This is great, Tickbite666! You’ve had a breakthrough !!!! ... and congrats on the job. I am so glad that I’m finally able to work again - after going off work in 2013. I feel useful again!!...
My concerns are - could the very low dose cause resistance. Is there a plan to titrate up? Maybe mention this to your Doc when you see him in a few weeks?...
Astro - here is a link to Chapelle's thread: https://www.healingwell.com/community/default.aspx?f=30&m=4170949&p=2#gsc.tab=0 ...
Welcome bart_n_babs My LLMD doesn’t seem to differentiate between the Babs strains. But he always treats Babesia first - as he feels it needs to be taken care of first. Then he switches to the...
Hi Anne - welcome to the forum! “ Yes, I have been working with my LLMD since mid September 2020 but little to almost no progress has been achieved sad This has made me wary and uncertain about her...
Astro - is that what forum member Chapelle had? She had posted I think a few months ago about shoulder issues....
So you have an appt. on Jan 18th? That's just 3 days away. Can you go to emergency if you can't - or don't want to wait - or does that cost you? (I'm in Canada, our health care is different here)...
That’s an odd dosage. Way too low It should be 200 mg twice daily (Some non LLMD’s prescribe 100 mg twice daily)...
Is Conneticut close to you? There’s a well regarded llmd there. https://stevenphillipsmd.com/ ...
Did you mean 200 mg? Not 20 mg...
Worthy of another bump!...
Are you under the care of a LLMD? Will you be adding a second antibiotic to the Biaxin? Lingering symptoms: - memory issues - pain upper left side of back, left arm and hand (this was my very first...
Because Marshall is typically associated with it.[/quote] //////////////////////// You’re referring to the Marshall protocol? (Sun avoidance and taking Olmesartan)...
Welcome to the forum, Missymoe. Are you seeing a lyme literate dr? (It sounds like you are - since you are on abx... and it includes the cyst buster (Flagyl) I am so glad you sought out treatment...
Did you get the TSH tested along with FT3 and FT4?...
I was taking biaxin with rifampin when I was treating with a LLND (prior to Dr. J) He initially had me on mino with the riffy....and after a few months on it, I asked to switch to biaxin. I started...
As a mother of someone with celiac disease - I agree about it being difficult - but it’s definitely doable....
I was on 50 mg of dapsone daily and 10 mg of leucovorin...
Sorry you can't find an affordable Doctor in California! It will be difficult on your own. A popular place to get antibiotics without a script is AllDayChemist. Note: One antibiotic at a time isn't...
Aww... thank you, MooseSafari!...
“ I also heard that this treatment does not work if you don’t clear Bart. I don’t know if I have Bart. My Dr never mentioned this. “ The Protocol I was taking under the care of Dr J that had Dapsone...
Good news!! I’m hoping my brain will fully recover - it has improved - but still have some issues....
Bump...
Bumping up for more views. Thanks for the update, multifacetedme!...
Bump How are you doing?...
I also had POTS from lyme. I can tell you that it has resolved with treating the infections. My heart rate would rise when I stood up. If I did that several times in a row, I would sometimes get...
Also - Dr J tested my G6PD level before I went on the protocol. Here’s what LLMD MR wrote about it “Check G6PD Levels Before You Start. Do not use dapsone if you have low Glucose-6-phosphate...
LLMD MR explains it: “ Dapsone Blocks Folate Metabolism. Dapsone works by blocking folate metabolism in germs, but it also blocks folate metabolism in red blood cells leading to severe anemia. To...
When I was on Dapsone (Dr J) I took 10 mg daily....
How long do you have to wait for a Dr appt? If it gets worse and/or you can’t get a dr appt - then go to emerg. Sorry you have this to worry about!...
Lol! Carry on 😆...
I'm not the one who first brought up flagging and censoring my posts, i was responding to breezy[/quote] But you said banning members “seems to be a trend these days” That was what I was referring...
dcd: “ But if the mods see fit, they can ban me. Seems to be trend these days 😂 “ You know of several members who have been banned lately? Banning of members is rare....
Trying to remember - maybe it was 1.5 mg....
“ Detoxing- she is taking binders and doing Epsom salt baths. What else could she do being stuck in the bed that would help from the die off?” - Dry brushing prior to Epsom salt baths - alka seltzer...
Wow WbF - so much knowledge you have shared!! Thank you!...
It’s difficult to determine if the symptoms are from Babs or bart or even lyme. Clyndamycin can hit both lyme and Babesia - Maybe even bart. How are you feeling after the Malarone dose?...
I did start low - but didn’t switch to morning dosing. At that time I wasn’t on the forum - it was about 5 years ago - pre diagnosis - my Dr didn’t know anything about it. I had just seen it on the...
I tried it prior to knowing I had lyme. (2013?) It didn’t help me - I’m fact I felt worse at night when I was on it....
Bananas Potatoes I had an elderly friend who had kidney issues - and was supposed to limit potassium - I remember those two were on her list. You should be able to google it...
“ Girlie: Garzie was making a comparison between "conventional" and "specialist" Lyme testing...“ Still a lot of false negatives. That’s why llmd’s and llnds do clinical disgnoses....
Please don’t be concerned about the number of strains. A LLMD or LLND will sort through it all for you...
Actually lyme is known to have false negatives - not the other way around. That is why llmd’s and llnds often do a clinically diagnosis - due to the false negatives....
“ I actually question myself like is it all in m head and if I'm crazy lol “ I know what you mean! But no we’re not crazy...
I don’t know how many strains I even have. I don’t know if it’s relevant to treatment Dr J just treats lyme - no matter the strain...
Sorry for your loss, WBF Our vet had a nice room for us to hold her while she fell “asleep” We want a new kitten - but out of respect for Pepper - we will wait awhile. We still expect to see her...
“ How many people get bitten by a tick and are able to fight it off? The super-majority. ” Bitten by a tick that has lyme? I highly doubt the majority can fight it off without some weeks of treatment...
Sorry you’re going through a difficult time! It’s especially hard when it’s the Xmas season. A few weeks ago we had to have our elderly (17 years old) kitty put down... as time goes on, the hurt in...
I did try ginkgo - but that was many years ago... good to know it’s helped you!...
Aren’t you under the care of a LLMD? Have you not been diagnosed with lyme and coinfections? It is very hard to stay optimistic with this disease. It is such a long drawn out treatment... and it can...