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Quin

HealingWell Forum
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Member Profile
Display Name
Quin
Profile Created
10/28/2018 3:16 PM
Last Seen
1/28/2023 9:31 AM
Total Posts
1611

Last 50 Posts

Is itching a bart herx reaction?

I got itchy rashes when herxing from both lyme and bart, but it looked a bit different. Bartonella tended to form little bumps or blisters that would then peel. Lyme herx caused a more diffuse rash....

1/28/2023 9:31 AM

Lyme Disease
Candida or Herxheimer reaction?

I have definitely noticed this when herxing, although from Lyme rather than Bart. I will get an itchy skin rash that smells moldy. I've found that atovaquone is effective in treating it (I couldn't...

1/26/2023 9:50 AM

Lyme Disease
Thyroid BP adrenals

That's good news, as it would seem to rule out the most common genetic disorders affecting the adrenals. This suggests that the problem could resolve if you can get the infections under control....

1/23/2023 7:28 PM

Lyme Disease
Burning Red Ears

I get red ears, hot flashes and sweating when herxing and detoxing, or sometimes from too much vitamin D. I assume it's CYP3A4 messing with my hormone levels....

1/17/2023 8:25 PM

Lyme Disease
Anyone else have the RSV?

I've gotten several respiratory infections, and it's often hard to tell if it's cold, flu, rsv, covid, etc. Usually I try taking mepron and if that doesn't clear it up, then I take alinia. One or the...

1/16/2023 2:35 AM

Lyme Disease
Lyme hormonal issues - how do you balance it (adernal / thyroid)

Meymey - If you are not getting male pattern baldness or changes in body hair, that suggests that testosterone and DHT isn't the problem. You also did not mention any of the typical symptoms of...

1/15/2023 4:33 PM

Lyme Disease
Lyme hormonal issues - how do you balance it (adernal / thyroid)

If you're getting hirsutism and male pattern baldness, obviously you can try propecia or avodart which will reduce your DHT without affecting normal testosterone much. You could also get a blood test...

1/14/2023 10:22 AM

Lyme Disease
Thyroid BP adrenals

Carnitine synthesis requires vitamin C, B12 and a few other cofactors. If these vitamins get used up making adrenaline, then there isn't enough left to make carnitine. Carnitine is needed for fat...

1/14/2023 6:00 AM

Lyme Disease
Thyroid BP adrenals

Regarding "constant fight or flight and her adrenals need support" - This can refer to two different problems. One is too much adrenaline/epinephrine production. This tends to cause sleep issues and...

1/13/2023 6:14 AM

Lyme Disease
Thyroid BP adrenals

Blakeleysmom - You could do ultrasound or MRI, and my doctor initially recommended this, but in my case the adrenal problem ended up being obvious from the blood tests, so I didn't end up doing any...

1/12/2023 5:38 PM

Lyme Disease
Sida Acuta is bad for you???

Sida acuta and cryptolepis contain cryptolepine. I had trouble tolerating it. It caused fatigue and nervousness similar to anti-folates....

1/11/2023 1:38 PM

Lyme Disease
I'm sorry but I have an issue with every mold expert telling you to move to a mold free building

Mold is everywhere and it's certainly annoying, but I found it not that hard to treat. The problem I would have is, it would get on my skin and cause itching and smell musty, and just caused typical...

1/9/2023 6:33 PM

Lyme Disease
Never ending “ cold”

Itchy eyes is a symptom of covid. Try taking mepron or alinia. Don't take doxycycline if you have this. There is a reason why "cold and flu" are listed as common side effects of doxycycline - it...

1/6/2023 1:41 PM

Lyme Disease
Buying Meds Online (USA)

Hi Ryan, Actually I did get great results treating bartonella, but not with rifampin. The bartonella infection was completely resistant to rifampin, and also rifampin messed with my adrenals and...

1/5/2023 1:59 PM

Lyme Disease
Buying Meds Online (USA)

Does ADC accept credit cards now? This has changed several times, so I'm not sure what the current status is. Bitcoin can be kinda a pain to use, but your personal info is safe. They don't get your...

12/31/2022 3:10 PM

Lyme Disease
Adrenal fatigue tests

I would disagree with some of this. Generally when I had adrenal problems, blood tests would show high homocysteine and low carnitine. This results from low vitamin C and B12. Contrary to what the...

12/31/2022 2:57 PM

Lyme Disease
Buying Meds Online (USA)

Inhouse Pharmacy - accepts checks and money orders All Day Chemist or Reliable Rx Pharmacy - accepts bitcoin and ethereum, checks, money orders If you just want hydrocortisone cream, that doesn't...

12/31/2022 2:34 PM

Lyme Disease
Does anyone know if there is anywhere online selling generic Mepron that's not super expensive ?

The generic mepron is made in India by Lupin and Glenmark, and it still costs $300. As for whether atovaquone will make you herx, maybe. Atovaquone inhibits the cytochrome bc1 complex, which is not...

12/31/2022 9:38 AM

Lyme Disease
Vit D 25 Hydroxy as indicator of Lyme

A few hours to a day or two, depending on how much excess vitamin D....

12/30/2022 6:44 AM

Lyme Disease
Vit D 25 Hydroxy as indicator of Lyme

If my 1,25 vitamin D gets too high, I get hot flashes, sweating, pee a lot, and feel nervous (adrenal stress). This is mostly due to CYP3A4. If the vitamin D also affects calcium levels, then I can...

12/29/2022 6:17 PM

Lyme Disease
Vit D 25 Hydroxy as indicator of Lyme

When my vitamin D gets too high, it causes a pretty significant detox reaction where I pee a lot until the 1,25 goes back to normal. You'd have to do the test at the right time to catch it, as the...

12/29/2022 10:34 AM

Lyme Disease
Vit D 25 Hydroxy as indicator of Lyme

Yes, Quest and LabCorp offer both tests. I put a link in the other thread where you can order the tests without insurance....

12/29/2022 10:21 AM

Lyme Disease
Vit D 25 Hydroxy as indicator of Lyme

What appears to be happening is that under the stress of chronic infection, cells of the immune system excessively convert 25 OH D to 1,25 (OH)2 D. The standard blood test only measures 25 OH D, so...

12/29/2022 7:28 AM

Lyme Disease
To Z (Pack), or Not to Z (Pack)? That is the Question...

LOL I tried ivermectin for covid. It seemed to be mildly helpful, but I found mepron far more effective. I was taking 12 mg ivermectin per day, and while I had no difficulty tolerating that dose,...

12/28/2022 10:12 AM

Lyme Disease
To Z (Pack), or Not to Z (Pack)? That is the Question...

Atovaquone (Mepron) is an anti-malarial that also inhibits coronavirus replication. It's not clear if it has much effect on other common viruses. Generally this is my first choice for suspected...

12/28/2022 7:59 AM

Lyme Disease
To Z (Pack), or Not to Z (Pack)? That is the Question...

I doubt 5 days of azithromycin or amoxicillin would be a problem. I've taken much more than that and never got c.diff. Amoxicillin or azithromycin won't help with a viral infection, but won't make it...

12/28/2022 6:12 AM

Lyme Disease
Viral or flu?... but Negative Covid test...Edit:positive, Now negative!

I paid with bitcoin, which I got from agoradesk and purse.io If that's too much of a hassle, inhouse pharmacy takes money orders....

12/27/2022 1:10 PM

Lyme Disease
Viral or flu?... but Negative Covid test...Edit:positive, Now negative!

Covid is persistent. If I get sick, I take mepron or alinia and it goes away. Mepron works particularly fast, a few hours and it clears up. If I stop the meds too soon it will come back, but usually...

12/25/2022 11:30 AM

Lyme Disease
Take your guess!!! What is happening to me?

WBF: All three (sweat, urine, feces) but especially the feces. Bart herx would give me diarrhea and it smelled awful. Not just the smell of fresh poo, the bathroom smelled like someone had left a...

12/22/2022 10:16 PM

Lyme Disease
Chronic lyme question

You want to know if you have a borrelia infection? Try taking Claritin and see if you have a reaction to it. Borrelia does not like loratadine/desloratadine, and I found it can wake up dormant...

12/22/2022 10:04 PM

Lyme Disease
Take your guess!!! What is happening to me?

The bartonella smell... I would describe it as vegetable-like, a bit like broccoli or asparagus, but much worse. I think it smells like sewage or swampland....

12/21/2022 11:24 PM

Lyme Disease
Clotrimazole lozenge

Yes, most of our adrenals are screwed, but there are several different reasons for it, and this can affect how effective treatments like pregnenolone or ashwagandha are. Some causes of adrenal...

12/21/2022 9:36 PM

Lyme Disease
Clotrimazole lozenge

If your adrenals are that screwed, you'll need to take hydrocortisone. If you're having other hormonal abnormalities too, you should get a 17-hydroxyprogesterone test, and possibly other steroids...

12/21/2022 6:04 PM

Lyme Disease
Clotrimazole lozenge

Diflucan can definitely cause adrenal insufficiency, so it's something to be careful with if you have suspected adrenal problems. I did okay using mepron as an anti-fungal, but that can be tough to...

12/21/2022 5:20 PM

Lyme Disease
Funny diet question

I did get sibo due to gastric motility issues caused by HPA axis stress. Taking hydrocortisone and naltrexone solved it....

12/21/2022 5:05 PM

Lyme Disease
Funny diet question

Yes, I definitely did. Mostly because I was getting a lot of diarrhea so I didn't want to experiment much. Also I needed a high-protein diet because I was getting protein deficiency from bartonella....

12/21/2022 4:58 PM

Lyme Disease
Take your guess!!! What is happening to me?

Constipation, bloating, muscle twitches, and fight-or-flight irritability seem like adrenal problems and HPA stress. Have you had your acth/cortisol tested? Stomach pain and nerve pain can be due to...

12/21/2022 4:49 PM

Lyme Disease
Nystatin

Another thing I've done is buy the discount gift cards from cardcash.com (eg CVS, RiteAid, Walgreens). This discount is in addition to the goodrx discount....

12/20/2022 7:32 PM

Lyme Disease
Doxycycline - Stomach Pain

Doxycycline is anti-inflammatory and immunosuppressive. This can increase your susceptibility to common infections, such as cold and flu. I also had this problem with minocycline....

12/20/2022 9:06 AM

Lyme Disease
Viral or flu?... but Negative Covid test...Edit:positive, Now negative!

I also got itchy eyes from covid, that went away with antivirals (mepron, alinia) If you're taking supplements, be careful with vitamin D, it can cause stomach acid....

12/20/2022 6:40 AM

Lyme Disease
Famotadine?

Also if you take valtrex (valacyclovir) for EBV, be aware that it can hit other things than EBV. Valtrex made me herx quite a lot....

12/19/2022 12:18 PM

Lyme Disease
Famotadine?

In general I'm wary of taking too many antihistamines, because while it does reduce the muscle and joint pain for a while, it stops my immune system from clearing out the bacteria and the pain just...

12/19/2022 11:43 AM

Lyme Disease
My Cure for night sweats

I found that the sweats were from bacterial toxins. Exercise would disturb the bacteria and release some more and make me herx. Ultimately you need to kill the bacteria to stop this from happening....

12/18/2022 3:14 PM

Lyme Disease
Stomach Issues

Do you have a history of bad reactions to vitamin D? It definitely messed with my stomach acid. Also have you tried LDN? It sometimes helps with gastric motility issues....

12/13/2022 10:40 PM

Lyme Disease
Question for Girlie or anybody that has seen Jemsek

Drugs that tend to be pricey are mepron or malarone. Insurance will often refuse to cover those, even generics....

12/12/2022 3:57 PM

Lyme Disease
Supplemental winter vitamin D discussion thread, pros and cons

35 ng/mL is not that bad. I've sometimes had to get mine below 20 to keep the 1,25 (OH)2D normal. Anyway, the adverse effect on the adrenals is likely because of liver enzymes, similar to the effect...

12/10/2022 3:18 PM

Lyme Disease
Supplemental winter vitamin D discussion thread, pros and cons

The dysregulation of vitamin D has long been associated with chronic granulomatous disease https://pubmed.ncbi.nlm.nih.gov/1582115/ Anecdotally this is seen in lyme disease. There have been numerous...

12/10/2022 12:31 PM

Lyme Disease
Supplemental winter vitamin D discussion thread, pros and cons

There are two tests which can be ordered https://requestatest.com/vitamin-d-25-hydroxy-testing https://requestatest.com/vitamin-d-1-25-dihydroxy-testing What will show up, if you're the sort of...

12/10/2022 11:43 AM

Lyme Disease
Supplemental winter vitamin D discussion thread, pros and cons

The vitamin D issue is that some people with Lyme disease and other chronic infections seem to excessively convert vitamin D to the 1,25-dihydroxy form. If you're going to test for this, you need two...

12/10/2022 11:17 AM

Lyme Disease
Eye pain and how to increase blood flow?

Was the 'high cortisol' on a blood test or a urine test? Cortisol in your urine does not necessarily mean that your blood cortisol is consistently high. It could just mean that you're detoxing and...

12/6/2022 9:00 PM

Lyme Disease
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