Johnny, you can click on my username and email me for the doctor's information (on this site, we can't post full names of Lyme docs). I highly recommend the book Toxic by Neil Nathan if you have not...
Hi, Johnny, and welcome to the forum. I hope you get some great suggestions that help you find the best path out of this rough period! Have you looked into confounding variables like mold exposure or...
Readisorb is the only brand that has been recommended to me by a few different LLMDs....
Hi, WV Mike. Heart stuff is so freaky, right? It feels impossible to relax when you know your heart is misbehaving. For what it's worth, my cardiologist said that almost all new patients to her...
I do not have claustrophobia in general, but I have not found MRIs especially uncomfortable. There's a little mirror above your face angled toward the outer room and techs, so you can see things...
I'm so sorry to hear that you are going through this! Something similar happened to me after I had a cold-like virus a couple of years ago. Neuropathy (including pain and numbness mainly in hands,...
Traditional Chinese medicine is a holistic practice - herbs, food, chi, acupuncture, etc. - designed to work all together, not as separate pieces. Obviously all this isn't possible over the phone,...
Weird! Anything else different in your diet or supplement regimen?...
The original poster asked for comments from those who had taken the vaccine, which is relevant to a Lyme forum and can help us all figure out how to make the best choices for our health. I think it...
If your only potential exposure was on Friday, then it would be unusual for you already to have a fever on Saturday. I would vote for herx (or potential medication allergy) unless you develop other...
Is there anything in this other than nano zeolite?...
Yes, he's well-versed in herbs in general and in multiple herbal Lyme treatment protocols. He was happy to work with me when I had reactions to one of the "core" herbs in Buhner protocols or wanted...
Folks recommended herbalist Tommy Priester to me, but I never saw him personally. My LLMD fits your description, actually, if you want his information - AB in Waltham, MA. Love him....
Welcome to the forum! I'm sorry to hear that you are struggling. Iron supplements have a tendency to constipate people (as do some of the other things you're taking). In my case, even the gentlest...
Hi, Cignet! I'm not Girlie, obviously, but just wanted to chime in that pooling in the feet after a shower sounds totally like POTS to me. The shower heat can make POTS worse, plus the standing...
Thyroid issues cause burning mouth and excess thirst. I have read that this is especially common in post-menopausal women. Any chance your thyroid is off?...
I never eat sugar, and yesterday I had a divine tablespoon of sorbet. I had a wicked headache for two hours and was wiped out. So for me it was the sugar. But I felt okay afterward, so I don't regret...
I'm sorry that your providers have been disappointing. POTS can be tricky, since it's always part of a larger picture, and there are so few real dysautonomia specialists who really seem to know what...
Oh goodness, this must be terrifying. I have a retinal condition that has caused me some permanent vision loss, so I know how worrisome it is to have vision problems and not know why or whether they...
Love_Yourself, I'm so glad to hear that you have found rife so very helpful! And so sorry for all that you have been through along the way. May the path from here be smooth sailing for you....
For mysterious weight gain, I think it's smart to look at the meds you are taking. I agree about the steroid being the most likely culprit. If it's not, though.... I have noticed that the only times...
This description sounds like what MCAS felt like to me. I also don't have food intolerances, according to testing, but I found that high-histamine foods triggered what you described, every day for...
Do you have a normal CBC? My providers seemed to think that regular iron supplements would not help a body convert ferritin and store it. They recommended Ferrochel, but taking it gave me immediate,...
Two non-LL functional medicine doctors that treat CFS and two LLMDs have told me that most of their patients have some degree of low ferritin. I got the impression that low ferritin alone doesn't...
This has been recommended to me by a few LLMDs. I have the DesBio detox kit, which they all said was similar, so I just used it instead. I did not notice much difference (maybe a little?) but then I...
Through this test, I was found to have high levels of several potentially pathogenic organisms, and almost no beneficial organisms. Somehow I had no GI symptoms, aside from mild IBS when I got...
Genova gives seminars to teach doctors to interpret their results. :) They can be ... not straightforward. Can you post a photo? I have results from 2016 and 2019, but from your description, the test...
The diagnosis of fibromyalgia really just describes a set of symptoms. It's a disorder that can be caused by a variety of things. You can have fibromyalgia that was triggered by a past or ongoing...
Is it you who also mentioned recently that they feel a pleasant calm feeling after certain supplements? If I am remembering that right, plus your description of of feeling amazing after bone broth,...
If you are not convinced that Babesia is driving the bus for you these days, then I would look into the sweats being from hormonal dysfunction, especially with the fatigue and sleep issues. Do you...
I actually swayed, too. http://mdds.nyc/...
This sounds to me like Mal de Debarquement Syndrome (MDDS). It's a maddening feeling, and definitely makes functioning hard! If you look it up, you may notice that there's suicide hotline numbers at...
Maybe this is an unhelpful question, but why is chronic gastritis nothing to worry about?...
Definitely more anxious and depressed when my gut is not in good shape! 90% of serotonin and other neurotransmitters are made in the gut, so it makes sense, but it's so tough to handle. I'm sorry you...
People can have esophageal irritation for a number of reasons that don't involve high or low stomach acid. Valve issues, nerve issues, tissue being worn away by past reflux, lying down or reclining...
Neil Nathan's book Toxic is a fantastic resource. He would definitely say to treat MCAS first. Stopping your body's reactivity will help it to tolerate other kinds of treatment better and reduce the...
Quick note: Ashwagandha works great for me, but holy basil amps me up, eleuthero makes me sleep all day, and rhodiola make me want to yell at everyone. I mention this to say that adaptogens are...
Lion's mane can flare MCAS, which often presents as itchy skin and rashes. That would be my first guess. Sorry you are dealing with this! I know it's frustrating to figure out all the causal...
I don't know how much fluctuation is typical with CD57, but I imagine that most people's vitamin D is much lower in February than it is in August, for what that's worth. I definitely can commiserate,...
We've had a few threads about this, and they tend to get unproductive and heated very fast. I very much hope that we as a community can keep this one respectful and focused. We have had many opinions...
These are new cavities that have not been filled yet? Many dentists do not use amalgams anymore. There are other materials for filling cavities, even from mainstream dentists. If these are old...
Would anyone watching this be able to post your notes or summaries of presenters' points? It would be much appreciated! I will not have the time to watch this series, unfortunately, but would be very...
My LLMD also recommends Cytoquel by Researched Nutritionals....
Curcumin and quercetin quiet down cytokine storms for me the best. Also make sure that no immune-boosters are in the mix. I have really undermined myself by taking lots of elderberry and echinacea...
When my child had a MRSA skin infection, her doctors insisted that the whole family use mupirocin ointment in our nostrils, applied by cotton swab twice per day for a week. (Apparently 30% of people...
People get UTIs from a lot of things. No reason to shame yourself for how you may have developed one! Your case sounds tough because you have a resistant strain of staph. Another pharma option...
The ochratoxin level isn't very significant, but yes, the gliotoxin level is extremely high. :-/ Do you have a sense of where your exposure is coming from? The good news is that now you know this is...
dcd - Do you know of any ways to support exosome activity in our bodies? Would the supplements and other strategies that support natural killer cells in general also support exosome release?...
Two of those probiotic strains raise histamine, and ten lower it, so it probably would not aggravate MCAS. I thought that diuretics, and even just jamming lots of water, were the right thing to do...
WBF - How are you doing now? Any improvement with these symptoms?...