Hi @Girlie: Bartonella was positive in past, when I was in care of my first LLMD. He find it. I did more than year of Rifampin, in next years is negative. But this treatment was no effect for my CFS,...
@73monte: I never took any anti-TNF, if I know well. This is second time, when I have high ASCA antibodies. I am not taking any medications at this time that could affect this, I believe. In the...
Hello all, my immunogist find on my last two lab lests high ASCA antibodies. However, I do not have any intestinal problems that indicate Crohn's disease or Ulcerose colitis. Fact is, I had a lot of...
Hey @Garzie OAT test is from Great Plains Lab? I'm trying to find sample results know what this test contains. I did lot of metabolism, gene and mitochondrial testing here in Czech on genetic clinic...
@dcd2103: It also occurred to me...when we talk about Systrom - did you CellTrend test for acetylcholine and muscarinic autoantibodies? Check mine:...
@dcd2103: Im back :-) should I understand that you have similar difficulties as me? How looks your autonomic problems? It's just extremely difficult to find the cause, even more for me, because I...
Hi all, thanks all! :-) @potsnpans: How long you did DSF and how looks your dosage? I know some your posts, but I don't know how long it all took. What improvement in %? I think tetracyclines are...
Hi all, you probably know my previous posts about helplessness in treatment due to my still progressing CFS and also about doubts whether is Lyme my main problem due to no-herxes in past atbx...
I decided to stop disulfiram for now because I had exactly calculated the time I was taking it. Time flies fast, I was a little wrong. I did 5,5 month on DSF...first moths of increasing dose and 1...
Dear @RainyCloud and @Adam B, please if you find this post, I left you a few questions in the previous answer ;-) @tickbite666: Are you saying that you noticed an improvement, especially after the...
@RainyCloud: yes, yes, I am from central Europe - Czech Republic. I had no herx reaction to antibiotics. 3,5 years on atbx in past. I did lot of atbx - only Persister protocol I refused. Are you...
@tickbite666: And you was without reaction on smaller doses under 350 mg/day too? What happened during your dose increase? At least I'm glad my liver tests are still exemplary. I know 3 week on this...
Hi all, last 3 weeks Im very confused and disappointed from what is happening, or rather not happening! This 3 weeks Im on 350 mg/day on DSF. I progress to this dose within 3 months from start on 50...
Hi @Deep_sleep: do you tolerate an ir-sauna at ease? How looks your session? Minutes? Temperature? Im trying to do ir-sauna for detox (Im on DSF for 3 months now), but it triggers me PEM and little...
So, last time I complained that nothing happens on disulfiram and I was really confused whether to continue... But, last week I had a small herx and looks like Im little, very little better now. My...
Bump for some discussion, thanks :-)...
Hi all, how is everyone doing? I have an update here! Now 3 months on Disulfiram, reached 300 mg/day. No side effects. All good, liver tests still perfect (do lot of milk thistle and dandellion). Im...
@saraeli: Hi saraeli, "boot camp" was really great and Annie did a really good work! Its a 14 days since I started it and now I think its a pretty good program. I feel really comfortable, calm and...
Yes, yes, Im tested for it! This test from IMD Berlin is for showing TH1/TH2 immune balance. My exhausted TH1 (not TH2 shift) shows very, very low IFN-gamma on this test and interpretation. But more...
Thanks a lot @potsnpans ! I want to try contact one producer of Tulsi tea and give him some questions about it. Another thing what kick Interferon Gamma is Oxymatrine - one special supplement popular...
Thanks saraeli! ;-) I will inform about progress....
@saraeli: Thanks a lot! I bought it yesterday :-) Now I need make a little schedule to set aside 4 days off for "boot camp". You were honest and you did those 4 days in a row, as they advise?...
Hi all! I'm quite worried with find this article - "Synergistic toxicity of epigallocatechin-3-gallate and diethyldithiocarbamate, a lethal encounter involving redox-active copper"...
Hi all, I'm still wondering (for almost a year!) whether to buy DNRS...but it's my birthday now, and my parents want to buy it for me as a present. Now Im on disulfiram, MCAS drugs and sleep...
I found out mainly on the chronic fatigue forum that people react differently to different forms of carnitine. You need to test it, dear WalkingbyFaith ;-) I think Acetyl-L-Carnitine is best to...
Ketotifen + Loratadin + Curcumin (Curcum-Evail) + low histamine diet...
Hi all, looks like Carnitine makes me better too. Little bit more energy, less exhaustion after activity and less inflammation feelings. I try form L-Carnitine Fumarate...2 x 500 mg / day. Also good...
@potsnpans Yeah, its only about removing the effervescence. I wondered if it could oxidize in the air during the process. I hope no. today I contacted the manufacturer (Teva) directly to provide some...
Hi all DSF fighters! I need some help! Effervescent Disulfiram into enteric coated capsules? Anyone try this? I disolve the disulfiram in small amount of water to a powder that dries, then I put it...
Hi all, Im on DSF second time, and now only 3 weeks on 50 mg. But first progress is here. My CFS is little bit better and also my inflammation is better. Today I walk around house without exhaustion....
Hi Garzie! Thanks a lot for this informations. I think, IFN-g is a very important marker that is wrongly overlooked. I don't what LLMD does it. I mainly discovered it when I did test for TH-1/TH-2...
Hi there! I'm fine, now doing my second treatment with DSF! 14 days on 50 mg now. First herx in last 3 days - more fatigue, back pain, little bit flu-like symptoms, heavy legs and big drowsiness in...
Hi all, I did some lab check in IMD Berlin lab for Lyme, inflammation, and immune system dispositions last month. My LTT for Lyme in still pretty high, but I want to talk about other things - IFN-g...
It was most effective treatment for me, I did 50 sessions in professional hard chamber. But the improvement lasted only half a year. It definitely wants to combine it with drugs or herbs that can...
Amazing info saraeli with DNRS, sleeping is better too? Probably I will buy DNRS next month - I thinking about it more than 1 year. Can I handle it with the average English? I would like to do more...
Interesting reading! Thanks all, I also hope for more discussion ;-) @saraeli: what your symptoms are better with DNRS? For is really bad some type of inflammation - I think it cause my CFS,...
Hi all, I finally got to the book Toxic by Neil Nathan, because a lot of my treatments failed and now I'm bedridden with hard CFS and trying to find new options. After years I'm now sure, what...
Hi all! Again thanks for answers ;-) @Girlie: Amazing! Thanks for sharing treatment guidelines from your LLMD! Looks like maximum of daily dose is around 20mg of hydrocortisone... findings: 20mg of...
Hi all, thanks a lot for answers ;-) I would like to find a dose that will be safe, not immunosuppressive, and will help me with inflammation. I think, hydrocortisone is more gentle than...
Hi all! I've gotten extremely worse in the last two months and I need advice. Now I'm bedridden with my CFS and my inflammation in body is crazy! like when I'm burning inside... Also orthostatic...
Hey, I just started "Vital Nutrients - Adrenal Support" - looks like most complex adrenal supplement on market. I hope it helps. I will give a review after some time! ;-)...
Hey Hey, RainyCloud, thanks a lot for your experience with enteric capsules! I have sparkling version of DSF. You too? Because I don't know if it's a good idea to put sparkling version to...
That’s really interesting! I’m from Europe country and never heard about SOT! I'll see where in Europe it's done, because I really don't know... good luck! ;-) Martin...
Yeah, Im happy from your successes! ...and of course from others. I will probably also return to disulfram when I get the results from the new LTTs. I had to end it involuntarily two months ago! From...
Hi saraeli, thanks a lot! Yeah, looks like its really hard to find what works for MCAS... What type of Curcumin and Quercetin you use? I know it's hard with absorption... I do liposomal, long time,...
Hi all, I need some experience, opinions from members who have experiences with MCAS drugs - Ketotifen and Cromolyn. FB MCAS group have more than 26 000 members and no one is able to share the...
Hi there, I was tested positive in past, its been a really long time, when I had Lyme first time. I ask, therefore, whether the HLA DR test to clarify whether I am still positive, or whether it only...
Hi there! I plan to do control lab tests in amazing Germany lab IMD - they have lot of great tests! They have also lot of LTT testing - this is nothing new, but what interested me is gene test "HLA...
Hi sandyfeet! I did MycoTox profile with high Ochratoxin A and Mycophenolic Acid. Here is my MycoTox: https://www.dropbox.com/s/sw66k03pit7r2kj/715876_Kuska_MycoTXN_ENG.PDF?dl=0 BUT I dont understand...
Hi all! Thanks a lot for answers ;-) fact is, my results are really + - same before treatment...and same from many labs last 5 - 6 years, when I'm seriously ill with CFS. Many CFS patients had really...