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Brab8878

HealingWell Forum
>
Member Profile
Display Name
Brab8878
Profile Created
7/11/2019 7:51 PM
Last Seen
1/11/2021 8:39 AM
Total Posts
146

Last 50 Posts

Liposomal vs IV glutathione

For people who have tried both, do people tend to notice much difference between the two?...

1/11/2021 6:14 AM

Lyme Disease
Recommendation on selling Lyme based equipment.

I obviously don’t want to spam trying to sell something here but I have a braintap that I only used for a couple months. I’m trying to find a place where people in our community may go to buy used...

9/30/2020 11:44 AM

Lyme Disease
Starting IVIG for post-infectious autoimmune/Adult PANDAS tomorrow

Of course....

8/22/2020 5:46 AM

Lyme Disease
Starting IVIG for post-infectious autoimmune/Adult PANDAS tomorrow

Thanks Solaris. In the middle of starting bicillin injection now. Is that just recently been considered a first tier drug for it? I’ve only seen Dr K and this forum talk about it being used for adult...

8/21/2020 4:48 PM

Lyme Disease
Starting IVIG for post-infectious autoimmune/Adult PANDAS tomorrow

Hi Solaris. Thanks for posting this. Is there any way to contact you to see how your doctor got you access to IVIG. I really believe my symptoms are from adult PANDAS but it seems almost impossible...

8/21/2020 7:45 AM

Lyme Disease
Let’s talk about PANDAS (and IVIG)

I ordered the bacillin shots from the Canadian pharmacy. Will they provide all the necessary materials to take them or is there anything you have to get on your own?...

7/25/2020 12:45 PM

Lyme Disease
Let’s talk about PANDAS (and IVIG)

Hi dcd, Is there a way I could get your email/contact you offline? Would love to get tips on getting IViG as I’m having a tough time right now. Thanks for any help possible....

7/15/2020 7:45 AM

Lyme Disease
Head presssure.

Thanks for all the generous replies. Have tried a lot of the things mentioned here but will keep at it and let you guys know if I find something that helps....

7/3/2020 7:14 PM

Lyme Disease
Head presssure.

Ya tried that as well. All sorts of different antibiotics and herbs for that...

7/3/2020 8:17 AM

Lyme Disease
Head presssure.

Feel like I’ve tried just about everything under the sun and nothing will touch my 24/7 head pressure. Did; IV Cef Disulfiram, Bab Meds Every detox under the sun Countless herbals Nothing seems to...

7/3/2020 6:00 AM

Lyme Disease
Let’s talk about PANDAS (and IVIG)

Good to know. Thanks. Solaris let me know when dose you were prescribed if you don’t mind....

6/24/2020 9:07 AM

Lyme Disease
Let’s talk about PANDAS (and IVIG)

Do you weigh under 100 lbs? Or is this his standard dose. That article made it sound like 2.4 a week was standard...

6/24/2020 8:44 AM

Lyme Disease
Let’s talk about PANDAS (and IVIG)

Solaris what dose of the Bacillin shots were/are you taking. From this article here ( https://www.lymedisease.org/members/lyme-times/2020-summer-patient-matters/pans-and-pandas/ ) it sounds like Dr....

6/24/2020 8:19 AM

Lyme Disease
Antibiotics vs supporting your body

Just curious what people think. It sounds like antibiotics help a lot of people. Then there are a subset of people that don’t improve from antibiotics but improve from supporting the body whether...

6/19/2020 8:22 PM

Lyme Disease
How are people finding DSF activity against their Babesia

Are people finding that Disulfiram is working well against their babesia?...

5/2/2020 1:07 PM

Lyme Disease
Antibiotic absorption.

Ya mine did the same for the first 7-10 days but then never got dark again after. Thanks for the info girlie. I’ll ask my Dr....

4/26/2020 3:16 PM

Lyme Disease
Antibiotic absorption.

Yes rifampin turning it red/orange for the first 7-10 days. And then it stopped turning that color. Which coincided with me not getting the same good feeling from it as I did for the first week or so....

4/26/2020 12:40 PM

Lyme Disease
Antibiotic absorption.

Running wild. Ya I’m not sure if digestive enzymes do actually help absorb them. I will ask my doctor next phone call. Girlie- this is what I’m trying to figure out. Is it normal for urine color to...

4/26/2020 11:08 AM

Lyme Disease
Mepron and Coconut Oil May Not Be A Good Idea Afterall

Just came across this thread as I just started taking mepron. I think people have misinterpreted the study. They first compared taking TABLETS with toast, toast with lo fat butter and toast with High...

4/26/2020 9:45 AM

Lyme Disease
Antibiotic absorption.

Has anyone ever taken digestive enzymes or anything like that to help absorb antibiotics? If so what did you use. Thanks for the help....

4/26/2020 7:51 AM

Lyme Disease
Sleep Question.

Thanks every one for their input. A lot of great advice. Much appreciated. I do have a lot of dreams so I’m guessing I’m getting into the the right cycles but I don’t know a lot about this stuff....

4/14/2020 9:20 AM

Lyme Disease
Sleep Question.

Curious if anyone else has this or any idea what this is. Whenever I go to sleep and wake up my brain feels so much more fatigued, numb, and just overall worse. I feel like I have to start from...

4/8/2020 3:47 PM

Lyme Disease
Why is coartem pulsed?

Just out of curiosity why is coartem pulsed every couple of weeks? Does it stay in the body a long time or something else? Thanks...

2/17/2020 8:17 PM

Lyme Disease
Cipro/Levaquin, anyone have experiences with these for Bart?

Have you looked into taking something for the stationary Bart? My doctor told me clotrimazole lozenges and methylene blue hit it from studies done....

1/28/2020 8:16 AM

Lyme Disease
Advice on timing of Antibiotics, probiotics and Nystatin throughout day

Just curious if anyone has any advice on how to space out 1) antibiotics ( twice a day) 2) nystatin 3) probitiocs. I feel like they should all be taken away from each other but that can be tough to...

Yesterday 5:57 PM

Lyme Disease
Treating Babs Lyme and Bart all at once

Interesting. Thanks for the responses. Thought I would ask because I know there was a lot of talk about autoimmune issues and autoimmune encephalitis. I was reading Dr. Frid interview. She...

Yesterday 11:14 AM

Lyme Disease
Treating Babs Lyme and Bart all at once

Do some people treat all three main infections at once. Or do they usually break it up into Lyme/ Bart at once and then Babs/Lyme ? Thanks for any insight...

1/22/2020 9:59 PM

Lyme Disease
Bartonella treatment best penetrate bbb

No problem at. Just thought I’d explain my situation in case others relate. It sounds like it is clinical diagnosis. Will keep people updated if I find anything that helps....

1/19/2020 11:16 AM

Lyme Disease
Bartonella treatment best penetrate bbb

Saraeli and elvin, I’m sure those symptoms would happen with a herx but I’ve been having them 24/7 for years now even when not taking antibiotics. And things have been getting consistently worse even...

1/19/2020 9:54 AM

Lyme Disease
Bartonella treatment best penetrate bbb

Aerose I read that a few weeks ago when you posted it and have been reading his blog ever since. Couldn’t believe how much that sounded like me. I brought that exact blog to my doctor and we are...

1/18/2020 11:42 PM

Lyme Disease
Bartonella treatment best penetrate bbb

Aerose, My symptoms are a lot like yours. All brain, very few others. Mine don’t appear as severe as yours though ( no hallucinations etc) but very crippling to the point where I’ve been stuck in my...

1/18/2020 12:12 PM

Lyme Disease
Bartonella treatment best penetrate bbb

Is there a Bartonella treatment that best gets to Bartonella in the brain. All my symptoms are in my brain. Thanks for any help....

1/16/2020 11:20 PM

Lyme Disease
Anyone treating with Disulfiram and Methylene blue at the same time?

Thanks for the advice everyone. I agree with you Potsnpans. Figured I’d ask in case people have been trying it without any problem doing both. Don’t feel comfortable doing it if it hasn’t been...

1/12/2020 10:43 PM

Lyme Disease
Anyone treating with Disulfiram and Methylene blue at the same time?

Just curious if anyone is trying this to cover all three infections. Thanks for the help....

1/11/2020 10:58 PM

Lyme Disease
Disulfiram Poll

Markus I would start with 125 every 3rd day or every other day for at least a week and see how you do on that first. Good luck....

12/25/2019 12:22 PM

Lyme Disease
New York Center for Innovative Medicine

Oo ok. Was not familiar with Dr. N. Seems like he would be even more familiar with the autoimmune aspect than even Dr J so the blog might be repetitive. But can’t hurt to try and get more insight....

12/21/2019 9:41 AM

Lyme Disease
Disulfiram Poll

I’m guessing someone has already mentioned this to you but just in case they haven’t this schedule may seem benign but I’ve read about doctors that put there patient on 62.5 or 125 once every four...

12/21/2019 7:34 AM

Lyme Disease
New York Center for Innovative Medicine

Take a look at this blog. Dr J is fantastic and so many of his blogs have resonated with me since I found it that a lot of doctors seem to have missed....

12/21/2019 12:41 AM

Lyme Disease
New York Center for Innovative Medicine

Hi Pagogo, Just curious what they did to treat his encephalitis? I was just reading a pamphlet today about PANDAS that describes some of your sons symptoms to a T. They specifically mentioned...

12/21/2019 12:19 AM

Lyme Disease
Recent posts: transitive property + autoimmune= more questions

Also not sure if someone else has mentioned it but I would see if she could do a trial no dairy for a couple weeks and see how she does. Dairy can be extremely inflammatory so worth a shot if she is...

12/17/2019 8:30 AM

Lyme Disease
Recent posts: transitive property + autoimmune= more questions

“She just came off 7 day abx break and those days are no different than days on abx. It’s so bothersome that we can not identify herx vs regular symptoms vs detox problems etc. I write down every day...

12/17/2019 8:22 AM

Lyme Disease
Disulfiram - Part 12

Anecdotally has DSF been working well for people’s babesia symptoms. I’m on it now and can’t distinguish between any of the infections at all since it’s all in my head. My doc wants me to do mepron...

12/14/2019 7:59 PM

Lyme Disease
Any go to most recent ILADS?

Just curious if anyone has been to the most recent ILADS in Boston that cares to share what was talked about. Usually a bunch of good nuggets from them. Betterhealthguy posted some notes from it but...

12/2/2019 3:30 PM

Lyme Disease
Disulfiram - Part 10

Thank you so much. Hadn’t seen that info yet....

11/25/2019 2:07 PM

Lyme Disease
Disulfiram - Part 10

Things are still going well for me on disulfiram. Been a roller coaster for sure but very optimistic about how things are going. My doctor is unreachable for awhile so just curious if people have...

11/25/2019 2:01 PM

Lyme Disease
DNRS and increased anxiety

Dr Nathan deals with a lot of sensitive patients and he says most of his patients can’t tolerate an hour a day. He recommends only 15 minutes to start with and work up from there. You could be doing...

11/21/2019 1:06 PM

Lyme Disease
Has anyone treated Fusarium mold?

How can you even figure out the source of fusarium mold if ERMI doesn’t test for it?...

10/21/2019 10:16 AM

Lyme Disease
Has anyone treated Fusarium mold?

Agreed very confusing stuff Korrisa. I think you’d be better off finding a doctor that is familiar with mold toxicity. A lot of mainstream doctors won’t have any idea how to treat. I personally don’t...

10/20/2019 4:20 PM

Lyme Disease
Has anyone treated Fusarium mold?

From what I’ve gathered, different molds are treated differently. Some binders work on certain molds while not binding others. It looks like fusarium is best treated by charcoal and...

10/18/2019 9:19 PM

Lyme Disease
Has anyone treated Fusarium mold?

Just curious if anyone has treated this. What was your protocol?...

10/18/2019 6:14 PM

Lyme Disease



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