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Garzie

HealingWell Forum
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Member Profile
Display Name
Garzie
Profile Created
5/30/2017 11:19 AM
Last Seen
Yesterday 9:26 AM
Total Posts
3073

Last 50 Posts

Struggling with fatigue

i would say 2 reasons RW 1, cost - many serological tests only have an actual cost of a few 10s of dollars / PCR is 5-10x that 2, availability - most large hospitals in the west have in house test...

Yesterday 2:56 AM

Lyme Disease
"20% of lyme patients who test positive by culture methods never produce detectable antibodies

thanks you Rainy - will check those out am putting a letter to my UK GP together and wanted to reference this to demonstrate the Lyme tests they believe are reliable - are not as reliable as they...

Yesterday 2:52 AM

Lyme Disease
Methylene Blue for Bartonella

i had to build up very gradually with methylene blue - initially only 10-20mg per day otherwise the herx like effects were too strong - heart palpitations, sleep problems, fatigue many people on the...

Yesterday 2:51 AM

Lyme Disease
"20% of lyme patients who test positive by culture methods never produce detectable antibodies

i remember reading this some time ago - i think the source was one of the lyme patients support groups websites - like Lymedisease.org or similar or it may have been in one of the LLMD's books -...

5/20/2022 10:03 AM

Lyme Disease
Struggling with fatigue

there is also the issue of cross reactivity between Lyme and EBV such that people with lyme often will test positive for some EBV antibodies but do not necessarily have EBV and people with EBV may...

5/20/2022 9:46 AM

Lyme Disease
My TSH is 27!

all intracellular infections including Lyme and bart can trigger auto-immunity the thyroid gland is particularly sensitive and often the first auto-immune condition to pop up. 27 is indeed high for...

5/19/2022 9:21 AM

Lyme Disease
Serrapeptase/ GSE

i found lumbrokinase to be very strong - approx 8x as strong as bromelain per capsule - and when used alongside antimicrobials especially, it can cause v strong herx reactions. you may need to build...

5/19/2022 4:16 AM

Lyme Disease
IS treatment this easy?

its not necessarily as grim as that overall for example - in Horowitz's study - his remission rate for his high dose pulsed dapsone combination protocol was 30% - but that was of Lyme disease...

5/18/2022 9:31 AM

Lyme Disease
Fixing the gut first to kick Lyme?

yep - nuts can be an issue for many of us with gut issues high in fibre also which can irritate inflamed gut conditions i am gaining weight on ketogenic diet and getting stronger in my workouts also...

5/18/2022 9:01 AM

Lyme Disease
Fixing the gut first to kick Lyme?

before i knew i had lyme and bart - or rather was told by infectious diseases experts that i counnt possibly have it - i reasoned that i may just have a gut health issue - driven by SIBO or dysbiosis...

5/18/2022 4:20 AM

Lyme Disease
Is the amount of flagyl prescribed enough?

i googled "borrelia doxycycline cysts" ...this result was top of the page https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3132871/ ...

5/17/2022 1:02 PM

Lyme Disease
Long covid?

may be worth looking into Dr Patterson and his long covid test and long covid protocols i have been skimming a lot of the research on long covid since the start of the pandemic as it has so many...

5/17/2022 11:35 AM

Lyme Disease
IS treatment this easy?

the other thing i remember is something to do with Diflucan rescuing levels of white blood cells when they have been lowered by antibiotics - which could have some baring on the treatment response if...

5/17/2022 9:52 AM

Lyme Disease
Serrapeptase/ GSE

hi Rainy i have tried nattokinase - again doctors's best brand - very briefly recently - it caused quite uncomfortable stomach issues for me - discomfort, churning, unsettled stomach - lasted abut a...

5/17/2022 9:33 AM

Lyme Disease
Serrapeptase/ GSE

there is a great deal of research showing biofilms form a part of the arsenal of persistence mechanisms used in chronic infections. in particular -Lyme disease is well demonstrated to produce...

5/17/2022 5:16 AM

Lyme Disease
Is the amount of flagyl prescribed enough?

in his presentations he describes how tetracyclines and cephalosporins - which are the abx he likes to start people on for lyme - are known to cause the lyme spirochetes to enter their encysted or...

5/17/2022 4:06 AM

Lyme Disease
IS treatment this easy?

its interesting and if i recall correctly - there has been some discussion of that study before Diflucan ( fluconazole) has been tested in vitro against lyme before and found to have no direct...

5/17/2022 4:01 AM

Lyme Disease
Treatment break

i am very sensitive to biofilm agents and have been experimenting with several of them gradually working my way up through the list starting with the less potent ones. so far in order of easiest to...

5/16/2022 12:00 PM

Lyme Disease
long hauler index

as i understand it DCD - people will not so much get EBV again after clearing it - as have EBV reactivate inside them due to reduced immune function. with a normal immune system we only get it once...

5/16/2022 10:12 AM

Lyme Disease
fibromyalgia given to rats by blood infusion

good find - that first one is interesting DCD - pretty compelling evidence that glial cell activation driven by autoreactive antibodies is the root of FM - and quite likely other similar pain...

5/16/2022 10:07 AM

Lyme Disease
long hauler index

Rainy - that's a good way of evacuating the results - roughly equivalent to looking at how many standard deviations away from the norm the result is - good work! dcd, i think i recall reading that...

5/16/2022 5:19 AM

Lyme Disease
Gritty Bumps

hey Rainy - thanks for the updates and for the very kind offer of the ketoconazole shampoo - that is very much appreciated and thoughtful of you - but really there is no need to repay me for anything...

5/15/2022 5:25 AM

Lyme Disease
Can houttuynia be toxic in high dosage?

Yep - actually - that was a concern i had to consider - as i don't do well with alcohol and my total tincture dose is around 40ml 4x a day - at around 50% total alcohol by volume - which is too much...

5/15/2022 5:15 AM

Lyme Disease
Can houttuynia be toxic in high dosage?

good luck Vimzor buhner recommended fresh plant tincture as the best in his books but obviously its hard to obtain - and most people used dried powdered leaf initially i thought i needed to maybe...

5/14/2022 9:29 AM

Lyme Disease
long hauler index

yep - something Lyme can do to you - but may also be low in many other chronic health conditions i think info here on CD8+ cells - and what they do - https://tinyurl.com/y2q9bhuv which is mainly...

5/14/2022 9:24 AM

Lyme Disease
Azithromycin + Methylene blue for Bart

i think the slow response to abx - pretty much all of them except perhaps the true bactericidal ones like gentamycin and maybe high dose dapsone - is probably due to the combination of persister cell...

5/14/2022 9:02 AM

Lyme Disease
loratadine and valproate

what kind of lumps under the skin do you have Quin? we have a discussion running in a thread called "Gritty Bumps" - where several people here describe hard waxy granules around 1-2mm in size that...

5/14/2022 4:40 AM

Lyme Disease
Can houttuynia be toxic in high dosage?

40 drops is around 1ml - i have weighed it a 1:1 tincture may be stronger - than the 1:5 ratio standard type i am using. its hard to tell though - as normally 1:1 ratio tinctures are made with fresh...

5/13/2022 3:09 PM

Lyme Disease
long hauler index

i think its well worth a go dcd - the cytokines are the control chemicals of the immune system after all it wouldn't surprise me if they wax and wain from day to day but if you can find a treatment...

5/13/2022 2:59 PM

Lyme Disease
Induced Native Phage Therapy

yep - with you on that i think horowitz - in his how can i get better book - lists - chronic virus reactivation - as one of the things that can hold his patients back - but he tends to be an...

5/13/2022 11:10 AM

Lyme Disease
Induced Native Phage Therapy

i think its an AND/OR situation dcd rather than its THIS or its THAT i.e. the causes that trigger MS are not necessarily mutually exclusive - so there could be many so for sure they can find a rare...

5/13/2022 9:41 AM

Lyme Disease
Hope for Chronic Bart and Lyme

the pre-print page published my comments to the authors of the paper ( Horowitz et al ) - it will be interesting to see if there is any feedback or amendments to the pre-print...

5/13/2022 9:35 AM

Lyme Disease
Struggling with fatigue

this things that helped me most with fatigue are in order of most effective 1, ketogenic diet - i know its not for everyone - but the biggest step change and the beginning of my recovery 2, sleep -...

5/13/2022 9:22 AM

Lyme Disease
Induced Native Phage Therapy

cant rely on serological tests for ebv lyme or i would guess TBRF - too much cross reactivity really need to use other methods - ideally direct methods even if these direct methods find higher than...

5/13/2022 9:14 AM

Lyme Disease
loratadine and valproate

Dr M talks of profound widespread arthralgias in the middle to latter stages of treatment being a key feature of treatment in his bart patients - he puts this down to the formation of "immune...

5/13/2022 8:55 AM

Lyme Disease
Azithromycin + Methylene blue for Bart

there are some reports of bart in the wild/farm animals becoming resistant to azithromycin - presumably due to the excessive use in agriculture the majority of cases are still thought to respond to...

5/13/2022 8:51 AM

Lyme Disease
Azithromycin + Methylene blue for Bart

both have some activity against borrelia - though seem more targeted against bart ( ref Zhang etc al ) i have taken both but not at the same time - azithro on its own was relatively easy to tolerate...

5/13/2022 4:44 AM

Lyme Disease
Can houttuynia be toxic in high dosage?

as a reference point i am taking 13ml a day of 1:5 50% alcohol tincture and have been for around 6 months now ( around 520 drops per day) this is just under buhners max recommended doses for...

5/13/2022 4:33 AM

Lyme Disease
Induced Native Phage Therapy

i think one of the problems with TBRF is they are a recent discovered group of diverse pathogens and as a result are v little studied and so not a great deal is known about them. as a result -...

5/13/2022 4:22 AM

Lyme Disease
Gritty Bumps

thanks for the trials Rainy i love the left arm right arm shoot out idea the azole antifungals are found to be active for bart - ref Zhang et al - and some studies even suggest they are active for...

5/12/2022 10:11 AM

Lyme Disease
Treatment break

for me treatment is not jus about the antibiotics - actually only improved partially on 12months of antibiotics - initially just doxy and then doxy and 3-6montsh of rifampicin and azithromycin...

5/11/2022 10:59 AM

Lyme Disease
Anyone quit disulfiram before reaching target dose?

Morgellons is tricky - as its not fully understood my own view is it is likely just a manifestation of lyme and maybe other infections like bartonella in susceptible individuals some of my skin looks...

5/11/2022 10:53 AM

Lyme Disease
New Protocol from LLMD

it is wearing Canary just keep putting one foot in front of the other - and celebrate the positives every day - especially any small signs of progress you can find. change is possible...

5/11/2022 7:59 AM

Lyme Disease
Anyone quit disulfiram before reaching target dose?

my skin also worsened dramatically with acne like spots and papular rash when treating - i believe its an inflammatory sign - like a form of herxhiemer - in fact skin lesions are known to worsen with...

5/11/2022 5:24 AM

Lyme Disease
Treatment break

if your platelets go super low you have no choice but to stop those drugs suspected of driving it - so so thats a done deal - no point worrying too much about it as you had little option. the...

5/11/2022 5:18 AM

Lyme Disease
Psilocybin anyone .....? (long post warning)

ref dose - there are many different forms involved --fresh mushrooms of differing species and potency --dried mushrooms - again different species --pure psilocybin used in clinical trials as a result...

5/11/2022 4:29 AM

Lyme Disease
Kidneys, Blood Pressure, and Infections

not a subject i have dug deeply into - but based on those numbers - i am struggling to see a major issue at least all are within range - except for creatinine - which is a tiny bit over "normal...

5/10/2022 8:41 AM

Lyme Disease
Induced Native Phage Therapy

Hi Loski - to my mind there is a huge difference between putting the patient in a magnetic field and influencing their biology in some measurable way - for which there are indeed many supporting...

5/9/2022 1:53 PM

Lyme Disease
Does cryptolepsis get old?

should be fine - mine typically tastes more earthy - like soil - than bitter - and i make it myself from the dried root...

5/9/2022 10:43 AM

Lyme Disease
Does cryptolepsis get old?

tincture ? - no - tinctures are typically good for years if the bottle is sealed...

5/9/2022 10:16 AM

Lyme Disease
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