Hi, If you've seen my last post you'd see that I'm now on Methylene Blue and Crypto-Plus for Bartonella. The last month or month and a half I've gained alot of weight in my stomach. I'm losing my...
I do not believe it's neuropathy, no. I had this last year when I did the sea salt protocol, feels almost like a sunburn. I get it in my mouth too. Odd...
Has anyone gotten burning and tingling sensations throughout their body after starting on Methylene Blue for Bartonella ? I am now on day 8 of starting it. Thanks 💚...
Yes they did....
I had a mainstream doc tell me the other day that MB can give you hypotension ( she was good though didn't dismiss my Lyme or talk me out of taking it). I'm only on day 5 of taking it....
Just began Methylene Blue for Bartonella, in conjunction with Crypto-Plus. 2 months ago I was on Rifabutin and Clarithromycin and was dangerously ill, my WBCs were very low, along with platelets and...
Yes I have read articles by her before!...
@1000 daisies, I had a high testosterone level back when I was 15 years old. The doc never said I had PCOS though....uhhh? But she put me on the pill. As I got older I heard more ppl say birth...
Can Bartonella play with female hormones? I know Lyme can, but I'm interested more so in what Bartonella can do? I've heard it can give you insulin resistance. My blood work has been fine ( I know I...
How is "MB" for Bartonella? The Rifabutin messed with my WBCs, platelets and liver enzymes. I heard "MB" can't be used while on psych drugs due to serotonin syndrome. I'm currently on Zoloft. I don't...
My wbc and platelets were low and liver functions high. My doctor told me to come off the Rifabutin. I was on that and Clarithromycin for over a month. On day 6 I was very very ill with a temp of...
How do you take Japanese Knotweed in tinctured form (drop let)? Can you put it on/under your tongue? In a beverage?...
I took Taurine for a few months. No difference. I'm not saying it doesn't work....everyone is different! I think the Bartonella and lyme did so much damage to my brain. I just entered Bartonella...
I had someone question why I was on Macrobid for Bartonella, and that my herxing could very well be an allergy to the abx. The more I thought about it, the more I looked into it. I've never been on...
I am struggling big time, not just depression but horrific paranoia, anxiety and OCD. I'm in the middle of treatment for Bartonella and lyme and told this can be normal and understandable. I dont...
Macrobid, no I don't have known allergies to sulfa drugs...
I am in a grueling process of going through what I pray to God is just a Bartonella herx. I am having chest and throat pain, ear pain and jaw pain and feel a low grade temp appear. btw I am Covid...
I just discovered some new bart marks on my inner leg. They aren't red or purple but more white and faint, and long. I literally just noticed and took a picture. Ive had a very bad week herxing wise....
The Flagyl was for an infection unrelated to lyme/bart. It was a pelvic infection, my LLMD didn't prescribe it (she knows I'm on it). I take my last pill tomorrow so its pointless to try the...
No i think its herxing anxiety. I have Bart and lyme. No, I haven't had alcohol. My last pill is Tuesday so I think im gonna tough it out....
Im on Flagyl due to an unrelated infection to lyme and Bart. My anxiety is through the absolute roof. I have a bad burning sensation in my chest, neck and mouth which seems obvious to be from the...
Yes, I understand everyone responds differently. I'm on Macrobid now and again my psych symptoms just don't seem to be disappearing. If you've seen my previous posts in the last month you'd see that...
How did people do on this abx? I've heard many say even though it's in the same class as Rifampin, its alot more tolerable and just as good for Bartonella. Thanks...
The first abx of choice is Flagyl. I was offered a gel insert but my insurance didn't cover it unfortunately so I had to take the oral. Even before I officially entered lyme treatment and was on the...
Have you ladies while sick and in treatment gotten Bacterial Vaginosis more than once? I understand it's common esp with an already dampened immune system. I think I have it again. I dont know if...
Just sent my LLMD an email to make sure that's OK....
Nope I wasn't risking trying Rifabutin if I couldn't handle the Rifampin. I'm only on Macrobid....
As some of you know I had a very tough time on the Rifampin. My LLMD put me on Macrobid, prayers that I do well with this. I am so worried and frightened, I don't even know how I get through the days...
Hey Garzie this is Kristyn from lymenet. Again, thank you for letting me know about the article!...
Yes on top of everything else Sara its very unnecessary and heartbreaking....
Hi Carl, I have almost 100ï¼… certainty it is infact the Rifampin. When I first entered treatment over a year ago I was prescribed 3 abx, one of them being Clarithromycin, same dosage. I never had an...
Yea she told me right before she prescribed the Rifampin that after 3 weeks if I had improvement then she'd give me the Rifabutin. At this point Rifabutin would be pointless and probably more harmful...
Girlie yes I was on Clarithromycin....
my major ocd symptoms and intrusive thoughts are back. They reared their ugly head 10 years ago ( well before I saught lyme treatment) i wont get into great detail but it was an absolute horrifying...
I emailed my LLMD and was told to d/c the Rifampin, and Tuesday when they're back in the office they'll reassess everything. The intrusive thoughts are quieting down but not gone 100 percent. No...
Nightmares are very frequent with me too, even before taking the Rifampin. They weren't nightmarish as in some ax murderer chasing me, lol no. But more so just unpleasant feelings or situations I was...
Yes I do take charcoal. I set my alarm clock for the middle of the night and take it then so there's no interference (another member of the lyme community told me of this idea). I just emailed my...
Sorry I neglected to answer your question, my dose is 300mg 2x a day....
I could but thinking about it now I really should push through till Tuesday when I talk to my LLMD. I am very scared to lower/taper on my own. I worry very much about resistance. I am truly very...
I posted yesterday about the horrible herxes ( if you'd call that now) with Rifampin for Bartonella. Horrible physical and psych ones. I can't handle it anymore so I am discontinuing the med. My LLMD...
Im reading up on other stuff about Rifampin and psych symptoms. Looks to be pretty frequent ( esp anxiety) Its still is so dreadful, I try to reassure myself it's not real its only because of the...
Has anyone's psych symptoms gotten worse while taking Rifampin for Bartonella ?...
Yup horrible psych symptoms. Physical ones too. Notified my LLMD and she said I WAS in fact taking too much. She told me to start at 600mg then work up to 1200mg ( that was the original plan, I...
I just emailed my lyme doc to double check dosage to be on the safe side....
Nope, each pill is 300 mg, 2 pills in the morning and 2 at night. I even double checked the print on the bottle too last night because even I questioned this....
She put me on Clarithromycin too ( sorry I should have included that). I tested positive for Relapsing Fever as well....
I tested positive for Bartonella. My LLMD put me on Rifampin ( oral). Unfortunately, I've heard many not so good stories about that drug. I am on day 4 of it and my anxiety is so bad, worrying so...
I've been on the bicillin for 4 months now. I asked her about 2 months in if it was infact herx from the shot and she said a herx wouldn't last that long. Ugh....
No I haven't discontinued it, I really don't want to. Its been such a miserable journey I'm too scared to stop anything. I see my LLMD again on the 14th. My understanding a virus can't be killed like...
Has anyone been on Famvir for EBV? My LLMD put me on it about 2 or 3 weeks ago. Its an antiviral but can you somehow suffer a "herx" from it? I feel worse. Daily headaches, sore throat, ears and...