One group on Facebook that is really good is the IVIG group. Excellent information, help and knowledgeable people. But I agree about forums. Love this format, and as I've written many times, this...
Your summation of Nystatin fits my experience, Blazer. I has little reaction and little help from it, but Diflucan kicked my butt. Looks like I'm going to have to try it again. You can't get Diflucan...
Thanks. Will ask my doctor to order the tests again after IVIG. It seems they wouldn't come down that much without treating if the IVIG theory wasn't the case - as in true Hashimoto's. That's an...
Update on thyroid status: Just had thyroidglobulin and Thyroid Peroxidase checked again. This time my doctor waited almost 5 weeks after last infusion instead of 3. Thyroidglobulin was now 32,...
Dude - It's worth a lot more than that, and appreciated. And you're right that she really means well, but maybe she doesn't understand how sensitive some can be, especially with this complex...
Trying one more new naturopath to see if she can help with Lyme and other problems I have going on. She has me taking supplements from a company called Cellcore. Started yesterday with one that has...
Just checking to see if it is now working for me. Seems it's been hit or miss with all the changes being worked on....
The positive story is appreciated,Girlie. Through all the years of this, I’ve never been at this level of depression. Feel totally overwhelmed. Your words couldn’t come at a better time. Between...
Thanks for the ideas, some of which I have not tried but will. magoo - What does the sea salt do? I haven't heard of this but am interested on what it impacts. Dude - I'll email you with some...
Thanks for that. morningstars. Had not seen that before and will give it a try. Very glad it helped you. I'm surprised the neck pain didn't lead to migraines, or maybe it did and you didn't mention...
Sorry for not responding to all earlier. Have tried to limit online activity because of the impact it seems to have on migraines and/or dizziness. It seems there is a definite pattern to each day and...
Does anyone have any off the wall treatments for migraines? They have become very frequent and brutal for the last-two weeks. I've tried everything doctors have suggested....
Hey saraeli - I had wondered about pollen but it has gone on for too long, and our pollen count has been negligible around Atlanta area. Seems it may be neuropathy related, possibly autonomic....
I met with a new naturopath who is the most sincere and in-depth one I’ve had in all the years of dealing with this. Also met with her nutritionist, who spent an hour asking questions and is now...
It’s not a herx system, but lately I’ve experienced dizziness and came close to full-blown vertigo 10 days ago. Ground seemed like it was moving, but I was standing still. Reason I it is because I’m...
Reading more articles on this tick allergy, one states that “half of doctors don’t know about it” It seems that’s not surprising, especially on this forum, as we know doctors seem to still not grasp...
https://www.foxnews.com/health/potentially-life-threatening-health-scare-rise-virginia-department-health-cdc-issue-warning (Sorry for not having live link. Still an idiot with coding). (Just edited...
Good point about sleep cycles. If I get up before 8:00 am, which happens when I try to coach a cross country meet or set sound and announce a race, I pay for it the rest of the day, sometimes two. On...
From what I have read about it, the fiber can have an anti-inflammatory effect. There have several studies done showing it (fiber intake) reduces creatinine and improves overall kidney health. Heart...
Garzie - I should have added for all that I don't supplement as much as suggested. It's about 1/3 of what is suggested to take. It seems to be like all we try to take - just depends on the person, as...
A side to the subject: I stopped taking probiotics and have been taking fiber because of constipation, which may be caused by the erosive gastritis that was found on upper endoscopy. I wrote "may be...
Have experienced what you are experiencing and what saraeli mentions. Before I was finally diagnosed with Lyme years ago, I would go have a massage and feel bad for a few days after - body pain,...
Did you test positive for Sjogrens through antibody blood test?...
I bet they don’t find anything of much consequence. At least hope so. They did an echo, angio cardio gram, nuclear stress test when I was in hospital month or so ago and all good, except for the...
Thank you, Rainy, for mentioning Garzie’s information on the half-life of IVIG. I echo your thoughts on that and should have thanked him before, which I now do. Your information as well, Rainy. dcd...
Rainy - After reading, are we agreeing the positive antibodies are caused by the IVIG and will return to normal? That’s what I thought was being said it the passive antibody study I referenced. Just...
Garzie - You are still experiencing heart pan?...
I did read in one study that the thyroid antibodies that IVIG can produce are “passive.” Took that to mean don’t actually cause Hashimoto’s or symptoms....
Thank you all for the information. I’ve spent a lot of time Googling about it, but hearing from those who have dealt with it or have seen other information on it helps. T3 has been something I’ve...
Have you had any tests for possible autoimmune? Not saying that’s what it is, but just curious if that’s been explored. Also, Epstein Barr....
Thanks for your thoughts/insights and points. When I read the second link, I didn't understand if it meant antibodies other than globulin. My first thought was this MIGHT be caused by IVIG, but being...
bro - I'm sure you have posted this before, but what have your Lyme and co-infections test(s) indicated? Is there a better chance it is something else that has been tested for?...
Hey Rainy - Thought about that with the thyroglobulin. That would make sense. But I don't know what can explain the peroxidase....
I've been dizzy, so will make this very brief. Had blood tests. TSH and T4 normal. I've been on meds for low T3 for years. Blood test this week shows Thyroglobulin at 10.0 IU/mL, just above normal...
Thanks again, to both you and Rainy. Have one final question that I think I know the answer to: Is Lyme considered a systemic disease?...
Ohhhhhhhhhh. It wasn't wires cross - just that I'm a little slow. My hope would be that can happen. That is why I'm still treating for Lyme. Wasn't trying to come off as a hopeless person, though...
Your points on Lyme causing mimicking of autoimmune is spot on, Rainy. Wasn't throwing shade on that. We read about it a lot on this site and in links, such as the great one you posted. My thought...
Living in the Atlanta area, there is no way to make it through the summer without air conditioning. I've said for years the southern invasion Sherman did in the Civil War was completed when central...
Thanks, Garzie. I have no doubt Rainy was positing to show not only that Lyme can cause Sjogrens but also other autoimmune problems. He is also a guy who works to help others, and trying to ease my...
Thanks, Rainy, Very thoughtful. After reading through the article, I still think the positive lip biopsy for Sjogrens makes it hard to doubt. I don't say that as completely knowing, but am thinking...
Wasn’t suggesting you were asking a lot. Just didn’t want you worried about turning blue. I had concerns about that when I first considered taking it, but then I read how much was being consumed....
I took a form of colloidal silver for two years, along with Bicillin shots, and got back to near “normal” in 2015 and 2016. Both made the difference, but then it was simpler as I was just dealing...
Days I take the herbs, things get worse. May mean herx. May be effecting autoimmune. Going to find out....
Hey Rainy, Same goes for you (also all tings considered). My stomach is causing major issues and seems to be getting worse. Upper endoscopy showed erosive gastritis and another test showed fast...
I have nothing to add that would help, but want to thank you both for the information provided. This is something I never thought about, and it helps to know as much as possible in different aspects...
Do I have that correct or is there a different test I would need to take?...
Rainy - I know sida acuta and red root are two. I’ll look up the others when I start IVIG in a few minutes. Garzie - I used to keep exact records like you. Did so for years. Have been lax about it as...
Not sure about the burning feet aspect, but tapering Effexor can really be a challenge. Many years ago, when doctors simply labeled me as a hypochondriac with anxiety and depression (11 years before...
I go once a day. Just not as much. They think it’s cased by the autoimmune but trying to see if it’s Bart. Probably autoimmune. Hoping Bart....