A lot of the discussion here goes right over my head, but wanted to say it's super interesting. I'll make a few anecdotal comments in another post....
I was reading an exchange between DCD and The Dude and it made me think that this is one thing that might help people draw some conclusions. I know some of us respond well to certain treatments while...
At WBF, i wouldn't treat with ABX again, it messes up my digestive system too much and i just never noticed massive improvement. However i did order some tinctures for JKplus and babs stuff(always...
Guys thanks so much for the responses. Very interesting to hear your thoughts, and while i am glad i am not alone, I am also sad that you guys struggle with flares. I think like DCD mentioned the...
For the last 2 years or so i have seen some initial improvement, followed by a general plateau where my symptoms are relatively limited and more importantly very manageable. These include twitching,...
I've had them my whole life, i guess they come and go, because i always notice new ones and never seem to have more of them. I have about 4-5 that i can see...
Yeah you probably have other things stopping you from fighting Babs properly. Other coinfections/Mold/Metals/etc/etc But when you say tests, what tests do you mean? Have you herxed at all from this...
Astro, just wanted to say i always find your posts helpful and informative. Thank you for sharing all your knowledge and experience....
Hope you didn't view my post as attacking you. Was agreeing with you about MS. I think it's not always lyme though, but definitely sometimes. I was trying to focus more on ALS since i researched...
MS is a symptom of something else, i think that's relatively easy to understand. Yes your body is attacking your own cells, but why does it decide to do that? Treating it seems very complicated...
I'm by no means a doctor or Cardiologist. But i've had heart symptoms and continue to do so. Wore a heart monitor for a month, after getting hospitalized for heart tachycardia that suggested heart...
Hi, yeah i've actually done it. I thought it was B3, but it might have been B2. I have a genetic defect where my body can't fully process B6, so after i got diagnosed with Lyme i was put on a complex...
Have you tried "intentional muscle release" before going to bed? Not sure if that is actually what it's called. But there are some methods available or even youtube guides. I do this a lot because i...
Thanks for the update. I really hope he somehow finds someone that can help him with that. Reading his books was so beneficial. Just having someone that has such a clear understanding of what could...
For what it's worth. I had just been diagnosed with POTS when my health started improving. It was really rough for a few months but slowly... very slowly... it improved. I don't think my case wasn't...
I had a test done ages ago by my Neurologist. My CK levels were 10 times higher than normal. He thought i might have some degenerative muscle issue that was most likely genetic. I freaked out since i...
Just to add what has been happening. Got the virus about 2 weeks ago now. I got really really sick. Had a high fever for 8 days. Crazy headache, body aches etc. My fever finally subsided yesterday. I...
Which CD57 test did you do? I've never seen one that specific....
It's not easy. As someone who lost a great love during my illness I feel like I can relate. I like what WbF said, if you know this is the woman you want to spend your life with, figure it out....
I'm in DC, if you are down here and want to meet up let me know...
So quick question for you guys. I've been on maleria prevention medication for about 10 days now and most of my symptoms have ramped up. It could be coincidence since I was traveling and under more...
That's great, I think being able to be that honest an vulnerable is something valuable you have gained. I will endeavor to do better as well. My best friend still reaches out to me, he lives in a...
Sorry for the long delay, i was traveling. I'm a programmer, i was already doing it when i got sick, and i took about a 6 month break just after i got sick, but only got worse and couldn't really...
That is hard. I recently dealt with a lot of that as well. I've seen some improvement the last year so my life went from living just to make it through the day to actually thinking about dreams and...
Hi Jova, i don't post on here often, most of my posts are me complaining about my health, or just generally questioning everything. But felt like i should respond to you. I am male, mid 30s... have...
Which Okra supplement did you get? I'll give it a try....
Yea, i have. I mean, i have good weeks and bad weeks. I don't know what causes the ups and downs, but overall i have more energy. A year ago, i would come home, plop down in my bed or on my couch and...
It is interesting how these infections mess with our nervous system. I definitely don't want to say that all your symptoms can be explained by POTS, but brain fog and headaches etc, don't seem far...
Question about cross contamination, i understand it's a concern, but my undersanding is also that Mold needs humit wet conditions to grow. So how does cross contamination work? I understand you can...
I've been using it for 5 months. I do get very mild constipation from it. No medication (herbals or otherwise) have ever really worked on me. Let me know if there is anything specific i can tell you...
I meant to add a poll to this. Didn't seem to work. Yea i already see a lyme specialist and a mold specialist. I'm more just curious as to how many lymies have gotten tested. It is very interesting...
Hey everyone i was wondering who has done HLA testing. Hoagie mentioned this in a thread a few months ago, and since then i have gotten HLA testing done, I am also mold susceptible as opposed to...
Teasel was actually one thing that scared me. I tool 3 drops twice a day from the woodland essence tincture. I thought my symptoms got drastically worse, however my symptoms do tend to do that on...
From everything i read it only applies to about 90% of people? So it's not a perfect tool, but i believe besides the 10% false negatives it's pretty reliable if your eyesight is good? In other...
I'm curious to know if anyone things they could have gotton a failed test without having Mold issues. My theory is, since Lyme produces toxins it could produce the same VC issues? My doctor said no,...
I'm actually treating for Mold first, in the hope that it will clear some things up. I recently moved out of a house that had some water damage(although no visible mold) to an apartment. But last...
What do you mean 'unlike girlie'? weakness and noticeable wasting (along with twitching all over) were part of my defining symptom package early on.[/quote] Oh i just meant that you said Pain was...
I was also worried about this. I've had 2 EMG's done over the last couple of years. Hoagie is absolutely correct. ALS is very rare, age is usually a big factor (i believe it's after the age of 40 or...
If CSM is too strong for you, even at low doses i have a mold specialist that recommended to start off with Plant sterols. Apparently it does the same thing, just at a much lower level. Currently i...
Stevia doesn't cross the blood brain barrier. It doesn't even get absorbed from the gut. Many antibiotics cross the BBB. Also I took valproate, which readily crosses the BBB and kills the bacteria....
Besides Dapsone/Derapin what other treatments are available that crosses BBB? Also does stevia actually kill bacteria? I thought it just attacks biofilms?...
I feel similarly to with regards to "Placebo" effect treatments. The funny thing is i truly believe that Placebo's work in general. There is lots of science that show people that believe something is...
This is truly a great post The Dude, one i believe many can relate to. Can you expound on your "hands off" approach, do you mean stopping "treatment" or do you mean letting doctors prescribe your...
Pretty sure Rifampin and Doxy cover Bartonella. And according to his signature he was on it since 2017...
Sean - Yea i concur with Mister Mike. I actually took the Great Plains Lab for Mold. Came back with one strain. I did treatment for that, but haven't seen any improvement. Still definitely worth...
Hey SeanIRL Thanks for your post. I know it's a few days ago now but i wanted to add some thoughts and questions. So i've been on antibiotics for about 8 months. I've felt very similarly to you....
I looked into the Mino thing, one thing that might help preventing the blue gray stains is high dose vitamin C. But ultimately you can still develop it with continuous high dose Mino use over a long...
My knowledge on this is somewhat limited. I'm sure others will chime in. But essentially the bands reflect your bodies response to the infection and therefore is not a good indication of "severity"...
So to start off, i have a history of chest issues. Been to the ER with it, apparently everything is fine. During the last couple of weeks i occasionally get these weird feelings towards the outside...
I have days where i have pain. I also get lots of pain in my chest. Not sure if it is due to costo condriasis or just tight muscles but i would say pain is one of my lesser symptoms overall. Went to...