I’d probably participate, I mean why not. It might even help your migraines. I participated in a clinical trial for my ulcerative colitis before and although it didn’t help me (I had a placebo), it...
Anyone tried an SPG block before? My doc recommended me to a pain management doc and that’s the next step we are going to try. If you’ve tried it… How many times have you had it (per week/per month)...
Do you get Botox for the next injections slinkydog?...
That’s interesting - I’ve never thought about the weather changes and how they effect my headaches. This one is going on 30 days (as of tomorrow). The doc added Reglan and it helps a little but...
Thanks for responding. I really welcome anything at this point. I did actually change docs about a year ago and I really like the one I have. She’s been trying new things. The Emgality is the shot...
I’m on day 20 of headache/migraine and I’m Not sure what else to do. I have a headache specialist, am on Botox, Emgality (monthly injection), Topomax, gabapentin, and Unrevly and Nurtec for emergency...
I have no colon and experience abdominal pain as a result. I have had multiple obstructions in my small intestine and lately have had severe abdominal pain- the doc has done an MRI and found nothing...
I met with a nutritionist years ago- I was dealing with some malabsorption issues related to my ulcerative colitis. I feel like I know what I need to eat- it’s just a matter of following through. I’m...
Thanks. I printed out a calendar and have started yoga - only did it twice but my goal is to do it three times a week. Just stretching and breathing stuff but maybe it’ll help with my overall health?...
I have arthritis and was on Humira until a month ago when I was diagnosed with drug induced lupus. I was gardening today for about 3 hours and feeling fine and it wasn’t until after dinner when I...
I had UC and had a total colectomy back in 2017. Right after I stopped the predisone my symptoms of arthritis came up. They think I had arthritis for years but just wasn’t diagnosed. Anyway, I also...
I have so many medical issues that it’s really getting me down. I’m only 41 and have a 2 year old little girl…but it’s so hard to keep a positive attitude when it’s hard to get around and get through...
So sorry to hear about your migraine. It sounds difficult to deal with. I’ve been tracking my migraines for 3 years, intensity (1-10 range) and see a headache specialist and neurologist. The...
I’ve recently been diagnosed with DIL due to Humira for my arthritis. I’ve had to to stop that immediately. Luckily I’m relatively symptom free other than bloodwork. Just a few symptoms but my doctor...
So sorry that you’ve experienced all this. Have they done any tests to see what type of stones you have? Sometimes that can tell them if you need to increase more acidic drinks- ie- I have to try and...
I’ve had a headache for 10 days. One day it was so bad I called my doc and they suggested I go to the hospital because it was a 10/10 in terms of pain level. They gave me Benedryl and Reglyn which...
Update- diagnosed with brain aneurism in the front part of my brain. I had more tests done to confirm it’s 5.5 mm, which is relatively small in terms of brain aneurism sizes. It does need to be taken...
Got my shot early this morning and surprised how quick it kicked it. I’m in bed now with chills, layers of blankets and can’t even touch my body. I haven’t felt this bad in years. I got it on a...
Thanks. I know that if it were very risky they would act immediately. They did do the CT scan and it did confirm an aneurism. I am going to a neuro vascular doctor now. They prescribed me NURTEC in...
I went to a new headache doctor because the treatments I was doing were but helping. She suggested an MRI and it suggests a possible brain aneurysm, and white spots in the brain. I had a very brief...
Anyone have an low PTH (parathyroid hormone)? I haven’t talked to my doc but I have had a low level for a year now and been reading online that it could be a result of having an autoimmune disorder...
Thank you for your reply. I’ve never thought of pure oxygen. I guess the closest thing I could do is get outside and breathe deeply (I say with a smile)? I don’t even know if we have those in our...
I did call my doc. She said that Botox might take two or even three times for it to work. I’ve tried two of the three medications you’ve suggested- one of them I can’t take bc of another medication...
I’m so tired of these headaches. I’ve tried preventatives, Injections, everything. I just can’t shake them. Last month I had 13 headaches and that’s with my first Boston injection. Right now I’m...
Thanks. My headache did get better once I took Eletriptan this morning. It’s still lingering but better. I wonder how early I will tell if the Botox works in decreasing my overall number of migraines...
I had my first Botox treatment this morning and i have the onset of a headache and my head is sore in the back from the injection sites. I know it’s normal because the doc prepared me, but I’m...
I do get treatment for the psoriatic spondylitis- it helps but I’m on an immunosuppressant - makes me a little nervous about going out and interacting with people with the COVID stuff. I’m sore after...
Thanks. I took today off but had the baby all day. I ended up with a migraine which I get quite often- I see a specialist and have had them under control. Maybe stress induced this time, idk. My...
Thanks. I might journal. I just feel so down, and usually so tired at night I’m honestly not sure I’d follow through with it. I could try thought- couldn’t hurt I guess. I contacted a marriage...
Thanks everyone. I do have a counselor that I meet with every other week. I also have a psychiatrist that I have and am on medication. In December, I swapped to see if it will help with the anxiety....
I have nothing to complain about. I’m married to a good guy, I’m healthy (for the most part), and I have a new baby. We just bought a house, we’re financially stable and we both have good jobs. I’m...
Thanks. Yea I’m already trying the monthly injection - this would be on top of that- layering until the injection kicks in. It takes about 6 months for the injection to fully reach its full effect. I...
My doc recently prescribe gabapentin for my migraines. I’ve tried topomax, elitriptan and rizatriptan and none of them are making a dent in the number of headaches and migraines. I’m averaging 10-15...
I’m trying to stay positive but it’s getting to me I’m scared. I have a 1 year old. I’m on Humira which is a immunosuppressant and makes me more susceptible to illnesses. I’m scared I’ll get sick and...
Thanks Susie, that does make me feel better. I never really get sick in general. When I do, I get things like C-diff and stuff (ugh). Right now I have my first cold in probably two years. I try not...
Anyone else on a immunosuppressant like Humira nervous about the coronvirus outbreak scare? I’m in the US and they say that people with weakened immune systems are at a higher risk for contracting...
My doc said this could be a side effect, which is one of the reasons I went off it. I found that I had a really hard time thinking of the word that I wanted. It was pretty embarrassing at work, and...
Yea maybe I’ll mention it. I actually just requested to go off Topomax bc a) I don’t think it’s helping and b) it’s causing me issues with word association- I can’t think of the words I’m looking...
Ya I guess an MRI would be worth it. I’ve brought it up to my doc and she said usually she does that for people who have sharp migraine pain but wouldn’t be against it if I wanted one. I might call...
I’m at witts end. I’ve been getting migraines more and more lately and they’ve been getting increasingly worse. I have a specialist I see and I track my headaches with both frequency and severity. Im...
It’s been a while. Let me catch you guys up. Had my first baby this past Feb. the bay is happy and healthy but unfortunately I experienced some severe post pardum depression for a month or two...
I’m sorry you’re going through all this. Thinking about how life changing a baby can be, in addition to rethinking your career, and managing a healthy relationship while starting a family...it can be...
Hummm not sure why this posted. I meant to have it be a response to someone else’ post. Oh well!...
Ya I never counted but that’s bc I’d rather not know how many times I go when I do the prep. Once you start going bright yellow/green clear you’re all cleaned out! Hope the scope goes ok!...
Potatos, peanut butter, crackers and bland stuff will bulk it up. Have u tried continuing with benefiber consistently? Or metemucil? Are you taking any Imodium or lomotil? Either may be a long term...
I have a j pouch (about a year now) and was just diagnosed with the same type of hernia. I’m 7 months pregnant thought which is what we think contributed to it. Anyhow, I’m just taking it easy,...
The fact that you said this last bout hit you really hard with D, it makes me think it’s c diff again. It’s been 9 days since your original post- have you received any answers since then? Was the c...
My doc put in staples, and it healed well. I remember it was a good 5-6 months before I felt up to doing regular stuff like exercising. I think after having such bug surgeries, and basically...
Couldn’t hurt to make a doc appt. Before I made an appt with a headache specialist I went to my primary to rule out dehydration, had an eye exam, re-evaluated the way I sit at my desk at work, etc. i...
Same for me as many of the previous people have astated. I had tried two biologics, immunosuppressants, and a Drug trial and no change/improvement. I was prednisone resistant and every time stuff got...