Hi Starfish!! Welcome!! Yes, even after all these years, I'm still using ALA. I "accidentally" dropped off of it about 2 months ago, and realized it about 2 weeks ago, so I restarted. I just ran out...
The best you can find in any kind of order would be by clicking on your screen name (lostofbites). You will see your last 10 posts there. Otherwise, it's kind of hit or miss with using the search...
Can you get a bone density scan done? If your doctor would agree to this, you would know that way. Bartonella can infect the bones, and I think Lyme may as well....
I'm so very sorry it's taken me so long to respond - it's been a wicked two months for me. First I got super ill, and the same night I took ill, my older male dog re-broke his back leg. It took me 3...
I won't be able to view my CD for another week or so - my hard drive crashed and I'm waiting for replacement parts. LOL. Well, I still don't know if it was a relapse or a reinfection that did me in....
Wow, thank you, Aerose! That's a LOT of information to type! One thing I can say is that I had every single 'condition' that they talked about in your last post. So, that being true, I should have...
Watch and see how your body responds to that - you may need that afternoon dose. If so, then remember that activated charcoal will bind to everything - you even have to be sure to drink plenty when...
This post caught my eye - I had a SPECT scan done years ago, and it showed I had a 20-something percent loss of blood flow to one section of my brain and a 40-something percent loss in another area....
Thanks, ladies! But it seems that no one has had any experience with this practitioner, so let's let it die. Thank you again! Very much appreciated!!!...
Hi SouthernGull, I edited your first post so I could read it - some of us with Neuro Lyme/Bartonella have eye issues and bold print and certain colors make it very difficult to read text. I too would...
Hi Wifelyme! Welcome to the community! If you haven't yet, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!",...
Use binders to help stop the herxing now that you have stopped the Doxy - just watch out for constipation to start. That works against us being able to detox! Also, have you been checked for MTHFR...
Thank you so much for your kindness, Jo!!! I do hope you are doing well. This will serve to bump the request up again....
Hi All, I'm looking for those that have had experience with Dr. F. N. in Kansas (herbalist). I have been talking to a lady that is really sensitive to everything and needs a very experienced...
I know I don't post here much, but hopefully I can add some to this conversation. I too am a middle aged woman, who has had two fairly healthy kids (never tested positive for any of these infections)...
Well, I dug out my Buhner's "Herbal Antibiotics" book and looked up Sida. It's really quite an interesting herb! He states: " There are 125, or 150 or 200 species of the genus Sida" "The main...
I tincture most of my herbs using grain alcohol (190 proof/90% alcohol), and add the appropriate amount of water to it, when needed. Besides, it's cheap, and I can buy it locally. Now the problem is,...
It's very understandable that you wish to combine as many things as possible! Many of us take soooo many things, it's crazy trying to organize it all daily!! And thank you for your kind words - and...
Yes, in this instance, it's okay to combine these herbs (chronic tonic and houttuynia), because there is nothing in there that would counter another herb. Not all herbs can be mixed though, so before...
My deepest sympathies, Xfmlg. While I have not had the extreme situation you have, I too have dealt with the complete disassociation from family members because of these infections. I have one...
It may be worthwhile to see if you can locate a Dr that works with chronically ill people (Lupus, MS, Cancer patients), and then see if they would work with a LL Psychiatrist over the phone. It would...
Aerose, have you been checked for Mast Cell issues? If you have those, you will need to see a very highly qualified allergist that is very good at treating Mast Cell issues in order to get far with...
I just sent it to Girlie to see if she thinks it's okay to post. I see the humor in it, but it is a bit graphic, and may be upsetting to some. As she's the main moderator (I'm just here to play and...
You're welcome to email it to me. As long as it's appropriate (have to say that), I'll be happy to post it around for you, or just share the link to it so you can post it around....
I know that several of us that used to be on here dealt with this. I still have it some, and since I don't have enough symptoms to really point to any one infection any longer, I'm not sure what...
Hi Tburd, Welcome to the community! If you haven't yet, it would be helpful for you to start with reading through the thread at the top of the forum titled,"New to Lyme?...Start here!!", as...
I would encourage you to do the Igenex testing before even herbal treatment - although you could start supporting her health now with herbs without trying to treat the actual infections, which would...
Well, it definitely takes most of the members to keep this community functioning this way - which is why we really want everyone to interact on the threads - new ideas and suggestions are always...
First of all, I'm so sorry. I know you said you tried ginger, but did you try fresh ginger tea 3 - 4 times a day on a regular basis? That's what it took to get my nausea under some control. And, if...
I just wanted to reach out and say how sorry I am for what you, Trader, and others may be going through if their parents are also sick with these infections, or something else - and you wish you...
When I was deep into the worst time I've ever had with these infections - and when my brain was the most involved, I always defaulted to whatever food I could just grab and take back to my bed. I...
Is it possible they said Interstitial cystitis instead? If so, that's painful bladder symptoms - not kidneys. I would still encourage you to talk to your Lyme literate doctor. I don't know if you...
You may find this helpful - I post it from time to time to help others gain perspective of some things: With the experience that I had personally, and what I've watched others...
Is this what you were referring to? "SPARGA Sulphur Detox" " an asparagus herbal tincture that detoxifies the body from sulfa antibiotics and other sulfa drugs which can block the detoxification...
I had some testing done, but it was a SPECT scan that showed my issues, I believe. I had two areas of my brain with lowered blood flow - one was around 20% low, and the other one was less than that....
Can you reach your doctor or someone else in their office today? If so, please call them now. Don't wait. If they aren't in today, then call first thing Monday morning and speak to them. There is a...
You are more than welcome, B99! It took me forever to figure out what was happening when I'd post portions of articles and the print would 'suddenly' get super small, or super large! LOL! Now, I just...
When did this start? Did you start something new, or increase a dose of anything, even if it was for detoxing? Not that I don't believe you, but here are some possibilities that don't include your...
B99, I got it fixed - that tiny print made it hard to see! It was because of some reference numbers in the article were copied and pasted into your post that the font size changed. I've learned to...
I'm one that suffered late stage dementia symptoms from these infections and came back from it. Although I did have a lot of physical symptoms along with it, it's not unheard of for a person to not...
Unfortunately, yes, these infections can and do this to lots of us. I couldn't get a positive test until I had a full 12 months of treatment. Lyme lowers the immune function, which is very much...
Well, thank you for your very kind words!! Believe me, I was really, really scared when I had those severe cognitive issues! I had no idea IF I could come back from that, so I set out using...
And we thank you for your input. While we (Lyme patients) do need to avoid suppressing the immune function, I often feel bad for those that need to take the risks of some of these new medications. I...
I've had all kinds of issues with eating, and while I've very definitely had the hot flush after eating that lasts for a while, I usually also have bloating along with that - but not the burning...
LilyPanda, I just got this article in my email and immediately thought of our conversation here. I thought it may be helpful for you to see:...
Hi KevinFrevin, Welcome to the community! Congratulations on having a doctor that not only recognized these infections, but understands that they aren't qualified to treat them!! That's kind of a...
I'll do my best to give good possible answers for these questions, but as you likely know, I can't speak to those that do well with one thing and not another without understanding exactly what they...
It's really wonderful that you trust your doctors - it's immensely helpful!! LOL! To figure out if you are under or over detoxing is a bit tricky, and will involve possibly some uncomfortable days,...
Be sure to bring this up with the doctor - it's important that they not only recognize this issue, but address it....
It kind of depends on the drug. While those are the most common allergic reactions, some meds differ. I like to use these two drug checkers: Note this one says it's for "Professionals" - it give more...