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aphysicalwreck

HealingWell Forum
>
Member Profile
Display Name
aphysicalwreck
Profile Created
9/3/2012 8:28 AM
Last Seen
3/4/2021 7:52 PM
Total Posts
797

Last 50 Posts

leg stiffness

Hi dcd Anything new on the leg stiffness? Do you have any tingling as well? What about balance issues?...

3/2/2021 9:25 PM

Lyme Disease
Attempting Dr. Horowitz's double dapsone protocol

I’m personally afraid of that high dose of dapsone. I would consider a lower dose longer term with other abx. That’s just my opinion....

2/22/2021 8:37 PM

Lyme Disease
Low ferritin

My hair is falling out, that's why I was determined to get my ferritin up to see if that's what is causing it. By the looks of it, it's not. After supplementing for 2 months I see some improvement...

2/19/2021 3:19 PM

Lyme Disease
Hey! Been awhile - pregnant and Syphilis Question

Band 41 is a spirochete. Syphilis is a spirochete. You have to check to see what other syphilis tests they did. They would have had to do other tests to confirm that diagnosis....

2/19/2021 8:03 AM

Lyme Disease
leg stiffness

Hi. This is actually a new symptom of mine in the last few months. My left calf and back of thigh had a stiff feeling when I walk. Also if I press on all the muscles in the calf down to close to the...

2/19/2021 8:00 AM

Lyme Disease
Low ferritin

Hmm. I don’t have restless leg syndrome. But I thank you for replying....

2/18/2021 7:38 PM

Lyme Disease
Low ferritin

Thanks. I don’t think I ever had that....

2/18/2021 3:18 PM

Lyme Disease
Low ferritin

Thanks girlie. With the thousands of drs I’ve been to and the thousands of viles of blood I’ve had over the years, I would imagine I was tested for it. Especially since I go to a lot of natural drs....

2/18/2021 1:58 PM

Lyme Disease
Low ferritin

My bilirubin was fine. Thank you for responding...

2/18/2021 8:13 AM

Lyme Disease
Low ferritin

Thank you. That’s good to know but should we be taking iron supplements? Also my rbc was slightly low....

2/18/2021 7:21 AM

Lyme Disease
Low ferritin

Thank you for your reply. I don’t believe I have a sensitivity to gluten. I keep gluten down to a minimum anyway. I don’t think that’s my issue. My iron level is fine. It’s the ferritin that’s low....

2/18/2021 6:09 AM

Lyme Disease
Low ferritin

Does anyone have low ferritin? My primary physician says it could be gastro related. Blood in stool or bleeding ulcer or gastritis. He is making me nervous. I really don’t want to get a colonoscopy...

2/17/2021 8:56 PM

Lyme Disease
Swaying

I’ve been on lipsomal glutathione and cucurmin and I see no change in my swaying. These things don’t kill the infection....

2/17/2021 8:23 PM

Lyme Disease
Swaying

Thank you so much. I will look until this....

2/11/2021 9:01 PM

Lyme Disease
Swaying

I don’t fall either but it’s hard to manage. Just standing in the kitchen to cook dinner is a huge effort. Everything is a huge effort. This has to be my worst symptom because there is no break....

2/11/2021 9:00 PM

Lyme Disease
Swaying

Thank you saraeli: I did see that condition when I was researching. The thing is from what I read it happens after being on a boat. Or could be a plane. It’s not actually swaying though. It’s a...

2/11/2021 8:33 PM

Lyme Disease
Swaying

I sway when standing. You can actually see it. It’s not just a sensation. Also internal shaky feeling. My legs feel weak. I don’t think they are actually weak. It’s just the swaying makes it hard to...

2/11/2021 7:05 PM

Lyme Disease
Symptom list on this forum

I agree. I’m on thyroid meds. I am hypothyroid plus Hashimotos...

2/9/2021 11:44 AM

Lyme Disease
Symptom list on this forum

I know. It’s scary. I had a Doppler done. All was good....

2/9/2021 9:28 AM

Lyme Disease
Symptom list on this forum

I think that the leucovorin is better then methyl folate. I am on rifampin and azithromycin right now. I was also on dapsone but got scared of it because of the methyl folate situation. I have had...

2/9/2021 8:13 AM

Lyme Disease
Symptom list on this forum

Thanks for your input. I just took a ton of blood work. If all is ok I might start the dapsone again. I dont think I will go past 50mg though unless my dr gives me the luecovorin. Are you doing...

2/9/2021 7:45 AM

Lyme Disease
Symptom list on this forum

Thank you so much for your input. I contemplated chiro but i decided to pursue physical therapy. I had only two sessions so far. He is working on balance by doing vestibular exercises and working on...

2/9/2021 7:36 AM

Lyme Disease
Symptom list on this forum

I’m not really sure what the difference is. I’m on my a dapsone group on fb and most people say you must be on leucovorin in on dapsone. Horowitz’s protocol uses it plus methylene blue....

2/8/2021 10:16 PM

Lyme Disease
Symptom list on this forum

I thought you said you were on 10 mg of methyl folate. So that’s why I’m nervous about it. Because it seems most people are taking leucovorin with the dapsone. I texted my dr last Thursday about my...

2/8/2021 10:02 PM

Lyme Disease
Symptom list on this forum

...

2/8/2021 9:48 PM

Lyme Disease
Symptom list on this forum

Hi all. On this forum on the “new to Lyme” has a huge list of symptoms. There are so many symptoms. Is there any medical problem not on this list? My question is who created this list? Where did this...

2/8/2021 8:34 PM

Lyme Disease
Free Online Summit: "The Truth About Lyme Disease"

Thank you for posting this!...

2/7/2021 6:54 PM

Lyme Disease
can Mycoplasma affect the leg and lower back?

I’m sorry I don’t have answers but I am severely suffering with lower back pain and both legs feel weak and shaky when I walk. My back pain hurts but also aches. My left leg feels a little tight....

2/5/2021 8:31 PM

Lyme Disease
Attempting Dr. Horowitz's double dapsone protocol

I know someone who has Bart is takes MB and rifampin. Not dapsone. She said it was a game changer for her....

2/1/2021 4:33 PM

Lyme Disease
Attempting Dr. Horowitz's double dapsone protocol

Are you all taking leucovorin? Also what about methylene blue?...

2/1/2021 2:28 PM

Lyme Disease
I can not afford any Lyme doctor since I’m unemployed however I need a doctor! What should I do?

How expensive is bvt?...

1/29/2021 7:20 PM

Lyme Disease
Attempting Dr. Horowitz's double dapsone protocol

Lymie. Do you live in the metro area? If so, what dr do you see?...

1/27/2021 1:52 PM

Lyme Disease
Attempting Dr. Horowitz's double dapsone protocol

Lymie. At least you are a little better. Anything is better then nothing!! I’m worried too about the anemia. But I’m not taking a high dose of dapsone yet. I’m also worried about the gut. That’s the...

1/26/2021 9:23 PM

Lyme Disease
Attempting Dr. Horowitz's double dapsone protocol

Appreciate your post! I’m on a modified dr Horowitz protocol. I could not take the doxy. I was too nauseous on ot so I’m on azithromycin instead. Every other week. Also rifampin and dapsone. I’m only...

1/26/2021 4:25 PM

Lyme Disease
Fungal tests or determination techniques?

the OAT test looks for the metabolic by-products of candida or other fungus types in your body that are being excreted in the urine. if there is enough candida to make you sick then there should be...

1/18/2021 6:48 PM

Lyme Disease
Fungal tests or determination techniques?

Walkingbyfaith. Thank you for the info. Do you know what your symptoms are that are from yeast and not from Lyme? The symptoms overlap. How do we know what’s what?...

1/18/2021 6:44 PM

Lyme Disease
Fungal tests or determination techniques?

Hi guys: Does anyone happen to know the cost of these tests? What about the accuracy. Is it really accurate for diagnosing Candida?...

1/17/2021 1:20 PM

Lyme Disease
Dr Horowitz Protocol

Garzie. I was told to get ifa for babesia. If I do Bart it will be western blot igg and igm. But I can just do igg for Bart and save a little. I figure that if I was to be igm positive then I would...

1/13/2021 7:08 AM

Lyme Disease
Dr Horowitz Protocol

Garzie. Thanks. I’m getting blood work today sent to Igenix. I’m debating on whether or not to spend the money on Bart testing or just do babesia testing. Big dilemma. It’s just so expensive....

1/13/2021 6:31 AM

Lyme Disease
Dr Horowitz Protocol

Girlie. Good to know. Thank you. I appreciate all you do for this forum. I hope you are still doing pretty well. Stay safe of course!!...

1/12/2021 12:42 PM

Lyme Disease
Dr Horowitz Protocol

Garzie I do have some nodules on my thighs. Lipomas. But I was referring to sore Lymph nodes under arms....

1/12/2021 10:58 AM

Lyme Disease
Dr Horowitz Protocol

Dcd I don’t think it’s pots from my research on it. My internal shaky feeling is internal. Not specific to a body part. The night sweats are not extreme....

1/12/2021 7:57 AM

Lyme Disease
Dr Horowitz Protocol

Garzie Thank you for your input. That clarification was beneficial. I am not sure if I really have Bart symptoms. I have been diagnosed in the past with borrelia miyamotoi and bands 23 and 39 for...

1/12/2021 6:31 AM

Lyme Disease
Dr Horowitz Protocol

Girlie Thank you for all that info. So you were on 10 mg also. But did you also take leucovorin? What about nystatin. My dr says he uses the Horowitz protocol but he does not have me on everything...

1/12/2021 5:53 AM

Lyme Disease
Dr Horowitz Protocol

Dude. I hear you. I am so tired of both natural drs and llmd’s. It’s mostly about money. Some of the llmd’s charge up to $2000 for a first consultation. It’s taking advantage of ill people. I like...

1/11/2021 9:14 PM

Lyme Disease
Dr Horowitz Protocol

K07 Thank you. Yes I take probiotics but not nystatin. I feel like I should be on it though....

1/11/2021 8:30 PM

Lyme Disease
Dr Horowitz Protocol

Adam. Thank you for your reply. I don’t believe my dr was going to get me to double dapsone. I think his goal was 100 mg. I think I will have to approach him on the Horowitz protocol. He does not...

1/11/2021 8:07 PM

Lyme Disease
Dr Horowitz Protocol

Thank you for your response. I have a feeling that folate dosage is just what he uses for everyone. The only thing I can think of is if blood work shows anemia that he would up the dose or add...

1/11/2021 7:55 PM

Lyme Disease
Dr Horowitz Protocol

Hi I’m am in a bit of a quandary. I started with a llmd in November. He follows the Horowitz protocol. It was doxy, rifampin and dapsone. I could not handle the doxy. I had extreme nausea which was...

1/11/2021 4:45 PM

Lyme Disease
Why are my tremors/vibrations worse in the morning upon waking?

I have been getting some internal shaky feeling. Not tremors. This is a new symptom. Also lots of chills. I think it’s just all about the neuro Lyme....

1/3/2021 2:48 PM

Lyme Disease
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