Why do you think it would cause cancer? I haven’t read anything about that. Have you?...
For me - what fixed the dysautonomia was treating bart. But it took awhile.... a long time. Before I had the lyme diagnosis - I thought I had CRPS (or RSD) because of the level of pain I had in my...
While I did have pulsatile tinnitus - I didn’t have heart issues. My tinnitus resolved after bart treatment. I would also suggest you see a cardiologist to check out your heart....
Just want to mention that being an Infectious disease dr doesn’t necessarily mean they will follow IDSA guidelines but they may. This goes for other lyme docs as well. Some will advertise they treat...
Activated charcoal is good - but you need to take it a few hours away from the antibiotics - or anything that you don’t want flushed out of your system. I’ve also read that bentonite clay and...
I have a list of llmd’s - don’t remember what I have listed for Wisconsin. You can email me if you’re interested. Yes, an experienced LLMD can also have some bad reviews - You could call the office...
My husband bought me - not one chocolate bar, but 3 I have NO willpower. I gave him heck and then proceeded to eat one... then another one and had to really hold myself back from eating the third...
I also got anxiety from lyme - and I had never had it prior to lyme. It’s gone now after treating... well almost - I’d say I’m 95% better regarding the anxiety. Keep posting/asking questions...
... and I agree with what WalkingbyFaith posted....
It can take longer for improvements with chronic Lyme - also two or more abx are recommended for treating it....
Hi EverlyGwen - welcome to the forum. “ The blot does say igG bands 23, 41, and 93 are positive though but because it wasn’t 5 only 3 it’s negative. Has anyone else ever dealt with this? Or have any...
Thanks, guys...
Welcome, 12yearsisenough. Have you been fighting Lyme disease for 12 years now?...
I think it was an Endocrinologist who ruled out the MG - physical exam. Looking for weakness - particular in the eye movements. I did read that sometimes an EKG and NCS is used. I had both of those...
Is there a definitive test for MG? I recall seeing a specialist who ruled it out - but that was about 7 years ago now....
Hi Christine - Welcome to the forum. Do you have Lyme disease?...
Beach... sun? We recently had snow... :(...
Yes, I am also taking zithromax on and off, but am not currently taking it, so it is only doxy with the fenben.[/quote] Oh ok You said you aren’t herxing anymore - but have you reduced some of your...
Hi Fred - Welcome! Are you seeing a lyme literate Dr? I ask because you mentioned you've been on doxy for a year and stalled out. Only Doxy? For chronic lyme disease....a LLMD should know to...
Welcome to the forum! Your Dr should be able to test you for tickborne diseases - via Armin Labs. I will look up the contact info and post it for you. Here it is https://arminlabs.com Many forum...
Well I would certainly suggest anyone diagnosed with an autoimmune disease be tested for Lyme - as there’s a chance of “curing” it instead of “managing “ an autoimmune disease....
8 Malarone a day does seem a lot. Are you sure he didn’t mean 2 twice a day? Maybe because you’re only taking it for three days a week? I’m trying to remember what Dr J prescribes. Maybe call and get...
LLMD MR protocol (to compare) Atovaquone/proguanil (Malarone) 250 mg/100 mg. Start the atovaquone/proguanil at 2 pills 2 times a day for 3 days, and then decrease to 1 pill 2 times a day. Combine it...
Be careful with it - my dad was addicted to it and it was the start of his demise. I think it’s worse for the elderly though. Is it prescribed for daily use? Is it for short term ? Did your doc...
There’s a website I stumbled upon several years ago - people diagnosed with autoimmune diseases treated with antibiotics and got better/improvement. There’s pages and pages of testimonies....
“ Contrary to what he contends, I’ve spent enough time in the autoimmune world to know that lyme is always considered...they are chalk full of people who have chased the lyme/infection/antibiotic...
I’m trying to remember what I was taking when I had a red rash on my back that also wrapped around to my front - between my chest and belly button. It wasn’t bumps or anything - just all red I think...
Ugg McD’s I rarely go there - like once every 6 months - but am always regretting it. Happens when I’m in town and I get hungry - I give in...
He wants it for body building. His goal is 80 lb flys. He said it’s good for the brain too - but I’m always skeptical of what he takes. From what I’ve read - there doesn’t seem to be any risks......
My husband has ordered this online.. and I hadn’t heard of it before, When you take Arginine - your body turns it into Agmatane...
Thanks you two! Was the thread locked? I don’t see one - also you can’t edit when it’s locked....
I went to a Neurologist before I was diagnosed. I had twitching (all over my body) , tremors, some jerking. Didn’t have heart arrhythmia though. He ruled out ALS, Parkinson’s and MS. Then I had an...
I’ve had several mri’s and they’re really not too bad - just boring. I am a big chicken and hate/scared of 90% of any/all procedures. You can tell them that you’re claustrophobic. There’s a button...
Sorry to hear you are suffering! I had an EMG and NCS - one was little pads put on various spots on my left arm... and the other one was needles stuck into several areas of my arm. I don’t recall...
Hello Cheerful Gator ! Welcome to the forum....
Have you not treated Bartonella and Babesia? I don’t see Rifampin or Rifabutin in your list of abx you took. ... or anti malarials...
Hello Ann - welcome! Quest is not a very good lab for tick borne infection testing. If you want to retest - I suggest Igenex Lab - they specialize in tickborne illness testing. You can get a WB IgM...
It will be interesting to hear what he says now - if he’s changed his stance. That reminds me - I got a call from the clinic to book my next in-person appt. I told the assistant that I will not be...
"TSH being "the gold standard", is wrong. It should not be and thus is why so many people being treated for thyroid issues do not feel well. This is what happened to me for years. The t4 and t3...
My husband told me this a few days ago! He's having to run to the bathroom. He had COVID last year (spring)...
i had my second appointment with the ND for the prolotherapy. He actually has results with just the saline injections...so he did that again. It didn't hurt as much...and my muscles/tendons weren't...
cherylfelice - how are you feeling now?...
"To be clear, I don't know what harm the vaccine does, but I'm sure they kill some people and injure others. It is also clear that the current vaccines are largely an experiment. Another factor I...
Can you get a covid test?...
Welcome to the forum, ihatecold! (I also hate the cold - especially since lyme ) Hopefully some members will respond and possibly have more LLMD recommendations in the area you’re seeking. You can...
“ The usual plan is still shorter than regular chiros but costs 1/3 more.“ Mine are $50 per adjustment. I submit to blue cross and get 80% back. I don’t know how much reg chiros cost here to compare....
Will you be going back for another appt?- or wait until you feel it’s “out”again?...
“ So if NUCCA does not hold for me, its because of my anatomical leg length difference that my body is constantly trying to accommodate for. Never know till I try.“ I have to keep going in for...
I haven’t been treated by any of these - but thought I’d share with you - Buhners recommended list of herbalists. This is an older thread -...
I would go with the Igenex testing. You could call them and ask which Babesia is best. And for Lyme I’ve heard the IGXSpot is a good one...