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saraeli

HealingWell Forum
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Member Profile
Display Name
saraeli
Profile Created
1/14/2019 3:35 PM
Last Seen
Yesterday 12:09 PM
Total Posts
2982

Last 50 Posts

Mycotoxin urine test while having a "female" infection

That's strange! BV has a distinctive smell, so it's surprising that a doctor who has encountered it before would guess incorrectly. I'm glad you had the insert instead of systemic drugs, to minimize...

Yesterday 11:02 AM

Lyme Disease
WAVE-1 Q’s

I know someone who recommends the Wave because it has helped her but also because it has a 6-month money-back guarantee. I can see how that would be appealing with how many gadgets and treatments...

5/13/2022 2:05 PM

Lyme Disease
Afternoon Low-Grade Fever Back with Severe Fatigue, Teeth Hurt at Night

Hi, RW. Sorry you are dealing with this again! This rings a bell for me because I've been experiencing something similar lately due to the high pollen levels this spring, causing my MCAS to be...

5/12/2022 4:41 PM

Lyme Disease
Kidneys, Blood Pressure, and Infections

I don't think most LLMDs would be concerned about these test results at all. Maybe they would repeat the labs periodically to keep an eye on them, but they probably would advise the same detox and...

5/10/2022 10:54 AM

Lyme Disease
Herxing lyme rash or?

Maybe one of the ingredients in the deodorant is something you are reacting to? My partner gets underarm irritation that looks like that when he uses certain deodorants, so we just had to try a few...

5/10/2022 6:45 AM

Lyme Disease
Mycotoxin urine test while having a "female" infection

Bacterial vaginosis would not change the results, but yeast seems like it could. I would call the lab and ask directly. Sorry you are dealing with something additional!...

5/8/2022 11:58 AM

Lyme Disease
Cannot stand up

Midodrine is not the only drug people take for POTS, and there are herbs people use, too. Did Dr. J have a recommendation for you try instead of midodrine?...

5/8/2022 11:53 AM

Lyme Disease
Cannot stand up

My POTS specialist told me that to maintain proper blood volume, a person needs to divide their weight (in pounds) in half and drink that many ounces of water per a day, and NOT more unless you are...

5/7/2022 3:28 PM

Lyme Disease
Is this neuropathy ...? (update: seems more likely a pinched nerve)

Garzie, oddly enough, yesterday I pinched the nerve you seem to be talking about while doing yoga. It was a nice twist I do every day, but I did it too fast, and eek! Just a funny coincidence....

5/7/2022 7:55 AM

Lyme Disease
New Protocol from LLMD

Some people just need to start really slowly, and some even need to stay at low doses throughout treatment. I, for example, never could have tolerated three capsules of the Green Dragon LB Core per...

5/6/2022 12:55 PM

Lyme Disease
Is this neuropathy ...? (update: seems more likely a pinched nerve)

Is there any chance that you have irritated or pinched a nerve with something subtle that you are doing with your neck or shoulders? I have experienced something similar just from a structural change...

5/4/2022 7:14 AM

Lyme Disease
Adapting to working at an office 40 hours a week

I admire all your posts about your plans. I think a lot of us think things through to try to maximize our chances of improvement and minimize our chances of decline, so it's helpful to see which...

5/3/2022 7:01 AM

Lyme Disease
Update on Sister and a Question About Timelines

A few things come to mind for me about this. First, if a person is being treated for mycotoxicity but seeing no benefit, then there's a chance that the trigger (i.e. mold exposure) is still present....

4/20/2022 10:54 AM

Lyme Disease
A pause

Hi, Sunflower. I'm sorry you have not been getting the support you should. You're absolutely right that everyone's treatment is going to look different, and we need to be supportive of each other. I...

4/20/2022 9:21 AM

Lyme Disease
Hypothyroid

What's the compounded med? Did they do testing to figure out why your thyroid is low? Like testing for Hashimoto's or iodine deficiency? Some people use ashwagandha alone to treat hypothyroidism, so...

4/16/2022 6:49 AM

Lyme Disease
Booster Covid vax

That's very much within the realm of normal for COVID vaccine side effects. They should pass in a day or two. I know it's miserable, though! Some people don't have side effects, so it feels like you...

4/15/2022 6:48 AM

Lyme Disease
Mold Testing

HannaRIO, I'm sorry to hear that you had a water damage event. The health consequences of mold exposure can be significant and expensive! The tests mentioned earlier in this thread (RealTime and...

4/13/2022 1:17 PM

Lyme Disease
Body temperature keeps dropping to 94

Low body temperature (and the edema mentioned in another thread) are symptoms of hypothyroidism. PubMed shows multiple studies linking air pollution to hypothyroidism as well, which would explain the...

4/13/2022 10:19 AM

Lyme Disease
My first attempt at making Solomon’s seal (any) Tincture

Great idea to make your own, Astroman! You might have checked on this already, but Solomon's seal and false Solomon's seal are both fairly common woodland plants, so it might be a good idea to make...

4/9/2022 10:12 AM

Lyme Disease
In treatment...

Welcome to the forum, Mog/! We hear from many people who have been misdiagnosed with MS, and many of us went through tests to rule it out early on in our illnesses, so it's definitely worth...

4/8/2022 7:45 AM

Lyme Disease
How do you know if you have MCAS

MCAS is discussed here often, so you'll find a lot of posts if you search. MCAS tests (tryptase, histamine, etc.) are dicey because they rely on certain markers of reactivity to be elevated in the...

4/6/2022 1:50 PM

Lyme Disease
POTS anyone? Covid??

My sister and niece had POTS for months after COVID. For my sister, it was only somewhat limiting, and lasted about two months. For my niece, however, she had to quit her job and it lasted over a...

4/6/2022 7:21 AM

Lyme Disease
Sudden onset of MCAS, life in total disarray, what can I do?

Solaris, I do not feel very knowledgeable at the moment, as I'm busy feeling sorry for myself, but I can tell you what worked for me up until this point! ;) I have taken low doses of quercetin,...

4/4/2022 6:39 PM

Lyme Disease
Sudden onset of MCAS, life in total disarray, what can I do?

I would not expect testing to be accurate with Zyrtec, Pepsid, and cromolyn in your system regularly beforehand. My testing was only abnormal because I had sky-high eosinophils. My LLMD at the time...

4/4/2022 4:16 PM

Lyme Disease
Iron infusion?

CLB, I do not have fibroids (as far as I know) but I am sorry to hear that you are struggling with those. I have bled heavily my whole life, but I can say the bleeding was much heavier and brighter...

4/4/2022 4:11 PM

Lyme Disease
Iron infusion?

I don't have experience with iron infusions, but I do have experience with heavy menstruation, low ferratin, and anemia. Maybe you know all these suggestions already, but just in case: If you are...

4/4/2022 11:03 AM

Lyme Disease
New onset of headaches after new job

Congratulations on being able to work! Garzie makes some great suggestions. I would pay particular attention to how you are positioning your body when you work. The setup of a laptop is not ergonomic...

4/1/2022 8:31 AM

Lyme Disease
Lyme Plex Plus

My impression is the same as Garzie's. If a company does not supply a transparent ingredient list, then I do not consider their products....

4/1/2022 8:21 AM

Lyme Disease
Should I take midodrine

I have known a few people with POTS who felt that Flornief or midodrine helped them to some degree. The cardiologists, neurologists, and POTS specialists I've seen all have told me these drugs work...

3/31/2022 7:33 AM

Lyme Disease
Experiment worth trying?

Multi-day fasting can be excellent for the system when done right - lowers inflammation, gives the GI tract a break, encourages apoptosis, starves some parasites, etc. I would be wary of consuming...

3/30/2022 8:33 AM

Lyme Disease
Like to connect with others who have severe MCAS

I'm so sorry, TamaraL. This sounds so frustrating for you both! Maybe the book Toxic will offer some ideas. Your son is fortunate to have your help!...

3/30/2022 7:37 AM

Lyme Disease
* Please Help and Tell Me What You Did *

Hi, Forest. I know we've already talked about what I have done, so I won't make you read all that again. I just wanted to say, since we live near each other, that the pollen has been high for about...

3/28/2022 12:19 PM

Lyme Disease
Recovering from chemical exposure?

I'm a big fan of DNRS. It made a huge difference for me. Here are some other posts about it. Other forum members have liked Gupta better. DNRS - Can Somebody Explain This Process?...

3/26/2022 11:06 AM

Lyme Disease
WalkingbyFaith

So glad to hear you are taking a break for something that is enriching for you. Wishing you well, WBF!...

3/25/2022 6:36 AM

Lyme Disease
WalkingbyFaith

Anybody hear from her yet? I'm worried!...

3/24/2022 5:15 PM

Lyme Disease
Recovering from chemical exposure?

Canary, have you tried limbic system retraining programs to address multiple chemical sensitivities? I know DNRS was developed initially for MCS specifically. I'm so sorry your neighbor's choices...

3/24/2022 12:49 PM

Lyme Disease
HSV help

Lysine, lemon balm, and rhus tox homeopathic might be things to try. Is anything going on that's suppressing your immune system more than usual? Physical exertion, some other virus recently,...

3/23/2022 8:53 AM

Lyme Disease
Low-Ingredient Antihistamines?

Like many of us here, I react poorly to lots of ingredients, including inactive ingredients. Pollen season has whipped my MCAS into a frenzy this spring, and my usual remedies are not nearly enough...

3/22/2022 4:27 PM

Lyme Disease
Is LapCorp reliable for Bartonella (my daughter)

There's a lot of misunderstanding about this, unfortunately, even among doctors. Those tests look for antibodies, and with many infections, people will produce antibodies for life once infected....

3/18/2022 3:58 PM

Lyme Disease
Sudden onset of MCAS, life in total disarray, what can I do?

People do improve from MCAS, yes, but the really intense flares are scary! It can take weeks for a bad flare to subside, even with the best mast cell stabilizers and trigger avoidance. Check the...

3/17/2022 12:34 PM

Lyme Disease
Sudden onset of MCAS, life in total disarray, what can I do?

Sounds very MCAS to me. The cromolyn (assuming you have the oral liquid form) is meant to work on your GI tract primarily, as theoretically it doesn't absorb into the body very much. If a person's...

3/17/2022 7:39 AM

Lyme Disease
Like to connect with others who have severe MCAS

I'm sorry to hear that your son is suffering such reactions to treatments. Many of us with MCAS figure out we have it because of that sort of dynamic. My LLMD officially diagnosed MCAS for me, but...

3/15/2022 7:38 AM

Lyme Disease
EMDR / EFT / DNRS - dealing with emotional trauma

Welcome to the forum, Tamara! Unfortunately, no, I don't know of any practitioners who fit that description. The Psychology Today directory will let you filter for location, EMDR specialty, ages...

3/15/2022 7:09 AM

Lyme Disease
WalkingbyFaith

I was wondering the same thing! Sending good vibes her way....

3/13/2022 6:08 PM

Lyme Disease
Headache - Hot Detox Bath

I develop a headache, brain fog, flushing, and sometimes other symptoms as a result of hot baths, sauna, or anything that makes me feel very hot. This happens because I have mast cell activation...

3/12/2022 1:15 PM

Lyme Disease
buhner protocol while breastfeeding? anybody done this?

https://buhnerhealinglyme.com/?s=breastfeeding you may have checked his Q&A already, but here's a link just in case. The herbs in the Buhner protocol will be transmitted through breastmilk, but so...

3/10/2022 5:32 PM

Lyme Disease
Ivermectin

I have heard of people using ivermectin for Lyme and co-infections, chiefly as an immune system regulator and anti-parasite medicine. I do not think that most LLMDs recommend using the veterinary...

3/10/2022 5:18 PM

Lyme Disease
Itchy bumps on thighs

Any chance you have mast cell activation syndrome? That's where my mind goes when I hear about rashes appearing while people are actively treating. Does the sauna make it flare? Hope you find some...

3/10/2022 8:51 AM

Lyme Disease
Anyone familiar with Dr Jay Davidson protocol?

He has participated in numerous webinars about Lyme, parasites, fasting, and autoimmune disease, so I feel like I could guess what his book would say based on those presentations. Probably lots of...

3/8/2022 11:34 AM

Lyme Disease
Is even the most mild exercise a trigger for anyone else?

Definitely been there. Post-exertional malaise was a very limiting symptom for me for years. Like you described, even just gentle activity would leave me weak and exhausted for days. With a lot of...

3/8/2022 9:47 AM

Lyme Disease
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