Thanks again everyone for your responses. Blake- it could be a herx since I never did cryptolepis and artemisinin at the same time before. Its so difficult to figure out because I also tried ozone...
For future reference for members. I feel this has happened to me as well. I tried ozone for the first time four days ago. I feel that two day ago is when my air hunger ramped up in intensity along...
Thanks for the replies :) As for going back on antibiotics...I don't know that I will. I've done every combination in the book and never accomplished full health. The plan as of my last appointment...
Its been a while since I've posted here. I once again fooled myself into thinking I was going to get better. As of the last few weeks I've started to tank again. My air hunger has ramped up a...
Yeah it cost me 110 for a month supply and I needed a prescription from my llmd....
I was put on clotrimazole and methylene blue together for my air hunger....I did the combo for two months. I just can't say if it helped or not. It did permanently stain my toilet blue. :/...
I am waiting to get preliminary bloodwork done but will also be starting Methylene Blue soon. My doctor is combining it with Clotrimazole and Artemisinin. All three of these are new to me. My doc...
I know a lot of us don't have a ton of money because it all goes towards our health buuuut what are some ways you still find to treat yourself. I have been fighting to get better for over four years...
Thats really great to hear Moose. Congrats!...
I guess all we can do is keep on attacking the babesia...best of luck to you in your fight....
Thanks Adam. So did you eventually get rid of your babesia symptoms?...
Thanks guys. Quin its interesting you mentioned opaque urin...I too noticed some cloudy lately. Notime4lyme, are you treating babesia or has acne been a problem the entire time with Lyme?...
A little background to start with. I have been sick since the end of 2016. I was diagnosed within months of noticeable symptoms setting in. I have been on soooo many prescriptions and a few herbs...
I just wanted to wish everyone a merry Christmas. I know it can be difficult to enjoy yourself when you are in poor health. However, I hope you all find peace at least for today....
Really good to hear-congrats. Very hopeful news for everyone....
I'm glad SNL is continuing to do their thing during quarantine. Love the cast. ❤...
That's awesome Georgia. You are right there is so much uncertainty with each. And it does take so much time to heal that we need to keep our minds right. Thanks for the hopeful message....
My very first herx was a little over a month after starting antibiotics. All my more recent herxes have started sooner after starting antibiotics but that first one took awhile to kick in....
I really like this idea. I think us midwest people should do this!...
So weird that this is a thing. I was just telling my bf last night how my racing thoughts and anxiety have been really bad the last 3-4 days. I have had a really hard time falling asleep and I keep...
Logmoss that's exactly how I feel. Never been a justin bieber fan but I'm all for him now. This is the biggest name to come out about the disease. This can only be good for the lyme community....
I'm feeling this year too.... I'm ready for health!...
Ugh tick bite I'm so sorry to hear that. It pains me to hear that (10 years of treatment) and the last resort part too....
Was really bummed there was no reply to this post. I was searching though old posted because I too have started the infuserve America brand cryptolepis. If anyone has any thoughts on this product...
Thanks babsbunny for the Joni Eareckson Tada video. I definitely cried a lot while watching it. I too find myself only really reaching out when I feel awful. I want to have a stronger faith but I do...
Just an update for future readers of this thread. I have now been on minocycline for 3 months (I did have to spend three weeks working up to the full dose) but the head stuff all got better for me. I...
Sunfun I feel ya. This whole being sick for years thing is mental terrorism. I really liked what walking by faith said though with the thinking about how god has helps us out in the past. I use to be...
While I'm sure you look weird I get it too lol. I hate when people start decorating for Christmas this early. But I'm also a Halloween freak so I'm just fully engaged in spooky season right now. I'll...
Awesome to hear Missouri. Thanks tick bite.... cant wait till we ramp it up with a cyst buster!! I actually have hope for my future now....
Hey guys my doc agreed to put me on omnicef while I am also doing the minocycline. I mentioned cyst busters to the nurse and after taking to the doc she said he has it in his mind and is just...
Thanks guys. I told his nurse everything and explained that I wanted to ramp things up....very scared hell be bull headed about it but I tried. If he gives me trouble I'll drop him like a hot...
Thanks tick bite... I'm trying to take things in my own hands as much as possible cuz I'm done being jerked around... I am scared though to not have a LLMD... buy black market antibiotics and do it...
Is cryptoleptine the same as cryptolepis? I am on abart and stevia as well as the minocycline. Also vitamins and minerals but those are the only herbs used to target the diseases. My worry is about...
Hey guys so I want to know your thoughts on this. I switched lyme docs about 9 months ago because of this UVLRX treatement this new doc does at his office. Well I felt nothing from 10 of those...
Thank you everyone who responded. Carlnpa I'll try taking a daily claritin and see if it helps. It makes sense my old lyme doc told me to do it for a skin reaction she thought was from histamine...
Thank you running wild- I reall appreciate it. As far as antianxiety meds go do you know of one that is easy to wean off of at some point?...
So I have been on minocycline for about 7 weeks now. When I first started taking it I was very dizzy and felt high for about a week. The next week I was brain dead for most of the week- meaning I...
Thanks for all the info and inspiration logmoss. I am glad you are doing well and thanks for taking the time to share your story....
Emily I wish I had advice for symptoms but I have no experience in this department. I had to look up what floxed was. I'm so sorry you are dealing with this. Thoughts and prayers are with you....
Flowergarden I think I know the feeling you are describing. I don't have it anymore but I use to feel a pressure around my heart from time to time. Currently my heart has been acting a lot better but...
Astroman- that's an awesome analogy lol. I use to be a cross country coach and long distance runner myself so I appreciate the comparison to an endurance event. This has required way more endurance...
Yes I am tired of putting the pieces together for myself. I'm sticking of putting trust into doctor after doctor. This disease is exhausting on so many levels. Flowergarden I hope your new...
Thanks flowergarden. I'm continuing to hold on....
The only advise I really have is maybe working up to the full dose of your antibiotics or possibly pulsing them. I mainly just wanted to welcome you officially to the forum....
Flowergarden- I have treated for babesia. It was only hard core targeted at babesia fot probably 4 months but I did at least attempt to address babesia. I did malarone for 4 months and azithromycin...
Skinny joe- I agree I feel like I have benefited from certain treatments but not from all. I know my docs have been guessing this whole time. They are going off my symptoms and what they know. Though...
I have dark skin and medium brown hair- wish that ment I could better from lyme lol. Maybe there is some other correlation. Like its said many people who get MS are women and live in the northern...
Thanks for the comments everyone. To answer one question about doctors. I am on my 3rd lyme doc. The first one died and I left the second one to try this UVLRX treatments that the third was offering....
I'm sorry to be a debby downer here but I feel like this will honestly never end. I'm currently on 2 and a half years of treatment. I've done countless antibiotics, many herbs including byron white...
Thanks Jb1994. Yeah it's very hard not to get personal and emotional when telling our stories. But we are all human and guarentee others can connect with your story. When you feel comfortable I say...