I'm so sorry. :( Sounds very stressful. Finding the foods that work for me has been tough as well. Have you done testing for SIBO or gut dysbiosis? Leaky gut causes so many food reactions....
jb, so sorry you are dealing with such a long histamine reaction. Miserable! Have you tried a low-histamine diet? There's no way to react badly to that. :) What else have you tried for MCAS, and how...
With iron, absorption can be an issue for a lot of people. If you eat calcium-rice foods at the same time as iron-rich foods, then your body does not absorb the iron. If you do not have enough...
Girlie, why isn't it a good idea? Are there risks? Thanks for the EMS suggestion....
I was reading about e-stim therapy today, and I'm curious if anyone has found a TENS unit helpful. They are inexpensive and seem pretty harmless. Has this helped people with neurological issues,...
Starting a new thread about this coronavirus, with a different focus.... As with any virus, the people most likely to die or have complications from COVID-19 reportedly are the elderly and people...
37. I'm not totally against the idea of perimenopause, but my periods and ovulation are completely regular, and this week's issue has been sudden and not gradual, so I'm not sure that's it....
Aerose - does olive leaf raise histamine? I didn't know it was contraindicated for MCAS....
I don't know enough about the mechanics of hair loss to say for sure, but severe dysbiosis, systemic stress caused by candida and other pathogens, and insufficient SCFAs all seem like possible...
Great question, sandyfeet, but no, no binders here. The implicit point that I should be mindful of precursors to hormones should be my next project, I guess. Babs, so you feel like the earthing mat...
There's a bad virus going around this fall and winter that involves a fever, malaise, and a cough that lasts for weeks and can turn into pneumonia. It's a really nasty virus, and it seems to be about...
Hello, folks who menstruate. I am solidly in the luteal phase (the week after menstruating) and am having all the uterine cramps, pelvic soreness, breakouts, digestive upset, libido, fatigue, and hip...
running wild, I know you have heard from me a lot, and I'm not much help to you, but nevertheless.... When I first got disablingly sick, my EBV test was negative. Four weeks later, my IgG level was...
The link tells me that the video is unavailable. :-/ But I do think we should be concerned about 5G!...
There's no way to sample DNRS, but there are many detailed posts here about it. I will copy one of mine here: After being sick with something like Lyme, a lot of us have had our fair share of trying...
An ENT almost certainly will test your hearing and send you on your way, unless they are Lyme-literate. I have been to a few. It's most likely neurological if you have Lyme, and not an issue an ENT...
Also, I suppose I should ask if you are treating for tick-borne infections? Or mold?...
Craniosacral therapy was a big help with those symptoms, for me, and to a lesser degree also acupuncture. DNRS is a practice that can reduce all kinds of hypersensitivity as well. So sorry you are...
Do you mean that you started using steroids recently? Many people with Lyme report a flare in symptoms when using steroids because they depress the immune system. Being on multiple pharmaceutical...
Agreed - for us, any additional challenge to the body is something we do not need! If this phlebotomist has injured you and your husband multiple times, then surely she has done so to others. I...
Northampton Integrative Medicine treats mold illness and chemical sensitivities, and their office is scent-free with legitimate air purifiers. I cannot speak to how impressive the practitioners are,...
Is it possible to have C. diff. without severe diarrhea? The people I know with C. diff. had diarrhea about thirty times per day, including at night. This sounds nothing like C. diff. to me. I do...
Chiro sounds like it helps you somewhat, so I would not tell you to quit, but perhaps add something else like craniosacral therapy and/or physical therapy. My partner has issues similar to what you...
YES, WbF, that happens to me as well. I got a cold a couple of weeks ago, and while the cold symptoms have ended, I have this inflammatory response that's just awful. I normally don't have joint...
I have not heard of lion's mane used for immune support so much as neurological support. Lots of medicinal mushrooms are great for immune support, though, especially cordyceps and reishi. Host...
I think that's what happened, basically. Your internal alarm system went off as you fell - your adrenal system flipped into high gear for a few minutes - and the result was depletion and...
Sounds like MCAS, at least in part. For that, a mast cell stabilizer and low-histamine diet can help tremendously. Herbs that stabilize mast cells include stinging nettles and curcumin. Quercetin (a...
Could be heartburn (GERD) or costochondritis. It's common for heartburn to be worst in the morning when your stomach is empty, especially if you eat or drink late in the evening, and burping can go...
With those symptoms you describe, I also would consider mold exposure and MCAS....
I had no symptoms of Babesia until I treated it. One rife treatment targeting Babesia was enough to give me air hunger and chest tightness for the first time, which I did not appreciate! I have...
I remember you saying that about your rife machine, running wild. I'm sure you aren't an idiot! And you know, even if someone isn't very good with technical equipment, or if someone had major brain...
The AmpCoil is very simple, yes. It's the only form of rife I have used. It also includes PEMF and biofeedback (voice analysis) so I have found it useful even without being able to tolerate the rife...
I empathize with this dilemma! So many illnesses and afflictions seem like they could be related to Lyme or other opportunistic pathogens like EBV. And honestly I suspect that pathogens are a factor...
I think rife is very cool and I don't know why more people don't use it. I did a rife treatment once and was floored by a terrible herx, so that's why I have not tried it since. It has no side...
BW Detox 2 doesn't contain any ingredients that kill pathogens, so I doubt that you are technically herxing. It contains four binders, though, which sometimes can cause a very strong reaction as they...
Hi, Lymie1981, and welcome to the forum! To maximize how many people see your post, you might want to start a separate thread introducing yourself. But yes! From what you said, it sounds like...
I watched it, too. I think a helpful tidbit from today was learning about FDA regulation. With pharmaceuticals, manufacturers have to prove that a drug is effective but not that it is safe. (This is...
We've all been there! New symptoms, flares, and so much unpredictability can be so frustrating and freaky and disorienting. You're right about binders. Bentonite clay and activated charcoal can be...
I think it's highly unlikely that anything permanent happened! I didn't mean to scare you! :( Colonoscopies often are pretty uneventful, and I'm sure you had a perfectly good reason for having one...
These questions make total sense, but even if they didn't, always feel free to ask! :) The anesthesia used in colonoscopy can cause neurological symptoms and change a person's neurotransmitters. When...
I have tried most of the things I listed, and I should mention that the most effective thing by far was the low-histamine diet. You might find that MCAS is a non-issue for you if your overall...
So glad there has been some improvement for Blakeley! Has anything else been going on during this time - other treatments or supplements? As a parent, I can imagine what a relief it is for you to see...
Photosensitivity (eyes sensitive to light) can happen with Lyme, but in my experience it is often related to adrenal issues. Cortisol issues can cause sluggish pupil constriction, so the sunlight...
I know someone who is helped tremendously by an earthing sheet. How about spending time with your feet on the ground, or spending time on the ground level of your house (no basement below)? Or...
Peripheral neuropathy, maybe? Raynaud? Compression of your nerves somewhere along your leg or lower spine? Borrelia and Bartonella both can be involved with neurological issues....
Knowing your triggers can help, too. It took me years to figure out that all the fermented foods I was eating to heal my gut and diversify my microbiome were the cause of all of my brain fog and...
Welcome to the forum! Many of us have MCAS. Feel free to use the search bar to look at past discussions, as there are many about this. If you have not already done so, then check out the book Toxic...
I'm not the best Candida expert, but personally I would suspect a more systemic problem. Do you eat sugar and simple carbs? Maybe cutting those out for a few weeks and ingesting a lot of probiotics...
This one is about someone with POTS, which many of us with Lyme have. Great perspective on rejecting stigma. https://www.huffpost.com/entry/disability-invisible-illness-pots_n_5df27ebde4b0def04007f0dc...
It's great that you know what you are dealing with now in terms of infections. Like others have mentioned, treating these infections is not just about killing bacteria. You might have parasites or...