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1000Daisies

HealingWell Forum
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Member Profile
Display Name
1000Daisies
Profile Created
4/1/2016 1:39 PM
Last Seen
Yesterday 10:07 PM
Total Posts
3226

Last 50 Posts

Bartonella and female hormonal issues

Hi! Were you diagnosed with PCOS then?...

Yesterday 9:07 AM

Lyme Disease
Help for depression and anxiety

One of my kid's doctors is not a fan of many supplements with a lot of ingredients. He has more of a "simpler is best" approach. So, naturally, he questioned what exactly was in this supplement that...

4/16/2021 10:20 AM

Lyme Disease
Nootropics Suggestions/Experiences?

Hi Nic! It took me several months of my kid being on that supplement before I posted our experience here. And yes, he is still doing really well on it. Lately, he seemed to be struggling a bit more,...

4/16/2021 10:11 AM

Lyme Disease
OAT HELP

I personally take a multifaceted approach: diet, anti-yeast herbals/supplements (numerous ones, I've tried so many LOL), and sometimes/often pure nystatin (and possibly a pharmaceutical). I am a fan...

4/16/2021 10:02 AM

Lyme Disease
Low Dose Naltrexone (LDN)

Anybody else hear of rumblings about LDN perhaps helping to reduce the risks when you get COVID? I have found very limited information on this, but it does seem to possibly logically make sense. Just...

4/15/2021 9:07 AM

Lyme Disease
Starting herbal treatment

Unfortunately, there is not a lot of help here on this board nowadays for herbal treatments, unless perhaps it's Buhner's recommended herbs. Not a lot of people do the Beyond Balance brands here. I...

4/15/2021 9:05 AM

Lyme Disease
Anti-gliadin IgA (gluten?)

Thanks, isitlyme, for all the time and thought you put into replying. I don't have any (obvious) physical reactions when I eat gluten, and I eat a pretty low-sugar diet (I no longer crave sweets...

4/15/2021 8:57 AM

Lyme Disease
Anti-gliadin IgA (gluten?)

Thanks for the information! I don't think I have an intolerance to gluten personally. Thanks, Dude, for the resource! :)...

4/15/2021 8:54 AM

Lyme Disease
Anti-gliadin IgA (gluten?)

Thanks. I realize I'm on a lyme disease forum, but I'm really here for the "chronic illness" (and for lyme for my kids previously). I don't believe lyme is a major factor for any of our issues at...

4/15/2021 8:52 AM

Lyme Disease
OAT HELP

I believe diet to be an important factor, but I think too many of the alternative diet war gurus project an unrealistic expectation that many health issues would be resolved by diet changes alone....

4/15/2021 8:46 AM

Lyme Disease
Ultraviolet Blood Irradiation, Ozone, and Glutathione Injections

We UVLrx when it was available (they had pulled it from the market afterwards, and I'm not sure where it ended up). It was somewhat helpful for one kid during the year he did it, but it was not long...

4/15/2021 8:41 AM

Lyme Disease
psoriasis?

I don't have any advice or experience on the psoriasis. But I wanted to comment on this: I can completely sympathize with this feeling. Sometimes, it just feels like it is one thing after another......

4/15/2021 8:38 AM

Lyme Disease
Help for depression and anxiety

In my experience with me and my family, it will really vary. For one kid, HBOT was a key for him turning around his depression at the time. For another kid, this supplement (that I posted about...

4/15/2021 8:34 AM

Lyme Disease
HOCATT : Hyperthermic Ozone Carbonic Acid Transdermal Therapy

Passed out, could not be moved for an hour, vomited and heaving, severe nausea, somewhat delirious, and unable to drive. Took over 4hrs to slowly come out of it, and then still felt weak and like...

4/15/2021 7:41 AM

Lyme Disease
HOCATT : Hyperthermic Ozone Carbonic Acid Transdermal Therapy

After having a severe adverse reaction after my second HOCATT, I will not be continuing with this treatment. I definitely feel it's a "me" issue. Only two people at the clinic reacted negatively, and...

4/14/2021 4:46 PM

Lyme Disease
Methylene Blue for Bartonella

Sure, great advice by theory. But let's face it. Many of us here did ask many medical professionals over the years, only to be given poor advice, turned away, and/or failed in every sense from these...

4/12/2021 5:50 PM

Lyme Disease
Anti-gliadin IgA (gluten?)

I recently have this results as part of a larger panel. Anti-gliadin IgA = 46 (normal range 0-157) I'm not finding a lot of good information on this. I'm confused on whether any value is bad and...

4/11/2021 8:04 PM

Lyme Disease
Low Dose Naltrexone (LDN)

The roller coaster does not coincide with changing of dosages. For the most part, I don't even bother messing with the dosage. It's rather infrequent that I try to increase it this year. This year...

4/10/2021 10:15 AM

Lyme Disease
Low Dose Naltrexone (LDN)

I'm still on LDN, around 1.5mg. This year, I have had moments where I have not feel this good in as long as I remember (many, many years). Having said that, I have also been much, much worse than...

4/9/2021 7:52 AM

Lyme Disease
Severe sleep issues

Recently, I was (incorrectly) prescribed a (different) pharmaceutical medicine that is contraindicated for those with adrenal issues. Basically, it lowered my cortisol dangerously low... so low that...

4/8/2021 7:29 PM

Lyme Disease
Severe sleep issues

Forgot to mention that I also use the Apollo Neuro device (which helps with heart rate variability), which, in turn, is suppose to improve sleep as well....

4/8/2021 7:25 PM

Lyme Disease
Do you drink/use tap water?

It is beyond frustrating what this country (and world) gets away with in harming people. I'm a firm believer in protecting the air we breathe, the water we drink, and the food we eat. It is an uphill...

4/6/2021 3:45 PM

Lyme Disease
Severe sleep issues

THANK YOU to all of you who took the time to reply to my post. I appreciate it beyond words. And I'm so sorry that many of you are suffering from the same/similiar....

4/6/2021 11:02 AM

Lyme Disease
Severe sleep issues

Thanks. Yes, I already read that thread previously. I meant to circle back and reply to it, but I did not. Unfortunately, not really any new ideas for me, at this point, except for maybe TUDCA? As...

4/6/2021 10:58 AM

Lyme Disease
Severe sleep issues

^This. I think this is exactly my problem, to be honest. I feel the intense stress caused me to be in a constant fight/flight response in regards to my cortisol. This, in turn, depleted all of my...

4/6/2021 10:55 AM

Lyme Disease
Severe sleep issues

I'm still at (around) 1.5mg. Every time I tried to increase, it seemed to mess up my sleep. So, I just stayed at 1.5mg. My sleep was problematic long before starting the LDN. However, it's not a bad...

4/6/2021 10:48 AM

Lyme Disease
Severe sleep issues

I don't think it's seasonal...? The latest regression was from me pulling an all-nighter for unrelated reasons. I usually recover after a day, but I was apparently too sensitive/fragile this time...

4/6/2021 10:45 AM

Lyme Disease
Severe sleep issues

Thanks, Sandy, for your post, but I'm super sorry you are having the same issues (ugh). Have you had your hormones/cortisol tested too? If so, what were those results for you? I probably should try...

4/6/2021 10:42 AM

Lyme Disease
Severe sleep issues

I certainly don't disagree with this. However, I don't see "most" or conventional doctors obviously. Yep, I've gone down this path, as well. I am awaiting my GI test results. But who knows, I just...

4/6/2021 10:38 AM

Lyme Disease
Severe sleep issues

As a caregiver for those with chronic illnesses, I can't remove the stress. I will never abandon my loved ones. After almost losing a loved one twice last year, there really isn't anything I can do...

4/5/2021 9:26 PM

Lyme Disease
Severe sleep issues

Sure. I've been treated many times over for lyme, babesia, and bartonella over the years. None of those treatments ever made a difference in my symptoms for fatigue etc....

4/5/2021 9:19 PM

Lyme Disease
Severe sleep issues

I would really appreciate any suggestions on this. Background: About 1.5 years ago, something "switched" in me and caused severe sleep issues. I generally could fall asleep fine, but I could not stay...

4/5/2021 8:05 PM

Lyme Disease
Vaccine influences our Lyme disease - More countries suspend AstraZeneca vaccinations

In my area, COVID started decreasing before the start of vaccines here. The numbers decreased for a few months as vaccines were slowly rolled out (and yet people still wanted to claim credit for the...

3/30/2021 2:53 PM

Lyme Disease
HOCATT : Hyperthermic Ozone Carbonic Acid Transdermal Therapy

I was drenched after it, but it seemed like it was more from the steam and not actually from the sweat....

3/30/2021 2:45 PM

Lyme Disease
HOCATT : Hyperthermic Ozone Carbonic Acid Transdermal Therapy

FWIW - I tried this for the first time today, but I was just at 50% for shorter time period to reduce the risks of the rash. How did I respond? Nothing. I feel no different. Perhaps it will help me...

3/30/2021 2:42 PM

Lyme Disease
Vaccine influences our Lyme disease - More countries suspend AstraZeneca vaccinations

Same, Girlie. Despite being in a high compliance area with masks, social distancing, things shut down for far too long, lot of schools still distant learning, many people still working from home......

3/19/2021 8:02 AM

Lyme Disease
Nootropics Suggestions/Experiences?

According to the RedBull website, the sugar-free version of RedBull contains the artificial sweetener Aspartame. https://www.redbull.com/us-en/energydrink/red-bull-sugarfree-ingredients-list...

3/18/2021 9:41 PM

Lyme Disease
Vaccine influences our Lyme disease - More countries suspend AstraZeneca vaccinations

Thanks to you, too, itislyme, for the kind words. I'm sorry I'm delayed in replying, as I just don't frequent this board daily and can't keep up! Again, thank you and wishing you well! :)...

3/18/2021 6:58 PM

Lyme Disease
Vaccine influences our Lyme disease - More countries suspend AstraZeneca vaccinations

Thank you, sincerely, for your kind words. They really meant a lot to me. :) As for not always agreeing with me, that's ok... over time, I sometimes don't agree with myself either. Ha ha. Seriously...

3/18/2021 6:56 PM

Lyme Disease
Vaccine influences our Lyme disease - More countries suspend AstraZeneca vaccinations

We have over a year of data, and this data that I cited is directly from the department of health. Early on (last year), we simply didn't know much at all, so there was a lot of speculation at the...

3/18/2021 6:20 PM

Lyme Disease
Nootropics Suggestions/Experiences?

Nic - I just posted about my experience with one of the kids on a product that I used for him that made a huge difference for him (like, seriously substantial). I suggest reading that to see if that...

3/18/2021 6:09 PM

Lyme Disease
Brain support (nootropic) supplement experience and personal recommendation

As a poster here for several years, I think most of you know that I rarely ever promote a product or protocol. In fact, it's usually quite the contrary, as I usually share that blah blah blah did not...

3/18/2021 5:59 PM

Lyme Disease
Vaccine influences our Lyme disease - More countries suspend AstraZeneca vaccinations

As an analytical person, it is baffling trying to understand what is going on, based on the data that I retrieve from the government's website. For the youth and for majority of the working...

3/16/2021 10:05 PM

Lyme Disease
Fasting to Kill Infections - need advice

I've been drinking cistus tea for several weeks now. I personally find it to be rather tasteless. I usually drink about 4 cups a day or so. Sometimes I put double the tea in it. I also sometimes...

3/15/2021 9:03 PM

Lyme Disease
Buhner treatment of Babesia - How Long?

I have found that his advice for treatment of some things to be vastly under estimated. Certainly, many of us have treated for much longer than his minimal timeframes. If only it were that easy......

3/15/2021 8:52 PM

Lyme Disease
The wonderful world of peptides

One of the protein powders that I use, occasionally, has peptides in it....

3/15/2021 8:50 PM

Lyme Disease
Oatmeal - Good or Bad?

Thanks, carlnpa, for sharing your information and perspective! I am aware, and saddened, about the over use and abuse of chemicals used on our food supply. It is very discouraging to me that people...

3/15/2021 8:47 PM

Lyme Disease
UTI - ongoing issues

I am confused about your post. You say you have a UTI? But you have had repeat tests that are negative and no growth of bacteria? I realize that no test is 100% accurate. But if it's not growing...

3/12/2021 6:25 PM

Lyme Disease
UTI - ongoing issues

If you are interested in hormones, then you need to see a doctor, likely get tested, and then develop a plan based on your individual hormonal needs. I couldn't imagine treating that on your own...

3/12/2021 5:57 PM

Lyme Disease
My posts about ivermectin was deleted again, censorship and direct violation of forum rules

This is the forum rule on advertising: No advertising or links to advertising or "Spam" is permitted. 1. Advertising or spam is defined as posting a link for the purpose of selling, soliciting or...

3/10/2021 11:33 PM

Lyme Disease
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