I am under care of a good Mold doc, following Shoemaker's protocol. I use cholestyramine as a binder and had to clean house on Mold remediation. There is a genetic test every lyme patient should run...
I am on T3 @ 45 mcg and have developed neuropathy, foot/leg muscle pain and plantar fasciitis I experience most of the muscle pain when I get from from sitting or laying down for a few minutes and...
I went to a CIRS doctor workshop taught by Dr. S. and currently going through his protocol with Dr H. in Virginia. One of the first things to do is to check if you are genetically susceptible to Mold...
well, I've been plagued from fatigue for a while. brain fatigue, body fatigue as if every cell in my body were exhausted..I had also been getting worse with insomnia, night sweats and a lot of...
I met the rep for megaspore a month ago at a conference, she was very knowledgeable. her husband is a naturist in the Austin area, appears to be lyme literate. (not a plug for them). I was interested...
right now, not treating Lyme at the moment, going to go along with a new practitioner familiar with CIRS/Shoemaker protocol to check things out before tackling abx again....
Irony I think, the doc did all kinds of muscle testing of different agents (silver, abx, placebo etc) before the IV and "honed" in on colloidal as something my body needed.. NOT. honestly I don't...
Yes. I've never had abx reactions, but first time I've had rocephin as well....
went to a doc today for my Sinusitis and he gave me a Colloidal silver IV (and a IM shot of rocephin) I had a pretty bad reaction and had my chest and back covered in red rashes by the time I left....
Excellent Dasies! I like your "Never give up" message. with all the set backs and downturns it's so easy to just give up and try to live a miserable life....
not me, still ringing along :( I'm currently thinking of getting evaluated for CCSVI, which might help it as well....
Hi everyone! Just curious if anyone has done this. I've read one success story, and corresponded with another lady who did it, and it was helpful for her brain. It makes sense to me to do, if you...
on the morning grogginess, I just restarted my thryroid meds, and it helped a lot. so, how are you on thyroid levels?...
don't forget the saline part, otherwise it stings! so Saline (buffered) + 1/8 - 1/4 tsp of Xylitol should be fine, I use that all the time. I also add 8-10 drops GSE extract for a 500ml mix....
are you represented (by a lawyer) in your disability claim? if this is STD, or LTD insurance from work then maybe you want to lawyer up. the disability insurance lawyers understand lyme and get...
I think you are on the right path, gather herbs and planning your approach. I am thinking of a similar transition. I would start the herbs while on abx so there is some overlap. I am sure someone who...
low dose cortisol (for adrenals) helps me a little. Another option I haven't tried is botox. yes bottox can be injected into those tight muscles and alleviate the stress, I've heard of it's use in...
borrelioburgdorferii, interesting you mentioned fasting. I started fasting, and felt a good increase in energy after the first week and have been able to sustain it by following this new diet....
hi Garion, fighting lyme and symptoms is going to be a long process, and you have to adjust mentally to cope with bad and worse days and LONG term treatment. Realize this is going to take time. Also,...
thanks for the responses. Tickbite, that seems reasonable to me. if there are serious issues or on IV I can see regular visits, but I would think they could be spaced out when things are going well...
I wish I could find an in network doctor to prescribe my Doxy. paying 350 / month for prescriptions is somewhat excessive. I was in Chile a few months back, and in the southern part of the country, I...
we are probably never cured, but we evolve into the most body health aware humans :) also, we become excellent time keepers and know exactly when it's full moon, without even looking outside!...
the half life is 2-3 days it seems. the plasma levels don't double if you double the dose, so I don't think it matters if you were pulsing or constant dose, the elimination likely driven from when...
in this video she keeps them in for 20 minutes https://www.youtube.com/watch?v=JeGucVwvh6Y ...
Mine wants to see me once a month, I feel he is milking it....
Gabybee, Bluelyme is this something your LLMD administers (injection)? I'm interested in trying it, but doubt my LLMD works with this protocol. Can I buy the venon without a prescription?...
ok, moon is coming and it's special this time. https://www.washingtonpost.com/news/capital-weather-gang/wp/2018/01/26/how-and-where-to-see-the-super-blue-blood-moon-of-2018/?utm_term=.0cf6d45983fc ...
I've tried Vyvanse (similar to Aderall), and it helped with alertness but it is expensive and difficult to get. (Pharmacies would run out all the time, wow every kid in town trying to get some..)...
Thanks Gabybee, I wasn't thinking of it in those terms. I'm just doing Glutamine and bone broth....
that's strange. I had many gluthatione IV's, never had an issue. I wish I could point you to something but I can't....
I was in a similar situation, also in IT.. For some reason I have been reluctant to travel, and to leave my prescriptions and supplements. I had a week long work trip to Spain. I did not even want to...
Moose, are you taking vitamin D?...
Well, I started the year with a new approach. the idea was to get to a simple baseline of feeling ok, and have some energy. Once established, start addressing other issues gradually, (gut, thyroid,...
Great information, thanks! I was just reading a thyroid book where the author blames it all on EBV, even goes to say that lyme symptoms themselves are due to EBV, not Lyme.....
I removed them all, and did mercury detox. I think it helped overall with my energy but not a wow that was massive type of a improvement. if you have the budget, do it. Caramba...
hi Everyone, I hope you all had a nice Christmas! Sorry, I've been away from the board for a while. I've had my ups and downs, mostly downs but getting out of that slump. I don't seem to be making...
you have lyme. you were bitten, you had a rash, you tested positive for babs etc. I'd find an LLMD and start treating asap....
sorry to hear pmm! what abx were you taking? could this be candida flaring up? are you taking probiotics? I hope you feel better! Caramba...
ah, thanks Daisies!...
what's ANA? Anaplasmosis?...
I thought this was particularly well organized and thorough, talks about Vitamins, their roles, deficiencies and food sources. It also ties in to their relationship to mutations, MTHFR, COMT, VDR...
interesting! I was reading up on bee therapy today, and it looks like some sting on meridians (acupuncture)! if that is how it works, then location would be important and would vary person to person...
Hi jay is this for a disability (STD/LTD) type claim? do you have an attorney? Insurance companies will fight this tooth and nail. this video covers what one would face....
difficult due to overlap. maybe just start treating Bart (and lyme) and look at Symptom shift....
wellbeautifulspirit, Lyme has a way of beating us down and getting into our heads. I've been fighting this for over a decade (didn't know what it was until last year). Even knowing, I have had some...
hi GabrielleM, welcome to the Lyme forum. I wish you didn't have it, but you probably do. Please stay with us as you treat this, we are here if you have any questions or if you would like to share. I...
is it a pain or more like a sting?...
Hi Melissa! welcome to the forum! just curious, what was your IV dose of vit C?...
Hi Chris, I am confused. you are looking for an LLMD, yet you have a prescription for doxy? so who is treating you currently, your regular md? what diagnostic did he give you when he wrote the doxy...
I'd add to overall health my typical supplement/vits recommendations. Extra vitamin C Extra Vitamin D3,K2 Turmeric (pills, and/or juicing) NAC Alpha Lipoic acid (Liver health), Gluthatione, thistle...