin last fall. Apparently this disease is not limited to just the disruption on one's guts....

4/28/2014 7:23 AM

Ulcerative Colitis
Backpain is it uc causing it?

I always get lower back pain (just left of my spine) when I'm flaring....

4/18/2014 5:27 AM

Ulcerative Colitis
Man parts!

I believe Kramer had the solution... Seinfeld - Kramer: "I'm out there Jerry" ...

4/11/2014 4:54 AM

Ulcerative Colitis
Laser Technology and Colitis

It is certainly available today. http://medicalcenter.osu.edu/mediaroom/releases/Pages/Laser-Can-Peer-Through-Intestine-Walls,-See-Inflammatory-Bowel-Disease.aspx I notified my GI of its importance...

4/7/2014 5:53 AM

Ulcerative Colitis
Larry Smarr latest talk - I think worth an hour of our time

Thanks for posting! I decided to order up a 23andme test based on the presentation. Maybe it has some clues to my illness. My American Gut results don't look similar to others with UC....

4/6/2014 9:26 AM

Ulcerative Colitis
Laser Technology and Colitis

I sure hope this is coming to my GI's clinic soon. The worst part of the colonoscopy for me is the 10 day recovery where I am waiting for the biopsy sites to stop bleeding and then heal so my abdomen...

4/6/2014 6:28 AM

Ulcerative Colitis
Ulcerative colitis recovery through urine therapy

You really got to love our ulcerative colitis forum. Unique and strange potential solutions along with very entertaining humor. I went off searching on the subject and ran into the following webpage....

4/6/2014 5:18 AM

Ulcerative Colitis
Experiences with Prescript-Assist or any other probiotic containing B. Subtilis?

I took Prescript Assist for a month back in January/February. The only change I noticed was that the white portion of my fingernails obviously grew. My fingernails are always splitting so maybe it...

4/5/2014 8:04 AM

Ulcerative Colitis
Ice Cream Sandwiches = Not Good!

Time to experiment. Give your gut a few days to get back to normal and then just have the ice cream from the sandwich and see if it aggravates your gut. I eliminated ice cream with carrageenan after...

4/1/2014 6:28 AM

Ulcerative Colitis
RHR: All About Fecal Microbiota Transplants with Glenn Taylor

The following quote from the discussion was a piece of information that I did not previously know: He goes on to note that if you prepare the FMT material incorrectly then you could be wiping out the...

3/29/2014 2:05 PM

Ulcerative Colitis
RHR: All About Fecal Microbiota Transplants with Glenn Taylor

I just got done listening to the latest Revolution Health Radio with Chris Kresser and it was a very interesting episode. Well worth listening to if FMT is of any interest. RHR: All About Fecal...

3/29/2014 1:28 PM

Ulcerative Colitis
AOR ProBiotic 3 unavilability

I don't know if it is better for ulcerative colitis than vsl #3 ds. The reason that I was interested in it is that it sounded like the bacteria would actually populate the gut rather than have to be...

3/28/2014 6:00 PM

Ulcerative Colitis
AOR ProBiotic 3 unavilability

I received the following notice this morning about my order for AOR ProBiotic 3 ( ProBiotic 3 Research Information ). Does anyone know how to track down some information related to why it has been...

3/28/2014 9:38 AM

Ulcerative Colitis
Let the yearly scopes commence...

Welcome to the club Sam. My next annual is in early May. Even though the prep for the procedure is not enjoyable, I still find the requirement that I can't drive myself to and from the procedure the...

3/28/2014 4:59 AM

Ulcerative Colitis
Daylight Lamps? Has anyone tired these?

I have been doing light therapy for just over a month now to address my SAD. I was taking 5-htp to address my SAD symptoms before but I wanted to get off of it to minimize long term use risks. The...

3/24/2014 12:38 PM

Ulcerative Colitis
Exercise and UC

I have learned to not exercise when flaring. My body is unable to extract sufficient nutrients just for normal everyday activities so I am usually fatigued and ravenous. Once the fatigue and hunger...

3/22/2014 7:19 AM

Ulcerative Colitis
Your diet and UC - Removing all grains

The bro (rodzilla) is obviously a troll....

3/20/2014 5:00 AM

Ulcerative Colitis
Does pred work as well the second time?

I had taken it numerous times over the years and it never lost its effectiveness. I haven't had to take it over the past few years since diet (mostly wheat) and medicine (Prozac, Singulair) appear to...

3/19/2014 4:44 AM

Ulcerative Colitis
Non-dairy food sources of probiotics

I always have homemade Kombucha and sauerkraut available and when pickles are in season I buy a bunch and make fermented pickles. I started consuming fermented cod liver oil that arrived yesterday as...

3/16/2014 6:35 AM

Ulcerative Colitis
Is Kefir similar to Kombucha in taste?

My homemade Kombucha tastes delicious to me but then again I find liver very tasty as well. Just about every bottle I make ends up with a small baby at the top and the stuff you noted at the bottom....

3/15/2014 5:47 AM

Ulcerative Colitis
Montelukast Sodium (Singulair) side effects

I was put straight onto Montelukast Sodium a few days ago. At the same time I also started Advair Diskus for two weeks. I couldn't find anything on Advair Diskus that it caused bleeding so I am...

3/10/2014 8:20 PM

Ulcerative Colitis
Montelukast Sodium (Singulair) side effects

Thanks for the feedback. My symptoms continue to expand. Fatigue has now set in as well as intense hunger. I would conclude that the nutrients in the foods that I am eating are not being successfully...

3/10/2014 11:32 AM

Ulcerative Colitis
Montelukast Sodium (Singulair) side effects

Well, this past week a doctor diagnosed me with adult onset Asthma which I probably have had for at least 15 years. Intense exercise, cold outdoor air, and strong odors make it difficult for me to...

3/10/2014 5:20 AM

Ulcerative Colitis
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