I also urge you to go to a Dr regarding your vagina pain and other symptoms....
He sounds like a great LLMD. I’ve watched some videos of him with Dana and he’s very knowledgeable and appears to be nice (if that’s important to you) He would be my second pick - if he did treat...
Are you taking Hawthorne herb? It’s very good for heart/cardiovascular system. The one I take is from Woodland Essence - tincture form. Also supplement with CoQ10 Good for the heart....
“ Should I just stop using the vaporizer now, and just try to take edible cannabis?“ YES I also agree with WBF - go to a pulmonologist and get a work up...
Your post is much easier to read now. Thanks!...
Hey disillusioned! So sorry for all that you are experiencing. I also request you break up your lengthy post into smaller chunks....it's difficult to read. I could do that for you....if you like....
Hello Huddie! I am debating the vaccine question myself. I am now working in a Long-term care home...and we will be offered the vaccine soon. I'm on the fence. I'm concerned that due to having...
I'm wondering if anyone has: a) already gotten a vaccine - any reactions? haven’t had it b) intends to get the vaccine probably not c) has a no way/no how opinion and why. I may have to get it -...
Hi Bufflehead - Welcome to the forum! Feel free to start your own thread and tell us your “story” (if you want) This is a great forum - lots of knowledge and caring here....
Please keep us updated re:Uvelitis Hope it clears up!!...
I edited a previous post - my week 2 Persister protocol - I think the abx were taken M/T/W (Not M/W/F) Lol - too many protocols over the past 6 years.......
I don’t know about benzo withdrawal in conjunction with lyme - but I have witnessed my father go through brutal benzo (ativan) withdrawal - it basically was the beginning to his demise. Taper off...
I believe it does cross b/barrier? Anyone researched that?...
Yikes 8-36% - possibly 1/3! I will make a note to ask Dr J about it at my next appt. Can I get prednisolone eye drops at the pharmacy without a prescription? Hopefully the pulsed protocol will work...
Is it Rifampin or Rifabutin that causes the Uveitis? I can’t tell by your post. No, Dr J never mentioned it. How common is if?...
Amoxy has a really short half life. When I was on it, my LLND at the time told me to dose it 3x daily. The half life is something like one hour....
My LLMD doesn’t do testing to see if treatment is done - as testing is not reliable. You can test negative but still have active infection And you can test positive for antibodies and be in...
How did you feel after the 10 days of treatment ? Did you treat right away after the tick bite? None the less - 10 days is usually not long enough -even for a recent, acute infection. What is the...
Hi Mitch! Welcome to the forum. You are NOT a failure! This forum has members who have or had symptoms that are few and mild and members who have many many symptoms and severe. (I have known people...
“ Girlie, thank you for answering all of my questions, many of them there have been (and may be to come, lol.) “ My pleasure! Keep ‘em coming! I’m happy that relaying my experience(s) can help...
http://www.nopainhanna.com/2015/07/17/relief-for-worst-rsd-may-lie-with-ketamine-coma/#:~:text=Relief%20for%20Worst%20RSD%20May%20Lie%20With%20Ketamine,of%20patients%20whose%20nerve%20cells%20have%20...
“ Ive never heard of Ketamine lol, and whats RSD/CRPS?“ Chronic Regional Pain Syndrome Reflex Sympathetic Dystrophy I thought that was what I had prior to being diagnosed with lyme. It’s a condition...
I have been offered the vaccine - but at this point I turned it down....
I was thinking about this thread and it was actually more than two years of treatment before it went away. I think I had the tinnitus until 2018 My treatment started in 2014 - first lyme only and...
I had the pulsatile tinnitus but not the ringing in the ears. The swooshing was in time with my heart beat. What worried me was when I googled pulsatile tinnitus and read a rather disturbing cause....
Re: getting the vaccine with lyme. I wonder about how our immune system has been affected with chronic Lyme... and if vaccinations could affect our immune system negatively...
I’m curious too. I work in a residential care home and will be offered the vax - with chronic Lyme I’m afraid to take it. Plus I am kinda leery of any vaccine - especially one that has been rushed...
It will hit lyme and in combination with another antibiotic - it can be used for bart. (Rifampin or Rifabutin or - if you’re comfortable - one of the fluoroquinolones ) Minimum two different abx is...
I was told I had Gilbert’s syndrome when I was in high school. I had gone to the Dr because of yellow tinge on the whites of my eyes. Liver tests were done and I had high bilirubin. All my other...
This is great, Tickbite666! You’ve had a breakthrough !!!! ... and congrats on the job. I am so glad that I’m finally able to work again - after going off work in 2013. I feel useful again!!...
My concerns are - could the very low dose cause resistance. Is there a plan to titrate up? Maybe mention this to your Doc when you see him in a few weeks?...
Astro - here is a link to Chapelle's thread: https://www.healingwell.com/community/default.aspx?f=30&m=4170949&p=2#gsc.tab=0 ...
Welcome bart_n_babs My LLMD doesn’t seem to differentiate between the Babs strains. But he always treats Babesia first - as he feels it needs to be taken care of first. Then he switches to the...
Hi Anne - welcome to the forum! “ Yes, I have been working with my LLMD since mid September 2020 but little to almost no progress has been achieved sad This has made me wary and uncertain about her...
Astro - is that what forum member Chapelle had? She had posted I think a few months ago about shoulder issues....
So you have an appt. on Jan 18th? That's just 3 days away. Can you go to emergency if you can't - or don't want to wait - or does that cost you? (I'm in Canada, our health care is different here)...
That’s an odd dosage. Way too low It should be 200 mg twice daily (Some non LLMD’s prescribe 100 mg twice daily)...
Is Conneticut close to you? There’s a well regarded llmd there. https://stevenphillipsmd.com/ ...
Did you mean 200 mg? Not 20 mg...
Worthy of another bump!...
Are you under the care of a LLMD? Will you be adding a second antibiotic to the Biaxin? Lingering symptoms: - memory issues - pain upper left side of back, left arm and hand (this was my very first...
Because Marshall is typically associated with it.[/quote] //////////////////////// You’re referring to the Marshall protocol? (Sun avoidance and taking Olmesartan)...
Welcome to the forum, Missymoe. Are you seeing a lyme literate dr? (It sounds like you are - since you are on abx... and it includes the cyst buster (Flagyl) I am so glad you sought out treatment...
Did you get the TSH tested along with FT3 and FT4?...
I was taking biaxin with rifampin when I was treating with a LLND (prior to Dr. J) He initially had me on mino with the riffy....and after a few months on it, I asked to switch to biaxin. I started...
As a mother of someone with celiac disease - I agree about it being difficult - but it’s definitely doable....
I was on 50 mg of dapsone daily and 10 mg of leucovorin...
Sorry you can't find an affordable Doctor in California! It will be difficult on your own. A popular place to get antibiotics without a script is AllDayChemist. Note: One antibiotic at a time isn't...
Aww... thank you, MooseSafari!...
“ I also heard that this treatment does not work if you don’t clear Bart. I don’t know if I have Bart. My Dr never mentioned this. “ The Protocol I was taking under the care of Dr J that had Dapsone...