Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Wisco woman

HealingWell Forum
>
Member Profile
Display Name
Wisco woman
Profile Created
10/8/2017 10:47 AM
Last Seen
6/23/2022 10:56 AM
Total Posts
279

Last 50 Posts

Does POTS go away

Disulfiram got rid of my dyspnia and other dysautonamia symptoms. When I went off of the disulfiram the dyspnia slowly crept back in. The breathing has been my worst/most persistent symptoms over the...

6/23/2022 4:25 AM

Lyme Disease
Back with more bad news

Yeah when life gives you "regular" mishaps on top of being chronically ill, it adds up quick. You're right this is a prison most days. I talked to a therapist a few times who specializes in chronic...

6/19/2022 9:14 AM

Lyme Disease
Back with more bad news

Oh Sunflower I'm so sorry. I completely resonate with your statements... "begging God everyday to just take me or cure me soon because this is beyond devestating" "I don't want this life anymore." I...

6/18/2022 11:54 PM

Lyme Disease
Losing hope

Thanks for the metformin idea Quin. I've never heard of that before. Clindamycin and bactrim worked really well for me a few years back and that's why my doc put me back on them. But you're right, my...

6/18/2022 8:11 AM

Lyme Disease
Losing hope

Quin, Maybe that was my problem. Maybe I could have stayed on disulfiram if I were also doing a hard core bart treatment with it. I was taking bactrim and clindamycin on and off while on disulfiram...

6/17/2022 3:13 PM

Lyme Disease
Disulfiram - Part 15

I have read through all the disulfiram posts but never posted my own experience. Some of you already know my experience but I just want to keep a good log of info going here. I was on disulfiram from...

6/17/2022 10:34 AM

Lyme Disease
Schardt protocol using diflucan

My doc has me on diflucan right now along with antibiotics. I can't say I've noticed a difference since being on it. However its still a good tool for people to try. If systemic fungus is a problem...

6/17/2022 8:32 AM

Lyme Disease
Losing hope

Quin, When you say a few weeks later do you mean after stopping the valproate? So is valproate suppose to kill lyme and babs?...

6/17/2022 6:06 AM

Lyme Disease
Losing hope

Lymie I started treatment with my current doctor in jan of 2017. Then from jan 2019 to June 2021 I tried a different doc because he had some alternative treatments. After I saw little results from...

6/16/2022 11:20 PM

Lyme Disease
Losing hope

Thanks everyone. Girly, I've done babesia treatment in the past with malarone at one point and mepron at another. And my doc tells me the bactrim and clindamycin im on right now should fight both...

6/16/2022 6:12 PM

Lyme Disease
Losing hope

Oh I also forgot to mention that for the first time in all my years of treatment that three days ago I got distinguished bart lines...a few short ones on my stomach and two long ones on my arm. Does...

6/16/2022 12:35 PM

Lyme Disease
Losing hope

About a month ago I stopped disulfiram due to causing horrible skin issues(acne on chest, back and neck with white solid core) Then about a week ago my doctor told me to go back on minocyline,...

6/16/2022 11:38 AM

Lyme Disease
Extreme Skin Issues: I really need help

Thanks rainy. I'll look into the ivermectin cream. What issue specifically do you think its related to? Lyme/co die off? Parasites? Fungus? I'm sorry you have skin issues too....

6/5/2022 8:15 PM

Lyme Disease
Extreme Skin Issues: I really need help

Thank you all for your responses. Astroman I forgot to mention that I am on Fluconazole as well. This is not the cause of the acne due to having it before starting the Fluconazole. However maybe if I...

6/5/2022 9:52 AM

Lyme Disease
Extreme Skin Issues: I really need help

At little background info: I have been treating lyme, bart, babs and fungus for about five and a half years now. I have used numerous treatments including antibiotics, herbals, UVLrx. My most recent...

6/3/2022 7:51 AM

Lyme Disease
Does anyone look at old posts

I also do this and think the same thing. My thought is when you feel better, then you don't visit this place as much. When I see a past poster who was in a rough spot at one point and then eventually...

6/1/2022 7:45 AM

Lyme Disease
Anyone quit disulfiram before reaching target dose?

Thank you Gettan. So far I got a little air hunger back but it is way better than before I started disulfiram. The skin issues have yet to subside completely. It has been 3 weeks exactly so hopefully...

5/31/2022 1:49 PM

Lyme Disease
Sad news - Dr Charles Ray jones passed

This is very sad to hear. What a lost for the lyme community. Everything I heard about him, was that he was a great man....

5/17/2022 9:11 AM

Lyme Disease
Anyone quit disulfiram before reaching target dose?

WBF no problem with the rambling. I'm glad to hear people's hypothesis and thoughts on the subject. Thank you for your input. Rainy, thank for the response. Im sorry you have skin issues as well. I...

5/12/2022 7:31 PM

Lyme Disease
Need your help

I hope you are enjoying yourself Girlie!...

5/12/2022 2:09 PM

Lyme Disease
Anyone quit disulfiram before reaching target dose?

Garzie, I too get the hard sandlike materials out of my pores sometime. However most of my skin stuff is nodular acne. Rainy, are your skin issues related to disulfiram as well? If so, what dose were...

5/11/2022 7:46 PM

Lyme Disease
Anyone quit disulfiram before reaching target dose?

Garzie, I've been doing disulfiram for 8 months but my skin only got bad the last 3ish months (with higher doses) The disulfiram has helped my air hunger greatly but unfortunately it came with the...

5/11/2022 10:47 AM

Lyme Disease
Anyone quit disulfiram before reaching target dose?

Thanks blondie. I've never gone slowly off the drug. I think I'm at the point where I just want it to leave my body. I really hope I get some improvements from putting my self through this for over 8...

5/11/2022 3:41 AM

Lyme Disease
Anyone quit disulfiram before reaching target dose?

Hey guys, just wondering if anyone quit disulfiram before getting to their target dose? I have been on disulfiram since last August. My doctor had me slowly ramp up but I can't even tolerate 187 mg...

5/10/2022 4:31 PM

Lyme Disease
Documentaries - Under Our Skin plus another

I cried so hard watching "under our skin" ...very sad/disturbing yet informative documentary....

8/27/2021 2:52 AM

Lyme Disease
I'm in a dark place

Thanks for the replies everyone. I talked to my doc today and she agreed I should stop the disulfiram. She said I can try it up again when I get over covid. Even though my physical was not great...

8/26/2021 11:15 PM

Lyme Disease
I'm in a dark place

Thanks for the responses guys....

8/25/2021 8:39 PM

Lyme Disease
I'm in a dark place

My llmd prescribed ivermextic but the pharmacy wouldn't give it to me due to the high dose my llmd wrote it for. I contacted my llmd bout this as well but she is so behind right now. I feel like I...

8/25/2021 6:02 PM

Lyme Disease
Lyme disease and menstrual cycle

I didn't get my period until at 17, it was induced. I needed to be on birth control otherwise i never got it consistently. Years later when diagnosed with lyme at 27, my doc told me that I might have...

8/25/2021 5:52 PM

Lyme Disease
I'm in a dark place

So for the last four days or so I've been in a really dark place...like waves of depression pour over me and are now lasting most of the day. I was diagnosed with covid last Wednesday and have been...

8/25/2021 4:57 PM

Lyme Disease
I'm so mad!!!

She put me on famotidine as well. I was able to pick that up the other day...she also told me I need lots of vitamin c and zinc so im treating myself the best I can. If lyme has taught me anything...

8/21/2021 12:11 AM

Lyme Disease
Severe depression and/or anxiety sufferers- remember its not forever

I am very sorry to hear about your friend's passing. This post is a subject I think anyone living with chronic illness can relate to. I've been dealing with lyme for five years now and there were...

8/19/2021 10:01 PM

Lyme Disease
How do I get ivermectin??

Does this sound right? My llmd wants me to do 4-12mg tablet a day. Whether it's right or wrong I can't afford that though....

8/19/2021 9:39 PM

Lyme Disease
I'm so mad!!!

No I'm going to try to order in on that alldaychemist website to make it a little cheaper. My llmd prescribed 4 12mg tablets a day though and I can't afford that....

8/19/2021 9:36 PM

Lyme Disease
I'm so mad!!!

I'm only on day three of symptoms but so far I feel ok. I'm more achy than usual and my throat is sore....

8/19/2021 5:11 PM

Lyme Disease
I'm so mad!!!

Some of you may remember that I was debating what to say for my sisters wedding speech ...a sister who I feel was not there for me through my lyme journey. Well she had her bachelorette party on the...

8/19/2021 2:46 PM

Lyme Disease
Dark Chocolate Herx/Flare?

Ok people talked about sugar and whatnot but dark chocolate is lower in sugar than milk chocolate. What it is higher in is caffeine though. I love love love dark chocolate because you can actually...

8/19/2021 2:39 PM

Lyme Disease
How do I get ivermectin??

I have been told to go on ivermectin by my llmd as well but the cost was outrageous. My llmd also wanted me on a large does but this website will make it a little cheaper. I was also sketched out by...

8/19/2021 2:24 PM

Lyme Disease
Wedding speech

Thank you Deejavu. I didn't listen to it yet but I look forward to it. I want to make progress in this department....

8/9/2021 11:07 PM

Lyme Disease
Wedding speech

Thank you all so much. So many good pieces of advice. I knew you all could relate as you have been in similar situations. Girlie, I don't want the confrontation either. I have honestly just ignored...

8/9/2021 8:35 AM

Lyme Disease
Honest answer pls

I have had depression on and off over the five years of treatment. No one antibiotic caused it. To date the worst psych symptoms I have experienced though were from minocyline. For the first few...

8/8/2021 11:08 PM

Lyme Disease
Wedding speech

Ok hear me out the title of this post may seem really off topic but it relates to lyme/ chronic illness. So I'm trying to create a wedding speech for my sister and I'm having a reeeeally tough time....

8/8/2021 10:39 PM

Lyme Disease
I need help!!!

Thanks again everyone for your responses. Blake- it could be a herx since I never did cryptolepis and artemisinin at the same time before. Its so difficult to figure out because I also tried ozone...

6/11/2021 6:46 AM

Lyme Disease
Is it possible to Herx from ozone days after treatment?

For future reference for members. I feel this has happened to me as well. I tried ozone for the first time four days ago. I feel that two day ago is when my air hunger ramped up in intensity along...

6/9/2021 9:59 PM

Lyme Disease
I need help!!!

Thanks for the replies :) As for going back on antibiotics...I don't know that I will. I've done every combination in the book and never accomplished full health. The plan as of my last appointment...

6/9/2021 9:46 PM

Lyme Disease
I need help!!!

Its been a while since I've posted here. I once again fooled myself into thinking I was going to get better. As of the last few weeks I've started to tank again. My air hunger has ramped up a...

6/9/2021 3:30 PM

Lyme Disease
Just started Methylene Blue for Bartonella

Yeah it cost me 110 for a month supply and I needed a prescription from my llmd....

5/31/2021 8:00 AM

Lyme Disease
Just started Methylene Blue for Bartonella

I was put on clotrimazole and methylene blue together for my air hunger....I did the combo for two months. I just can't say if it helped or not. It did permanently stain my toilet blue. :/...

5/29/2021 9:39 AM

Lyme Disease
Methylene Blue

I am waiting to get preliminary bloodwork done but will also be starting Methylene Blue soon. My doctor is combining it with Clotrimazole and Artemisinin. All three of these are new to me. My doc...

2/12/2021 9:57 AM

Lyme Disease
How do you treat yourself

I know a lot of us don't have a ton of money because it all goes towards our health buuuut what are some ways you still find to treat yourself. I have been fighting to get better for over four years...

1/2/2021 11:06 PM

Lyme Disease
HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2022 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.