When my son was diagnosed with celiac disease - the test used was Anti-tissue Transglutaminase Antibody tTG If you’re wondering if you have an intolerance to gluten - that’s a good test to have done...
If it’s a side effect - it’s odd that it’s only on one leg...
Two weeks of doxy only works on acute lyme. It “cures” lyme when it hasn’t gone chronic. Most on here have chronic Lyme - and a few weeks of doxy doesn’t work....
It’s strange. No itching or burning. Never knew it was there until I took my pants off. Only on one leg. They are still there now - haven’t changed a bit. Did I mention it’s strange??? Lol...
Autonomic Response Testing Isn’t it where they give you a vial of a substance and you test to see if it’s a match for you. It’s a muscle test - the practioner has you hold the vial and pushes on your...
Thanks WbF That’s what I’m hoping for....
I decided to take Diflucan for 2 days Tuesday : 200 mg x 1 (evening dose) Wednesday: 100 mg x 2 (100 mg am and 100 mg pm) Today I come home from work and I have red dots on my left leg - front - from...
So the dose of Rifampin is 300 mg twice daily or 600 mg once daily. When I started it with my LLND - I got empty capsules and filled them to approximately half full. So, I started with 150 mg. Also,...
Good to know your lyme symptoms didn’t flare after the vaccine. Thanks for sharing that with us...
Sorry to hear how defeated you are! “ If I continued with the antibiotics I know that I will be far, far worse off for it. I'll probably be crippled even worse than I am.“ What was your schedule for...
“ If you had over 100 tick bites would you simply ignore it? What would you do or think if it was you? I have a hard time knowing what to think about it. They say I have had an infection and that it...
I found Rifampin “milder” than rifabutin. I had treated bart with Rifampin and then over a year later treated with Rifabutin and I had a fever for the first time - a fever is a common herx symptom. I...
I have had issues with my upper back/shoulder/arm on the left side. Those were my first Lyme and CO’s symptoms. And although I ended up with many many body/head/brain symptoms - one of my last to...
For me it has been the opposite - no colds/flus since lyme...
We have members here who are self treating as well. The drs you saw - were they lyme literate?...
Hi Gloria, welcome to the forum! You are not alone - we are here to support each other, share our experiences and knowledge. So do you have a lyme literate dr to treat you?...
Yay - negative!...
This is internal - right? Not a cream that you put on the skin?...
... now you got me interested in it. Maybe it would work on my shoulder blade/upper back...
I use both tap water filtered with a Brita and also some bottled water. Our water tastes really good I believe ours is treated with chlorine and ultraviolet...
My husband got a text saying his test was negative. Still waiting for mine...
Cryptolepis has anti bacterial properties. If you have Lyme/bart it can cause a herx. A herx can be an uptick in current symptoms and also cause new symptoms to appear....
Hi han - welcome to the forum. Yes! Definitely look into Lyme/Bartonella/Pans/Pandas. You will need to seek out a lyme literate Dr for diagnosis and treatment....
Welcome to the forum! “ End of August 2020: got bitten by tick (firs one at age 27); my girlfriend removed it and I had no symptoms like bull's eye/erythema migrans or anything. “ If you had treated...
I do take vitamin C and Vit D but in hindsight I should have loaded up on them....
Getting the test in a few minutes - our son figured we should based on what he thinks is symptoms - hubby and I were visiting him last night and not feeling too good It’s the oral swish test Edit: I...
Happy Easter running wild and WbF! We did get to spend today with our son - who lives a 3 1/2 hour drive away. We had only seen him twice in the last year... and we decided it was a mental wellness...
It still happens to me too - it as often as it used to tho....
I see Dr J and he doesn’t cost that much - not even close . I’m thinking maybe that is the cost for IV abx if insurance doesn’t cover?...
They not going to die so whats the fuss? Protect the high risk. How hard is that?[/quote] ////////////////////////////////////////////// “ marked increases in hospitalizations and deaths among B.C....
Here in BC the 20-39 year olds are ignoring the rules and we are seeing spikes in that age group...
It doesn’t sound like DrJ to me...
WbF - I’m so sorry to read about your desperate situation.. I wish there was something I could do to make a difference... Have you thought about a gofundme page? I know it would be a difficult thing...
His email is listed now...
Doesn’t hurt to try the testing that is covered with your insurance - But if it’s negative - continue with the testing by Igenex or Armin Labs...
IgM means newer infection or an older infection that is active. I was IgM + after having symptoms for over 14 months. A true LLMD or LLND will know that...
So our PHO just announced that they have paused administering the Astrazenica to younger people - they were scheduled to start today - (Due to low risk of blood clots )...
You can’t private message - but you can email if the member has their email listed. Click on their forum name and it takes you to their profile...
There’s a lot of overlap of symptoms with these infections .. so it’s difficult to determine what infection causing them. For me the pulsatile tinnitus was abated with Bartonella treatment. I don’t...
Thank you Girlie for your alert. Just curious, did Dr. J ever spoke to you about ivermectin? i wonder what he thinks about it.[/quote] /////////////////////////// No he didn’t - last time I talked...
I had that as a symptom of Lyme and CO’s but not from a particular med....
Thanks Dude for posting this. The betterhealthguy’s information is thorough. I like his recommended choices....
Thanks for all that info dcd2103. “He also recommended a "stellate ganglion block". I had posted about this before as an option. I'm going to try it. Basically it's a nerve block used on the...
Welcome to the forum, Biking16 We have several members who can answer your question. WalkingByFaith is one who can give you some info and answer questions. I’m sure she will be on here to post -...
My LLMD said not to get it either. Are you scheduled for a booster?...
Did you recently get a tick bite? Or is this chronic Lyme and you’ve had symptoms for awhile? If you’ve had lyme awhile - ie chronic infection - then you could get the 2nd vaccine and hold off the...
This ^^^^ Keep the debate to the one thread....
Interesting - they make a nerve pain cream with Capsaicin as the main ingredient. My husband bought some several years ago and it did work - but he had to reapply it often It didn’t initially flare...
disillusioned - Sorry you are having a tough time - I get it... I haven’t been at this as long as you ... but my 6 (or is it 7 ?) years at this has been brutal. I am finally feeling like I can lead a...
I have (as you know... ; ) have been taking antibiotics for awhile... Certain antibiotics can stain. My teeth are not discolored now. When I was taking minocycline daily, I did have a bluish/grey...