Open main menu ☰
HealingWell
Search Close Search
Health Conditions
Allergies Alzheimer's Disease Anxiety & Panic Disorders Arthritis Breast Cancer Chronic Illness Crohn's Disease Depression Diabetes
Fibromyalgia GERD & Acid Reflux Irritable Bowel Syndrome Lupus Lyme Disease Migraine Headache Multiple Sclerosis Prostate Cancer Ulcerative Colitis

View Conditions A to Z »
Support Forums
Anxiety & Panic Disorders Bipolar Disorder Breast Cancer Chronic Pain Crohn's Disease Depression Diabetes Fibromyalgia GERD & Acid Reflux
Hepatitis Irritable Bowel Syndrome Lupus Lyme Disease Multiple Sclerosis Ostomies Prostate Cancer Rheumatoid Arthritis Ulcerative Colitis

View Forums A to Z »
Log In
Join Us
Close main menu ×
  • Home
  • Health Conditions
    • All Conditions
    • Allergies
    • Alzheimer's Disease
    • Anxiety & Panic Disorders
    • Arthritis
    • Breast Cancer
    • Chronic Illness
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Migraine Headache
    • Multiple Sclerosis
    • Prostate Cancer
    • Ulcerative Colitis
  • Support Forums
    • All Forums
    • Anxiety & Panic Disorders
    • Bipolar Disorder
    • Breast Cancer
    • Chronic Pain
    • Crohn's Disease
    • Depression
    • Diabetes
    • Fibromyalgia
    • GERD & Acid Reflux
    • Hepatitis
    • Irritable Bowel Syndrome
    • Lupus
    • Lyme Disease
    • Multiple Sclerosis
    • Ostomies
    • Prostate Cancer
    • Rheumatoid Arthritis
    • Ulcerative Colitis
  • Log In
  • Join Us
Join Us
☰
Forum Home| Forum Rules| Moderators| Active Topics| Help| Log In

Sunflower1920

HealingWell Forum
>
Member Profile
Display Name
Sunflower1920
Profile Created
4/13/2020 9:12 AM
Last Seen
Yesterday 2:52 AM
Total Posts
301

Last 50 Posts

Kissing and transmission

Vinzor LIVE your life. if she knows your struggles, she can take a more informed choice on what she wants to do, if she is OK with it then go for it. Life is way too short as we have seen. I don't...

Yesterday 2:52 AM

Lyme Disease
Back with more bad news

Thank you Wisco I refuse to seclude myself and use this disease as a "lifestyle" but at the same time it's really taking a toll. I fear my better days are well behind me. I told my therapist it seems...

6/19/2022 5:21 AM

Lyme Disease
Back with more bad news

Received my mycotoxin results from Real Time Labs, my LLMD doesn't seem too concerned and told me about binders but my family is worried and ME? I can't calm down. One more damn thing after another....

6/18/2022 6:39 PM

Lyme Disease
Trauma from Dr. S.P. office

Girlie that doesn't frighten me. Go on and delete me. I already sent you a PM. Some members on here are mentally unwell and let lyme control their lives and sit on these forums for hours and are...

5/17/2022 4:43 PM

Lyme Disease
Trauma from Dr. S.P. office

No I won't Girlie. I do not care if you are a moderator or not. You're not above any of us, sorry. You said to MN " you pointing at me?" That sounded quote confrontational. Why don't you re-read what...

5/17/2022 4:07 PM

Lyme Disease
Trauma from Dr. S.P. office

Girlie what's your problem? No really...CHILL OUT. Oh and by the way I saw that comment you said to that other member about you being upset that she wished she was 90% better, what was that? What is...

5/17/2022 2:04 PM

Lyme Disease
Trauma from Dr. S.P. office

Girlie you don't need to clarify and quote what he said....I know what he said. I'm not looking for a fight. I'm stating what I infact read....

5/17/2022 12:34 PM

Lyme Disease
Trauma from Dr. S.P. office

No you Said *many* of us will need to treat forever and won't go into remission...

5/17/2022 7:44 AM

Lyme Disease
Trauma from Dr. S.P. office

Not constant day to day treatment, some do get into remission and are fine. Others it may be more than just LD/Co's. Maybe some need to treat forever but not most. I could careless what Dr H says in...

5/17/2022 7:11 AM

Lyme Disease
Trauma from Dr. S.P. office

Also medical nerd I believe the "established medical community" probably sees us as victims to these LLMDs with the very unorthodox ways they treat LD and the $ they charge with alot of us getting...

5/17/2022 4:25 AM

Lyme Disease
Trauma from Dr. S.P. office

I'm not going to say much since I've never seen Dr. P but it could be ( like some llmds) he's burnt out? It can take a toll on these doctors emotionally when they know how much we and our families...

5/17/2022 4:10 AM

Lyme Disease
Trauma from Dr. S.P. office

Thanks for that negative spewing tickbite666. Thanks for making us feel so much better and add hope to our future NOT!...

5/17/2022 4:04 AM

Lyme Disease
Need your help

Welcome home (sorry lol coming home stinks I know!). Glad you had a wonderful vacation and congrats on your son's engagement!...

5/16/2022 4:09 PM

Lyme Disease
Trauma from Dr. S.P. office

Not all LLMDs are like this just FYI. Please don't knock *most* LLMDs as quacks. My first one wasn't a good fit for me. I now have a new LLMD whom I adore. Praying she'll help me really turn a...

5/16/2022 3:57 PM

Lyme Disease
Mycotoxin urine test while having a "female" infection

The last few exams and cultures I've been normal. Is in a way this doesn't surprise me that this time again things are neg. It always seems right after my period. I don't know anymore....my body and...

5/16/2022 11:40 AM

Lyme Disease
Trauma from Dr. S.P. office

Is this doctor in Connecticut? No I've never seen them however I believe I know who you are talking about. I've seen a post about this doctor before and their hefty fee....

5/16/2022 11:38 AM

Lyme Disease
Mycotoxin urine test while having a "female" infection

So doc said most likely is Bacterial vaginosis. She called in the script anyway ( gel insert) and I've been using it the last 2 nights. She just called to say my BV and yeast results are normal. Wtf....

5/16/2022 8:42 AM

Lyme Disease
Adapting to working at an office 40 hours a week

That's great that it seems like a very inclusive environment! My department is like that too. I'm afraid being promoted I'll be working from home because lol I really like the in-person working....

5/13/2022 2:23 PM

Lyme Disease
Herxing lyme rash or?

Lol the deodorant sure as heck ain't preventing me from sweating thats for sure. Thanks for feedback...

5/12/2022 11:39 AM

Lyme Disease
Adapting to working at an office 40 hours a week

Hi! I am very proud of you. After being on SSDI for almost 10 yrs i went back to work. I graduated from college and this was my first real "career" job. Scared? You bet I was. I was at my worst with...

5/12/2022 10:21 AM

Lyme Disease
Herxing lyme rash or?

And no it doesn't burn, itch etc. I don't even know it's there until I look in mirror. Sorry neglected to mention that....

5/12/2022 7:00 AM

Lyme Disease
Herxing lyme rash or?

Hey WBF, It's Dove deodorant. Turns out the " straie" was from part of my tank too rubbing, lol. I sweat alot now and since using the aluminum free I do have alot of body pit odor. I never had this...

5/12/2022 6:45 AM

Lyme Disease
Herxing lyme rash or?

Haha I know but I really should shave lol... all joking aside though I'm just too tired. We've all been there though esp women. The weather here in Mass hasn't been nice, very unseasonably cool but...

5/12/2022 4:09 AM

Lyme Disease
Herxing lyme rash or?

I'm hoping it's not from the aluminum-free deodorant. Crazy I say that huh? At least with a herx rash I'd know I'm killing and hitting stuff which is a good thing. My llmd believes it's a rash too...

5/10/2022 4:06 AM

Lyme Disease
Herxing lyme rash or?

https://ibb.co/C0xYRnt Is this a herxing lyme rash? Sorry about the hairy pits ( really I know its bad). I sent an email with this picture to my Llmd. Oddly enough when I use aluminum free deodorant...

5/9/2022 3:48 PM

Lyme Disease
Mycotoxin urine test while having a "female" infection

Saraeli thanks. Lovely I know right, lol. I was going to email my LLMD as well, she's great and very quick responding. This isn't unfortunately my first "rodeo" with yeast and BV infections. Even...

5/8/2022 12:05 PM

Lyme Disease
Mycotoxin urine test while having a "female" infection

My new LLMD wanted me to redo my mycotoxin urine test with Real Time Labs. About 6 months ago I did one through Great Plains with my former LLMD with not much flagged. I just want to get this...

5/8/2022 8:35 AM

Lyme Disease
Encouragement and a "sign" go a long way I guess..

Thank you 💚...

4/28/2022 2:51 PM

Lyme Disease
Encouragement and a "sign" go a long way I guess..

I decided to go back into treatment with much encouragement. I ask that my boundaries and choices be respected and honored. I still will not be sharing my treatment protocol publicly. I do NOT want...

4/28/2022 10:13 AM

Lyme Disease
A pause

It just got to be too much. I even had my therapist tell me to only come on these sites minimally because it can bring on more stress ( and no she's NOT knocking my chronic lyme)....

4/22/2022 3:23 PM

Lyme Disease
A pause

Regular blood tests are up. Negative for M. Peaumonia and C. Peaumonia both IgM and IgG. Liver slightly elevated and IgA is high. Homocytine and Methyl normal....

4/21/2022 3:11 PM

Lyme Disease
A pause

Apparently my "protocol" that my new LLMD is doing with me isn't good and getting questioned by some seasoned veteran chronic Lyme, mold exposed, celiac, thyroid warrior "know it alls". I had hope...

4/20/2022 4:40 AM

Lyme Disease
Igenex test results

I believe it's for parasites too. She ordered a TON of blood work (not just igenex) one of the blood tests I believe is for celiac as well. I haven't done those yet only did igenex the day of my...

4/16/2022 9:03 AM

Lyme Disease
Mold Testing

I did Great Plains with my former LLMD about 6 months ago. My new LLMD wants me to redo my urine mycotoxin test with Real Time, she says they're more accurate and most physicians prefer. Ugh....

4/16/2022 7:27 AM

Lyme Disease
Igenex test results

I am IgG Bartonella positive (B. Quintana). So many meds and supplements it's getting to be alot financially. $700 was taken out of my account yesterday from igenex now have to resubmit to insurance....

4/16/2022 6:42 AM

Lyme Disease
Booster Covid vax

Girlie you're in healthcare too correct? We were mandated obviously. They were gonna mandate the booster too but at last minute said no. Very happy to hear you are feeling better! 😊...

4/15/2022 3:51 PM

Lyme Disease
Booster Covid vax

Yes! Both regular doses of Phizer I was fine but when I got my booster in January definitely felt awful. I was in bed for 2 days with horrible body aches and chills, temp of almost 101 and I soaked...

4/15/2022 4:20 AM

Lyme Disease
Yesterday's appt

Concord...

4/7/2022 11:34 AM

Lyme Disease
Today's the day!

Hi guys! Yes it certainly did! I was so exhausted , long day and I stayed later at work to make up my hours. My head was cranking by the end. Alot of information but it was worth it! 💚...

4/7/2022 10:33 AM

Lyme Disease
Yesterday's appt

Dr. B in Massachusetts. Am I allowed to do city/town?...

4/7/2022 8:43 AM

Lyme Disease
Yesterday's appt

It went AWESOME! This LLMD is truly an angel. My appt was 3.5 hrs long! She believes my main issues are Bartonella , mycotoxins, yeast and possibly strep. She's helping as well with my...

4/7/2022 4:19 AM

Lyme Disease
Today's the day!

My appt is in a few hours. Everything is all set, notes/my concerns/questions, lab results, complete medication history with now former LLMD. My records haven't come yet its been a month go...

4/6/2022 4:20 AM

Lyme Disease
New LLMD appt

My new LLMD appt is this Wednesday at 9am. You'd think the closer it was coming the more excited and hopeful I'd be. It's the exact opposite. Getting panic stricken, fearful and worried about what...

4/3/2022 10:08 AM

Lyme Disease
WalkingbyFaith

Glad you're OK as well WBF! 💕 Yes Bailey its crazy, but since changing the clocks forward recently getting darker later is great! Decorating the house for Easter/spring later. It's the little...

3/26/2022 5:37 AM

Lyme Disease
WalkingbyFaith

I live in Massachusetts and its been an up and down pattern weather wise, I guess you call that a typical New England spring haha! Last week it was over 75 degrees it was so awesome and now cold and...

3/25/2022 3:16 PM

Lyme Disease
23 and me raw data results

Yes of course. Thankyou...

3/10/2022 1:08 PM

Lyme Disease
23 and me raw data results

Yes I am happy about that. One HLA even being green esp. There are many different MTHFR ones, so I get very confused the list was long and on some I was green and yellow....

3/10/2022 11:10 AM

Lyme Disease
23 and me raw data results

I can certainly send a pic of all of them later on. My thyroid ones were red as well....

3/10/2022 9:12 AM

Lyme Disease
23 and me raw data results

HLA DRB1 Green HLA DPB2 Yellow HLA DQA2 Yellow HLA DRB1 rs9271366 Yellow HLA DRB1 rs9275596 Yellow MTHFD1 both Red These are just a few that caught my attention that I know ppl in the Lyme community...

3/10/2022 5:36 AM

Lyme Disease
What is the cost of IV rocephin

Ok thank you 💚...

2/16/2022 5:08 AM

Lyme Disease
HealingWell

About Us  |   Advertise  |   Subscribe  |   Privacy & Disclaimer
Connect With Us
Facebook Twitter Instagram Pinterest LinkedIn
© 1997-2022 HealingWell.com LLC All Rights Reserved. Our website is for informational purposes only. HealingWell.com LLC does not provide medical advice, diagnosis, or treatment.