What you write makes sense. Nystatin really kicks my butt. Will start with gargling very little and add as I go. When I coached at Kennesaw State, our office, with no windows, was under the football...
Fronton - Seems I did a histamine test, which was normal, if I remember correctly. The burp test (multiple) with baking soda produces no burps, so my guess is it's low stomach acid. Doctors approach...
WBF - Haven't been on antibiotics for a while, except for an occasional Bicillin shot to see if I get a reaction. "Oral Nystatin hits yeat/fungus in the gut." That is what throws me. The Nystatin has...
Doctors can make a person very nervous, especially when Lyme and "strange" symptoms are involved. Then the mind can take over, leading to more nervousness. That, at least in my case, has held true...
astroman - That just shows how different treatments affect people. No problems for me with Diflucan. Nystatin a total different story. Hoping just gargling won't make it so intensive....
An ENT has prescribed nystatin oral suspension for me to gargle with after looking into throat and seeing "white area and signs of inflammation." Having struggled with nystain in pill form in past,...
On almost every test I have had in the last 11 years or more, WBCs are low normal are just below normal. RBCs are usually just below normal and rarely low normal. Have ben through 2 bone marrow...
So correcting the microbiome in gut would help with dealing with Lyme? Am I simplifying this out of ignorance because I can assure you on trying to read Garzie's post, my eyes became crossed and...
Until Lyme Disease, which has been many years, I did not really believe stress could cause such problems. I always handled situations, or even if stress kicked up, it didn't last long. Now? Any...
Deep Sleep - That was an interesting read. Great information for anyone taking olive oil but especially with Lyme and stomach problems. SO how did you figure out olive oil might be causing problems?...
"Weird stuff keeps puffing." Great way to put it. Never know what is coming next or what could "set off" something new or return of old. The primary question I has still not been answered - Do I have...
Tu Wang - I also get dry mouth, especially while sleeping. I think it may be from reflux that comes up at night. I cannot elevate my pillow much as mentioned by astroman because of disc problem in...
Glad you had seen it. Wanted to mention just in case. You have had more than your share of mold issues....
WBF - This has nothing to do with your subject, but I thought this would be best way to contact you. I noticed ILADS is having a mold webinar February 27. I'm sorry it is not a live link, but you can...
Tu Wang - My doctor aid the same ting. Each time I have endoscopy, it has shown "mild gastritis," and it is ignored. Which leads to saraeli's question, which is a good one and no doctor has answered....
saareli - We've all experienced doctors who do not help. Some just chalk it up to "it's in your head,' while others simply don't know what to do, fail to answer questions for lack of an answer. Then,...
This is an interesting area. My patience to sit for long is not good, so wokring on meditation is not easy. Does music help when meditating? Is there a certain thought process that helps more than...
So many good points and information. All are appreciated. Seems Lyme messes so much with gut. Anyone more emotional when gut issues are worse? The test I took was "serum gastrin," which the doctor...
Is it possible to have reflux symptoms if your acid levels are in normal range? I'm not convinced they are as the gastro just did a blood test (I had never heard of it and will see what it is named...
When I took the Rawls formulas with much of Buhner's herbs in them, my stomach really got bad - much more than it is now. Knotweed seemed to be the worst one....
Your story is familiar to so many on this forum. Doctors who don't understand, symptoms that can't be explained, pushing through it even though you feel bad. It took 11 years to get a Lyme diagnosis...
Skeletonflower - What is your creatinine level/GFR?...
dmw - When I originally posted this a few years ago, I mentioned "lipodystrophy." But there is lipodystrophy, which causes fat loss and the build up of fat in certain areas, like on shoulders (causes...
Our story, astroman, must be a standard for gastros when he or she doesn't know really what is going on, like in the case of Lyme. I had forgotten the gastro told me I must have too much stomach acid...
All the above comments are very interesting. There are so many views and different thoughts on reflux, or what feels like reflux. It is an area that really throws me as I have had what feels like...
Wishing you and everyone else a Christmas miracle (or at minimum and push) toward better health. The years blur together, but each day brings and new challenge, but also new hope. Best to you, and...
So great to read your post. It's easy to get into a Christmas funk with just life, much less Lyme. But to see you are feeling more again about what this season is really about. You are a great asset...
maracas - I didn't realize you were new until Girlie mentioned it, so welcome. I'm glad you are doing better and wish you continued improvement. Has it been a long time since all this started for you?...
Hey marcas - How is your treatment going and how do you feel overall now? And thanks for the response. I'm guessing it will go away if I do the right treatment and my hands get warmer. Glad it did...
As some have suggested, maybe go very slow with JK. I'm one of those who could not handle it, even at low doses. I've read for years it can help stomach issues, but it did the opposite for me. Now...
One of my daughters insisted I go to see someone to make sure it is not an infection, which I didn't think it was,,,, and it wasn't. But I appreciate her. Add one more to the list of symptoms doctors...
The finger next my my little finger on left hand has turned purpulish red. It runs from just below middle knuckle to near fingernail, but the finger nail is not purple. Doesn't seem to be Raynaud's....
When I trued fasting even for one day, it was a struggle to get through. Became lightheaded, bad mood, weak feeling. This was a couple of years ago. But I do remember reading supplementing with...
Sorry to hear you are feeling bad, WBF. You have gone through so much. The mixed herbs are always a problem for me as some help and some cause problems. It's always a trial by error or guessing game....
Until I realized my kidney numbers had dropped (that was 2.5 years ago, but they had been low for 5 by then) I never realized how much salt we take in each day and how much salt is in different...
To all of my friends of the Healing Well Lyme Disease Forum: Happy Thanksgiving, even if you live outside the U.S. And all of you are my friends....
There is so much about treatment and diet, but diet seems to take a back seat to actual meds or herbs. Diet is CRITICAL, as I've learned. I get off a decent diet, no telling what symptoms are going...
Sorry to read symptoms getting so much worse. Questions - Is the pain stinging? Also, do your hands and feet get cold, along with the numbness? Is there a reason you have not restarted hottuynia and...
Never had fevers in morning. That might differentiate between what each of us actually has/had. saraeli - Have you had a EBV DNA test run? I may have asked you that in the past. According to a couple...
Like everything else, it all gets mixed together with no direct answer. I am going to call the new cardiologist that will begin seeing, but the appointment is not until next week, and with...
That's what I thought. No doctor or naturopath could answer that question. The fever I experienced was sometimes as low as 98.8, but my usual body temperature is usually around 98.0 - 98.2, so I...
USS - I had similar low grade fevers, always in the afternoon or early evening, for about two years. I was also diagnosed with EBV and attributed it to that, but now I'm not quite sure why they were...
Thanks, saraeli. My result was 312. The doctor didn't mention it then I asked the nurse, who said I need to go to the cardiologist as soon as I can get appointment. Then I read kidney disfunction can...
Astroman - Early on, I went through the same thing with a doctor, who put me on prednisone (which made me crazy) and led to bigger problems. That was years before Lyme diagnosis. Sorry about your...
If so, can treating Lyme stop the heart problems?...
Aerose - Good idea, but that is where the kidney aspect comes in. I know yesterday the food I consumed had too much salt, and for only the second time, I had mild swelling in my ankles, feet. Then...
Could some of the symptoms be worse because of a milder form of herx? And how are things today?...
dcd has a lot of god thoughts in his post. Also, if you do decide to see a rheumatologist, the most accurate for autoimmune indicators is the Avise test, and it might also be helpful to have your C3...
dcd - It makes sense about the change causing headaches. Body adapting with Lyme included makes it tough. There are so many things I COULD to if it weren't for the kidneys issue, such as hamburger,...
That is what throws me - there seems to be no answer to the stiff neck and migraines. That leads me to believe there is also something else at play, like autoimmune or kidneys. But I am glad to see...