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Mademywifeapromise

HealingWell Forum
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Member Profile
Display Name
Mademywifeapromise
Profile Created
11/12/2018 4:02 PM
Last Seen
Yesterday 9:51 AM
Total Posts
49

Last 50 Posts

Is this the best test for lyme and babesia?

I have had lyme for 2 1/2 years now and wanted to do a detailed testing now to see what my blood shows before my wife and I try for kids in 10 months or so(crossing fingers). I told my LLMD this and...

2/22/2021 4:03 PM

Lyme Disease
Genova Diagnostics: GI Effects Stool Profiles

https://ibb.co/MBmX9gz Got it, thanks. See the attached link for the photo. Super hard to understand, I'm assuming only people that have had this test done before are the only one's that would be...

2/16/2021 6:56 AM

Lyme Disease
Genova Diagnostics: GI Effects Stool Profiles

I don't really have that many symptoms of SIBO. I was on and off nauseous for week or so when my stomach first started to bother me two months ago. Only other things I've really had were stomach...

2/15/2021 3:12 PM

Lyme Disease
Genova Diagnostics: GI Effects Stool Profiles

Just had a Genova Diagnostics, GI effects Stool Profile done and it is very hard to understand. I don't have an appointment with my doctor for 2 1/2 weeks so was seeing if anyone has any insight on...

2/15/2021 12:56 PM

Lyme Disease
First timer--struggling

Keep you head up, it will get better. For me once I was approaching the one year mark I was really starting to get down mentally as I felt I would never get better. Shortly thereafter I really...

1/22/2021 1:57 PM

Lyme Disease
nausea and irritated stomach all the sudden....

Thank you both for the comments this falls in line with what I've read. For now, just going to try and eat extremely clean and stay away from coffee for the time being. If it persists then will look...

1/7/2021 4:49 PM

Lyme Disease
nausea and irritated stomach all the sudden....

I treated with a lot of antibiotics in 2019 and for the past year have treated with just supplements and herbs. Was feeling a lot better, but the last 2-3 weeks I've had some nausea and stomach...

1/4/2021 9:00 AM

Lyme Disease
Chronic Lyme Cured?

100% people get better and don't come back here. Once you start feeling better why would you come back to the message boards about the thing that made you feel like crap? I come on here maybe once a...

9/1/2020 6:29 AM

Lyme Disease
Wife and I looking to get pregnant in the future...advice?

Appreciate the input. I have asked my LLMD and she said she would have her get on correct vitamin protocol 6-12 months ahead of time to make sure she has proper nutrients etc., but that would be for...

7/22/2020 4:08 PM

Lyme Disease
Wife and I looking to get pregnant in the future...advice?

Yes, seems like most of the literature on the subject say it's definitely possible but more tests need to be done to confirm etc. After searching previous messages on this forum it seems like most of...

7/21/2020 2:30 PM

Lyme Disease
Wife and I looking to get pregnant in the future...advice?

I am still treating with herbs and vitamins mostly and I'd say I'm about 85-90% back to where I was. (Bit in July 2018 and started treating in October 2018). My wife and I are hoping in a year or so...

7/21/2020 11:58 AM

Lyme Disease
Positive post for new people - getting better and better

I think it was a couple months later is when I started to feel better. Then gradually overall each day gets better. Personally I don't think it was the disulfiram that made the big difference, but...

5/21/2020 6:26 AM

Lyme Disease
Positive post for new people - getting better and better

I come on here very sporadically, but at the beginning of my journey I would come on here a lot more hoping to read success stories. I am by no means 100% yet but I definitely am feeling a lot closer...

5/20/2020 2:32 PM

Lyme Disease
MMP-9 levels and MCAS

I’m Defitniely a lil itchy sometimes so that could be related to the MCAS I’m sure...

12/20/2019 4:31 PM

Lyme Disease
MMP-9 levels and MCAS

Iv introduced these supplements (one every 2-3 day) histamine block artemesia trycline mastica 5-HTP B-Complex Plus Mag Glycinate SAMe Saccharomyces Boulardii probiotic I also was taking histamine X...

12/20/2019 4:29 PM

Lyme Disease
MMP-9 levels and MCAS

I went on a low histamine diet the last 4 weeks after having my MMP-9 level come in at 550. My results came back in even more elevated at 860. I was adding in some new supplements this month but was...

12/20/2019 3:53 PM

Lyme Disease
MMP-9 levels and MCAS

Yes I think that was the one. Anyhow based off the low amount of responses it appears people may not be getting tested for this which is kind of surprising to me....

11/15/2019 3:30 PM

Lyme Disease
MMP-9 levels and MCAS

Hmm sounds like he just wasn't aware of this test. I forget what he said he was using to test for it but it started with a T....

11/15/2019 2:46 PM

Lyme Disease
MMP-9 levels and MCAS

Just spoke with my doctor and he said he has been testing me the whole time for possible MCAS but with different test. This MMP-9 is something that is relatively new and he just heard about it a...

11/15/2019 1:15 PM

Lyme Disease
MMP-9 levels and MCAS

After 13 months of treating my doctor tested me for MMP-9 for the first time. My level was 540 which indicates I could be dealing with MCAS. I don't really have any of the symptoms associated with...

11/15/2019 9:43 AM

Lyme Disease
Successful Disulfiram cases

I would Defitniely start a Facebook page for your yourself and join the group if you’re going to start dsf. Having more knowledge as you go along will be much more benifical for you and there are...

10/6/2019 8:09 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

Ya not so sure about that..overall I was better off before dsf.. hard to know if the drug made me feel worse due to reaction to the drug or not but my gut was telling me that it wasn’t really working....

10/6/2019 12:29 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

Update for anyone interested.. I started dsf 3 and 1/2 months ago and was on 500mg does for 60 of those days. I was on abx for 9 months prior.. sadly for me I don’t think it worked. Overall I am...

10/5/2019 7:50 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

Just giving an update: I know some were surprised that my doctor had me on other abx while also the disilfuram. Given that most are reporting to stop all other abx he has now changed tune and decided...

9/13/2019 1:29 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

I don't know if you would want to use me as a guideline. I'm more so at a crossroads myself on what to do next. I've been on the disulfiram for about 3 months now (in total only about 50 days at the...

9/11/2019 9:22 AM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

Just giving update for anyone interested I just finished my off week and I don't want to jinx it but I'm feeling very hopeful the difulfiram is working. The last 3 weeks I was on the disulfiram (500...

8/20/2019 4:18 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

Wanted to give update on where I’m at with disulfiram I’m approaching my week off abx and have been taking disulfiram for a little over a month and half now. Originally I dropped down from 500mg to...

8/10/2019 6:09 PM

Lyme Disease
Disulfiram: Day 23 Update

That’s a good point and ya it’s possible this could be a bad die off. I worked up to 500mg after 3 weeks and after being on the 500mg dose for 1 week and feeling so fatigued I came back down to...

8/5/2019 5:55 PM

Lyme Disease
Disulfiram: Day 23 Update

Always good to here other people updates with the drug. For me I'm about a month and half in on using disulfiram (only total of 20 days on the full 500 mg dose) and my response has not been the same....

8/5/2019 4:09 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

I've been back on the 500mg a day dose for the last 9 days and plan to keep going with 3 week on 1 week off protocol. (at least as far as I know). Overall I'd say this drug still hits me harder than...

7/30/2019 2:41 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

No, it was based on how I was feeling. I ran blood work today, which is first time since starting the disulfiram, so I'll see if the disulfiram has affected anything as far as blood work soon. I...

7/19/2019 2:06 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

Disulfiram Update: I've been taking for 4 weeks now. The last week I went back down to 250mg from the goal dose of 500mg since my doctor believed I was pretty toxic (note: he said he was more...

7/19/2019 9:49 AM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

Honestly, the past 3 days i haven't even taken it (on my off week) and I'm still a lot more tired than usual. Normally I would get 7-8 hours of sleep but lately I'm sleeping more like 10 and still...

7/11/2019 7:21 AM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

Update on the disulfiram: I took for about 20 days so far. The last 7 days I was at 500mg per day. Tough to tell exactly what the effects my body is having just off of this drug but definitely would...

7/9/2019 12:55 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

Not real sure, but with all my abx and herbs my LLMD had me work my way up to goal dose. Normally it would only be 2-3 days of taking half dose to see how my body reacts but with the Disulfiram he...

7/1/2019 12:44 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

So far I’ve been fine. Definitely feeling it I think but nothing crazy. Ironically today I am super beat...last 5 days iv been at 375mg and tomorrow I’ll up it to 500mg a day. I think my body...

6/30/2019 3:27 PM

Lyme Disease
Disulfiram any updates

Ya I usually do 3 week on 1 week off the abx protocols. With all the antibiotics my doctor always has me work my way up to the goal dose. With the disulfiram he has me starting at 125 mg and going up...

6/24/2019 7:18 PM

Lyme Disease
Disulfiram any updates

Just started taking it, today will be day 5 on it. I'm 8 months into treatment and was feeling better but was plateauing a little bit so my doctor stopped minocylin, mepron and flagyl and replaced...

6/24/2019 6:46 AM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

I suspect lower level LLMD's aren't going to deviate from standard protocols. I think my LLMD, being at more of the forefront of lyme (at least around northern VA) is able to adjust treatment options...

6/21/2019 8:02 AM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

Ya I’ll be taking Zithromax rifabutin and disulfiram all during the same week. I’ve been treating all 3 b’s the last 3-4 months and for me I don’t think iv had crazy herxes. Sure seems everyone is so...

6/20/2019 8:11 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

I'm still taking zithromax M W F and now will be taking rifabutin everyday (before I was taking it Tues, Thurs, Sat) away from days I was taking mepron. Still also taking artemisinin M W F. So...

6/20/2019 3:11 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

To start just 125 mg a day and gradually increasing to goal dose of 500mg a day daily. I didn't suggest anything, he just said we need to switch up. *he anticipates me being on it for 2-3 months...

6/20/2019 2:45 PM

Lyme Disease
Disulfiram.... kinda surprised my LLMD prescribed it

I'm at the 8 month mark of treatment and my doctor has me stopping minocylin, mepron and flagyl and is now replacing it with Disulfiram. I recently read a report that it might work for lyme and...

6/20/2019 12:36 PM

Lyme Disease
Portable Infrared Sauna

https://cleverleverage.com/infrared-sauna-reviews/ this guy did bunch of reviews to see what the EMF actually is of the saunas. If you're on a budget looking for a portable one he says this one is...

6/20/2019 6:50 AM

Lyme Disease
HBOT Oxygen therapy...to continue or not??

Ya, I'm stopping for now as it is expensive. I think it did definitely help so I will be doing it again before I'm done treating but I just want to make sure I do it at most beneficial time. For...

6/13/2019 7:33 AM

Lyme Disease
Here are a few people with lyme that are overcoming/have overcome

I don't post here much but do usually look on here once a week or so. I've been treating for exactly 8 months and have seen some slight improvement but anyone who has dealt with this knows how hard...

6/13/2019 7:30 AM

Lyme Disease
HBOT Oxygen therapy...to continue or not??

I have been doing the hbot oxygen therapy the last 4 weeks for a total of 20 sessions. Today was my last session and am still not sure if I should continue another 20 sessions or take a break for a...

6/10/2019 9:04 AM

Lyme Disease
Increase in tremors/shakey feeling and weird lump in throat

I'm in very similar situation to you i think. Bit early-mid July most likely and didn't start treating till 10-12 week mark. My LLMD knew right away I had babesia. (tested positive for...

12/12/2018 11:55 AM

Lyme Disease
Can smoking weed with pen hurt my recovery?

I am on antibiotics plus herbs and other vitamins for detoxing etc. I believe we caught it semi early as I most likely got bit around 10 weeks before starting treatment. I used to smoke maybe 5 times...

11/19/2018 1:45 PM

Lyme Disease
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