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Girlie

HealingWell Forum
>
Member Profile
Display Name
Girlie
Profile Created
5/6/2014 10:46 PM
Last Seen
Today 7:44 PM
Total Posts
44360

Last 50 Posts

Gargling Oral Nystatin/Possible Herx

Beach... sun? We recently had snow... :(...

Today 1:46 PM

Lyme Disease
herxing like crazy on Fenben and Doxy

Yes, I am also taking zithromax on and off, but am not currently taking it, so it is only doxy with the fenben.[/quote] Oh ok You said you aren’t herxing anymore - but have you reduced some of your...

Today 1:45 PM

Lyme Disease
herxing like crazy on Fenben and Doxy

Hi Fred - Welcome! Are you seeing a lyme literate Dr? I ask because you mentioned you've been on doxy for a year and stalled out. Only Doxy? For chronic lyme disease....a LLMD should know to...

Today 12:24 PM

Lyme Disease
Air hunger for 8 months possibly mycoplasma

Welcome to the forum! Your Dr should be able to test you for tickborne diseases - via Armin Labs. I will look up the contact info and post it for you. Here it is https://arminlabs.com Many forum...

Today 10:46 AM

Lyme Disease
new book from Dr Stephen Phillips

Well I would certainly suggest anyone diagnosed with an autoimmune disease be tested for Lyme - as there’s a chance of “curing” it instead of “managing “ an autoimmune disease....

Yesterday 11:08 PM

Lyme Disease
Mew protocol with FOUR Malarone twice a day??

8 Malarone a day does seem a lot. Are you sure he didn’t mean 2 twice a day? Maybe because you’re only taking it for three days a week? I’m trying to remember what Dr J prescribes. Maybe call and get...

Yesterday 11:03 PM

Lyme Disease
Mew protocol with FOUR Malarone twice a day??

LLMD MR protocol (to compare) Atovaquone/proguanil (Malarone) 250 mg/100 mg. Start the atovaquone/proguanil at 2 pills 2 times a day for 3 days, and then decrease to 1 pill 2 times a day. Combine it...

Yesterday 10:56 PM

Lyme Disease
Ativan?

Be careful with it - my dad was addicted to it and it was the start of his demise. I think it’s worse for the elderly though. Is it prescribed for daily use? Is it for short term ? Did your doc...

Yesterday 4:05 PM

Lyme Disease
new book from Dr Stephen Phillips

There’s a website I stumbled upon several years ago - people diagnosed with autoimmune diseases treated with antibiotics and got better/improvement. There’s pages and pages of testimonies....

Yesterday 2:49 PM

Lyme Disease
new book from Dr Stephen Phillips

“ Contrary to what he contends, I’ve spent enough time in the autoimmune world to know that lyme is always considered...they are chalk full of people who have chased the lyme/infection/antibiotic...

Yesterday 1:55 PM

Lyme Disease
Ringworm?

I’m trying to remember what I was taking when I had a red rash on my back that also wrapped around to my front - between my chest and belly button. It wasn’t bumps or anything - just all red I think...

Yesterday 12:09 AM

Lyme Disease
Diarrhea from one single small hamburger

Ugg McD’s I rarely go there - like once every 6 months - but am always regretting it. Happens when I’m in town and I get hungry - I give in...

Yesterday 12:00 AM

Lyme Disease
Anyone take Agmatane Sulphate?

He wants it for body building. His goal is 80 lb flys. He said it’s good for the brain too - but I’m always skeptical of what he takes. From what I’ve read - there doesn’t seem to be any risks......

3/2/2021 10:34 AM

Lyme Disease
Anyone take Agmatane Sulphate?

My husband has ordered this online.. and I hadn’t heard of it before, When you take Arginine - your body turns it into Agmatane...

3/2/2021 10:15 AM

Lyme Disease
Apology to potsnpans

Thanks you two! Was the thread locked? I don’t see one - also you can’t edit when it’s locked....

3/1/2021 6:27 PM

Lyme Disease
Autonomic nervous system and heart

I went to a Neurologist before I was diagnosed. I had twitching (all over my body) , tremors, some jerking. Didn’t have heart arrhythmia though. He ruled out ALS, Parkinson’s and MS. Then I had an...

2/28/2021 12:04 AM

Lyme Disease
Severe reaction to covid vaccine

I’ve had several mri’s and they’re really not too bad - just boring. I am a big chicken and hate/scared of 90% of any/all procedures. You can tell them that you’re claustrophobic. There’s a button...

2/26/2021 3:57 PM

Lyme Disease
Severe reaction to covid vaccine

Sorry to hear you are suffering! I had an EMG and NCS - one was little pads put on various spots on my left arm... and the other one was needles stuck into several areas of my arm. I don’t recall...

2/26/2021 1:10 PM

Lyme Disease
Iron suppliments make lyme pain soar?

Hello Cheerful Gator ! Welcome to the forum....

2/26/2021 10:27 AM

Lyme Disease
6 months DSF kill B. Afzelii, Garinii, Sensu S., but my CFS is still severe. B Miyamotoi cause all?

Have you not treated Bartonella and Babesia? I don’t see Rifampin or Rifabutin in your list of abx you took. ... or anti malarials...

2/25/2021 10:41 AM

Lyme Disease
hello, new here.

Hello Ann - welcome! Quest is not a very good lab for tick borne infection testing. If you want to retest - I suggest Igenex Lab - they specialize in tickborne illness testing. You can get a WB IgM...

2/24/2021 3:17 PM

Lyme Disease
Have you taken the vaccine?

It will be interesting to hear what he says now - if he’s changed his stance. That reminds me - I got a call from the clinic to book my next in-person appt. I told the assistant that I will not be...

2/24/2021 9:19 PM

Lyme Disease
Low TSH - Should I be concerned?

"TSH being "the gold standard", is wrong. It should not be and thus is why so many people being treated for thyroid issues do not feel well. This is what happened to me for years. The t4 and t3...

2/24/2021 11:18 AM

Thyroid Disorders
COVID - LYME and Auto-Immunity ....Interesting study

My husband told me this a few days ago! He's having to run to the bathroom. He had COVID last year (spring)...

2/24/2021 11:14 AM

Lyme Disease
Anyone try Prolozone/Prolotherapy?

i had my second appointment with the ND for the prolotherapy. He actually has results with just the saline injections...so he did that again. It didn't hurt as much...and my muscles/tendons weren't...

2/24/2021 11:12 AM

Lyme Disease
Severe reaction to covid vaccine

cherylfelice - how are you feeling now?...

2/24/2021 11:03 AM

Lyme Disease
Have you taken the vaccine?

"To be clear, I don't know what harm the vaccine does, but I'm sure they kill some people and injure others. It is also clear that the current vaccines are largely an experiment. Another factor I...

2/24/2021 10:50 AM

Lyme Disease
Covid vs herx

Can you get a covid test?...

2/23/2021 9:48 PM

Lyme Disease
Looking for a LLMD in Western or Central NY

Welcome to the forum, ihatecold! (I also hate the cold - especially since lyme ) Hopefully some members will respond and possibly have more LLMD recommendations in the area you’re seeking. You can...

2/23/2021 7:24 PM

Lyme Disease
NUCCA upper cervical / Atlas bone adjustment/ any experiences? (edit: I did it)

“ The usual plan is still shorter than regular chiros but costs 1/3 more.“ Mine are $50 per adjustment. I submit to blue cross and get 80% back. I don’t know how much reg chiros cost here to compare....

2/23/2021 11:20 AM

Lyme Disease
NUCCA upper cervical / Atlas bone adjustment/ any experiences? (edit: I did it)

Will you be going back for another appt?- or wait until you feel it’s “out”again?...

2/23/2021 10:34 AM

Lyme Disease
NUCCA upper cervical / Atlas bone adjustment/ any experiences? (edit: I did it)

“ So if NUCCA does not hold for me, its because of my anatomical leg length difference that my body is constantly trying to accommodate for. Never know till I try.“ I have to keep going in for...

2/23/2021 10:28 AM

Lyme Disease
seeking amazing herbalist

I haven’t been treated by any of these - but thought I’d share with you - Buhners recommended list of herbalists. This is an older thread -...

2/23/2021 10:25 AM

Lyme Disease
Is this the best test for lyme and babesia?

I would go with the Igenex testing. You could call them and ask which Babesia is best. And for Lyme I’ve heard the IGXSpot is a good one...

2/22/2021 6:37 PM

Lyme Disease
bart quintana & hensalae

I don’t even know which one I have. My LLND didn’t care nor did my LLMD. I assume that means they are all treated with the same meds....

2/22/2021 6:34 PM

Lyme Disease
Girlie, venous pooling symptom

I had forgotten about the venous pooling. I remember my first appt with the LLND in 2014 - he looked at my feet and said that’s what it is. I did mention lyme - but it could also be from Bart - not...

2/22/2021 4:00 PM

Lyme Disease
Have you taken the vaccine?

“ The point being this: If the vaccine had been given just five minutes earlier, the Mother would have been absolutely convinced the vaccine caused the seizure. Proving causation versus correlation...

2/21/2021 10:20 PM

Lyme Disease
Off topic: food catch from low gums under tooth cap/crown= ache, hard flossing

Astro: “ I didn't start using a low pressure electric toothbrush till recently. Still find myself applying to much pressure and correcting it- I'm an impatient tooth brusher.” That’s exactly what my...

2/21/2021 9:25 PM

Lyme Disease
Off topic: food catch from low gums under tooth cap/crown= ache, hard flossing

I don’t think you can grow gums back. I have stopped the recession from continuing - but the gums haven’t “grown” back. But at this point I’m just glad the recession has stopped....

2/21/2021 9:22 PM

Lyme Disease
Off topic: food catch from low gums under tooth cap/crown= ache, hard flossing

My ceramic crown (got my first one about two years ago.) does not have any areas where food gets in. It should be sealed off Some dentists are better than others’ I’ve had a few (dentists) that...

2/21/2021 1:08 PM

Lyme Disease
Rash under armpits on Disulfiram plus UPDATE!

Great news! (except for the rash) Hope this continues for you!!...

2/21/2021 11:04 AM

Lyme Disease
Have you taken the vaccine?

So my husband has heard that the booster he gets may not be Pfizer - as we didn’t get enough....(here in Canada) So he may be taking a different one - I bet there won’t be studies on that!...

2/21/2021 11:02 AM

Lyme Disease
Recommendation for LLMD in VA

If you email me I can give you some names of llmd’s near you. I go to Dr J in Washington DC. I had POTS from lyme and it has resolved with treatment....

2/21/2021 9:54 AM

Lyme Disease
Just diagnosed after many years of not knowing

Welcome to the forum! Bands 23 and 41 are enough to diagnose Lyme disease. What were the IgG bands? I suggest you seek out a lyme literate dr for treatment. A few weeks of doxy alone isn’t enough to...

2/19/2021 8:40 PM

Lyme Disease
Have you taken the vaccine?

My husband had the Pfizer vax yesterday. He said the shot hurt! Today his arm is very sore. He told me this morning that the Nurse asked him if he had any autoimmune diseases. He said he wasn’t sure...

2/19/2021 9:58 AM

Lyme Disease
Doxy & Biaxin combo for lyme persisters

Doxycycline is used for later stage lyme as well....

2/18/2021 2:13 PM

Lyme Disease
Low ferritin

The test for celiac that you should get done is: Tissue Transglutaminase IgA or tTG-IgA...

2/18/2021 2:12 PM

Lyme Disease
Hard to describe headache/sensation

The pressure behind my eyes went away over a year ago....I haven't kept good records....the past few years. :\ I just felt my scalp now - and my right side is a bit sore when I rub it, but not my...

2/18/2021 2:06 PM

Lyme Disease
Have you taken the vaccine?

[quote="potsnpans" But i'm afraid people are mostly basing their decisions on inaccurate info such as "vaccines modify DNA", or "vaccines are useless against new variants". Surely those in the US...

2/18/2021 2:01 PM

Lyme Disease
Have you taken the vaccine?

Hmmm.... I may be incorrect then...maybe what I read was 1/3 of US military... They were screwed before - when they took Larium - in the Gulf War and came back with a lot of issues - they weren't...

2/18/2021 12:52 PM

Lyme Disease
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