You can apply tea tree essential oil mixed w/lavendar essential oil several times daily on the bite mark! It really worked on mine back in July 2015! I hope you can get in to see an LLMD, or LLND!...
Oh, wow ANOTHER BAD day today ...ive been readig about Guallain-Barr syndrome> I HOPE thats not what's happening, am SCARED S---less!!! Regarding the thyroid meds...YES Im on those. Ive also read...
Ive been mostly fine on the rifampin until I upped the dose, from 1 300mg capsule daily to two. The fatigue, pain, & energy is far worse!!! This has happened to me with EVERY abx Ive tried. Im fine...
YES, I agree with Deejavu...detox, cetox, detox... Something else to consider getting a blood test for MSH, the melanocyte stimulating hormone; to see if the infections has damaged the...
I wonder if youre not detoxing well? You're on 3 types of antibacs; therefore killing off ALOT! What do you do for detox? Have you been tested for viral load of human herpes viruses? Ive been having...
Hey, I've focused my research on the combination of mycoplasmas and reactivation of HHV6. IF you have reactivation of ANY of the human herpes viruses such as the one that causes the childhood illness...
Oh my GOSH...that happened to my dad last year. He'd left the propane knob turned to 'on', on his cooktop. We thought he was having a stroke, went to E.R, but discovered it was propane exposure. It...
Well, I had tested negative TWICE by the CDC standard when there were indeterminates. I began treatment june 2014, then tested again after 1 year treated, it was negative again. That naturalpathic...
Snow!!?? Sheesh, I live in Oregon and summer hasnt even allowed fall yet. Well, except the leaves are turning. Its been so warm. As much as I love summer, Im ready for a change. Its why I like living...
Cholestyramine worked for me>alongwith moving two years ago. My mold symptoms are gone. No more chest wheeziness, no more allergies, or shortness of breath. Air hunger>gone!!!! I also did 1month of...
I started herbal tinctures and traditional chinese herbs June 2014, and did that for 1year. I started ABX fall 2015. So, ive been treating off & on for little over FOUR years now!...
Hi, this is my 1st EVER, to use rifampin. Im still on Alinia, and temporarily ceased Doxy. Anyway, will rifampin increase leg pain, muscle pain, joint aching etc? Does it cause heartburn or bad...
I also had HSV2 before getting Lyme and co-infections. The lyme disease made me in constant HSV2 outbreak mode. Since Ive been on Alinia> NO outgreaks....well for the most part. If Im exposed to a...
Work? HOW in the world can a chronically ill person work? Oh geez.... I sleep 10-12 hours, get fatigued just fixing breakfast, taking a shower, maybe fold a load of laundry> then im Done!!! Well,...
I might need to change the title of this thread. Heres my 'soapbox'... I suspect that the chronically ill, not just Lyme, but ALS, MS, CFS, fibro, Gulf War syndrome...etc could possibly all have a...
Yah? Me too> what you said about spinning wheels, being used to feeling bad, which infections to focus on etc etc. The ups & downs drive me nuts. I could have an entirs week of being 80% better, then...
Ok, but WHAT type of magnesium? If I drank 'Calm' magnesium citrate, is it ok to also take epsom salt bath which is also magnesium? I dont really look forward to loose stools vrom too much mag-LOL!!!...
Since your friend found an LLMD who is treating him for Lyme, including IV ABX...then why not just ditch the ALS center altogether? No need to go down that trail-just my opinion!!!...
Ive been volunteering for over a year now, at a memory care nursing facility for the Elderly. They ALMOST ALL of them, ALMOST ALWAYS are being treated for HIGH ammonia. Its the leading cause of...
My LLND said the 'Calm' magnesium was fine, but its mag. Citrate and mag. Carbonate. I recieved a free sample of Dr. Mercolas magnesium L-threonate. WHAT type is this? Am having a severe leg muscle...
1st it 100%depends on WHICH mycoplasma strain, AND whether or not you have reactivation of HHV6. My LLND gave me U.V.B.I. to drive down the viral load that which acts as the ammunition for...
My LLND goes thru a pharmacy in Missouri, called Foundation Care> they act as liason between drug manufacturer and you Ins. My Ins. Covered Alinia 1st script of 2 pills daily for a month(but it...
Ive had the cold water sensation but only on calves, arms, & once on a spot on my back. That symtpom went away after treating. Im still on treatment tho....
Yes, I have discomfort AFTER aDEEP tissue massage, and YES it resulted in positive DNAconnecxions for borrellia flagella, and ehrliciosis....
The ROOT cause of mast cell activation is, tje recycling of toxins in the gut. The toxins get absorbed into the bloodstream... the toxins are byproduct of dead germs and mold toxins, and/or S.I.B.O.....
I DID have mast cell activation. Its basically what causes allergies. My mast cell activation involved a high amount of histamine being produced, then Id have a histamine overload. The ROOT cause of...
I started physical therapy this week. Two 1hr long appts. An hour roundtrip commute> so it getz me out of the house at least!!! I say "at least", because go figure my severe left neck/shoulder pain...
Well, this might be totally weird> I visit my 78yr old father in a memory care nursing home, once sometimes twice week. I stop and pick up his fave junk food and bring him treats. The people that...
Oh, i forgot to say> I had physical therapy today which included a neck message. She said "Wow, you're not joking about your crackly tendons/ligaments". She used an icy/hot lotion to massage my neck,...
Ive been using hyaleuronic acid supplement for the ligament issue. Awhile back i tried a product called FLEXNOW and it helped ALOT, but im skiddish to continue using it as its made from extract of...
YES, Ive got that deep aching that seems to originate vrom the bones, and ONLY on left side. I had been having susch severe pain, tightness, achiness in my left neck and top of shoulder/arm socket,...
My VEGF was 'in range' according to labcorps range; BUT my microbiologist LLND says the 'range' includes healthy people. My VEGF is 3885, which LLND says is HIGH for chronic illness, and I DO have...
I took Alinia for about 3 months end of last year. Im now back on it> FULLTIME(daily) w/doxy, and will begin rifampin next month. I was curious if theres any longterm use side effects ie,...
Im sorry if I've asked this before, or if there's ALREADY been a thread on this. I wuz wondering if there's any known adverse effects from longterm use? Thanks...
DNA connexions supply the instructions. Its a urine collection, not blood!...
I was MIS-diagnosed as having what is actually NOT an official disease, but a syndrome aka fibromyalgia. Just look at the meaning of it= it only describes the symptom, but doesnt refer to its...
Good question. Is there really any way of knowing w/out laboratory testing... One can speculate that its capable to binding to anything that it comes into contact with; except the 1 thing we'd WANT...
Anyone have anything on this? It seems like my Dr. Hasnt addressed this much. Im taking a HIGH dose b-complex that includes folate. I take high dose sunflower lecithin which is phosphatyl choline,...
Oh great news RE: physical therapy. I have poor R.O.M., but no weakness per se. At this point the pain is causing the ROM. But, Ill most def. Call my P.T....
Yeppers... NO L-arginine OR nuts such as almonds that are high in L-arginine. HUMAN herpes viruses include: Hsv1 & 2(herpes simplex virus) Chicken pox /shingles are caused by a human herpes virus....
Hi, Im mostly on healingwell inthe 'Lyme' category.... id like to share my story because I was MIS-diagnosed, for YEARS, that I had fibromyalgia...In fact, I currently have 2 Drs saying its...
Ive been dealing with the so-called frozen shoulder. Its excrutiating pain-at times a 9 on 1-10 scale. 1st thing in the morning I CANNOT literally move my arm. Its not just arthritis but super tight...
I had a temporary flare of CIRS, after cleaning out my dying father's 1950's mold infested rust bucket trailer that he'd been living in for years. It was late summer 2017, and it wrecked havoc on my...
Intersting thoughts on Bartonella...may I ask... Of all y'all who suspect bart for the main cause of your chronic illness; have you been tested for the HHV6 virus AND mycoplasma fermentans? I ask...
My point is whether or not there should be another title for chronic Lyme.... Ive had labs specific for mycoplasma. The mycoplasma research has been done in the IMMED lab> founded by Dr. Garth...
This is JUST my opinion that your having an unexplained illness for 2-3 years isnt necessarily considered 'late'. With that said, the question is, "HOW many years go by to consider it 'late'? I.M.O.,...
1st Id like to say, so that noone mis-interprets me; that Chronic Lyme disease IS REAL.... Ive been reading peoples experiences here, and Im hearing that 1, peeps either caugjt the illness fairly...
My level of function when i 1st started treatment, was "I was functioning"...LOL! I had symptoms that i just dealt with, but werent debilitating. Ive actually COLLECTED infections thru MANY different...
I 4got 2 mention in my previous reply that back in summer of 2016, I had been on a too-high dose of thyroid meds. I went from HYPO-thyroid to HYPER> which DOES cause a racing heartbeat. It can be...
YES, i posted a thread awhile back on what & how I use them. Im NOT for the MLM ones tho. I use this combo for restless legs and/or muscle pain at night>helichrysum, atlas cedarwood, & roman...