Amoxy has a really short half life. When I was on it, my LLND at the time told me to dose it 3x daily. The half life is something like one hour....
My LLMD doesn’t do testing to see if treatment is done - as testing is not reliable. You can test negative but still have active infection And you can test positive for antibodies and be in...
How did you feel after the 10 days of treatment ? Did you treat right away after the tick bite? None the less - 10 days is usually not long enough -even for a recent, acute infection. What is the...
Hi Mitch! Welcome to the forum. You are NOT a failure! This forum has members who have or had symptoms that are few and mild and members who have many many symptoms and severe. (I have known people...
“ Girlie, thank you for answering all of my questions, many of them there have been (and may be to come, lol.) “ My pleasure! Keep ‘em coming! I’m happy that relaying my experience(s) can help...
http://www.nopainhanna.com/2015/07/17/relief-for-worst-rsd-may-lie-with-ketamine-coma/#:~:text=Relief%20for%20Worst%20RSD%20May%20Lie%20With%20Ketamine,of%20patients%20whose%20nerve%20cells%20have%20...
“ Ive never heard of Ketamine lol, and whats RSD/CRPS?“ Chronic Regional Pain Syndrome Reflex Sympathetic Dystrophy I thought that was what I had prior to being diagnosed with lyme. It’s a condition...
I have been offered the vaccine - but at this point I turned it down....
I was thinking about this thread and it was actually more than two years of treatment before it went away. I think I had the tinnitus until 2018 My treatment started in 2014 - first lyme only and...
I had the pulsatile tinnitus but not the ringing in the ears. The swooshing was in time with my heart beat. What worried me was when I googled pulsatile tinnitus and read a rather disturbing cause....
Re: getting the vaccine with lyme. I wonder about how our immune system has been affected with chronic Lyme... and if vaccinations could affect our immune system negatively...
I’m curious too. I work in a residential care home and will be offered the vax - with chronic Lyme I’m afraid to take it. Plus I am kinda leery of any vaccine - especially one that has been rushed...
It will hit lyme and in combination with another antibiotic - it can be used for bart. (Rifampin or Rifabutin or - if you’re comfortable - one of the fluoroquinolones ) Minimum two different abx is...
I was told I had Gilbert’s syndrome when I was in high school. I had gone to the Dr because of yellow tinge on the whites of my eyes. Liver tests were done and I had high bilirubin. All my other...
This is great, Tickbite666! You’ve had a breakthrough !!!! ... and congrats on the job. I am so glad that I’m finally able to work again - after going off work in 2013. I feel useful again!!...
My concerns are - could the very low dose cause resistance. Is there a plan to titrate up? Maybe mention this to your Doc when you see him in a few weeks?...
Astro - here is a link to Chapelle's thread: https://www.healingwell.com/community/default.aspx?f=30&m=4170949&p=2#gsc.tab=0 ...
Welcome bart_n_babs My LLMD doesn’t seem to differentiate between the Babs strains. But he always treats Babesia first - as he feels it needs to be taken care of first. Then he switches to the...
Hi Anne - welcome to the forum! “ Yes, I have been working with my LLMD since mid September 2020 but little to almost no progress has been achieved sad This has made me wary and uncertain about her...
Astro - is that what forum member Chapelle had? She had posted I think a few months ago about shoulder issues....
So you have an appt. on Jan 18th? That's just 3 days away. Can you go to emergency if you can't - or don't want to wait - or does that cost you? (I'm in Canada, our health care is different here)...
That’s an odd dosage. Way too low It should be 200 mg twice daily (Some non LLMD’s prescribe 100 mg twice daily)...
Is Conneticut close to you? There’s a well regarded llmd there. https://stevenphillipsmd.com/ ...
Did you mean 200 mg? Not 20 mg...
Worthy of another bump!...
Are you under the care of a LLMD? Will you be adding a second antibiotic to the Biaxin? Lingering symptoms: - memory issues - pain upper left side of back, left arm and hand (this was my very first...
Because Marshall is typically associated with it.[/quote] //////////////////////// You’re referring to the Marshall protocol? (Sun avoidance and taking Olmesartan)...
Welcome to the forum, Missymoe. Are you seeing a lyme literate dr? (It sounds like you are - since you are on abx... and it includes the cyst buster (Flagyl) I am so glad you sought out treatment...
Did you get the TSH tested along with FT3 and FT4?...
I was taking biaxin with rifampin when I was treating with a LLND (prior to Dr. J) He initially had me on mino with the riffy....and after a few months on it, I asked to switch to biaxin. I started...
As a mother of someone with celiac disease - I agree about it being difficult - but it’s definitely doable....
I was on 50 mg of dapsone daily and 10 mg of leucovorin...
Sorry you can't find an affordable Doctor in California! It will be difficult on your own. A popular place to get antibiotics without a script is AllDayChemist. Note: One antibiotic at a time isn't...
Aww... thank you, MooseSafari!...
“ I also heard that this treatment does not work if you don’t clear Bart. I don’t know if I have Bart. My Dr never mentioned this. “ The Protocol I was taking under the care of Dr J that had Dapsone...
Good news!! I’m hoping my brain will fully recover - it has improved - but still have some issues....
Bump...
Bumping up for more views. Thanks for the update, multifacetedme!...
Bump How are you doing?...
I also had POTS from lyme. I can tell you that it has resolved with treating the infections. My heart rate would rise when I stood up. If I did that several times in a row, I would sometimes get...
Also - Dr J tested my G6PD level before I went on the protocol. Here’s what LLMD MR wrote about it “Check G6PD Levels Before You Start. Do not use dapsone if you have low Glucose-6-phosphate...
LLMD MR explains it: “ Dapsone Blocks Folate Metabolism. Dapsone works by blocking folate metabolism in germs, but it also blocks folate metabolism in red blood cells leading to severe anemia. To...
When I was on Dapsone (Dr J) I took 10 mg daily....
How long do you have to wait for a Dr appt? If it gets worse and/or you can’t get a dr appt - then go to emerg. Sorry you have this to worry about!...
Lol! Carry on 😆...
I'm not the one who first brought up flagging and censoring my posts, i was responding to breezy[/quote] But you said banning members “seems to be a trend these days” That was what I was referring...
dcd: “ But if the mods see fit, they can ban me. Seems to be trend these days 😂 “ You know of several members who have been banned lately? Banning of members is rare....
Trying to remember - maybe it was 1.5 mg....
“ Detoxing- she is taking binders and doing Epsom salt baths. What else could she do being stuck in the bed that would help from the die off?” - Dry brushing prior to Epsom salt baths - alka seltzer...
Wow WbF - so much knowledge you have shared!! Thank you!...