Thoughts on Brucella and ehrlichia are good ones. What is best way to treat those? I've started back on Bicillin to see if it changes anything. The odd part is all this comes with the right side...
Maybe I missed it looking at all the posts, but have you been tested for Epstein Barr? It is what, I believe, plays a big role with fatigue, when I get it. I'm going to be tested again this week to...
The TBRF and Miyamotoi slipped my mine with you. It seems it is more related to fever, though. That's why I was wondering about the pain. More joints than muscle? I think both can cause muscle pain....
saraeli - That is a possibility, though the pollen count here is lower than it was a couple of weeks ago without symptoms. But maybe it has an accumulative effect. Maybe I should try Claritin again?...
Once again, I am experiencing what the subject mentions. It starts about 3:00 pm and goes until about 6:30 or 7:00 pm. My face feels like it's hot , but it's not as hot as it seems. Fever feels like...
Hope the blood pressure does the trick. As I'm sure you've seen, less red meats could help with creatinine, as well as meats in general. Easier said than done. But with everything else in good range,...
Glad most of the symptoms went with treatment. That seems to be a rare case of good success. You think borrelia is still involved causing he pain?...
As far as insurance, I have found that a tough sell. Initially, the rheumotologist I see for Sjogrens Syndrome said it would be no problem getting IVIG for the neuropathy it is causing. That changed...
JMF - Before the results you report on your mom's tests, how long ago was the last time you had gotten "kidney" numbers on her? Just wondering if this may have been a slow process or happened fast....
mareish - I apologize for late response to your questions. I have not been online as symptoms jumped up. Not sure what is pushing it, but severe afternoon fatigue and hot feeling face are happening...
I have used native phage therapy for EBV and Lyme. It seemed to help with EBV, but the doctor had trouble finding the right frequency needed for the tick born relapsing fever that would work....
Hey Rainy - Maybe you'll understand this better. I have always seen Bicillin 12000000 units as 2ML. The site is showing it as one. Also, it indicates "IU." I tried to chat but no one must be there...
lyme guy - It will take more than six weeks, for sure, to really make a difference. What dosage are you taking and how often? When it helped me by the end of 2014, I had been taking it for about a...
Any thoughts? Mark's Canadian Pharmacy (also called Can Ship Meds) is the only place I could now afford to purchase Bicillin 1.2 mu shots. But their shipping is delayed now, and can't get the shots...
saraeli's point is a good one. Something pressing on a nerve that may be able to be taken care of with chiropractic care or inflammation going down. With Lyme causing so many odd things, this is a...
Echoing Garzie's thoughts - Keeping up with blood tests and understanding what they are telling you is important. I found out a lot of doctors seem to dismiss "off" kidney counts with Lyme. Even an...
I like that response, Rainy - "Lyme aside, I'm doing okay." That's like "Except for the iceberg and sinking, the Titanic trip was nice." Thanks for the information. I had forgotten Walking by Faith,...
Thanks, Rainy. They look a little like those in links. Mine are more lie a callous but they aren't and just a bit darker. AT the end of my big toe it looks like a mild blood streak. If I could ever...
I've had neuropathy in my feet that has been getting worse now for a year or more. Lately, it has seemed to accelerate. Have been diagnosed with Sjogrens Syndrome (positive test on lip biopsy and...
Garzie - Overall, are you still feeling better as you were a month or two ago? Funny you mentioned glutathione as I started it yesterday again in hopes of detoxing more. wladek83 - Hope you don't...
There have been people on the forum who have had good success with herbal only treatment. I am not one of them, but maybe someone who has will jump in on conversation....
wladek83 - Your post concerning Julie McIntyre is a good one and is also a good example of the conflicting information on herb usage. That's not doubting what you posted, but leads back to the point...
There is no straight answer as to how Houttuynia impacts the kidney, as least what I have tried to find over the years. With my kidney function at about 50% - 55% for the last-nine years, I'm careful...
Except for Doxy, I've never taken the others you mention, except Stevia. It took a while to realize that Stevia can actually can cause a herx. In my case, it caused severe migraines. I was using it...
Thanks for that information, Penny. I researched to find I can actually take ALA as it also can help with kidney disease. How much did/do you take each day?...
A comp panel would cover electrolytes, except magnesium I believe, and would give you more information about kidneys, liver, blood glucose etc... But it may cost more, so atroman's way may be best....
That leads to what may be a stupid question in my mind, but it wouldn't be the first time I've sked one. Does use of serrapeptase and/or nattokinase and lumbrokinase help with the possibility of...
Seems like, as in this article, it all boils down to "treat the underlying infection." We've discussed this numerous times, dcd. My train of thought was to treat the underlying infections, but now...
Wow, dcd. I didn't know it could take that long to experience that kind of reaction. Hope you are feeling better some this weekend. Are you still feeling a lot of pain?...
For the price, astroman, it can't really hurt. When first rubbed into scalp, it feels oily but that gets better after an hour or two. It also has made my hair feel less dry. Paul B - This one was not...
I learned at Biologix that an infrared sauna can help with red blood cells and lower blood pressure. I think a hot bath can also lower blood pressure, as a sauna can. As mentioned above, however,...
Traveler - First, good to see you active recently on the forum. You have always mentioned Lion's Mane for nerves, if I remember correctly. Did you stop it and use the other? Both? I've been taking...
A few months ago, I started having hair loss in the top right side of my scalp. It wasn't typical male pattern baldness, and I have more hair than most men my age. Since I didn't know if it,...
If DCD provides it, we know it's good. Sorry you have so much going on with all this. It can get overwhelming. The neuropathy threw me with frustration when the EMG came back positive, though I'm...
Sdarrah - Do you feel it is from Lyme or have developed an autoimmune? Also, it is a burning pain with sharp "jabs" at times or more tingling? I always thought mine was from Lyme or co-infection,...
sdarrah - Have you had a nerve conduction study and EMG completed so it would show how both nerves and muscles are impacted? It took trying two neurologists, who won't even talk about Lyme Disease,...
What a strong person she was to say that. Says a lot about her. Those are motivating words right now. It's easy to get caught up in the negative with Lyme and what it brings. I'm as guilty as anyone....
I will, take a closer loop at each choice you have put. First thought, at least for me and if I am following the thought of the post, Lyme was the original and maybe only player as I was able to get...
We need more people who, like in the study, try new treatments and think outside the box. Doctors I have to see for different items (orthopedists, rheumys, etc..) still look at Bicillin as a drug I...
Interesting. I forgot to mention while the Lyme symptoms went background, Sjogrens/Raynaud's became much worse. Hands and feet so cold they burned, eyes much more sore and dry mouth, especially at...
"While sick with the virus, my normal Lyme symptoms all but disappeared." I have found that interesting as seems the same happened with me. Wasn't sure if the COVID symptoms just took over my focus...
Like dcd, I had a horrible response to monolaurin early on. At a very slow pace, I built up in hopes of helping some with Epstein Barr. Yet I never got near the recommended dose of about 80 pellets....
That could explain what happened to you, dcd, as your pattern after the shot fits. And that's where the problem is, as you are pointing out. We just don't know. There are people who tell me,...
Thanks Paul and Rainy. The depression is still there today, but not as bad. Didn't take hydroxy again today. The big problems right now are dizziness and stomach (nausea). I remember they seem to...
Totally understandable you want your life back. As so many here have found with Lyme, there is no simple road to finding improvement, but it can be done. That is the main thought to remember. It...
It is pretty standard to see mild disc degeneration on an MRI or other scans. The more active someone has been in life, the more it can be seen. I'm older and was very physical through the years, so...
Stopped hydroxychloroquine yesterday and still feel dizzy and depressed. Can't say for sure that is what is causing it as it really gets worse (the dizziness) with any exercise. It could be related...
Girlie - Eyes were burning before but have gotten worse. But I don't think that is from the hydroxy. The half life is a concern as I want to get it out of system to see reaction. Rainy - You find the...
Been taking hydroxychloroquine (200 mg) for close to two months. Lately have been feeling so bad it's hard to look at computer screen. Raised dose to 300 mg the last two days. While I have felt worse...
WBF - I apologize for not responding to this as it was nice of you to help with looking for answers. I have hardly been on the forum because of burning eyes making it hard to look at the computer...