Wow! - thanks everyone for all the varied and interesting ideas - for a while, i had been thinking I had more or less exhausted all the things to try but I can see there plenty more to go at now....
i spent quite some time digging into various gut pathogens - including algae, protozoans etc i even had some correspondence with a leading blastocysts researcher Christen Rune Stensvold overall came...
Due an update so here goes Been at 2.25mg a day 1st thing for 2 weeks and things were reasonably settled so decided to step up again by 0.25mg to 2.5mg 2 days ago As has happened the previous times...
dcd - I was v interested in Blastocystis for a while as a possible explanation for my gut symptoms but all my tests came back negative for it - despite finding what I thought looked like a protozoan...
so my journey is ongoing generally, my Lyme and Bart symptoms have been improving now for around 18mths - but very slowly. my treatment is basically a comprehensive protocol of Buhner Lyme herbs...
just to get a better picture of the background to help us answer some of your questions did you have a bulls-eye rash before your diagnosis 2 years ago ? if no - how was your diagnosis made at that...
Blue - maybe this page? http://www.lymeinfo.net/alt.html...
https://www.healingwell.com/community/default.aspx?f=30&m=4224482#gsc.tab=0...
will do Nic i have pushed through all obstacles in my life so far with sheer determination and it worked pretty well until I got sick - it was kind of my specialty - so I know where you are coming...
almost 3 months now Nic. i started at 0.5mg / day and have been gradually working my way up - at 2.25mg a day now - taken 1st thing I would say after the first few weeks I started to notice getting...
hi dcd my partner had what i thought was most likely excitotoxicity due to what we believe is Lyme and Bartonella infections. she also had extreme rage, panic, passing out type seizures, and various...
thanks for the updates i also get pretty strong reactions if i step up the dose more than 0.5mg in fact, this time i stepped it up only 0.25mg as the last step of 0.5mg was pretty harsh. in my case...
I was given it once by a very smiley little bald-headed guy at an Orb concert in London circa 1998 - felt like I was unable to move for hours then when I did finally get myself to move it was like...
I looked up that test cert for APC brand MB and those heavy metals concentrations do indeed look pretty safe - each is under 20% of the recommended max safe intake eg in drinking water or food ug/l...
got it - Thanks Cignet - you too!...
hi remy as discussed the diagnosis is a clinical one - due to all the issues with testing we have discussed. i am certainly not a LLMD - just someone who has read a great deal around this subject in...
PS in case it's of any use to others reading this and trying to evaluate MB sources there is useful information on heavy metals safe limits here including lead and mercury...
thanks for the info Cignet i am also self-treating and was interested in MB at some point provided i could find a source i felt sufficiently comfortable with. the one i was looking at is here...
it might be worth sharing the ILADS treatment guidelines with your doctor ( International Lyme Aware Doctors Society ) they are written by Joseph Burrascanno MD - one of the most experienced Lyme...
I read about this a little - and there is a theoretical concern because DSF can increase neurotransmitter levels while you are on it - but in the research I did - Dr Rajadas doesn't think tapering...
interesting Cignet - thanks for the info - sounds like a pharma-grade source - could you pass on the supplier - I am in the UK also...
the OAT test looks for the metabolic by-products of candida or other fungus types in your body that are being excreted in the urine. if there is enough candida to make you sick then there should be...
Cignet what was the inexpensive source of the methylene blue you found - I visited the Facebook groups a few weeks ago and found that there was heavy metal content above what would generally be...
I would just bear in mind that a blood test confirmed eradication may not be a meaningful measure of success - given that the blood tests for Babesia in its chronic stages are in all cases likely to...
with so many of us in this same boat - not knowing for sure if there is in fact an infection ( by any classical definition ) at the root of our illness - we certainly do still need some new and...
thanks for keeping us updated wishing you every success in this!...
its a very old medication - actually one of the first synthetic drugs ever made like many older drugs - it has fallen out of favor due to newer more profitable drugs coming to market that are still...
dcd - I think we are very much on the same page in terms of what is likely going on in Lyme patients - the key question being - is what is going on reversible. it may be that this differs from...
dcd - am just checking my ANA results ANA dsDNA 06/2015 >1:80 0.5 03/2016 >1:100 0.3 05/2017 >1:100 0.7 09/2017 >1:160 16 don't seem to have anything later that i can find on ANA - i think at...
Yep - not disagreeing with you there...
OAT test would be my choice if you think you have internal fungal infections - it looks for fungal metabolites in the urine Great Plains Labs does it - but there are others doing similar now...
the disulfiram treatment seems to work well for some that have babesia and lyme - at least according to the studies and writings of the LLMDs using it so far dapsone protocol from Horowitz claimed...
I have come across a few other snippets that may be worth adding to the discussion: It thinks it was Buhner that says in his Lyme book that Lyme doesn’t typically cause overt autoimmune disease -...
I used several discussed in this thread and found them all reliable https://forums.phoenixrising.me/threads/tips-for-finding-reliable-and-trustworthy-prescription-free-online-pharmacies.8113/...
The other way around for Bart igg / igm i think - igm is the first antibody formed in infection - igg later - but testing for both should increase the chance of getting a true positive result - which...
just to clarify, the breath test results I posted were after 12 weeks of intensive gut dysbiosis treatment - and show that at that point I indeed had no SIBO - at least acc to the breath test the...
i would test for it - the way i reason it is every month I lose X of lost income and spend Y on treatments - so my reserves go down by Z - which would pay for the test even if it only shortens my...
this is my sibo breath test result from 3 weeks after a 12 week long and very comprehensive gut dysbiosis program with pretty much everything but the kitchen sink in it. unfortunately, i did not have...
my guess is they always go pretty much hand in hand - as in anything that causes inflammation in the gut will have knock-on effects in the environment there for the microorganisms to live in - and...
sore lymph nodes is a classic symptom in Bart - but also can be present in many of the other co-infections mycoplasma, rickettsia etc - pretty much any of the intracellular co-infection bacteria as...
this paper in Nature is worth a read relating to this topic: it basically found Lyme and co-infections in the vast majority of so-called Post Treatment Lyme Disease patients - the majority had more...
most LLMDs say to treat with at least 2 or 3 antibiotic combinations for a minimum of 4 months if Lyme and Bart are suspected many people find they have to treat for much longer the fact that you...
the skin nodules you mention might be somewhat specific can you describe them in more detail - or post a photo ?...
which herbs did you try this summer - and what were your reactions to them? sometimes reactions to treatments can be useful clues...
yeah - dcd i only mention fibre intake as a sanity check - because less fibre = slower transit time - and could therefore be part of the reason for the later peak in your second test - or at least a...
just a small point of clarification - at least as far as I understood it. I think what Dr H actually stated about Bartonella and dapsone protocols - is that of the people who did not reach remission...
dcd - it's an interesting idea - could be some confounding factors in the mix though eg what is your fiber intake on each of those time periods ( usually lower on Keto diet ) fiber speeds transit...
I agree - I see no need for censorship here dcd is sharing his opinion as just that - an opinion - he is not setting himself up as an authority on the subject. our members should be free to share...
agree with the above comments - I am on 2.25mg a day in the mornings now having just stepped up from 2.0mg and even with this small change in dose the first few days on this dose also lead to...
This is an interesting topic - but I do wonder whether we really have enough information to work on to answer it properly in terms order of treatment for different co-infections . From my reading –...