Cherylfelice how are you now? I passed on the vaccine this week but I am still considering getting it. It's available for everyone in my state. They emailed me to schedule an appointment for Friday...
That's my concern girlie. Just another wasted visit and money. This is so frustrating....
I'm thinking about going to a neurologist. Any thoughts? Anyone been to one for similar symptoms? Twitching, jerking, involuntary movements, heart arrhythmia etc. Did they help?...
Saraeli, It was DNA connections test I believe. Pvc is what made me go to cardiologist. It's an attention getter. I'm not any more stressed out now than I have been the last four years. The pandemic...
I believe it's the bart but not sure. Not related to dsf I wore the monitor and had the extra beats before I took dsf. This has been an issue for years now currently taking cefuroxime, rifampin,...
Many of my symptoms have worsened recently and the heart palpitations is one. I went to cardiologist and she said Lyme has messed up my autonomic nervous system and is making my brain randomly send a...
Sorry it didn't work out for you lymie. I know how disappointing it can be. Keep trying....
I'm doing somewhat better. Sleep has greatly improved. Quit dsf cold turkey. Started back on dapsone, azithromycin, rifampin, hydrochloroquine and cefuroxime. The biting has stopped and the twitching...
Thank you girlie and yancync. I contacted them and spoke to them but have decided to stick.woth my doc for now at least. I am going back on the cefuroxime, rifampin, azithromycin, plaquenil and...
I'm considering making an appointment at Dr J clinic in dc. My question is it really that much better? I really like my dr but even he has said that my case may be beyond his experience. Would it be...
Aink to my times article about ITP after vaccine. https://www.nytimes.com/2021/02/08/health/immune-thrombocytopenia-covid-vaccine-blood.html It does state no link has been established to the vaccine...
Now there are reports of people developing immune thrombocytopenia (ITP). "The condition develops when the immune system attacks platelets, a blood component essential for clotting, or the cells that...
Thanks everyone. I was in a bad place. My symptoms just got progressively worse on dsf. I lost ground instead of gaining. My mental state was not good at all, a first for me and I don't want to be...
Sorry to hear this. Im in a similar situation from my Lyme. Rapid heart rate, internal vibrations, brain shocks keeping me awake. Try a few benadryl to see if it helps. Hope you find relief soon....
thanks rainy. I've decided dsf is not for me. I have felt like giving up these last few days. That's not me for sure. The dsf is making me feel horrible. I'm going back to dapsone combo that I made...
When I was on dapsone I just took l methyl folate and was fine. I was trying to save money at the time and doc said it would be ok. Blood work always came back good. It wasn't the double dapsone...
I think he's on there but I will email you with it just in case he's not. He's a good guy....
Thank you girlie...
Dude I really appreciate your input these last few days. Thank you...
This is something my Dr ordered today. Anyone ever do it? What exactly is it testing?...
Talked to doc. Going to back down dsf to 250/day, add biaxin, and do some testing. Also some iv infusions. So that's where I'm at now. He may not be a world famous llmd bit I will say this, he cares,...
Thank you so much dude...
Skinny I'm 5 11 and 175 lbs. Thiings have only got worse. I stopped dsf and emailed llmd this morning. Office just called and I have an appointment at three today. I have to say he is extremely...
I don't know if this was a herx or what but last night was horrible. Pushed to the point that giving up seemed ok for a bit. I really don't know how much more I can take. Skipping all meds except for...
Thank you all for the responses. Fjdrill that is exactly what I needed to hear. WBF and Cignet I think it could also be bartonella but I've been treating it for awhile now too. Honestly don't know...
Started at 600/day now at 300/day. Yes I get liver pains but so far levels have been good....
I've been on rifampin daily for at least three years now without any issues....
so I started dsf on November. At first it seemed to help especially with heart palpitations and rate. I'm at 375 mg per day now. Lately a lot of neurological symptoms have returned or worsened....
Something else to consider. https://www.cbsnews.com/news/south-africa-covid-strain-resistance-antibodies-coronavirus-vaccine-latest-research/...
Cignet, you and I have ever really "interacted" but I would like to say thank you. Your posts and research have helped me as well as others I'm sure....
I think many if not most of is have felt like you Mitch. I know I have. I went from strong, healthy, very active breadwinner to weak, useless bed bound turd almost overnight. It can be hard to...
My wife had the Pfizer mRNA vaccine, at least the first shot, and did well. Sore arm and mild fatigue for a day nothing else. She's scheduled to get the second dose early February. She works in a...
I was hoping to get the j&j vaccine instead of the mRNA. I feel better about a traditional vaccine. Why shouldn't lymies get it?...
Hi all. Congrats on the success tickbite. 500mg three days a week proved to be to much so I backed down to 375mg. May try to go back to 500mg later but for now just want to get to 375 daily. I'm up...
Thanks for the replies everyone. Quin did it get better over time or was it like that the whole time you were on dsf? I'm twitching all over again. I think I'll stay at four days a week for at least...
Disulfiram has been messing with my head. I was at 500mg three days per week but had to back off to 375mg ( I weigh 175lbs). At 500 I had an episode where I felt like I needed to escape from my own...
Dapsone, cefuroxime, rifampin, azithromycin and plaquenil combo helped the most for me. Although as I type this I'm twitching so still not cleared but greatly improved. On dsf plus rifampin and...
I went through the same thing skeleton flower. I'm sorry it's happening to you too. Very frustrating. Remember that doctors are nothing more than a business and if you're not happy with the service...
This is three years old so you may have already seen this study but if not.... https://www.sciencedaily.com/releases/2017/12/171213143613.htm...
I wish Dr John would have been in charge of the world wide response from the beginning. He's always been at least a month ahead of every one else with his information. We were prepared very early...
Flossie dizziness was a bad symptom for me for about three years. I was falling all the time and didn't want to go anywhere alone because of it. I stopped driving for awhile because I was afraid I...
Hey owillie. I am on rifampin but haven't taken rifabutin. My doc put me on ox bile and it definitely keeps things moving. Maybe give it a try? I take 500mg/day from allergy research group. I also...
Love Henry Winkler WBF I'll have to look for that one. His newer show better late than never was funny. Can't find any links to watch for free but when I think of Christmas movies national lampoons...
The nurse collapse was just fainting so not concerning but this chicago hospital had to pause vaccinations due to four adverse reactions out of three thousand....
https://www.wthr.com/article/news/verify/will-the-covid-19-vaccine-cause-infertility-in-women/531-3cb5340a-b3d0-4224-8a52-cfb24e9984a9 This article talks about the origin of the infertility claim and...
People who can't rely on facts and evidence instead rely on insults.[/quote] I don't know I think mpost was presenting facts and evidence just being extremely rude. Don't be to hard on them. We are...
"Let's try to think with our brains and not rely on others telling us what is truth or not" This does not sit well with me. Feels quite rude and condescending. Maybe I'm taking it t wrong?...
Nothing definitive here but it does touch on the infertility possibility with the vaccine....
https://www.dw.com/en/covid-19s-link-to-erectile-dysfunction/a-55862989 Ouch! Here's a good argument for getting the vaccine at least for guys. Lol I hear long term health effects and think yeah...
My wife works at a hospital and they told her yesterday that she needs to decide by tomorrow if she wants the vaccine or not. They are going to start giving them next week. She is leery of such a new...