By the end of the next day, I could see the light at the end of the tunnel. But (going by my bad memory) I think it took several days before I was back to normal....or should I say back to pre-herx....
Locking...
My bart herx was a high fever, pain ramped up, head hurt - scalp was sensitive to touch. My arms were jerking. Almost went to the ER. Couldn’t sleep a wink. Husband took the next day off work to stay...
Hi Nitro fusion2 - welcome to the forum. Feel free to start your own thread and introduce yourself - tell us your lyme story - if you want...
Ask your Dr for an ecg Then you will know if you have long qt...
If you email me - I can give you some llmd contacts that are in your State....
“ The email that I was sent indicated that the new patient appointment was $2-3k” Holy - that’s a lot!...
“ The reports led to an almost complete ban on its prescribing in the UK, but elsewhere around the world use of Bactrim – Septra continues unabated.“...
I’m on the Island too... half way up. I saw a ND in Victoria a couple of times. Her initials are MB. But I was seeking abx treatment and she wasn’t knowledgeable/experienced in it. The most...
Welcome to the forum! I’m a fellow BC’er. Is your Dr in Vancouver or Victoria area? I’m trying to think who Dr D is? I first treated with a LLND in Richmond - Dr EC He was the most knowledgeable and...
I believe this is a link to pages and pages of testimonies - Bactrim damage https://briandeer.com/bactrim-septra.htm ...
There’s a website with pages and pages of patient cases of SJS from Bactrim. I think the drug might be banned in Britain? Anyone know? https://briandeer.com/septrin/bactrim-effects-1.htm ...
Bactrim is linked to StevenJohnson Syndrome which comes with many symptoms. I was on it for a bit - but when I got a few lesions on my body and I couldn’t calm my fears - I told the NP at the J...
My husband is overdue for an eye exam... I will discuss with him. Thanks for the reminder. I read that berberine was good for liver health - have you seen info that it’s hard on the liver?...
I can understand that!...
Rifabutin is stronger than Rifampin - definitely worth a try....
Glad to hear you are improving! Have you thought about one of Buhners recommended herbalists? (Phone appts)...
Yes Babesia can give night sweats and air hunger - but not always. This is why Dr J treats all patients for Babesia....
Dr J’s bart/Persisters protocol included Dapsone 25 mg twice daily along with pyramethamine (50 mg) for M-F on week one of a 4 week pulsed protocol. I also took Ceftin, and Rifabutin on M/W/F Week 2...
Hi Nina, Have you had your kidney function tested prior to this one? Did you get bloodwork - and what did it show?...
Lanie - I am concerned about his kidney function. It is okay (not great) so far. (just over 60 GfR) Will his kidneys suffer even if he keeps his diabetes numbers down? I have an elderly friend (92?)...
I only had that happen to my toes that one time though and I had Bart for a long time...
When you treated pharmceutically - Babesia wasn’t thoroughly addressed. You may want to hit Babs hard....
Thanks Lanie! I am doing my best to keep him on track and cook healthy meals most of the time. Keep him away from things like pasta, white rice, white bread... He does exercise most days so that...
Your thoughts? Can they alter genetic code?...
When I was taking Quercetin - I ended up with bruised toes. I never banged them - so I blamed the Quercetin. I stopped the Quercetin. I should try it again - as I believe it was helping with what I...
Husband - still taking the Berberine...along with the Metformin. Glad he's not needing the insulin yet. He is due for a lab test for A1C....
" PTH hormone levels have gone from 147 to 336 this year during the lockdown. " PTH - as in parathyroid? That is different than thyroid. And there is surgery for parathyroid....
How do you feel on the thyroid meds you're on now? If you feel good...why change? Prior to meds - did you have symptoms? 4.3 is in the range, right?...
BTW - the Canadian lyme website - still recommends testing via Igenex or Armin Labs. http://canlyme.com/just-diagnosed/testing/ ...
If you want to get a positive, I suggest testing through Igenex. Get a Lyme Western Blot IgM and IgG . I think it costs $250. You contact Igenex, they send you a test kit. Your Dr.signs the lab req....
“ I found more and after i read this information i think you should not be worried about it, unless you have physical reactions while on normal gluten diet, bread, cakes, so many things, almost...
When my son was diagnosed with celiac disease - the test used was Anti-tissue Transglutaminase Antibody tTG If you’re wondering if you have an intolerance to gluten - that’s a good test to have done...
If it’s a side effect - it’s odd that it’s only on one leg...
Two weeks of doxy only works on acute lyme. It “cures” lyme when it hasn’t gone chronic. Most on here have chronic Lyme - and a few weeks of doxy doesn’t work....
It’s strange. No itching or burning. Never knew it was there until I took my pants off. Only on one leg. They are still there now - haven’t changed a bit. Did I mention it’s strange??? Lol...
Autonomic Response Testing Isn’t it where they give you a vial of a substance and you test to see if it’s a match for you. It’s a muscle test - the practioner has you hold the vial and pushes on your...
Thanks WbF That’s what I’m hoping for....
I decided to take Diflucan for 2 days Tuesday : 200 mg x 1 (evening dose) Wednesday: 100 mg x 2 (100 mg am and 100 mg pm) Today I come home from work and I have red dots on my left leg - front - from...
So the dose of Rifampin is 300 mg twice daily or 600 mg once daily. When I started it with my LLND - I got empty capsules and filled them to approximately half full. So, I started with 150 mg. Also,...
Good to know your lyme symptoms didn’t flare after the vaccine. Thanks for sharing that with us...
Sorry to hear how defeated you are! “ If I continued with the antibiotics I know that I will be far, far worse off for it. I'll probably be crippled even worse than I am.“ What was your schedule for...
“ If you had over 100 tick bites would you simply ignore it? What would you do or think if it was you? I have a hard time knowing what to think about it. They say I have had an infection and that it...
I found Rifampin “milder” than rifabutin. I had treated bart with Rifampin and then over a year later treated with Rifabutin and I had a fever for the first time - a fever is a common herx symptom. I...
I have had issues with my upper back/shoulder/arm on the left side. Those were my first Lyme and CO’s symptoms. And although I ended up with many many body/head/brain symptoms - one of my last to...
For me it has been the opposite - no colds/flus since lyme...
We have members here who are self treating as well. The drs you saw - were they lyme literate?...
Hi Gloria, welcome to the forum! You are not alone - we are here to support each other, share our experiences and knowledge. So do you have a lyme literate dr to treat you?...
Yay - negative!...
This is internal - right? Not a cream that you put on the skin?...