Right, and like Dr K says, "we all have exposure". You cant grow up in the north east especially and not have exposure, its everywhere. But only some people react. So if everyone has exposure (i'd...
Garzie was curious how high your Ana is?...
Ding ding, and we have a winner!! that sounds like a great recommendation!!!!...
Very interesting about your bloodwork garzie. Will address that later. Wrt "true autoimmune disease", I've wrestled with this concept before. Certainly there are people who seem to develop "true...
Dr Khosro Farhad is a neurologist at Mass General based out of NH, specializing in peripheral neuropathies and dysautonomia. As such, I'd imagine he's seen a fair number of mast cell cases. He uses...
I've never been comfortable with herxing as a diagnostic.. not sure exactly why. I just think there are too many complicating factors.[/quote] EXACTLY. Dr K told me that a true herx involves fever...
Very interesting. The MHC is responsible for shifting through the protein chains and deciding what to go after. APCs (b cells, dendritic cells, macrophages) ingest foreign cells and present their...
Interesting, thank you for sharing this Garzie. These are really strange results and I'm not sure what to make of it, but we can learn a lot. You had dysbiosis you think, yet no SIBO it appears. So...
Pretty simple actually. Some people have the HLA genotype for CIRS. Others have very specific genotypes for specific diseases. The disease w/ the high predictability is actually ankloysing...
fair enough. i'm not sure what to call it then though... i would also add that by ignoring that nomenclature, you're lumping all long term lyme into the "chronic lyme" category, and since most people...
Great idea for a post! Yours definitely seems to be a post-treatment autoinflammatory type. Lots of these autoimmune neurolgoical symptoms, and treatment hasnt helped. I think address other sources...
After my being attacked yesterday once again for my post from a year ago on post treatment lyme being autoimmune, I wanted to address this again. I think that we've all agreed that we broach this...
Sounds like you may have pots as well. I personally do not like herbs anymore. I find they often activate the immune system, and a lot of your symptoms sound inflammatory/immune mediated. How intense...
Thanks garzie. Very detailed analysis, and i agree with pretty much all of it. It's definitely a multi-faceted issue. For me, there's likely some sort of a homeostatic feedback loop that breaks down....
10mg of methylfolate is a lot. Some people can handle it, but many can not. If he’s giving that to everyone I’d question it. Neil Nathan claims that when he did a study all it took was 200mcg to...
Methyl and andenosyl-cobalamin both are activated forms of b12, but are used in two different processes. Adenosyl is used in the mitochondrial energy pathways I believe. Maybe thats why you feel...
Hey garzie. Fiber intake has been much lower. Fodmaps as well. My GI and my functional medicine dr both told me that my SIBO was probably caused by my autonomic neuropathy. Have seen this...
Thought this was interesting. Top are my SIBO breath test results from 2019, not long before developing neuropathy. The bottom are my SIBO breath test results from December 2020, 3m after starting...
That's a great quote dude, going to steal that one from you! I agree, I think that we should move on. Hopefully people can take my word for it, that I am not here to purposely or intentionally...
Sorry, this isnt factual. What is factual is that someone wrote that they were having neuropathy. I tried my best to explain to the person that they may be having small fiber neuropathy and what to...
lol oh, i was making a joke about trumpy bear getting banned from twitter 😂...
Thank you WBF!!! And Astro, Pots and deep_sleep :)...
I'm not the one who first brought up flagging and censoring my posts, i was responding to breezy...
Make sure you have no heavy metals issues before doing IV glutathione...
lol, this is quite an over-reaction. I'm sorry if I upset you, I really am, but quite frankly most of whats stated on this blog is opinion, not fact. There's just no scientific consensus on most of...
Nice, very interestd on how that goes saraeli! This practitioner sounds like the type of person you need, someone who has worked w/ all types of chronically ill and can make that judgement call. I...
I actually tried wim Hof daily with ice baths for about 2 months. Although I love it, I would do it daily if I could, It made me much worse. Like significantly. I do not think that this is good for...
What parasites did you have k07? Do you think they were part of your issue and do you got rid of em?...
Have you considered testing so that you have a better idea what you’re going up against? The Dude recommended this guy to me. I literally just put my test in the mail yesterday. He will recommend a...
Any advice for lower back stiffness astro? I still have a bit of lingering stiffness down there, in addition to anterior pelvic tilt and rounded shoulders....all getting better tho as i work my back...
Awesome, will def read this. Just skimming it, it looks right up my alley. Another piece of the puzzle. I'm slowing putting together these stressors that have thrown my homeostasis off. The big ones...
Ugh these industries are super evil. Realizing that more and more, everything is about the $5k machine when a $5 mask will do. I will look for one of those masks. Apparently, the nosal passage is...
Just reading the book Breath by James Nestor and really enjoying it. Easy to read, enjoyable and some parts are fascinating. I always knew that breathing was important, but typically, like most, I...
Yea astro you did a good job of explaining where I'm coming from and how i view things, that describes my position perfectly, much appreciated! one of those scenarios thats very nuanced and where we...
You made a good point wrt not everyone gets amalgam or mold illness. My feeling is that only people who have a genetic susceptibility to CIRS and inability to detox heavy metals end up w/ mold and...
bicillin is a great drug for this, i would look into it. it likely will calm your immune system, not up-regulate it like some of these herbs can. also the biggest help for me w/ this neuropathy has...
You think you have leprosy?...
You have an auto-immune type inflammation problem. I hate herbs that up-regulate the immune system when you have neuropathy. imho, as someone who has dealt w/ this autimmune neuropathy, you should...
Wait the astragalus triggered your neuropathy? You didnt have it before that?...
Hey there...I really think bicillin LA (has to be used by itself w/ no other antibiotics) is the lowest hanging fruit for a neuro-lyme problem like this. Sounds like your biggest problems are...
I wouldn’t trust that vibrant wellness test. Had my suspicions myself, then my LLMD told me he didnt trust it. I spoke w Neil Nathan's office by email as well and he mentioned he did not trust this...
I personally think you have to address mold first. Then gut dysbiosis. Then metals and parasites. Metals, parasites and mold are three toxins the body has trouble ridding on its own. Once you do...
I'm not positive, it's not one of my problems so I've never asked. But I"ll ask her next time....
So that’s similar to what I experienced, good to know it’s normal, thanks!...
Did you have any side effects at first? Did you just power thru them?...
Dr Katz in Orange Ct is a fantastic neurologist and an llmd. On a scale of 1-10 he is an 11. I would not go to frid....
Thanks for advice lapis. Yea i'm on both groups, theyre very helpful. Lots of success stories and disillusioned ex-ACC people in there. Sounds like you gotta go super slow though....
No problem pots! My SIBO breath test just came back positive, albeint w/ lower levels than any of the previosu times (50ppm vs previous readings of 65 and 100). I'm not having symptoms at the moment...
Gotcha, thanks guys. So this chest sensation is different than the sensation I have in my limbs. I got internal vibrations in my chest the first 2 times I transitioned into ketosis, and have read...
Sara Eli are you talking feet/hands or like chest and abdomen?...