If I understand your question correctly, having the same test results just means that your body has been producing the same antibodies for that period of time. Once infected, people often produce...
I have read that technically you should not experience a herx from killing Epsten-Barr virus, since the dead viral particles don't release endotoxins that could build up and cause symptoms, but I...
I find the full-spectrum light lamps helpful this time of year, as well as trying to stay near windows during the day and actually being outside as much as possible. I just bought a rechargeable...
Welcome to the forum! Anemia, especially hemolytic anemia, can be caused by Babesia infection, antibiotics in the sulfa and penicillin families, and by autoimmune processes that attack red blood...
I think most people struggling with mold toxicity do a modified version of the Shoemaker protocol, and not a rigid version. I say this because I don't think I know anyone who has done the whole...
Yes, a couple of weeks ago he updated the moderators on the moderator forum. You can see his message there. Basically he said the transition has been way tougher than they thought, and making things...
Clarification: "CBT" in the context of LymeStop stands for "CranioBiotic Technique." You'll have better luck in your search if you don't use the acronym. There are loads of CBT practitioners in the...
I hear you star_parade. If there were more surefire approaches to these things, e.g. a specific drug that cured MCAS permanently or rendered all mycotoxins inert in a strong majority of patients,...
I posted earlier in a rush to get to an appointment, so here's more clarification, just in case it's helpful. For me, aside from reducing exposure as much as possible, treating mold just meant...
I'm also wondering about inflammation due to the skin reacting to something - dish soap, hand soap, gloves, lotion, manicure chemicals, cleaning chemicals, etc. Even entirely natural substances can...
You have options. That said, all binders can be intense, and you have to avoid constipation like the plague. Bentonite clay, chlorella, and okra are all great binders, as is a diet high in...
Hi, Jill! I'm glad you found a path that feels good to you. I also don't tolerate pharmaceutical antimicrobials and had much better luck with holistic treatment that focused on other forms of...
That's great, Astroman! Thanks for sharing your process. I started taking Solomon's seal lately at your suggestion. The Solomon's seal in my yard isn't prolific enough yet for me to dig it up yet,...
I'm curious about the autoimmune encephalitis diagnosis, too. That should be treated ASAP, and I imagine the diagnosing physician would have a plan for you? I didn't realize it was possible to have...
My urine odor changes based on what I've been eating. Coffee, popcorn, grape juice, and of course asparagus are the most noticeable for me, but then I also have an incredibly sensitive sense of...
Yes, but isn't it great? Worth seeing again. I love scrolling through the charts. It's so reassuring and important to see how many options we have for treatment....
I think it's very common for binders to cause constipation, which kind of defeats the detox purpose! I try to encourage people to eat loads of vegetables and do what it takes to keep things moving...
Craniosacral therapy is very helpful for this. Unfortunately it's not usually covered by insurance....
Thanks for the discussion, Garzie. It's helpful to feel like I'm not alone in this project! Do you have hypermobility? Or do you feel like your connective tissue issues are just from a combination of...
Greetings, good folks of the forum! Please post your best advice about connective tissue health: diet, nutrients, herbs, homeopathy, nutraceuticals, therapies, injections, exercises, etc. Has anyone...
The "by what mechanism" part of these questions is SO important. People often just say that "Lyme eats collagen," for example, and then some people seem to visualize actual critters munching on a...
Strangely it has not affected me. I use xylitol nasal spray every day and have for years, and I use much more on days I might have had airborne virus exposure or mold exposure, with no symptom...
When I hear about interstitial cystitis, my first thought is always mast cell activation syndrome. IC can be a symptom of MCAS. A friend with IC had extensive mold exposure from a previous workplace,...
Welcome to the forum, Cael! I think you will find that your story resonates with many of us, and we understand the deep frustration of continually seeking specialist care while continuing to develop...
Hyperacusis was one of my worst symptoms early on in my illness. At that point, I found acupuncture really helpful. Craniosacral therapy also can be very regulating for the nervous system. I mention...
The new owner, RJ Lewis, is the one who email me back right away on a Sunday. (I emailed him directly, not the admin contact address.) I believe he is the one who ran the Q&As with the moderators a...
I heard back from the owner right away when I emailed him today. He assured me an update would be posted soon....
I love the extra hour of morning darkness in the spring when the clocks "spring forward" because I can't sleep once it's light outside. Even with a sleep mask and blackout shades, my body can tell. I...
Would you mind describing these pseudo-seizures in a bit more detail? I'm curious. I have been reading about misophonia extensively for a friend whose child is severely disabled by it. Sounds,...
Try calculating the HERTSMI score from your ERMI results: https://www.myhousemakesmesick.com/h2calc/ (HERTSMI is the measure of the five most toxic molds.) I lived in a house with a very high ERMI...
Has anyone seen any details about this? Acknowledging that Lyme causes chronic symptoms is not the same as saying it's a chronic infection (i.e. requiring further antimicrobial treatment), so I'm...
Has anyone read the book Invisible Kingdom by Meghan O'Rourke? It got excellent reviews, and is part memoir, part history of chronic illness treatment in Western medicine. The author has chronic Lyme...
Great question, Bhava. I find it helpful to think about what a herx and MCAS actually are, which you may know already, but I want to define them just in case others don't know. A herx is the body's...
I'll let others weigh on on the antibiotics question (I never used pharmaceutical antimicrobials in my treatment) but I have thoughts on the heart question. "Soft spasm-like contractions" sound like...
What great news, MedicalNerd! Thanks for the update....
Just to be clear, did you experience these lymphatic symptoms before taking the red root? I'm just asking because I developed similar symptoms after taking red root. Re: biopsy, I am sure that I...
I'm not sure what this could be, but it sounds like a lymph node biopsy and basic blood work might also be a good idea? Good for you for getting this checked out. Please keep us updated....
Lamotrigine makes a lot of people feel that way, regardless of infections. I would assume that your increased "calm" feeling is a normal side effect of the lamotrigine, even if there's a small...
Sinus pressure, congestion, allergies, mold inhalation, or anything else going on in your sinuses definitely can irritate the nerves of your teeth. That has happened to me all my life during allergy...
In general, ID specialists will follow IDSA guidelines, so probably will not care about IgG positives. Would you consider seeing an LLMD instead? (Rarely an ID specialist is Lyme-literate, but...
Yep. Definitely had this. It can come from a lot of things, but in my case it primarily came from nerve inflammation or as a result of nighttime clenching I didn't realize I was doing. Anxiety and...
I think it's a possibility that the fatigue is just a side effect of the amoxicillin because fatigue is a side effect of several antibiotics and because you felt the symptom only a few hours after...
Amoxicillin can just make you fatigued as a side effect, unfortunately. Maybe it's just that?...
High-fructose corn syrup is its own beast - worse than regular corn syrup and way worse than regular fructose. There's a difference between consuming fructose in an apple and consuming HFCS in a soda....
That does sound very much like larynopharyngeal reflux (LPR), Derek....
Update: I saw an orthopedist, who showed me my x-rays, and apparently the break is small, and just feels a little tender when pressed on directly. All the pain and swelling is coming from loads of...
You are extremely positive for Borrelia (Lyme) and Bartonella! Many of those positive bands are specific to Borrelia, meaning only Borrelia bacteria in your system (and the antibodies your immune...
When really sick, especially while experiencing gastroparesis, I have drunk a fair amount of Vitamin Water, both the orange flavored regular kind (contains ester of rosin and 27g sugar) and the...
We understand, Astroman! It's awkward to keep getting invitations, even appealing ones, without being able to accept and feeling like people won't understand why even if we explain. I know a lot of...
Lots of chronically ill people I know are experiencing the "October slide" right now. Wishing everyone a groovy baseline this fall!...