hey daisies, no they didnt list the strains. I think S. Boulardii will help w/ both candida and bacterial problems? It's a yeast but a commensal one?...
Good call k07. I’m seeing saccromyces boulardi mentioned as a possible treatment. This seems like the most holistic option. Reading patients stories of blasto, their GI symtoms are exactly what I...
Thanks k07! So I know I have SIBO, some yeast, and this protozoa. Basically a dysbiotic gut all around. I think the blastocystis or some other pathogenic infection wreaked havoc on my gut in CR,...
Just got my results back from parawellness Urine: No ova, parasites or yeast identified Stool: Blastocystis hominis - rare amount Yeast - few The notes say that if "few" yeast are making it into the...
Ah you only stopped for 2 weeks, wouldn’t think that would do it. I know what you mean, the second I can’t sleep I stop! I saw that Neil Nathan thinks 200mcg is more than enough. Thing is, I...
After reading the book Breath by James Nestor, I’ve been taping my mouth. No more dry mouth and unrefreshing, interrupted sleep due to mouth breathing all night. A game-changer. Would highly...
Very well possible. How long did you stop for? It’s also possible that your brain got used to the low level of neurotransmitters when you stopped, and had a hard time re-adjusting when you ramped...
Astro good tip, any brand liquid DMSO you'd recommend?...
I've had this problem as well. I'm double 677T + slow COMT. I cant handle any methyfolate at all, not even 1 mcg, or i get extremely agitated. I was told to just fight through this until it gets...
Thanks 1000daisies. I will fast before tomorrow's infusion. I was having the BEST day! 0 buzzing, 0 pain. Maybe first day I've been completely symptom free since this began almost 2y ago. But today...
hahaha re: sketchy dudes! thank you saraeli :)...
Thank you for this garzie. I'm trying to get the Genova labs OAT test run, will be on the look out for the quinolinic acid marker! theanine i've tried, but i will look into pasque flower, thanks again...
Thank you girlie! i did not know about the ketamine comas. very interesting. If that would cure me I'd def try it! I did 100mg over 4 hrs, which sounds similar to the first low dose protocol they...
Infusion wasn't too bad. Pretty relaxing. No psychedelic effects really, just got sleepy. I feel quite nauseous afterwards tho. My nerves feel great. Much calmer and the buzzing has stopped. I can...
Hey astro...yea in general I've been feeling much better. I've got the inflammation way down and much better under control. I do not want to pretend like I'm healed though. Nerves are tough...once...
Sure pots. Basically I had been noticing that even as my numbess and pain was getting better, that I’d still get this buzzing sensation. I started to speculate that this sensation was almost separate...
First infusion today! will report back on any effects, good or bad. Apparently it can take 6 infusions to have a neuro-plastic effects. I'm hoping it can modulate this "gain of function...
Yea i would say dont increase until the pain goes away. It sounds like some people actually fare better at lower doses and going up just makes things worse. Just gotta find your level that works for...
Curious how long it takes to pass as well. This is what happened to me and i stopped, because at the time I didnt know what was happening. It's not a herx, it's your opioid receptors being turned...
Good history there. That’s good you’re getting back on the IVIG. It’s really too soon to say if it’s helping at this point, 1 infusion is nothing. It takes 4-5 to reach a steady state. You eat a...
Hey there my friend, I'm sorry youre struggling so much. It mgiht be helpful to know your full history and what you've tried, but I have a few thoughts regardless. There's been a spirited debate on...
No worries buddy. I see your point. Prob the truth is it’s in between, a continuum o...
lol “idiotic”. You can find a 12 person study saying whatever you want...
Hey pots, these are both very interesting and on point for this discussion, still reading through them but wanted to thank you for posting!...
Hey CalmLittleBudda, I thought that you might find this page useful. talks all about excitatory glutamate problems:...
Right, and like Dr K says, "we all have exposure". You cant grow up in the north east especially and not have exposure, its everywhere. But only some people react. So if everyone has exposure (i'd...
Garzie was curious how high your Ana is?...
Ding ding, and we have a winner!! that sounds like a great recommendation!!!!...
Very interesting about your bloodwork garzie. Will address that later. Wrt "true autoimmune disease", I've wrestled with this concept before. Certainly there are people who seem to develop "true...
Dr Khosro Farhad is a neurologist at Mass General based out of NH, specializing in peripheral neuropathies and dysautonomia. As such, I'd imagine he's seen a fair number of mast cell cases. He uses...
I've never been comfortable with herxing as a diagnostic.. not sure exactly why. I just think there are too many complicating factors.[/quote] EXACTLY. Dr K told me that a true herx involves fever...
Very interesting. The MHC is responsible for shifting through the protein chains and deciding what to go after. APCs (b cells, dendritic cells, macrophages) ingest foreign cells and present their...
Interesting, thank you for sharing this Garzie. These are really strange results and I'm not sure what to make of it, but we can learn a lot. You had dysbiosis you think, yet no SIBO it appears. So...
Pretty simple actually. Some people have the HLA genotype for CIRS. Others have very specific genotypes for specific diseases. The disease w/ the high predictability is actually ankloysing...
fair enough. i'm not sure what to call it then though... i would also add that by ignoring that nomenclature, you're lumping all long term lyme into the "chronic lyme" category, and since most people...
Great idea for a post! Yours definitely seems to be a post-treatment autoinflammatory type. Lots of these autoimmune neurolgoical symptoms, and treatment hasnt helped. I think address other sources...
After my being attacked yesterday once again for my post from a year ago on post treatment lyme being autoimmune, I wanted to address this again. I think that we've all agreed that we broach this...
Sounds like you may have pots as well. I personally do not like herbs anymore. I find they often activate the immune system, and a lot of your symptoms sound inflammatory/immune mediated. How intense...
Thanks garzie. Very detailed analysis, and i agree with pretty much all of it. It's definitely a multi-faceted issue. For me, there's likely some sort of a homeostatic feedback loop that breaks down....
10mg of methylfolate is a lot. Some people can handle it, but many can not. If he’s giving that to everyone I’d question it. Neil Nathan claims that when he did a study all it took was 200mcg to...
Methyl and andenosyl-cobalamin both are activated forms of b12, but are used in two different processes. Adenosyl is used in the mitochondrial energy pathways I believe. Maybe thats why you feel...
Hey garzie. Fiber intake has been much lower. Fodmaps as well. My GI and my functional medicine dr both told me that my SIBO was probably caused by my autonomic neuropathy. Have seen this...
Thought this was interesting. Top are my SIBO breath test results from 2019, not long before developing neuropathy. The bottom are my SIBO breath test results from December 2020, 3m after starting...
That's a great quote dude, going to steal that one from you! I agree, I think that we should move on. Hopefully people can take my word for it, that I am not here to purposely or intentionally...
Sorry, this isnt factual. What is factual is that someone wrote that they were having neuropathy. I tried my best to explain to the person that they may be having small fiber neuropathy and what to...
lol oh, i was making a joke about trumpy bear getting banned from twitter 😂...
Thank you WBF!!! And Astro, Pots and deep_sleep :)...
I'm not the one who first brought up flagging and censoring my posts, i was responding to breezy...
Make sure you have no heavy metals issues before doing IV glutathione...
lol, this is quite an over-reaction. I'm sorry if I upset you, I really am, but quite frankly most of whats stated on this blog is opinion, not fact. There's just no scientific consensus on most of...