there is also a facebook group if you have not found it already https://www.facebook.com/groups/2067807336861825/ and a recent thread here...
MB is thought to be one of the most active drugs for killing bartonella persister cells so far discovered - however it is not particularly effective in fighting the growing forms - so is usually used...
my partner had raging anxiety attacks - we think from Lyme combined with Bartonella - a few things seemed to help. (i mentioned these in another thread but WBF suggested i start a new thread with...
yep - I'm not saying it doesn't make many people ill - just that I'm not sure a moderately elevated urine test on its own is enough to give a clear indication of the cause. again its not something i...
Garzie, That’s amazing! I never heard that before. Would you please put this in a separate post entitled “Anxiety - Simple Exercise That Worked.” Many here looking for help with anxiety. Would be...
just by way of balance and in case you are freaking out the way i understand the graphic ( we could do with the full explanation on that from the report before we draw any solid conclusions btw) is...
yep - that will work - i couldn't find any information around possible biological breakdown of LDN - so added the alcohol as a precaution only....
i have had this intense fatigue and sleepiness after meals - especially when i was more ill. evening meal was worst for me - but after every meal typically - took a huge chunk out of my day as it...
i had long periods of going every day but somewhat painful and constipated - i also put this down to some kind of motility issue. but generally my gut was messed up and weakened in multiple ways. the...
daisies - if it helps i just checked my chart and i started at 0.5mg in October last year -so nearly 6 months and i dont think i could have ramped up any quicker than i have without a major roller...
yep - i dissolve mine in a 25% alcohol and water solution - that way any biological action is prevented and it keeps - i then dose that with a 1ml graduated syringe - so i can increase the dose in...
i think if it were me - and no lyme treatment had brought any relief - i would look into other possibilities 1, mold is a rational suggestion - so mycotoxin testing and the genetic test to see if you...
i had a positive antibody test - from Armin for it - not sky high numbers - and few symptoms that seem to relate to it - no cough at all - although fatigue has been my most prominent symptom -...
duplicate thread - please see answers in the other one https://www.healingwell.com/community/default.aspx?f=30&m=4244232...
yes to all of those muscle and nerve problems in upper back and shoulders in particular is very common in Lyme - often terms the "lyme shrug". one of the other common symptoms at onset is radiculitis...
hi Sunflower that sounds like a pretty typical herx like reaction - fever - body aches - fatigue all is not lost you may just need to start at lower doses and work you way up many here are in the...
constant headache is common - but the severity can vary dramatically from person to person can be mild general pressure feeling - or full on migrane intensity can come or go or be constant the...
many lyme MD's write about a 3-5week cycle of symptoms with lyme in general. ( it reproduces very slowly - approx once every 28 days - which is thought to be the reason for these cycles) and...
many with lyme ( and bart and babesia ) struggle with immune dysfunction - this is a well known phenomenon with studies showing anywhere up to 1/3 of patients have measurable immunoglobulin...
brief update - i am still taking the LDN and have gradually been increasing the dose in very small increments as i seem very sensitive to it now that i am in the effective dose range. i do think i am...
for me with LDN the sleep disturbance effects are pronounced - but last around 1-2 weeks after every dose change - then drop back to either how they were before - or a fraction better - so i suspect...
dcd - i am also convinced there is an auto-immune component of this lyme / bart thing everything that helps me first makes everything worse for at least a couple of weeks - even LDN - and i don't...
running wild - yes for sure Lyme as well as Bartonella can cause vasculitis - I think its in Buhner's books as a common symptom....
are you still taking / increasing LDN? in the long run it may help - but for 2 weeks after each small dose increase i get very disturbed sleepo and am now having to make very very gradual changes...
running wild - yep - i think its something to do with the hot water - or maybe just the sweating that happens when you are in a hot bath - and that may just fill up the blisters that are already...
there was a thread recently where i realised its a thing https://www.healingwell.com/community/default.aspx?f=30&m=3578313 how's things DCD?...
they look like "COVID toes" :)...
I'm guessing the original post was edited/deleted? sounds like Adam tried to help but the OP didn't like the answer. it is sad that there seem to be a large number of people out there that are in...
i am just starting a trial with it - i have Lyme and suspected Bartonella initially just 25mg per day - alongside Buhner Bart herbs - Sida, Houttuynia, cryptolepis and alcornea (i noticed Marty Ross...
Running Wild from what i have gathered although people talk about the bart streaks as the hallmark rash with Bartonella - reading more broadly around Lyme, bart and in many LLMDs writings - it seems...
my partners symptoms would also flare around her period - suspected Bart with Lyme. symptoms were mostly aching and fatigue increased PMS symptoms and neurological symptoms. this continued to be the...
i have taken coQ10 for years with Buhner Lyme herbs. my intended use is to help support mitochondrial function as its a critical anti-oxidant in the energy production process. Separately, i seem to...
2x a day should be fine also - esp if you are only eating 2x a day if it were me i think i would take all my supplements etc with meals - and the cholestyramine in between edit - thinking about its...
yep- his latest book - "How can i get better" is the one to go for. it is very good his previous book "why cant i get better" was similar but the later one is more focussed on what steps to do - ie...
NAC in particular can cause herx like responses - it is apparently antimicrobial to chlamydia pneumoneae and possibly mycoplasma and bart. so that could be what has happened. i have even seen some...
sida acuta is pretty powerful stuff - lots of people here react strongly to even a few drops - myself included however i have found if i start with a low dose i can gradually increase over time and...
interesting i am taking fairly large doses of turmeric for its anti-inflammatory and MCAS suppressing qualities - have been for a year or more - but just recently started to develops irregular...
yes indeed - they tend to worsen when treating with antibiotics - or with anti-microbial herbs i am treating with anti-microbial herbs at present and gradually stepping up doses - and whilst the...
I had two appointments with two diffrent LLMDs and before i got the results from ArminLabs, i showed them these marks and blisters from the skin. Both said: "These are typical for...
yep - i haven't had a cold or flu in 6 years ( since the day i got ill ) my partner who became sick also didn't have a cold in the first 3-4 years - but in the last 2 years since making a 80-90%...
excellent - thanks for posting the great photos isitlyme that's interesting - in the first picture its almost like the skin somehow separated and kind of rubbed off - was its a raised fluid filled...
isitlyme - interesting - thanks for contributing - do your blisters look like the ones in the link ? - come up fast in around 1 day last 5-7days then heal - deep in the tissue / not just on surface /...
bartonella testing is notoriously problematic. there are multiple issues that lead to very low sensitivity. the main issue is the very low numbers of organisms in the blood most of the time - but...
i have been able to hear my pule in my head for the last 2-3years now - esp if i lie down - has never caused any issue as such - just a bit odd....
you have my full respect and admiration for keeping on trucking through the ups and downs and wrong turns etc Dcd - if you keep trying new things there is always hope for improvement hope the...
if you have a know mold issue in the past - and resolved after treating - then as WBF logically i would try to firm up the logical exclusion of that before trying other things - as WBF says after...
i would focus on lifestyle interventions first on the basis that you would otherwise be fighting nature if trying to take supplements or medications to correct something that is being driven the...
just as a follow up to this - - in case anyone finds this thread later - i watched a video interview with Dr Steven Phillips MD - ( author of the book Chronic) and in it he refers to seeing toe...
i would also check out the mold exposure angle - especially if you have the HLA genotype that is susceptible if that comes back negative it may be worth looking into the buhner antiviral herbs for...
i have some - but not used it yet - is on my list as a possible cyst buster for lyme i have been reticent as i tend to have heavy herxes from anti-microbials and from what i have read Tinidazole,...