Hi, So sorry to hear you are going through this. I think there is a strong chance this is a reaction to the pred -I get a bad reaction to that too! I may be wrong but taking pred and indomethacin is...
Hi, Welcome to Healing Well, sorry to hear you are suffering. Please try not to worry, everyone (including me lol) has at some point thought they have a brain tumour because of the incessant pain,...
Hi, Welcome to Healing Well. Sorry to hear about what you are going through. Hang in there it sounds like the Docs are on to it, however, can I ask is the Neurologist you are seeing a Headache...
Hi, Welcome to Healing Well. To try and reassure you with a brain tumour there are usually a lot of other symptoms that give you a diagnosis long before the head pain begins so I doubt very much that...
Hi, Sorry to hear about what you are going through. I would strongly suggest you find your self a Neurologist who is a Headache Specialist who will be best qualified to help you. As time goes by and...
Hi Southern, Sorry to hear you are going through this. If you have a Primary Headache such as Migraine I would expect your scans, bloodwork etc to come back as normal. Migraine can be very...
Hi, Welcome to Healing Well. Sorry to hear you are suffering. It sounds like you have got a Doc that understands a certain amount about Headache from the medications you have been given. Is this Doc...
Jax, It took a dose of 75mg three times a day to knock my HC out so keep trying, there's time yet. Hang in there they will get to the bottom of it but just not in the time frame you would like. If...
Jax, I am so sorry to hear what you have been going through. I am quite sure the damp situation in your flat has had an effect on your health, it will have made you vomit and the runs and will affect...
Hi Hellz, Welcome to Healing well. Sorry to hear you are having such a rough time. To go cold turkey with meds and rebounds has its good and bad points. You really need support from your Neuro with...
Hi Autumn, Welcome to Healing well. So sorry to hear about what you are going through and have been going through for so long!!! I am 58 and have had migraines since my teens and Hemicrania Continua...
Thanks guys for your support, sorry I have not updated you again before now. Today Peter is a little better and his suicidal thoughts do not seem to be there. On Tuesday morning he was started on...
Hi all, I am PeterK's wife. Sadly I have been too poorly myself to visit him as much as I would like, but have been in contact with him multiple times a day! To date they have stopped most of his...
Hi cutiepie, I don't think the perfect med exists for Migraine or any other headache for that matter. I am afraid it is trial and error to see what works for you the best. To get the best treatment...
Hi Mesa-raine, Welcome to Healing Well. Sorry to hear about what you are going through. Firstly, constant pain can make you anxious, which can make the pain worse, which makes you more anxious and...
Hi Tiger Shea, Welcome to Healing Well. Sorry to hear that you are suffering. I think you need to see a Neurologist, preferable one who is a Headache Specialist to find the right way forward for you....
Hi, I would be very concerned about the efficacy of this surgery, and have heard many stories of complications that have worsened the original condition. If nothing works for you talk to your Neuro...
Hi CI, Welcome to Healing Well. Sorry to hear you are suffering with these headaches. You are right when you say its not a good idea to look at you computer screen in the dark or the TV!!!! You are...
Hi Mercyme, I have to travel to see my Headache Specialist. I have a friend in the UK who travels 500 miles to see my consultant - he wouldn't have it any other way even though he is on benefits, the...
Hi NinnyMninny, Welcome to Healing Well. So to hear you are suffering with this. Not sure I could say this is typical Migraine but hey I am no Doc! You say this is lots of stabbing pain, is it quite...
Hi debsosta, Welcome to Healing Well. I think this is a similar drug or the same as Methysergide. I have taken Methysergide and it did help me, but you need a drug holiday every six months with this....
Hi Coconut bear, Welcome to Healing well. I use oxygen for Hemicrania Continua and Migraine. It is more helpful for HC than Migraine, but my migraines do respond to it!! The rule of thumb for oxygen...
Hi Bilsey1, Welcome to Healing Well. Sorry to hear that you have been suffering so much. You will get the best treatment and help from a Neurologist who is a Headache Specialist. Most general...
Hi old2young, Welcome to Healing Well. Sorry to hear about what you are going through. It sounds very much like Hemiplegic Migraines to me, but hey I am no Doc!!! Each of us experiences whatever type...
Hi Constant Headache, Welcome to Healing Well. I have a Stim made by Medtronic implanted last December. I had this procedure done here in the UK. It seems each Neurosurgeon has their own particular...
Hi crawlingdubber, So sorry I have missed this up to now!!! Has your Neuro tried Indomethacin???? Certainly worth talking to him about it!!! Can you identify with any of the following?????...
Hi Babygabe, I would strongly urge you to see a Neurolosgist who is a Headache Specialist it is important that you get the correct diagnosis. Let me know how you get on?? take care Ann...
Hi, Welcome to Healing Well. So sorry to hear you are suffering. Can you describe this excrutiating pain, is it sharp, stabbing, burning, throbbing or something else??? Do you get any other symptoms...
Hi Suzanne, I had ONS implanted at the beginning of December last year. I have Hemicrania Continua and Chronic Migraine. My Headache Specialist has just registered me as an 80% improvement!!!! I wish...
Hi, I started getting migraines in my teens, spasmodically at first and then as I got older they seemed to come more frequently, especially every month. Then at age 35 I had my son. A couple of weeks...
Hi Luke, It certainly sounds like there is migraine biology there. I really do think it is very important that you see a Neurologist who is a Headache Specialist as soon as you possibly can. You...
Hi Topsy turvy, Have you ever ridden out an attack? Just wondering how long these attacks last without treatment? I think the best thing you can do is to get yourself to a Neurologist who is a...
Hi Mercyme, I am pleased that you have tried the nerve blocks and hope you do well with them. I have had many of them over the years and have found them helpful in varying degrees. Each of us has a...
Hi Luke, Welcome to Healing Well. I am so sorry that you have been suffering so much and am very angry that any self-respecting Neuro would wash their hands of you grrrrr!!!! I would strongly urge...
Hi Westclox47, Welcome to Healing Well. I am sorry to hear about your recent experiences. I would strongly urge you to be honest with your Doctor about what you smoked and hope that you would not...
Hi Topsy turvy, Welcome to Healing Well. Sorry to hear about this awful pain you have been experiencing. Just a few questions for you - Does this pain make you feel restless? Do you get any other...
Hi Rish, So sorry to hear about what has been happening to you. Bless you for being so respectful to your parents acknowledging that you have to live by their rules whilst you are in their house....
Hi Shannon, Sorry to hear about what you have been going through. The eye droop is an autonomic symtom that can go with a few different types of headache. A general Neuro is not usually experienced...
Hi awsometay96, Sorry to hear you are suffering with this. Do you get a runny nose, watery eye, blocked nose on the affected side, droopy eye?? Can you describe the pain? Is it burning?? stabbing??...
Hi Aprildawn, It sounds like a classic Clusterheadache to me!!! - NOT migraine!!! But, I am no Doc and would strongly urge you to see a Neurologist who is a Headache Specialist!!! The Imitrex...
Hi Aprildawn, Sorry to hear you are having a tough time. I work on a helpline here in the UK for Cluster Headache - we cover many other headaches as well. I am no Doc so cannot give a diagnosis but...
tmjpain, - I sent you an email a little while ago with some links in it to find a Neurosurgeon who might do the ONS procedure for you as that was the best I could come up with. Unfortunately my link...
Hi Jack, I have Hemicrania Continua too! I developed this after I had my son over 22 years ago. I was not diagnosed until 2007 being told it was migraine or sinusitis!!!! I have tried many meds, and...
Hi Duckbitesman, Sorry to hear you are suffering with this. You need to see a Neurologist who is a Headache Specialist and the HS will know so much more about headaches of all kinds as well as...
TMJPain, please check your emails....
Hi Jewishmother, Sorry to hear about your dilemma. I think you should have both conditions looked into as they both need stabalising, because you have a rotten choice which ever way you go, and they...
Hi Richard, Sorry to hear you are having a rough time. We cannot diagnose here we can only give anecdotal advice. However, it sounds like Migraine to me but I am not a Doctor and this needs a...
Hi Insanepain, I am sorry to hear that you are suffering so much with this. If you have not already done so, you need to see a Neurologist who is a Headache Specialist rather than a pain Management...
Hi, I have ONS but I live in the UK, I have a contact in Canada who I shall email and get back to you as soon as I can. In the mean time is this for your TMJ? I only ask as ONS will not work for...
Hi, One of the side effects is sleep disturbance, I am unsure what that means exactly, but when I was on Topomax a vaguely remember dreaming a lot and waking up. The biggest side effect for me...