That is so great countess. I am happy to see this, and I am happy for you and him....
I am so sorry you're concerned about your son. I think a calprotectin is a reasonable place to start. It's noninvasive and it might give you some idea of what's going on... Hopefully, it shows no...
I am so sorry that happened to you. Sounds frightening, but hopefully, it was acid from the oranges and you can continue with the treatment. Keep me updated. Wishing you success with stelara....
Mine definitely showed a lot of signs of inflammation. Maybe things are mild. That's a good thing!...
I've never seen any evidence that food can stop or start a flare....
Oh spring, I am sorry you're going through this. Having to switch meds is a pain in the ass but I hope stelara works well for you. I feel like I've learned over time that if you don't ask, something...
Thankfully, I've never had one. I am so sorry you're dealing with this. I've heard they are painful....
I also wonder where he is. I talk to Sara a lot off of hw. She's doing well....
That really stinks. It's so much to go though and over an error? I wish you could go see someone at one of the major facilities with the most experience with redos for a consultation. Can you video...
I'd definitely try medication before having a redo....
I think the antibiotics might be managing the pouchitis but biologics might work better for daily prevention and treatment. I'd give them a try. I don't think the fact that they didn't help your uc...
Is there a way to find out if that's the case? I think I'd try a biologic and see if it stops the inflammation and decreases symptoms. Better to try that than to have surgery and realize it wasn't a...
I thought you had inflammation in the pouch causing your troubles?...
Maybe biologics...
Who are you dealing with? The original surgeon? I'd definitely get multiple opinions before doing anything surgical, and of course, if you're feeling well, maybe try to use medical options before...
I agree with the others. If you're not comfortable with the doctor, see someone else. I don't think having a family member in the room doing a medical procedure is standard practice, nor do I think...
I am very sorry to hear the news about your mother. It's nice that you got to spend some time with her beforehand. I lost my dad and I hadn't seen him in a while, I still remember the last time we...
I think she mistyped. You can't have a colostomy with uc surgery. A colostomy comes from the colon and uc surgery removes the colon....
I'm soo sorry it's been such a difficult road for you. I hope things start to improve. This year has been pretty bad in general âšī¸ if you had takedown, aren't you closed and free of a stoma?...
The surgeon or gi should be able to do a tiny scope of the pouch in the office. Perhaps it's hemorrhoids, or something along those lines. It could also be pouchitis, but that can be treated with...
I've always been described as a very grounded person. Didn't help me with my immune system unfortunately. Happy to hear others have received benefit......
It's total nonsense. That person shouldn't call themself a doctor....
If you're doing well, I am sure you've responded. Non responders wouldn't have any response at all. That's what happened to me. You wouldn't have antibodies but it also wouldn't work. You might just...
Some people are non responders. You should get your levels checked and see what your gi thinks. A higher dose might be a good solution but it won't help if you're a non responder. It never helped me...
If you're down to one medical option, id personally at least, consult with some surgeons and start getting my head wrapped around what that entails. Even if xeljanz is the magic bullet, it may not,...
I knew I didn't want to take steroids ever again. That made the decision easy for me. I was carrying a lot of extra weight and I hated the way I looked. I didn't want to commit to a life of being...
I'd definitely resign if I were in the financial position to! It's great to have opportunities to get some flexibility through the workplace but it's very different to get a few days paid days off...
Soooooooo true. Sad but true. We aren't lucky enough to get to resign over ibd, even if it's severe and life alerting... I hope he gets better quickly too....
Mine are all over the place. Sometimes pieces, sometimes liquid. Depends what you eat, but you definitely can't expect formed like before surgery. Form happens in the colon. If you retain your...
I think a calprotectin test is a good idea but I'd also probably try steroid s upps for a few days to see if that helps. Seeing the gi is always a good idea when there's blood. Better to get it...
I dont understand it either poopy đ if you find a way to fight it, I am here to stand with you. It's not right. Totally discriminatory actually. It only applies to people of certain ages and...
That is really sad. People used to always act like I was a baby because I would back out of responsibilities due to uc, in fact, they still do when I reiterate how difficult life can be with a...
You may want to try asking on jpouch org. This site isn't very active and there are very few active members here with pouches. I haven't had pouchitis myself but I have heard others say that combo of...
It's hard to say what the options are but I will say that you need to stay calm and not make rash decisions or worry about the worst. You can consult with multiple surgeons and see what they say. If...
it's the same as cyclosporine, which I mentioned earlier. I hope you have luck with it. Often it's used under a doctor's care in a hospital. It can cause a quick turnaround. Let us know how you do....
I think they always leave a cuff to connect to. My cuff was scraped of cells though and I have not had any issues with cuffitis thankfully. I had surgery in Los Angeles....
I tried a lot of herbal, otc and dietary options before restoring to surgery. Nothing helped me personally. At least, after surgery, it really is all I'm the past. No drugs, no steroids, no doctors....
I didn't respond to anything and I had surgery but perhaps you should get some stool tests to see if your battling some type of bacteria on top of uc. Other than that, you could see about a course of...
Thanks for updating! You will pass wind again in time. Do not worry đ it's always great to hear about people being in good spirits. It sounds like you're looking forward to a life without uc. I had...
The first year is definitely the hardest but having recurrent pouchitis puts you in a category where you have had more trouble than the majority. Many people regret not having surgery sooner because...
I can understand that. I hope you find a way to make things work without....
I personally would just go see someone else and catch them up on my situation. I am sure a gi could pick up where you need to and provide some options....
I am sorry you're having to make a change in meds but I hope you have great results quickly with xeljanz. I don't have a ton of advice on how long entyvio sticks around. Entyvio did absolutely...
Are you working with a gi to find a long-term solution for the pouchitis? I know taking meds daily isn't the best but it's better than having things remain unpredictable. I am really sorry you're...
I wouldn't want to do antibiotics too long either. That's why you should consider a biologic if it's truly chronic but at this time, if the probiotics work, that's great!...
I thought the entyvio infusions were easier than the others. It didn't work for me unfortunately, but if it had, I would have been happy because I didn't have any side effects and I didn't have joint...
My surgeon was older and he's done thousands of pouches I'd imagine. I didn't want it initially as I had read it can cause incontinence and I asked my GI if I could avoid it... she said she wouldn't...
I did. Perhaps that's why I am ok. It does seem like some people just get pouchitis, probably people who had mucosectomy get it too. If not, wouldn't everyone get it?...
I was too but now I am okay. When can you get in to see the gi? I really hope you're able to get on something that's easy for you and works well. How is everything going?...
Mine may have been mucous, but if it was, I didn't think it meant much. What made me realize something was abnormal was the steak of blood on the tp that I saw repeatedly. If course at first I...