Ketamine (known recreationally as Special K when I was a teen) is used these days as an approved depression treatment, too, I believe through a weekly nasal mist. I love hearing about the medicinal...
Welcome to the forum! How have you been addressing the MCAS? Have you been taking anything to help remove mycotoxins from your system, e.g. cholestyramine? Sounds like you might have looked into this...
Welcome to the forum! I'm sorry your medical team has been so frustrating! I'm curious why you need to see these doctors for Lyme-related treatment even though they don't know much about it. If you...
Welcome to the forum! I have POTS, as do many other members. Have you tried usual treatments - lots of salt, proper hydration, compression stockings, etc. - or any meds for it? Anything helpful? Is...
Welcome to to forum, Danap79! I'm sorry that you are experiencing these symptoms. fibromyalgia and CFS were my first diagnoses, too. And they are not incorrect, just incomplete. If an underlying...
Welcome to to forum, AnneSommers! I'm sorry that you are dealing with this, but there are many experienced members here who can share their experiences and advice. Several members talk about slurred...
I have a great functional medicine LLMD in a suburb of Boston, who does phone or video appointments (and did before the pandemic as well). He's friends with Neil Nathan (a big name in MCAS) and...
Welcome to the forum! Testing is not as good as we need it to be, unfortunately, so people cannot use a negative test to prove infection eradication. PCR tests look for shed DNA of bacteria, so they...
Adaptogen effects vary so much from person to person, so plan to experiment with them. Eleuthero gives some people energy, but it put me to sleep for a full day. Holy basil makes some people feel...
Do you have POTS? I experience air hunger with POTS sometimes. Babesia is known to cause air hunger, in particular. A pulse oximeter is an inexpensive way to ease your mend about whether you are in...
Is this a recent problem? If the pain is worse when you flex your foot (like when you walk or point your toes up toward your knee) then you might need an ultrasound to rule out a blood clot. If it's...
Compounds in wormwood are used to make absinthe. It's not related to cannabis. The concentrations and processing that make a wormwood supplement would not have the same effects as absinthe. I was...
The forum rules don't actually prohibit false statements. This has been on my mind a lot the past several months, for reasons that probably are obvious. Forums on Healing Well vary, and some don't...
Lots of us have dysautonomia. For me the chief symptoms have ben POTS and gastroparesis. I have seen some dysautonomia specialists, some of whom said meds help as well as placebos, and some of whom...
This is a complex issue, and there's some controversy even among functional medicine folks about adrenal fatigue, and whether it's a useful term. You could have adrenal glands that have something...
Sounds like a good thing, for now! If you are having diarrhea, then stay hydrated and back off the magnesium, but frequent bowel movements seem like a positive effect. If you become dehydrated or if...
I second WBF's advice to try liposomal glutathione before trying an IV....
Very cool that you've been looking into breath lately, dcd. I'm looking forward to haring more on the subject. I did not try Wim Hof, but I did try a breathwork workshop online via Zoom several...
Wow, lots of great input from WBF. I have read a lot about mimosa pudica, so I wanted to share a bit about that, even though I myself have not tried it. (It's sitting on my shelf patiently with so...
Beaverlakeman, welcome to the forum! I am also very interested in Wim Hof. In terms of the Lyme patients he worked with, I am curious how severe their illness was. As you know, we vary so much in...
I poked around on the internet as a result of this post, and I have not heard of most of the herbs recommended. Have you been tested for Hansen's disease, or are you just worried you might have it?...
Kiwi, white beans, sweet potatoes, beets, spinach, chard, tomato sauce....
I'm so sorry to hear all of this, Patty. Stress is just brutal for our systems, but sometimes it's unavoidable! Wishing you resilience and restoration!...
I wasn't dealing with insomnia or anxiety, exactly, but when I take CBD I do sleep better and feel more calm, if that makes sense. For me, chilling out my nervous system is important for my overall...
It has a half-life of around six hours, so if you need it for ongoing symptoms, then you'll need to take it every six hours or so. People do build up a tolerance, and it can get quite expensive, so...
Hi again. In a previous post you mentioned that a doctor was having you come in for an echocardiogram, and another post mentioned a pap test, if I am remembering right? So I assumed you saw some sort...
Skeletonflower, I'm curious which heart issues you have. Lyme carditis can be life-threatening, as can valve infections, but I assume if you had those, then you would have listed them before angina...
I don't know for certain, but I would guess that the CBD would help with pain and herxing, rather than the THC. I have used CBD for those things with success, but I have not taken THC at all, so I...
It's very common to have multiple tick-borne illnesses. There are dozens of species of Borrelia that can cause illness in humans, but since there aren't test for most of them, most of us never know...
I've experienced the unrelenting tachycardia and exaggerated POTS as well, and it's exhausting and unsettling. I'm so sorry you are dealing with it amid so much other garbage! You have gotten good...
Depends on what's causing the constipation. Do you have dysautonomia? Nervous system dysfunction can cause gastroparesis, which basically means peristalsis stalls. It's been called "Bell's palsy of...
Depends on whom you ask. :) I treated with antimicrobial and antiviral approaches for years, but kept getting worse. At that time, the opinions of my LLMDs (all functional medicine backgrounds) was...
I post a lot about general practices to encourage regular good sleep, but when poo is hitting the fan, I understand you probably want something to take on a short-term basis to knock you out. Have...
MedicalNerd, with these complex chronic illnesses, there is so much going on, and every case is different. The bottom line is that no one has just one thing wrong, and treatment needs to address a...
Very sorry to hear this, gfields. I have seen several Boston neurologists, but none that specialize in memory. The best was Carolyn Bernstein, who is a headache specialist at the Osher Center. Peter...
Good point, dcd. The sensation I am referring to was deep within my chest usually. I also occasionally felt it in my lower abdomen, also deep inside. It's been years since it's happened, but it was...
I experienced the internal cell phone sensation upon waking for a while, and my LL folks at the time characterized it as adrenal in nature. I have HPA axis dysfunction, meaning my hormonal systems...
I'm so sorry to hear about your loss and your sick grandmother. Thank you for posting about this. A lot of people downplay the effect of stress on their condition, or even feel offended when it's...
I never tried any formulas with black pepper in them, but I never experienced any gut symptoms or negative reactions at all to even high doses of curcumin. A former doctor made a big deal of the...
The fluconazole could be killing off candida but also the mold you mentioned, if you had some colonized somewhere. Building up a die-off reaction over a few days sounds reasonable to me. Since your...
Dude's reply is fantastic. I second it. Nausea, dry mouth, and stomach irritation sound perhaps more like GERD/acid reflux/LPR. It's possible to have reflux issues without the classic heartburn...
Mycotoxin illness (from mold) and Bartonella can be indistinguishable. Check out Neil Nathan's book Toxic. This book was a turning point for me, and is excellent for figuring out complexities of...
Yeah, a basic cold (probably one of the many coronaviruses we've all had in our lives) rendered me bedridden for five months a couple of years ago. My limbs even experienced some paralysis, my heart...
Does this happen to you with herbal tea, seltzer, and other beverages, or just plain water? For some reason I intensely dislike drinking plain water, to the degree that I experience borderline...
I'm so sorry - what a struggle! It's interesting that all of the testing has come back normal. I'm not saying that you don't have LPR, but it is something doctors like to say is happening when they...
Wow! Great tip. Thanks for passing this along....
Hi, Sunfun. I never did try D-limonene for LPR (although I did buy some) but I found some things helpful over time. Honestly the best things for me were gravity, timing of food and drink, and vagus...
Rawls talks about triphala primarily for colon health. He says, "Triphala [is] an age-old herbal combination from India that has been used for thousands of years to restore normal colon function....
Has your head hurt for a month, ever since it was hurt in the bathtub? Unless the pain started within a day of the injury, then I would not think it's related. What kind of pain is it? Does it feel...
Yes, most people with MCAS do not have anaphylactic reactions. Some have only minor symptoms, and symptoms can vary a great deal. My MCAS largely is managed with a low-histamine diet, curcumin, and...