It's interesting to hear how different everyone's protocol is. DS, a teen, hasn't used a lot of the medications mentioned in this thread. Girlie, they will go back and treat issues that crop up, so...
DS took Rifampin and mino at same time for bart....
DS had his first and only marks appear when he first started treatment for bart with antibiotics so it was treatment that brought them out....
Glad you found a doctor willing to figure it out! DS had POTs like symptoms pre-diagnosis and during the early stages of treatment. I think many do because his LLMD practice always measure BP at each...
Hi there - it's been awhile. This sounds familiar from our own story. I say Mycoplasma and it's easy to test by bloodwork. DS is postive for it once again this fall but is asymptomatic. We use mino...
I'm sorry you're still struggling. These infections take years to recover from which makes schooling difficult as you know. I would think about discussing the status of your scholarship and if you...
You're very welcome!...
Air hunger is usually babesia (chest tightness, elephant on chest, suffocating feeling) and shortness of breath is mycoplasma according to DS's LLMD/NPs and to our son's experiences with both...
Evanston- that is fantastic news! It's great you returned to update because people are always looking for info on the clinic and any successes. I'm so glad to hear that your daughter is back 100% and...
Welcome and that's nice of you to help her out. I'm mom to a teen with Lyme and while I'm only dealing with 1 sick family member, there are others here who have Lyme and have multiple kids with Lyme....
@Dahlias - had a chuckle at your hantvirus remark - a few years ago there was a ton of bat poop right outside DS's bedroom on our front porch because they love to live behind our shutters - I asked...
@Girlie - sweats/fever low grade but for DS mainly has been determined by his breathing issues. The elephant on the chest/tight band is babesia while shortness of breath is mycoplasma - we discussed...
@ Girlie - definitely save it! DS did re-treat and then at last appointment they said babesia is the one that haunts so - my take is yes, keep it at least through its expiration date. Now we never...
Hi Dahlias, Sorry to hear you've been sick with a virus. If you still have diarrhea can you push back a week on the abx and try to get past that - charcoal, probiotics etc until it passes? I agree...
DS's LLNP is using it in conjunction with another antibiotic to try and get rid of mycoplasma pneumonia along with Bart and Lyme....