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MartinK

HealingWell Forum
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Member Profile
Display Name
MartinK
Profile Created
2/23/2018 7:40 AM
Last Seen
Today 3:35 AM
Total Posts
168

Last 50 Posts

6 months DSF kill B. Afzelii, Garinii, Sensu S., but my CFS is still severe. B Miyamotoi cause all?

Hi @Girlie: Bartonella was positive in past, when I was in care of my first LLMD. He find it. I did more than year of Rifampin, in next years is negative. But this treatment was no effect for my CFS,...

2/26/2021 11:18 AM

Lyme Disease
High ACSA (Saccharomyces cerevisiae) antibodies

@73monte: I never took any anti-TNF, if I know well. This is second time, when I have high ASCA antibodies. I am not taking any medications at this time that could affect this, I believe. In the...

2/26/2021 5:47 AM

Crohn's Disease
High ACSA (Saccharomyces cerevisiae) antibodies

Hello all, my immunogist find on my last two lab lests high ASCA antibodies. However, I do not have any intestinal problems that indicate Crohn's disease or Ulcerose colitis. Fact is, I had a lot of...

2/25/2021 10:20 AM

Crohn's Disease
6 months DSF kill B. Afzelii, Garinii, Sensu S., but my CFS is still severe. B Miyamotoi cause all?

Hey @Garzie OAT test is from Great Plains Lab? I'm trying to find sample results know what this test contains. I did lot of metabolism, gene and mitochondrial testing here in Czech on genetic clinic...

2/25/2021 10:06 AM

Lyme Disease
6 months DSF kill B. Afzelii, Garinii, Sensu S., but my CFS is still severe. B Miyamotoi cause all?

@dcd2103: It also occurred to me...when we talk about Systrom - did you CellTrend test for acetylcholine and muscarinic autoantibodies? Check mine:...

2/20/2021 12:25 PM

Lyme Disease
6 months DSF kill B. Afzelii, Garinii, Sensu S., but my CFS is still severe. B Miyamotoi cause all?

@dcd2103: Im back :-) should I understand that you have similar difficulties as me? How looks your autonomic problems? It's just extremely difficult to find the cause, even more for me, because I...

2/20/2021 12:17 PM

Lyme Disease
6 months DSF kill B. Afzelii, Garinii, Sensu S., but my CFS is still severe. B Miyamotoi cause all?

Hi all, thanks all! :-) @potsnpans: How long you did DSF and how looks your dosage? I know some your posts, but I don't know how long it all took. What improvement in %? I think tetracyclines are...

2/20/2021 10:24 AM

Lyme Disease
6 months DSF kill B. Afzelii, Garinii, Sensu S., but my CFS is still severe. B Miyamotoi cause all?

Hi all, you probably know my previous posts about helplessness in treatment due to my still progressing CFS and also about doubts whether is Lyme my main problem due to no-herxes in past atbx...

2/19/2021 10:55 AM

Lyme Disease
Continue or end Disulfiram? Please help!

I decided to stop disulfiram for now because I had exactly calculated the time I was taking it. Time flies fast, I was a little wrong. I did 5,5 month on DSF...first moths of increasing dose and 1...

12/16/2020 10:15 AM

Lyme Disease
Continue or end Disulfiram? Please help!

Dear @RainyCloud and @Adam B, please if you find this post, I left you a few questions in the previous answer ;-) @tickbite666: Are you saying that you noticed an improvement, especially after the...

12/14/2020 10:15 AM

Lyme Disease
Continue or end Disulfiram? Please help!

@RainyCloud: yes, yes, I am from central Europe - Czech Republic. I had no herx reaction to antibiotics. 3,5 years on atbx in past. I did lot of atbx - only Persister protocol I refused. Are you...

12/11/2020 10:42 AM

Lyme Disease
Continue or end Disulfiram? Please help!

@tickbite666: And you was without reaction on smaller doses under 350 mg/day too? What happened during your dose increase? At least I'm glad my liver tests are still exemplary. I know 3 week on this...

12/10/2020 10:47 AM

Lyme Disease
Continue or end Disulfiram? Please help!

Hi all, last 3 weeks Im very confused and disappointed from what is happening, or rather not happening! This 3 weeks Im on 350 mg/day on DSF. I progress to this dose within 3 months from start on 50...

12/9/2020 10:11 AM

Lyme Disease
Seeing strength and muscle improvements

Hi @Deep_sleep: do you tolerate an ir-sauna at ease? How looks your session? Minutes? Temperature? Im trying to do ir-sauna for detox (Im on DSF for 3 months now), but it triggers me PEM and little...

12/5/2020 2:58 AM

Lyme Disease
Disulfiram - Part 14

So, last time I complained that nothing happens on disulfiram and I was really confused whether to continue... But, last week I had a small herx and looks like Im little, very little better now. My...

12/1/2020 12:43 PM

Lyme Disease
Disulfiram - Part 14

Bump for some discussion, thanks :-)...

11/12/2020 11:31 AM

Lyme Disease
Disulfiram - Part 14

Hi all, how is everyone doing? I have an update here! Now 3 months on Disulfiram, reached 300 mg/day. No side effects. All good, liver tests still perfect (do lot of milk thistle and dandellion). Im...

11/9/2020 1:04 PM

Lyme Disease
DNRS experiences?

@saraeli: Hi saraeli, "boot camp" was really great and Annie did a really good work! Its a 14 days since I started it and now I think its a pretty good program. I feel really comfortable, calm and...

9/27/2020 3:51 AM

Lyme Disease
Disulfiram and Polyphenols (green tea, herb extracts...)

Yes, yes, Im tested for it! This test from IMD Berlin is for showing TH1/TH2 immune balance. My exhausted TH1 (not TH2 shift) shows very, very low IFN-gamma on this test and interpretation. But more...

9/7/2020 7:55 AM

Lyme Disease
Disulfiram and Polyphenols (green tea, herb extracts...)

Thanks a lot @potsnpans ! I want to try contact one producer of Tulsi tea and give him some questions about it. Another thing what kick Interferon Gamma is Oxymatrine - one special supplement popular...

9/6/2020 9:34 AM

Lyme Disease
DNRS experiences?

Thanks saraeli! ;-) I will inform about progress....

9/6/2020 3:53 AM

Lyme Disease
DNRS experiences?

@saraeli: Thanks a lot! I bought it yesterday :-) Now I need make a little schedule to set aside 4 days off for "boot camp". You were honest and you did those 4 days in a row, as they advise?...

9/3/2020 11:01 AM

Lyme Disease
Disulfiram and Polyphenols (green tea, herb extracts...)

Hi all! I'm quite worried with find this article - "Synergistic toxicity of epigallocatechin-3-gallate and diethyldithiocarbamate, a lethal encounter involving redox-active copper"...

9/1/2020 10:18 AM

Lyme Disease
DNRS experiences?

Hi all, I'm still wondering (for almost a year!) whether to buy DNRS...but it's my birthday now, and my parents want to buy it for me as a present. Now Im on disulfiram, MCAS drugs and sleep...

8/26/2020 1:57 AM

Lyme Disease
Acetyl-L-Carnitine

I found out mainly on the chronic fatigue forum that people react differently to different forms of carnitine. You need to test it, dear WalkingbyFaith ;-) I think Acetyl-L-Carnitine is best to...

8/24/2020 1:17 PM

Lyme Disease
Post your MCAS supplements.

Ketotifen + Loratadin + Curcumin (Curcum-Evail) + low histamine diet...

8/24/2020 1:14 PM

Lyme Disease
Acetyl-L-Carnitine

Hi all, looks like Carnitine makes me better too. Little bit more energy, less exhaustion after activity and less inflammation feelings. I try form L-Carnitine Fumarate...2 x 500 mg / day. Also good...

8/24/2020 2:38 AM

Lyme Disease
Disulfiram - Part 14

@potsnpans Yeah, its only about removing the effervescence. I wondered if it could oxidize in the air during the process. I hope no. today I contacted the manufacturer (Teva) directly to provide some...

8/18/2020 10:56 AM

Lyme Disease
Disulfiram - Part 14

Hi all DSF fighters! I need some help! Effervescent Disulfiram into enteric coated capsules? Anyone try this? I disolve the disulfiram in small amount of water to a powder that dries, then I put it...

8/17/2020 4:31 AM

Lyme Disease
Disulfiram - Part 14

Hi all, Im on DSF second time, and now only 3 weeks on 50 mg. But first progress is here. My CFS is little bit better and also my inflammation is better. Today I walk around house without exhaustion....

8/5/2020 2:38 AM

Lyme Disease
Low IFN-g - exhausted immune system?

Hi Garzie! Thanks a lot for this informations. I think, IFN-g is a very important marker that is wrongly overlooked. I don't what LLMD does it. I mainly discovered it when I did test for TH-1/TH-2...

7/29/2020 9:05 AM

Lyme Disease
Disulfiram - Part 14

Hi there! I'm fine, now doing my second treatment with DSF! 14 days on 50 mg now. First herx in last 3 days - more fatigue, back pain, little bit flu-like symptoms, heavy legs and big drowsiness in...

7/29/2020 8:55 AM

Lyme Disease
Low IFN-g - exhausted immune system?

Hi all, I did some lab check in IMD Berlin lab for Lyme, inflammation, and immune system dispositions last month. My LTT for Lyme in still pretty high, but I want to talk about other things - IFN-g...

7/26/2020 4:07 AM

Lyme Disease
Hyperbaric Chambers

It was most effective treatment for me, I did 50 sessions in professional hard chamber. But the improvement lasted only half a year. It definitely wants to combine it with drugs or herbs that can...

7/20/2020 3:44 AM

Lyme Disease
Anyone success with "Rebooting the Nervous System" tips mentioned in Toxic by Neil Nathan?

Amazing info saraeli with DNRS, sleeping is better too? Probably I will buy DNRS next month - I thinking about it more than 1 year. Can I handle it with the average English? I would like to do more...

6/26/2020 7:47 AM

Lyme Disease
Anyone success with "Rebooting the Nervous System" tips mentioned in Toxic by Neil Nathan?

Interesting reading! Thanks all, I also hope for more discussion ;-) @saraeli: what your symptoms are better with DNRS? For is really bad some type of inflammation - I think it cause my CFS,...

6/23/2020 11:05 AM

Lyme Disease
Anyone success with "Rebooting the Nervous System" tips mentioned in Toxic by Neil Nathan?

Hi all, I finally got to the book Toxic by Neil Nathan, because a lot of my treatments failed and now I'm bedridden with hard CFS and trying to find new options. After years I'm now sure, what...

6/23/2020 9:21 AM

Lyme Disease
safe doses of hydrocortisone/methylprednisolone when Lyme activity is possible?

Hi all! Again thanks for answers ;-) @Girlie: Amazing! Thanks for sharing treatment guidelines from your LLMD! Looks like maximum of daily dose is around 20mg of hydrocortisone... findings: 20mg of...

6/9/2020 12:06 PM

Lyme Disease
safe doses of hydrocortisone/methylprednisolone when Lyme activity is possible?

Hi all, thanks a lot for answers ;-) I would like to find a dose that will be safe, not immunosuppressive, and will help me with inflammation. I think, hydrocortisone is more gentle than...

6/6/2020 12:43 PM

Lyme Disease
safe doses of hydrocortisone/methylprednisolone when Lyme activity is possible?

Hi all! I've gotten extremely worse in the last two months and I need advice. Now I'm bedridden with my CFS and my inflammation in body is crazy! like when I'm burning inside... Also orthostatic...

6/5/2020 1:09 PM

Lyme Disease
Adrenal Fatigue Opinions

Hey, I just started "Vital Nutrients - Adrenal Support" - looks like most complex adrenal supplement on market. I hope it helps. I will give a review after some time! ;-)...

5/31/2020 12:13 PM

Lyme Disease
Disulfiram - Part 14

Hey Hey, RainyCloud, thanks a lot for your experience with enteric capsules! I have sparkling version of DSF. You too? Because I don't know if it's a good idea to put sparkling version to...

5/31/2020 12:09 PM

Lyme Disease
SOT Treatment for Lyme

That’s really interesting! I’m from Europe country and never heard about SOT! I'll see where in Europe it's done, because I really don't know... good luck! ;-) Martin...

5/24/2020 1:32 PM

Lyme Disease
Disulfiram - Part 14

Yeah, Im happy from your successes! ...and of course from others. I will probably also return to disulfram when I get the results from the new LTTs. I had to end it involuntarily two months ago! From...

5/24/2020 3:26 AM

Lyme Disease
dosage of Ketotifen and oral Cromolyn what work for you best

Hi saraeli, thanks a lot! Yeah, looks like its really hard to find what works for MCAS... What type of Curcumin and Quercetin you use? I know it's hard with absorption... I do liposomal, long time,...

5/24/2020 3:18 AM

Lyme Disease
dosage of Ketotifen and oral Cromolyn what work for you best

Hi all, I need some experience, opinions from members who have experiences with MCAS drugs - Ketotifen and Cromolyn. FB MCAS group have more than 26 000 members and no one is able to share the...

5/23/2020 4:41 AM

Lyme Disease
HLA DR for Lyme

Hi there, I was tested positive in past, its been a really long time, when I had Lyme first time. I ask, therefore, whether the HLA DR test to clarify whether I am still positive, or whether it only...

5/21/2020 10:43 AM

Lyme Disease
HLA DR for Lyme

Hi there! I plan to do control lab tests in amazing Germany lab IMD - they have lot of great tests! They have also lot of LTT testing - this is nothing new, but what interested me is gene test "HLA...

5/20/2020 10:02 AM

Lyme Disease
Results after 4 months on Disulfram

Hi sandyfeet! I did MycoTox profile with high Ochratoxin A and Mycophenolic Acid. Here is my MycoTox: https://www.dropbox.com/s/sw66k03pit7r2kj/715876_Kuska_MycoTXN_ENG.PDF?dl=0 BUT I dont understand...

5/3/2020 12:29 PM

Lyme Disease
Results after 4 months on Disulfram

Hi all! Thanks a lot for answers ;-) fact is, my results are really + - same before treatment...and same from many labs last 5 - 6 years, when I'm seriously ill with CFS. Many CFS patients had really...

5/1/2020 3:58 AM

Lyme Disease
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