Well, the practical side got the better of me and I decided to spend more time with DNRS. The steps are still SO hard for me to remember. I've heard Gupta is easier, but I can't justify spending the...
I also see dcd’s point. I’m sure there’s some people being treated for lyme and it’s actually not their main issue. Goes both ways. I’m intrigued by Vibrant test bc it tests for a lot of pathogens,...
Maybe keep calling rheumy to see if they have cancellations. Might be a lot of those right now....
Nic - I saw you posted on another thread that you are awaiting your Vibrant results. Please post when you get them! I did get my micronutrient test back from them - took about 3 weeks. Is that how...
Numbness in limbs. I also have buzzing/vibration in lower legs. It may have been me describing novocaine in nose/gums. I wish I had advice for a fix. After having this for 5+ years in various...
I'm thinking of starting Gupta program. DNRS (Annie Hopper) just didn't agree with me. My short term memory is really bad - maybe its brain fog, any way, just can't follow the DNRS. I signed up for...
Numbness during sleep is one of my main issues. For me, certain supplements and chemical exposures will cause me to wake up with my limbs numb (that's usually supplement/medicine) or a numb side of...
I took it off and on for a year. No problems with it. I was mainly concerned with vision....
Docs are using plaquenil with azith as the combo for coronavirus....
WBF - This thread may be of interest: https://www.healthrising.org/forums/threads/role-of-udca-tudca-in-mast-cell-disease.4621/ TUDCA may help modulate eosinophils too....
I may have to give it a shot. What made you try it? My numbness definitely flares with chemicals. And I recently saw a doc say mcs is just an overload of toxins. I was under impression that mcs was...
Thanks dcd. I also found a study that was doing 400 mg 2x as loading dose followed by 200 mg 2x for 4 days (on Dr H facebook page). Looks like a French study is doing 600 mg for 10 days (not sure if...
Georgia - can you post plaquenil dosage here?...
Yes, I used plaquenil for awhile under care of Dr. H in NY. Many have used it in combo with other abx for lyme....
From what I’ve read chronic ebv can have high vca & ea (early antigen) in the 5,000 range....
I’ve also had 2 negative pcr tests for ebv. I’m inclined to believe that the high igg just means I’ve had it for a long time - like early childhood. That’s how hsv works (which is herpes virus like...
my igm was negative. I treated with famvir for 6 months. I did not recheck value after treatment. I thought maybe I was less tired during day but I was on a ton of other stuff so hard to know. I’ve...
Also, I heard they are hopefully starting clinical trial in 6 months....
I saw this when it came out. Hopefully will be effective for chronic cases. Glad it is already approved just need to get it to market! Anyone know how long that could take?...
My EBV VCA IgG is >600....
Yes, i had testing through mdl. I thought c6 elisa was supposed to be more specific....
Running wild- try to also add mdl c6 elisa to list. When I saw dr h he liked mdl and felt the c6 elisa was a good test....
I have white spots too but not large areas like vitiligo. They become noticable when I get some sun. I wondered if they could be fungal bc my sons pediatrician once told me they could be and to try...
For reference my labcorp elisa’s have always been negative, positive Igenex Elisa, and very high c6 elisa through mdl (twice - the second one after some treatment was still high but not as high as...
Good point. Lots to consider. I’m guessing this particular doc does not believe in not developing antibodies due to immune suppression. He doesn’t go into detail on the exclusive use of charcoal....
He uses itraconazole, due to its broad spectrum activity. And, says no scientific evidence of hla genetics. I do not have the mold hla genes, but “ post lyme”. I’m not sure how shoemaker came to...
I recently listened to the below podcast (transcript is in link too) about antibody testing for mold. You do not need a docs signature for it and cost is $380.Tests for 12 IGE & IGG mycotoxins (so 24...
Did you try calling them to see if they recommend any kind of provocation? Looking forward to hearing how your experience is with this test! I'm still awaiting my micronutrient testing results with...
Wow, this is very encouraging! Thank you all for so clearly documenting your experiences....
And the big question - can you trust the lab? Of all those that you listed I think Igenex is the most trusted....
Buhner recommends montana farmacy. The protocol is identical to woodland essence. I’m adding here as another option....
My hands get weak if I lift anything heavy. They get “slow” is how I describe it. They get stuck in a claw when I try to open them. I think it’s related to ulnar nerve for me since I have numbness in...
I’ve gotten it done on lower back at chiro. Does make it feel better....
I still wonder about the “slipping by” theory. I haven’t gotten normal sick in 6 or 7 years. In the Fall my youngest got the nasty respiratory bug that looked identical to flu but tested neg. A few...
Genes are all intertwined. I don’t think it’s a good idea to look at them individually. There was something I saw from Ben Lynch the other day saying gene’s talk vs working in isolation. So where one...
I changed to a different lab after I had a couple bad experiences. Also, if you knew the name of good tech I’d request her/him and call beforehand. I am sure this is more common than you think. Many...
If you show reactivated other options would be lauricidin and maybe biocidin or lemon balm. I have not researched these to know if they are acceptable with kidney issues....
My tests do not show reactivated ebv - just high igg titers. If you show reactivated then definitely would try some antivirals (famvir, etc)....
It’s something like 80% of people have gotten EBV. Most get it when young and it’s no big deal. If you get it when you’re older it’s not as easy....
Dr NN says DNA Connexions is too sensitive and over diagnoses infections. If I remember right, initially he liked the test. This was back when he had his own podcast. It was one of the reasons I did...
Hmmm, I would call and ask to be sure. Not exactly sure how that works. I’ve done LDI before which is super diluted lyme & co. It never occurred to me that they could pop up on dna testing....
Yeah - dna connexions is $650 now! Seems like we are always looking at the same tests! I think we both did the dna connexions retest at same time! Please post on how it goes as I’m very interested...
I do like that Vibrant test appears to include antibody as well as dna. Also includes most coinfections including RMSF which I am IGG positive for (labcorp). Would be interesting to see how results...
Also, I don’t trust DNA connexions either. Listened to a podcast with dr neil nathan and evan brand and dr nathan does not feel accurate....
My mast cell naturopath wants me to do this test too. I just did the micronutrient test with Vibrant. No results yet. The lyme & co test does seem to cover a lot. I may consider it after all the...
CSM in a higher dose (1 tsp, 1x - which really isn’t “high” but for me too much) gives me pretty much the same reaction as antibiotics, which I guess makes sense. The reaction is insomnia and...
Not sure if this is accurate but seems to make sense: Biotoxins from Borrelia are fat-soluble, meaning that they predominately reside in your fat cells. When you begin to use Cholestyramine (abbrev....
Also, the girl that saw him in under our skin docu (dana) is currently doing mold avoidance. Doesn’t seem like she’s all better. I saw she’s trying to raise money for a van (i guess to live in)....
I do not have hla gene for mold yet I do have lyme gene. I wasn’t aware that you could get that info from 23andme. I had mine tested separately from labcorp. I’ve had several docs think mold is an...
I think mold makes sense. CHAETOGLOBOSIN A* Chaetoglobosin A (CHA) is produced by the mold Chaetomium globosum (CG). CG is commonly found in homes that have experienced water damage. Up to 49% of...