I take gobs of midodrine. Florineff doesn’t work well for me. You also take like Sudafed. You can eat more salt and also there are like electrolyte packets or drops you can add to water to basically...
Yeah i have an air fryer in my room, so uh we’ve crossed that bridge. I have a true hepa filter I’m happy with the moment. I do like the idea of killing viruses and mold though, but like saraeli said...
Hey you all. Someone recommended this air purifier to me last night. It seems to work a bit different from a lot of the ones in the market. Just wondering if anyone else has had experience or...
Mepron alinia and iv meds are where you probably will run into insurance issues....
Hmm ok… I’ll keep looking around the internet....
Do you know where to find a craniosacral therapist? My doc wants me to find one. Though he said to find one and he’d check them out to make sure they were up to snuff...
Bart gives me air hunger. I get a lot of funky pressure in my head… there is csf pressure along with blood pressure, but no one has exactly explained all the weird pressure in my head. What’s weird...
Magnesium, luteolin, klonopin, bpc 157, amlexanox, licorice, lemon balm help my right vision eye. They all have extra effects depending on your sensitivities you have to choose one that works for...
The way I distinguish between biofilm breaking or herxheimer is if I keep getting worse afterwards until I take more abx, I consider is biofilm breaking. If I get worse then gradually get better...
Valtrex breaks my biofilm but makes my mcas better...
It does have alcohol in it. I think I had so many toxins I got a herx the first time I took it. It did help with repeated use though...
Oh thanks rainy. Yeah a lot of cars you can remove the seats or fold them down. But I want a functional seat with a seat belt that serves also as a bed. Something like the following. It’s a Honda...
How old is your suv? Does the seat recline to completely flat and is here space for your legs? So the minivan I grew up in had bench seats that could recline to flat. But looking at modern captain...
Hey guys, I’m wondering if you guys know of any cars with sears I could recline to flat so I can lay down like in a bed while traveling. I know older cars used to have this but I’ve struggled to find...
Sorry I don’t have any experience with this type of thing, so feel free to completely disregard my advice. Would icing your arm help? I mostly struggle with extreme ocd over cleanliness brought in by...
Yes I began with Shoemaker. We can say his name now he’s retired right? Girlie feel free to edit it if we can’t. And wbf I’m happy to respond. Sorry I haven’t been around much, I’m basically losing...
SP claimed i think in some video (I know terrible citation) he’s working on new drugs in the pipeline. There was that Stanford guy who did that research on disulfiram and azlocillin, then COVID hit...
Since 2008...
I agree with garzie and Lyme24, it depends on how bad you are. I suppose I’m living that particular nightmare you’re worried about. If you are still desperately ill, you search for another doctor or...
Whoever visits the new place let us know how it is! I’ve been doing virtual appointments because of COVID. Maybe if there’s like a ball pit or like ski ball in the new place I’ll try in person again...
I’ve been seeing Dr G virtually. He’s in San Rafael, CA. He’s very expensive, but his office also runs very efficiently. But also to be fair, I’m seeing him mostly for mcas and general chronic...
Mine is usually nonexistent 0...
I think some people say treating bartonella helps? But I mean I’ve done all the Lyme and mold treatments and my vegf is still in the toilet....
Hey guys, I know a while back I was having a really hard time finding a lab that would help me get my blood drawn for labs from my picc while not having personnel come weekly into your home because...
I’ve used both xylitol and lactoferrin. They both significantly broke down biofilm and lactoferrin helped my stomach feel more balanced and healthy. However, did I feel better after everything was...
For those of us who take ketotifen, I was wondering how much you pay and where you get it from. After sort of local shopping around for prices I pay about $73 per month to get it compounded for me. I...
Hi ravenhome777 I haven’t looked at all the data, but I heard generally j&j and AstraZeneca were vaccines that gave blood clot issues. Pfizer and moderna caused heart issues. I’m not sure if there...
Whether all of us have chronic Lyme, I don’t know. Whether chronic Lyme exists has been proven with both studies on animals where they find the Lyme spirochetes in them after they were given standard...
Definitely call dr J. He told me to call him immediately if I test positive and also to up my ivm....
Eh for me I could feel and hear the fluid like my hearing would change based on position. I have a ton of earwax that Clogs my ears frequently and I use a very doc unapproved method to unclog them....
Is there fluid in her ear? I used to get a lot of fluid in my ear...
What kind of hearing issues? Ringing? Or just hearing loss?...
Check the half lives off the medicines...
How’s it going?...
In my experience Dr J does not do ivig. Dcd probably hooked up with the famous ivig guy on the east coast...
I think SP had a relapsing fever during just one part of the day consistently and found treating Brucella fixed it. I get teeth pain, I find that increasing progesterone helps it but causes others...
Don’t apologize for being negative, I think most people on this forum have felt or do feel the same way as you… it’s why we do something as absurd as posting all our medical records here for the...
Thanks traveler 🙂...
I think dr J had me pulse daraprim. It broke my biofilm, broke out in in like things that felt like mosquito bites with a pin center....
Thanks rainy! Ok, so taking k should help but so should A....
Go away is rather a strong term. It does help me become more mobile but I’m largely still bedridden. I can no longer take as much midodrine as I used to due to weird inflammation problems that make...
I think it triggered my crazy mcas issues which led to starvation (lost 40 lbs). It also makes my head feel like something is crushing it to the point where I gasp for breath because it feels like...
Hmmm so it looks like there are papers saying hypercalcemia causes excitotoxicity and Wikipedia said hypercalcemia is high calcium in the blood and other papers say k2 decreases blood calcium (by...
So I’ve created this somewhat wild theory in my head (I have to convince myself supplements will solve all my problems before trying them). If lack of k2 caused hypercalemia, could it explain my...
I’ve been downing fistfuls of midodrine for probably over a decade. I rely on it. You can also try like some types of Sudafed and northera, or licorice root (weaker florineff). Mestinon was also...
Yeah I think I saw a video where a chiro in Massachusetts said sometimes people have D sensitivity because their bodies convert all their d to the active form....
My mitochondrial docs gave it to me. I found it did make me a bit perkier....
So rainy mentioned to me that maybe k2 would help since it’s take d away from floating around to transporting calcium to bones. Have any of you vitamin d sensitives tried that and had it help?...
I’ll email Dr G’s name. He’s a chronic illness specialist in San Rafael, Ca, so not exclusively mcas. I see him virtually. Besides Afrin and Maitland and the Dr T Afrin works with, I’m not sure who...
The form I took had almost nothing in it. It was an oil with only lemon oil or something like that besides the d...