I don't think anyone trashes alternative medicine. In fact, we include a post in the UC FAQs area that goes through a lot of the alternatives people have tried. I am perfectly open to alternatives,...
You probably have proctitis in your disconnected rectum. You should go see your surgeon or GI and get scoped to see what's going on. You can use rectal meds....
I am thinking along the lines of what iPoop says. Stay on Uceris, heal, then take it slow and hopefully Humira will continue to work for you once you're off Uceris. If you rush to discontinue Uceris...
I can't really speak for noodles and she doesn't seem to pop in that often, but I've known quite a few people who have stayed with their ileo. There are some great things about the ileo. The first is...
I would be careful to stop the uceris personally. It seems too coincidental that you felt better when you got on uceris. I would give it some time, take it slow. If the levels are good, it's not...
With 40mg of pred, it is expected that you feel 100%. I wouldn't get ahead of myself. Cautious optimism is always good with UC as it is very unpredictable. While on pred, calprotectin results do not...
The standard steroid enemas are cheap with insurance i believe. Uceris is name-brand, less effective, and more expensive, but it's still a decent option. There are also foam cortenemas, but those...
That's great! Always nice to hear about people who are doing well. :-)...
Drinking water is healthy. I try to drink as much as I can. Liquid isn't the worst, at least it's easy to pass and it's quick. It takes 2 seconds. The worst is when you have to wipe a lot. I'd take...
If you think the inflammation is low and you've been using canasa, I think a good potential solution would be enemas. I would try both mesalamine and steroids and see if you have luck. Perhaps you...
I had a lot of liquid yesterday and I don't think it's got anything to do with inflammation. I think it's because I drank a lot of water. I notice all different consistencies. If you're having liquid...
I think you're going to have to see your GI more regularly and come up with a treatment plan....
What dose of Apriso? You should be on the maximum if you're flaring. I would also add rectal medication as everyone has mentioned. Eating easy to digest food is smart while you're flaring, but it...
It's not the food. It's nothing to do with diet. You need to go see a GI and get proper treatment. Get a proper diagnosis and work with a IBD specialist to find a plan that works for you. having...
Fingers crossed for you. You do need to figure out what you're going to use for maintenance if the humira isn't working. For me, the mornings were always the worst, and there are always good days and...
I think it was something like no more than 10 pounds for 6-8 weeks. They told me basically nothing heavier than a computer. I did a lot more than I should have but it can cause problems, like hernia,...
I guess a positive stool test was always a pipedream for me. I thought, if there is just something to treat, I can treat it and move on!!! It never was though. Your logic is sound. It's probably the...
I think budesonide releases earlier, depending on the coating, but uceris is coated to release later. If you had luck with steroid enemas once, those aren't a bad idea to try. I wouldn't imagine they...
That sounds like the best plan to me. I wouldn't get an infusion while under the weather personally....
Congrats on taking a huge step to getting control of your health!!! I agree with Keith, things are definitely going to be difficult now. I wouldn't draw any conclusions on what you can and can't eat...
I hate to say it, but I would imagine it doesn't work as well, simply because it's only effective for a small area. It is topical so it could help with residual inflammation in the rectum but that's...
Mine are all mixed up. Sometimes pellets, sometimes snakes, sometimes liquidy. It really depends on what I eat and drink. I try not to get too caught up in consistency and worry more about how I am...
Are you still taking cipro? It sounded like Keith said usually people don't need to self-dilate... Do you have a follow-up scheduled? You may need to continue treatment or take a longer course....
How are you doing Andrina?...
I would do both calprotectin and c diff. Why not? Try not to stress. I don't think trying uceris again is a bad option. I just don't want to see you stay on pred for too long when your bones are...
I probably would have done the same since you initially responded to remicade. It seemed like maybe the humira would work, but I guess now that we know about your bones, we are finding that time is...
I was taking it while I was on MTX and it didn't do much for me. It's great if you're feeling better though. I am happy for you!...
I think it's common for hematologists to be in oncology offices. I wouldn't go too much further thinking the worst. I went to one who was in an oncology practice in the past and I didn't have any...
That is up to you really. I was in a similar situation, refused pred because of the negative side effects, and I didn't want to wait too long to get my life back. Eventually, I opted for surgery. I...
hmm, you can't win. When things are going well, it's too firm and you're strained, when it's watery, you're going constantly. Did you call to find out when you should start? Did you regain control? I...
I have never heard of such a thing. Were you struggling to go? I thought you were going too much... I think Keith had a dilation but I don't know if he had to do something at home after. I haven't...
Are you underweight? I feel like I am the correct weight for my height. I don't try to gain or lose, but I tend to stay the same. I would think if you really want to gain, you would have to eat...
We have a member here who swears by a product called benzoin tincture. Check out this quote and give it a try. Is your ileo a loop or an end? My loop was very difficult to manage....
That is frustrating. I would take her to a vet dermatologist. It sounds like maybe she has dermatitis or allergies? My dog has dermatitis and he's on atopica for it. He still licks a bit, but the...
Are you still feeling well? I am sorry about tomorrow, but thank goodness you will be under anesthesia. Who is doing the procedure, your GI? I hope it is quick and easy, and that it helps for the...
I am with you on the not worrying about things I can't control stuff. I would go nuts if I let everything out of my control get me worked up. Karen, yes italians :-) They are the sweetest little...
Can you take something to help with the nighttime trips? I wouldn't mind taking something myself. Getting up in the night is the worst, but I just get up and go back to bed. I know Andrina was having...
I have always drank mostly spring water and it didn't help my UC at all. I didn't drink it with the intent of helping my UC - we lived in a very old building with galvanized pipes and our water...
Homemade eggnog is something worth enjoying. I am sorry you're feeling down. Sometimes I think the holidays emphasize sadness for people with "alternative lifestyles". By alternative, I mean single...
My GI had me on MTX for a while with biologics, that was the worst, but nothing is as bad as prednisone in my opinion. I also refused prednisone during my last flare up. I hit a point where I knew it...
Welcome, I am happy you found us. I am sorry you're in such a bad place. Have you consulted a surgeon? I know you have some obstacles stacked against you, but without a real consultation, it's hard...
That is so sad. I am sorry. I never dealt with this, but a lot of people here can offer advice. I probably would see someone....
I hope the supps help. It really does sound like proctitis, which is completely normal at this stage. It will get better after you move forward with the next step, for now, the supps are your best...
Merry Christmas. I am happy you're doing well. I have good days too, and days where I go a little more than I'd like to, but really, it's a lot easier than living with UC for me. With UC, it was...
This makes me happy!...
Sadly, surgery isn't great, and I hope no one has led anyone to believe it is. It is something you do because you're 100% out of options, or you want to be done with it all. No one does it for fun!...
I am in southern CA. Some of the members seem to be in the NYC area. Cleveland Clinic is probably the #1 in the country! People sometimes travel a bit to see the best....
How is everyone? I haven't seen some of you in a while :-) Happy holidays!...
The range of normal is very large, I would imagine it's between something like 4 and 10 a day, with 4-6 being common. The trips should be quick, nonurgent and easy to pass....
Try not to stress. It's probably from the prednisone. It will go away with time. I have a completely different figure than I had when I had UC, especially while I was on pred. My figure on pred was...