Our story, astroman, must be a standard for gastros when he or she doesn't know really what is going on, like in the case of Lyme. I had forgotten the gastro told me I must have too much stomach acid...
All the above comments are very interesting. There are so many views and different thoughts on reflux, or what feels like reflux. It is an area that really throws me as I have had what feels like...
Wishing you and everyone else a Christmas miracle (or at minimum and push) toward better health. The years blur together, but each day brings and new challenge, but also new hope. Best to you, and...
So great to read your post. It's easy to get into a Christmas funk with just life, much less Lyme. But to see you are feeling more again about what this season is really about. You are a great asset...
maracas - I didn't realize you were new until Girlie mentioned it, so welcome. I'm glad you are doing better and wish you continued improvement. Has it been a long time since all this started for you?...
Hey marcas - How is your treatment going and how do you feel overall now? And thanks for the response. I'm guessing it will go away if I do the right treatment and my hands get warmer. Glad it did...
As some have suggested, maybe go very slow with JK. I'm one of those who could not handle it, even at low doses. I've read for years it can help stomach issues, but it did the opposite for me. Now...
One of my daughters insisted I go to see someone to make sure it is not an infection, which I didn't think it was,,,, and it wasn't. But I appreciate her. Add one more to the list of symptoms doctors...
The finger next my my little finger on left hand has turned purpulish red. It runs from just below middle knuckle to near fingernail, but the finger nail is not purple. Doesn't seem to be Raynaud's....
When I trued fasting even for one day, it was a struggle to get through. Became lightheaded, bad mood, weak feeling. This was a couple of years ago. But I do remember reading supplementing with...
Sorry to hear you are feeling bad, WBF. You have gone through so much. The mixed herbs are always a problem for me as some help and some cause problems. It's always a trial by error or guessing game....
Until I realized my kidney numbers had dropped (that was 2.5 years ago, but they had been low for 5 by then) I never realized how much salt we take in each day and how much salt is in different...
To all of my friends of the Healing Well Lyme Disease Forum: Happy Thanksgiving, even if you live outside the U.S. And all of you are my friends....
There is so much about treatment and diet, but diet seems to take a back seat to actual meds or herbs. Diet is CRITICAL, as I've learned. I get off a decent diet, no telling what symptoms are going...
Sorry to read symptoms getting so much worse. Questions - Is the pain stinging? Also, do your hands and feet get cold, along with the numbness? Is there a reason you have not restarted hottuynia and...
Never had fevers in morning. That might differentiate between what each of us actually has/had. saraeli - Have you had a EBV DNA test run? I may have asked you that in the past. According to a couple...
Like everything else, it all gets mixed together with no direct answer. I am going to call the new cardiologist that will begin seeing, but the appointment is not until next week, and with...
That's what I thought. No doctor or naturopath could answer that question. The fever I experienced was sometimes as low as 98.8, but my usual body temperature is usually around 98.0 - 98.2, so I...
USS - I had similar low grade fevers, always in the afternoon or early evening, for about two years. I was also diagnosed with EBV and attributed it to that, but now I'm not quite sure why they were...
Thanks, saraeli. My result was 312. The doctor didn't mention it then I asked the nurse, who said I need to go to the cardiologist as soon as I can get appointment. Then I read kidney disfunction can...
Astroman - Early on, I went through the same thing with a doctor, who put me on prednisone (which made me crazy) and led to bigger problems. That was years before Lyme diagnosis. Sorry about your...
If so, can treating Lyme stop the heart problems?...
Aerose - Good idea, but that is where the kidney aspect comes in. I know yesterday the food I consumed had too much salt, and for only the second time, I had mild swelling in my ankles, feet. Then...
Could some of the symptoms be worse because of a milder form of herx? And how are things today?...
dcd has a lot of god thoughts in his post. Also, if you do decide to see a rheumatologist, the most accurate for autoimmune indicators is the Avise test, and it might also be helpful to have your C3...
dcd - It makes sense about the change causing headaches. Body adapting with Lyme included makes it tough. There are so many things I COULD to if it weren't for the kidneys issue, such as hamburger,...
That is what throws me - there seems to be no answer to the stiff neck and migraines. That leads me to believe there is also something else at play, like autoimmune or kidneys. But I am glad to see...
On one hand, I wish I, nor anyone else, didn't have the need to have ever come to this forum in the first place :). BUT, with reality as it is, one would be hard pressed to find a better group of...
First and foremost - Very glad to see you are feeling better as your search has been long and extensive. Your deep thinking and willingness to continue searching for answers has gotten you here. The...
Thanks, mareish. I had not heard of that and will check with doctor. I'll also make sure it is still good on kidneys. Do you ever still get headaches/stiff neck?...
mareish - I remember why I stopped Doxy before. The last couple of days I have taken 100 mg or less (open it and lower dose) so I could ramp up. My stomach has been very unhappy since yesterday...
I do use the contact mode, it's just hard to figure out which frequencies to use. There are so many to choose from. I'm going to try and use kidney cleansing mode and also one for the strand of...
Your mentioning the "unbearable headaches and neck pain." That matches exactly what I feel. They always happen in late afternoon or early evening. I can knock it out with Excedrin Migraine, but...
mareish - I also read it is more common in California but is now becoming more widespread. What treatment were you placed on and did it help you? The thought by doctors, with today's travel and...
God to see all your responses/thoughts/information on Borrelia Miyamotoi . I also searched this site and found a lot of old posts on it. This is what is confusing: When I first had symptoms many...
A third blood test test I took about a month ago came back positive for a form of Borrelia I had never seen - Borrelia Miyamotoi. It, apparently, is related to the relapsing fever form of Borrelia,...
saraeli - It is the concept of it that makes it hard for me to understand. My mom was a chemist then taught chemistry and physics. My worst subjects in high school were chemistry and physics. Math...
I had not heard of an instant pot. What is that, if you don't mind me inquiring? Garzie - Like you mention, three are plenty of people using them (and having success). And with me, it's not lack of...
That could explain a lot and really adds to the confusion. Have had many autoimmune tests that were all negative, except a weak C4 low score, which has normalized. Yet, there are many symptoms of...
At this point, after months of trying to figure it all out, my inability to utilize the Spooky2 Gen X has me frustrated and irritated. It;'s not that I'm THAT ignorant with machines (though not the...
If it works, that is great news, and any hope is good. The problem with the treatment mentioned, at least for people such as myself and some others who have posted on here, is the intensity of it. I...
He helped me once before when I got about 85% better. And I got the same feeling from him - not trying to just sell herbs or other items. Sorry I don't have any other LLMDs to help with....
Amber - If you click on my name, it will bring up my email. Feel free to email me for doctor's name and location as we don't post them on the forum....
Is Jameston near Nashville/Cool Springs?...
Resutlts of Epstein Barr blood tests have me completely thrown. There seems to be conflicting information on what the results mean. For example, I have had high VCA IgG, VCA IgM, and EBNA IG for at...
Hellmansbiz - So many totally understand your situation and tough decisions to make. Sorry you have been sick so long and same about your son. It's all a gamble when we treat or how we treat. And WBF...
Hellmansbiz - In answering the questions you have, I'll be straight forward and to the point: Would you do it again? The only answer is to say I have no regrets for trying it. That decision is one...
My divorce years ago cost me a lot of money, and it Lyme had a direct impact on that. Does that count as a cost of Lyme :)? But after so many years with Lyme, I can honestly estimate the medical...
I tried to download the picture I took of bum on my thumb. It doesn't come out well, and it kept loading upside down. It is just to the side of middle joint and is not extremely hard. Have no idea...
Hellmansbiz - I felt better after going to Biologix and had two good weeks there. The doctors and staff were very caring and helpful. They continue to be as my doctor has followed up several times...