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acarined

HealingWell Forum
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Member Profile
Display Name
acarined
Profile Created
7/18/2015 1:21 PM
Last Seen
3/10/2021 8:13 PM
Total Posts
422

Last 50 Posts

Low ferritin

I wouldn't be concerned, this isn't uncommon with Lyme. Low ferritin can be a cause of restless leg syndrome, if you have symptoms ask about supplementing iron....

2/18/2021 7:18 PM

Lyme Disease
Doctor Says Stomach Acid Levels Normal But Reflux Symptoms

Nexium and Zantac are mast cell stabilizers....

2/11/2021 9:50 PM

Lyme Disease
Nasal staph flare.

The Augmentin did nothing, I switched to clindamycin and that helped. I think my case is mycoplasma and not staph....

2/6/2021 7:23 PM

Lyme Disease
Mitochondrial Support Breakthrough

He came up with the protocol on his own, from what I gather. That forum has many novice medical scientists who go so far as to contract labs to produce investigational drugs. As far as a name, I...

2/6/2021 7:21 PM

Lyme Disease
Mitochondrial Support Breakthrough

I'm not an expert on the topic, from what I've read antioxidants are not going to cause fusion on their own, they have more of a supportive role. Their use depends on your levels of oxidative stress,...

2/6/2021 11:05 AM

Lyme Disease
Nasal staph flare.

I have one of those myself for the first time ever, what an odd coincidence. I'm taking Augmentin and using mupirocin ointment....

2/5/2021 8:42 PM

Lyme Disease
Mitochondrial Support Breakthrough

I will certainly update with time, I usually give a protocol three months. One of my symptoms of mitochondrial dysfunction was post-exertional malaise, it's common with CFS, what I didn't have was...

2/5/2021 6:00 PM

Lyme Disease
HELP - My Gut is Dying (Update)

I took digestive enzymes and ox bile when my food wasn't fully digesting, it made a big difference....

2/5/2021 8:20 AM

Lyme Disease
Mitochondrial Support Breakthrough

Mitochondria power our cells, when they aren't functioning well, the immune system suffers. They have the ability to renew themselves through processes termed mitochondrial dynamics, but this renewal...

2/5/2021 7:54 AM

Lyme Disease
Decades with Lyme, now floxed and getting worse

These antibiotics damage the mitochondria, which leads to rapid aging and worsening of any existing conditions. There is a protocol to help them recover, I've found it difficult as it causes...

1/27/2021 10:01 PM

Lyme Disease
Decades with Lyme, now floxed and getting worse

Fluoroquinolones are poison. I took a chance with Cipro, trusting that if my doctor was using it, the controversy must be exaggerated. The hell of toxicity is real, these drugs should only be used...

1/26/2021 7:31 PM

Lyme Disease
Sulfur Intolerance Experiences?

N-acetyl-glucosamine improved my sulphur intolerance, it helps to heal the gut, zinc carnosine is another supplement for that purpose. The Nutramedix Sparga tincture and molybdenum made another...

1/12/2021 6:48 PM

Lyme Disease
Seeking LLMDs in Los Angeles

I'm looking for LLMDs willing to treat by symptoms, with something like the Jemsek protocol, covering Lyme, Babesia, and Bartonella without reliance on testing. B. duncani is IND, Bartonella is...

12/25/2020 12:31 PM

Lyme Disease
Anyone try memantine for Lyme?

I've taken it, I had improvement but also muscle aches and insomnia. Huperzine A worked just as well with fewer side effects. Be aware that it will take a few days for your body to adjust to the dose....

6/29/2020 11:08 AM

Lyme Disease
Cipro/Levaquin, anyone have experiences with these for Bart?

Why can't you take rifampin, what about rifabutin? If it was a herx, fluoroquinolones are going to hit like a sledgehammer....

1/27/2020 8:33 PM

Lyme Disease
Anyone treating with Disulfiram and Methylene blue at the same time?

The risk of hypertensive crisis with MAOIs is negligible, tyramine is not commonly found in most foods these days unless they are fermented....

1/13/2020 10:47 AM

Lyme Disease
Growing Japanese Knotweed / Fallopia japonica

You should carefully consider how destructive this plant can be: https://slate.com/technology/2019/05/japanese-knotweed-invasive-plants.html ...

1/5/2020 8:40 PM

Lyme Disease
Cipro and Tendinitis

I have had significant improvements in the two weeks (6 doses) I took it. The nurse said it was up to me, I wish I could make a more informed decision, I just don't know what the cost-benefit is to...

12/20/2019 9:59 PM

Lyme Disease
Cipro and Tendinitis

I'm on the Dr. J protocol and have developed tendinitis during the first off week after introducing Cipro, mostly in my heels. There's also been some in my shoulders. It improves with rest and...

12/20/2019 6:25 PM

Lyme Disease
Reoccurring sore throat

The sore throat could be either. You could add Enula for babs....

12/17/2019 3:38 PM

Lyme Disease
bartonella and itchiness?

Last I heard, seberg was using a combination of Zyrtec, Zantac, Singulair, and ketotifen....

12/9/2019 4:17 PM

Lyme Disease
Taxed adrenals? What to do?

I have adrenal fatigue, it hasn't prevented me from doing an aggressive protocol. I stopped taking Cytomel and Synthroid because my adrenals couldn't keep up with demand, it led to an overall...

12/9/2019 4:07 PM

Lyme Disease
Awful reaction to Flagyl this week

I'm also on the Dr. J protocol and get a herx from Flagyl each time I take it....

12/9/2019 4:02 PM

Lyme Disease
After 1 year of full protocol, my LLMD admits she failed me

Cortisol levels in the normal range can represent dysfunction if they should be elevated. Adrenal fatigue is one of those grey areas that most doctors don't want to treat, and it's difficult to test...

10/9/2019 3:43 PM

Lyme Disease
After 1 year of full protocol, my LLMD admits she failed me

Admitting failure is a good thing, once a doctor deviates from their protocol (what they know) it turns into experimentation with an even lower chance of success. What's your adrenal function like,...

10/6/2019 2:30 PM

Lyme Disease
Does Dr J do immunotherapy?

There was a lot of research on extended fasting in the USSR, it can improve asthma and other autoimmune conditions, just be careful and do it with medical supervision if possible. I myself had...

10/6/2019 1:14 PM

Lyme Disease
Migrating joint pain on Bactrim

A year later and this may have finally been explained, I stopped all herbs and the flareup hasn't recurred at doses up to 800-160. I was primarily taking knotweed, cat's claw, and andrographis, also...

9/11/2019 6:27 PM

Lyme Disease
Desperately looking for answers. Any help would be appreciated.

There have been biomarkers discovered in CFS/ME, namely red blood cell rigidity and a lack of cellular energy. They have constant fatigue that gets much worse with any form of exertion, and require...

7/15/2019 10:49 AM

Lyme Disease
Desperately looking for answers. Any help would be appreciated.

How do you respond to CoQ10? Your post-exertional symptoms are more like CFS/ME. Have you had a brain scan? A qEEG is relatively cheap, mine showed abnormal results in the same regions that a much...

7/14/2019 2:05 PM

Lyme Disease
BORRELIA MIYAMOTOI

There are tests for B. miyamotoi....

7/14/2019 12:47 PM

Lyme Disease
Dad bit by a tick in VA

Tick testing is almost 100% reliable, and a lot cheaper than medical care, it's too bad more people aren't aware of the option....

6/11/2019 6:02 PM

Lyme Disease
DHEA Herx

I took 25mg DHEA and had a herx within hours, the symptoms had only happened before with antibiotics. There's good evidence that DHEA boosts the immune system, especially in people with low levels....

6/10/2019 9:01 AM

Lyme Disease
TRT

Take a look here to learn about how to manage TRT. You will need hCG to protect the testes from atrophy if you are going to be on TRT indefinitely, otherwise you will become infertile. Your estrogen...

6/9/2019 4:55 PM

Lyme Disease
Lyme OR Lupus?

Anecdotally, I see more ANAs with Bart than Lyme....

6/1/2019 3:04 PM

Lyme Disease
21yo lost with Lyme. Please help

All you need is a better doctor. I was undiagnosed for a decade with serious symptoms, it only took four months of treatment for me to see significant improvements. Your body will heal once the...

5/23/2019 7:39 PM

Lyme Disease
Mattress!

I buy cheap firm mattresses, then cover them with a 6" latex topper. This makes it painless to throw out the mattress after 2-3 years....

5/23/2019 8:00 AM

Lyme Disease
Can you get Lyme twice?

You are the first Lyme patient I've encountered who isn't very concerned about bites, most of us react to them like being stuck by a used syringe. Alpha-gal allergy is another risk, even if you...

5/21/2019 6:26 PM

Lyme Disease
Doing Too Much

People in the CFS community use fitness trackers like Fitbit to keep records of their movement. I've never needed that much precision, my limit is predictable and I stay under it....

5/18/2019 5:25 PM

Lyme Disease
What should I do?

Oregano oil cleared up my candida, I use it topically and internally. NOW has an enteric coated oregano capsule that won't burn the stomach, though it can cause nausea regardless. For skin, I mix a...

5/18/2019 5:21 PM

Lyme Disease
Advice Needed for Husband, Please

He should call his doctor about it, that could be a Bactrim side effect....

5/18/2019 5:04 PM

Lyme Disease
Can you get Lyme twice?

You can be reinfected, you can also relapse. You should not find ticks on you at all, start using permethrin and DEET. There is pretreated clothing....

5/18/2019 9:29 AM

Lyme Disease
Deepening Depression, Pain Unable to Shake

I have duncani, it causes serious depression sometimes when treating. I just wait it out when it happens, keep to routines and try to focus on the present....

5/10/2019 2:25 PM

Lyme Disease
Dissociative symptoms from Japanese Knotweed?

I've never heard of that, did you have any other symptoms?...

5/6/2019 1:30 PM

Lyme Disease
Only IgM positive for years? Are they false positives?

People get too invested in testing. I am completely negative for bart, I've been tested many times including PCR and antibodies. It happens to be my worst infection. I've never been positive for...

5/2/2019 7:39 PM

Lyme Disease
LDN Herx

LDN gave me neuropathy but no other symptoms. Do you have CFS with Lyme? People with it often report crashes after activity....

4/28/2019 7:44 PM

Lyme Disease
Pharmacy/Chemistry question about Imitrex (sumatriptan) for migraines

Vasoconstriction can relieve a headache caused by vasodilation. Most of my migraine triggers are vasodilators, too much zinc is the only exception I can think of at the moment....

4/27/2019 8:14 PM

Lyme Disease
Estimation of cumulative number of chronic Lyme disease cases in the US, 2016 and 2020

This is assuming the estimates of cases are correct, and that only 10-20% have persistent symptoms. Those figures could easily double....

4/27/2019 8:04 PM

Lyme Disease
Prescription Pain Cream....

I would slowly work up to the full dose then taper off if it is causing too much impairment....

4/27/2019 11:00 AM

Lyme Disease
Have an Appt at Robinhood in Winston Salem. I have Chronic Lyme

Few insurers will cover IV treatment beyond the CDC/IDSA recommendation, you can always ask....

4/22/2019 7:23 PM

Lyme Disease
Muscle pain flare after copper

I'm going to experiment with raising my zinc levels...this shouldn't be so complicated. Edit: I just completed going over several years of labs, I made a spreadsheet with my copper:zinc ratio. It was...

Yesterday 7:10 PM

Lyme Disease
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