Hi dcd Anything new on the leg stiffness? Do you have any tingling as well? What about balance issues?...
I’m personally afraid of that high dose of dapsone. I would consider a lower dose longer term with other abx. That’s just my opinion....
My hair is falling out, that's why I was determined to get my ferritin up to see if that's what is causing it. By the looks of it, it's not. After supplementing for 2 months I see some improvement...
Band 41 is a spirochete. Syphilis is a spirochete. You have to check to see what other syphilis tests they did. They would have had to do other tests to confirm that diagnosis....
Hi. This is actually a new symptom of mine in the last few months. My left calf and back of thigh had a stiff feeling when I walk. Also if I press on all the muscles in the calf down to close to the...
Hmm. I don’t have restless leg syndrome. But I thank you for replying....
Thanks. I don’t think I ever had that....
Thanks girlie. With the thousands of drs I’ve been to and the thousands of viles of blood I’ve had over the years, I would imagine I was tested for it. Especially since I go to a lot of natural drs....
My bilirubin was fine. Thank you for responding...
Thank you. That’s good to know but should we be taking iron supplements? Also my rbc was slightly low....
Thank you for your reply. I don’t believe I have a sensitivity to gluten. I keep gluten down to a minimum anyway. I don’t think that’s my issue. My iron level is fine. It’s the ferritin that’s low....
Does anyone have low ferritin? My primary physician says it could be gastro related. Blood in stool or bleeding ulcer or gastritis. He is making me nervous. I really don’t want to get a colonoscopy...
I’ve been on lipsomal glutathione and cucurmin and I see no change in my swaying. These things don’t kill the infection....
Thank you so much. I will look until this....
I don’t fall either but it’s hard to manage. Just standing in the kitchen to cook dinner is a huge effort. Everything is a huge effort. This has to be my worst symptom because there is no break....
Thank you saraeli: I did see that condition when I was researching. The thing is from what I read it happens after being on a boat. Or could be a plane. It’s not actually swaying though. It’s a...
I sway when standing. You can actually see it. It’s not just a sensation. Also internal shaky feeling. My legs feel weak. I don’t think they are actually weak. It’s just the swaying makes it hard to...
I agree. I’m on thyroid meds. I am hypothyroid plus Hashimotos...
I know. It’s scary. I had a Doppler done. All was good....
I think that the leucovorin is better then methyl folate. I am on rifampin and azithromycin right now. I was also on dapsone but got scared of it because of the methyl folate situation. I have had...
Thanks for your input. I just took a ton of blood work. If all is ok I might start the dapsone again. I dont think I will go past 50mg though unless my dr gives me the luecovorin. Are you doing...
Thank you so much for your input. I contemplated chiro but i decided to pursue physical therapy. I had only two sessions so far. He is working on balance by doing vestibular exercises and working on...
I’m not really sure what the difference is. I’m on my a dapsone group on fb and most people say you must be on leucovorin in on dapsone. Horowitz’s protocol uses it plus methylene blue....
I thought you said you were on 10 mg of methyl folate. So that’s why I’m nervous about it. Because it seems most people are taking leucovorin with the dapsone. I texted my dr last Thursday about my...
...
Hi all. On this forum on the “new to Lyme” has a huge list of symptoms. There are so many symptoms. Is there any medical problem not on this list? My question is who created this list? Where did this...
Thank you for posting this!...
I’m sorry I don’t have answers but I am severely suffering with lower back pain and both legs feel weak and shaky when I walk. My back pain hurts but also aches. My left leg feels a little tight....
I know someone who has Bart is takes MB and rifampin. Not dapsone. She said it was a game changer for her....
Are you all taking leucovorin? Also what about methylene blue?...
How expensive is bvt?...
Lymie. Do you live in the metro area? If so, what dr do you see?...
Lymie. At least you are a little better. Anything is better then nothing!! I’m worried too about the anemia. But I’m not taking a high dose of dapsone yet. I’m also worried about the gut. That’s the...
Appreciate your post! I’m on a modified dr Horowitz protocol. I could not take the doxy. I was too nauseous on ot so I’m on azithromycin instead. Every other week. Also rifampin and dapsone. I’m only...
the OAT test looks for the metabolic by-products of candida or other fungus types in your body that are being excreted in the urine. if there is enough candida to make you sick then there should be...
Walkingbyfaith. Thank you for the info. Do you know what your symptoms are that are from yeast and not from Lyme? The symptoms overlap. How do we know what’s what?...
Hi guys: Does anyone happen to know the cost of these tests? What about the accuracy. Is it really accurate for diagnosing Candida?...
Garzie. I was told to get ifa for babesia. If I do Bart it will be western blot igg and igm. But I can just do igg for Bart and save a little. I figure that if I was to be igm positive then I would...
Garzie. Thanks. I’m getting blood work today sent to Igenix. I’m debating on whether or not to spend the money on Bart testing or just do babesia testing. Big dilemma. It’s just so expensive....
Girlie. Good to know. Thank you. I appreciate all you do for this forum. I hope you are still doing pretty well. Stay safe of course!!...
Garzie I do have some nodules on my thighs. Lipomas. But I was referring to sore Lymph nodes under arms....
Dcd I don’t think it’s pots from my research on it. My internal shaky feeling is internal. Not specific to a body part. The night sweats are not extreme....
Garzie Thank you for your input. That clarification was beneficial. I am not sure if I really have Bart symptoms. I have been diagnosed in the past with borrelia miyamotoi and bands 23 and 39 for...
Girlie Thank you for all that info. So you were on 10 mg also. But did you also take leucovorin? What about nystatin. My dr says he uses the Horowitz protocol but he does not have me on everything...
Dude. I hear you. I am so tired of both natural drs and llmd’s. It’s mostly about money. Some of the llmd’s charge up to $2000 for a first consultation. It’s taking advantage of ill people. I like...
K07 Thank you. Yes I take probiotics but not nystatin. I feel like I should be on it though....
Adam. Thank you for your reply. I don’t believe my dr was going to get me to double dapsone. I think his goal was 100 mg. I think I will have to approach him on the Horowitz protocol. He does not...
Thank you for your response. I have a feeling that folate dosage is just what he uses for everyone. The only thing I can think of is if blood work shows anemia that he would up the dose or add...
Hi I’m am in a bit of a quandary. I started with a llmd in November. He follows the Horowitz protocol. It was doxy, rifampin and dapsone. I could not handle the doxy. I had extreme nausea which was...
I have been getting some internal shaky feeling. Not tremors. This is a new symptom. Also lots of chills. I think it’s just all about the neuro Lyme....