That's strange! BV has a distinctive smell, so it's surprising that a doctor who has encountered it before would guess incorrectly. I'm glad you had the insert instead of systemic drugs, to minimize...
I know someone who recommends the Wave because it has helped her but also because it has a 6-month money-back guarantee. I can see how that would be appealing with how many gadgets and treatments...
Hi, RW. Sorry you are dealing with this again! This rings a bell for me because I've been experiencing something similar lately due to the high pollen levels this spring, causing my MCAS to be...
I don't think most LLMDs would be concerned about these test results at all. Maybe they would repeat the labs periodically to keep an eye on them, but they probably would advise the same detox and...
Maybe one of the ingredients in the deodorant is something you are reacting to? My partner gets underarm irritation that looks like that when he uses certain deodorants, so we just had to try a few...
Bacterial vaginosis would not change the results, but yeast seems like it could. I would call the lab and ask directly. Sorry you are dealing with something additional!...
Midodrine is not the only drug people take for POTS, and there are herbs people use, too. Did Dr. J have a recommendation for you try instead of midodrine?...
My POTS specialist told me that to maintain proper blood volume, a person needs to divide their weight (in pounds) in half and drink that many ounces of water per a day, and NOT more unless you are...
Garzie, oddly enough, yesterday I pinched the nerve you seem to be talking about while doing yoga. It was a nice twist I do every day, but I did it too fast, and eek! Just a funny coincidence....
Some people just need to start really slowly, and some even need to stay at low doses throughout treatment. I, for example, never could have tolerated three capsules of the Green Dragon LB Core per...
Is there any chance that you have irritated or pinched a nerve with something subtle that you are doing with your neck or shoulders? I have experienced something similar just from a structural change...
I admire all your posts about your plans. I think a lot of us think things through to try to maximize our chances of improvement and minimize our chances of decline, so it's helpful to see which...
A few things come to mind for me about this. First, if a person is being treated for mycotoxicity but seeing no benefit, then there's a chance that the trigger (i.e. mold exposure) is still present....
Hi, Sunflower. I'm sorry you have not been getting the support you should. You're absolutely right that everyone's treatment is going to look different, and we need to be supportive of each other. I...
What's the compounded med? Did they do testing to figure out why your thyroid is low? Like testing for Hashimoto's or iodine deficiency? Some people use ashwagandha alone to treat hypothyroidism, so...
That's very much within the realm of normal for COVID vaccine side effects. They should pass in a day or two. I know it's miserable, though! Some people don't have side effects, so it feels like you...
HannaRIO, I'm sorry to hear that you had a water damage event. The health consequences of mold exposure can be significant and expensive! The tests mentioned earlier in this thread (RealTime and...
Low body temperature (and the edema mentioned in another thread) are symptoms of hypothyroidism. PubMed shows multiple studies linking air pollution to hypothyroidism as well, which would explain the...
Great idea to make your own, Astroman! You might have checked on this already, but Solomon's seal and false Solomon's seal are both fairly common woodland plants, so it might be a good idea to make...
Welcome to the forum, Mog/! We hear from many people who have been misdiagnosed with MS, and many of us went through tests to rule it out early on in our illnesses, so it's definitely worth...
MCAS is discussed here often, so you'll find a lot of posts if you search. MCAS tests (tryptase, histamine, etc.) are dicey because they rely on certain markers of reactivity to be elevated in the...
My sister and niece had POTS for months after COVID. For my sister, it was only somewhat limiting, and lasted about two months. For my niece, however, she had to quit her job and it lasted over a...
Solaris, I do not feel very knowledgeable at the moment, as I'm busy feeling sorry for myself, but I can tell you what worked for me up until this point! ;) I have taken low doses of quercetin,...
I would not expect testing to be accurate with Zyrtec, Pepsid, and cromolyn in your system regularly beforehand. My testing was only abnormal because I had sky-high eosinophils. My LLMD at the time...
CLB, I do not have fibroids (as far as I know) but I am sorry to hear that you are struggling with those. I have bled heavily my whole life, but I can say the bleeding was much heavier and brighter...
I don't have experience with iron infusions, but I do have experience with heavy menstruation, low ferratin, and anemia. Maybe you know all these suggestions already, but just in case: If you are...
Congratulations on being able to work! Garzie makes some great suggestions. I would pay particular attention to how you are positioning your body when you work. The setup of a laptop is not ergonomic...
My impression is the same as Garzie's. If a company does not supply a transparent ingredient list, then I do not consider their products....
I have known a few people with POTS who felt that Flornief or midodrine helped them to some degree. The cardiologists, neurologists, and POTS specialists I've seen all have told me these drugs work...
Multi-day fasting can be excellent for the system when done right - lowers inflammation, gives the GI tract a break, encourages apoptosis, starves some parasites, etc. I would be wary of consuming...
I'm so sorry, TamaraL. This sounds so frustrating for you both! Maybe the book Toxic will offer some ideas. Your son is fortunate to have your help!...
Hi, Forest. I know we've already talked about what I have done, so I won't make you read all that again. I just wanted to say, since we live near each other, that the pollen has been high for about...
I'm a big fan of DNRS. It made a huge difference for me. Here are some other posts about it. Other forum members have liked Gupta better. DNRS - Can Somebody Explain This Process?...
So glad to hear you are taking a break for something that is enriching for you. Wishing you well, WBF!...
Anybody hear from her yet? I'm worried!...
Canary, have you tried limbic system retraining programs to address multiple chemical sensitivities? I know DNRS was developed initially for MCS specifically. I'm so sorry your neighbor's choices...
Lysine, lemon balm, and rhus tox homeopathic might be things to try. Is anything going on that's suppressing your immune system more than usual? Physical exertion, some other virus recently,...
Like many of us here, I react poorly to lots of ingredients, including inactive ingredients. Pollen season has whipped my MCAS into a frenzy this spring, and my usual remedies are not nearly enough...
There's a lot of misunderstanding about this, unfortunately, even among doctors. Those tests look for antibodies, and with many infections, people will produce antibodies for life once infected....
People do improve from MCAS, yes, but the really intense flares are scary! It can take weeks for a bad flare to subside, even with the best mast cell stabilizers and trigger avoidance. Check the...
Sounds very MCAS to me. The cromolyn (assuming you have the oral liquid form) is meant to work on your GI tract primarily, as theoretically it doesn't absorb into the body very much. If a person's...
I'm sorry to hear that your son is suffering such reactions to treatments. Many of us with MCAS figure out we have it because of that sort of dynamic. My LLMD officially diagnosed MCAS for me, but...
Welcome to the forum, Tamara! Unfortunately, no, I don't know of any practitioners who fit that description. The Psychology Today directory will let you filter for location, EMDR specialty, ages...
I was wondering the same thing! Sending good vibes her way....
I develop a headache, brain fog, flushing, and sometimes other symptoms as a result of hot baths, sauna, or anything that makes me feel very hot. This happens because I have mast cell activation...
https://buhnerhealinglyme.com/?s=breastfeeding you may have checked his Q&A already, but here's a link just in case. The herbs in the Buhner protocol will be transmitted through breastmilk, but so...
I have heard of people using ivermectin for Lyme and co-infections, chiefly as an immune system regulator and anti-parasite medicine. I do not think that most LLMDs recommend using the veterinary...
Any chance you have mast cell activation syndrome? That's where my mind goes when I hear about rashes appearing while people are actively treating. Does the sauna make it flare? Hope you find some...
He has participated in numerous webinars about Lyme, parasites, fasting, and autoimmune disease, so I feel like I could guess what his book would say based on those presentations. Probably lots of...
Definitely been there. Post-exertional malaise was a very limiting symptom for me for years. Like you described, even just gentle activity would leave me weak and exhausted for days. With a lot of...