Lymeassasin - I have had that before. It was happening much more and is now rare. I had heart surgery in 2016 to replace an aortic valve. IT IS IMPORTANT YOU KNOW THE SURGERY WAS NOT CAUSED BY LYME....
Hey saraeli - Just hearing from you is a help as it can be seen what a nice person you are who cares for others. Just know same goes back to you.So there is no such thing as "hearing too much." Just...
One thing an ENT can do is check your sinuses with a small scope to make sure nothing else is going on. I am doing that Friday to, hopefully, mark off another negative possibility. I have found it...
Girlie - I remember you mentioned your friend whose GFR came up. That's amazing at 92. The reason I started this whole conversation is because of what the nephrologist said to me - about possible EBV...
That's an interesting article. I read a lot about what Harvard is doing in that area and kidneys in general. They are still trying to figure out exactly what has caused mine to go down as the kidney...
Had an interesting development for those who have EBV. Nephrologist ordered a kidney biopsy for me, and I had it done Thursday. Today the doctor called and told me the biopsy "looked good" as kidney...
cdc - My dentist does ozone treatments via the ear. Don't know if it is possible to buy a machine that will do it and will look into that. Good idea. Have you decided to try and get tested for it?...
ko7 - I am using monolaurin. Will look into adding in lemon balm. astroman - That is where I thought you were going with first post but wanted to be sure. Thanks. Auspiciousbunny - Glad the answers...
So what if test after test have shown reactivated EBV? This is not nay saying your theory, astroman, but if tests for EBV have remained very high for more than a year, is it gut or EBV? Or, are you...
saraeli - I really don't blame the company. It has a good online support group and sends emails with pertinent information. Honestly do believe it's just something in life I struggle "getting." It...
I'm open to the concept that I am just an idiot with it and all is simpler than I make it out to be. But there has to be an easier way to understand it, even for the somewhat technically challenged."...
The next two paragraphs are needed to get to the position I am taking in this post:. I have no doubt Lyme symptoms I have experienced started in 2001 or 2002. It took 11+ years to finally get a...
About three months ago, I bought a rife machine. While I have learned some basics on it, I've struggled to understand the concept and how to use it to the best of my advantage. Very, very...
Being in the sun has been causing fatigue and a mild, burning feeling on my face. Also the skin looks lighter with mild wrinkles. I didn't put the exposure to sun and fatigue together for a long...
So many comments that some who has been active and competitive his or her own life can relate to. Had I sat on my butt my whole life, there wouldn't be as much to miss. Your story, however, is a...
"Mine definitely does. I'm reliably 97.2 in the morning and 98.2 in the evening." saraeli - That is similar to what mine used to do, except it was more like 97.8 - 98.2. Now normal is closer to 97.9...
Unfortunately, sites with misinformation concerning Lyme, mold, etc... are prevalent online and in books. It's why we are where we are....
saraeli - At least your memory is good remembering about the monolaurin. It got better for about 5 days where I was at about 50%. The fever stayed away, for the most part, for about a month. Now back...
Thanks for you posts, saraeli and borreliob. The information concerning astragalus and ashwagandha is typical of, it seems, what we all deal with Lyme and other problems it can create. A lot of...
HeartsnPain - Good idea to stop it and see if anything improves. Sometimes I get caught up in trying to correct things NOW, instead of using logic. And logic left the building with me early on with...
In short, I recently added in Astragalus, Ashwagandha, Reshi and Turmeric. Also adding in more monolaurin. Could that cause the worsening of fatigue and depression? Hardly getting through days again....
It was nice of WBF to wish a happy day to everyone. I had gotten into my negative mood until I read it. Motivated me to eat lunch with one of my daughters and to get her some flowers. So thanks, WBF,...
I had not heard of TUDCA until WBF mentioned it. From reading up on it, seems it is gut health improvement leading to reduction in symptoms?...
RainyCloud - by "destroyed," do you mean fatigue or exhaustion both mental and physical? Are is it pain and brain fog type reaction?...
WBF - thanks for that, and I'm trying to get someone to order mold tests. But right now you rest and hang in there....
Can you get enough calories (2200-2500) without having potatoes with this diet?...
First, this is not written out of an over-emotional response to everyone's posts. I was never an overemotional guy (until Lyme), but right now I am calm. Just from the heart. While the whole...
As many have said, and I've said it a few times before this site, don't know how I could have gotten this far. The responses today are just a small example of the concern, compassion and caring that...
Shasta - Thanks for that information. This evening I will take a look at all the Medical Medium information and book information. Some of the supplements/herbs you mentioned are ones I'm not allowed...
The multiple diagnosis deal you get with doctors is understandably frustrating. Some immune "boosters," from what I've read, act more like immune modulators. I may be mistaken, but cordyceps and...
It's hard not to let the mind go to worst case scenario. But as others have said and cited examples, more happens in our minds than reality. I'm very bad about that now, too. As someone once told me...
Your replies are all appreciated. It took a lot to make myself post it because the last thing anyone wants is to be brought down and feel there are no answers. Just have hit a low that has never been...
For three days, I've tried not to write this or post it. So many of you gong through so much, you have enough without a negative message. Would talk to someone around here, but no one has a clue...
For me, I do not crave salt. The surprise is the tea, which I drank in the afternoon each time, changed my mood. I know caffeine can wire me now, but this is more mood related - I came out of deep,...
Welcome, Hope.still. You are in a good place being on this forum. I read your post about caffeine/coffee earlier today. I was already going to post this after feeling better for a day after caffeine...
Two days ago I drank black tea with Stevia as sweetener. And, once again, my mood was much better after for that day. As I posted once before, this also happened a week or two ago. My energy level...
WBC usually low or barely normal. RBC usually low normal. Lipoatrophy, like lipodystrophy, can be caused by chronic infection, as can lipoatrophy. Lipodystrophy has been related to HIV and some of...
dcd - I will not know results of test until Feb. 13 at next appointment. Did you find it more reliable and more extensive than all the other tests for autoimmune? As mentioned, all mine come out...
After many exchanges with dcd, I do not think he meant it quite as it was put. I agree there are many good LLMDs out there and putting many as typical quacks is not helpful. While I can't read minds,...
Last week I went to a different rheumotologist. Almost all my autoimmune tests showing normal (most ANA tests, anti-ro, RA, sed rate, etc... Only low C3 and C4 at low normal. But he drew blood for a...
saraeli - Cortisol Manager is made by Integrative Therapeutics. It has ashwagandha, L-theanine and brandi root. It is supposed to help with anxiety and sleep. It's described as a "stress hormone...
A few days ago, I decided to go back to a naturopath I have seen before. There they do bioenergetic testing. With nothing getting better, and dealing with Lyme, co-infections, EBV and autoimmune...
LLMD sounds like a good idea, depending on how soon you can get in to see one. Still, there is no sure answer that might come from that. Do you feel it has to be the A Bart that is still causing...
I'm pulling for you, WBF. Hoping this will fill in a good part of answer for all you have been going through,...
This is an interesting conversation. So many on this site seem to have the anxiety/depression issues, which include anxiety in the morning. And as Lightlife mentions, "morning comes with physical...
As in gut or different aspects? That is something I did not know. Thanks, Dmitry....
Always thought I had babesia and actually may, but am also treating for Bartonella now and am getting a reaction from zithromax. I would be curious what a new complete blood count might show for you....
saraeli - It's hard to describe. Almost like an internal fluttering throughout body, but mostly felt in chest area. Not heart. The heart is beating regular with pulse around 60-65. The fluttering...
When you put "subsequent anxiety," I assumed you meant it comes when you awaken. Does depression ever follow the anxiety? This is a typical pattern for me, and at night, I look forward to going to...
Out of desperation, I started taking zithromax again this morning in hopes helping with the bad anxiety I have each morning. About an hour after taking it, I feel an inner "jitter" feeling. Could...