Snoopy thanks for the reply. She has been referred to a rheumatologist and should be seeing them next Friday. She should also be able to see a very good neurologist that works at my wife's medical...
I forgot to mention that she recently had the ANA blood test and that was positive at 1:80, which I think may indicated something else going on....
I usually spend most of my time on the lyme disease forum about myself, but today I have concern about my 26yr old daughter. She's been trying to determine what's going on with her lately and today...
Thanks for the input. I agree the 30 days doesn't seem to make much sense, which is why I intend to hang in for the long haul. Everything else I've read says bart is hard to get rid of, and in my...
I stopped abx a few months ago and started taking some (not all) of Bunher's bart protocol. So far red root, houyttunia, JK, and sida acuta, along with some detox supplements. The daily dosing for...
I had low T and ended up on TRT before figuring out I had Lyme and co. After a period of time (16 months or so) on the testosterone gel we decided to start weaning off of it, and by then I had been...
This is a nice article that provides some history of the problem we face and the reasoning behind why the establishment (CDC, NIH, insurance companies, etc.) works hard to keep treatment at the...
I also think bart is the likely culprit. Burning feet have been a problem for me, and like you mine gets worse after walking or being on my feet for long periods of time. It had been a frequent, but...
I have been using renew life brand 30 billion that does not require refrigeration. It is relatively available in my local Whole Foods stores. I also tried the pure brand and both have kept my gut in...
Thanks. I have heard it is a powerful herb, so I will have to assume this cramping is a herx....
I'm not really following an herbal protocol yet, but it is something I'm hoping to switch to. I picked up few Buhner herbs, but Houttuynia is the only herb I'm doing at the moment. I've added it to...
I added low-dose houttuynia to my bart regimen about 5 days ago 1 drop 2x/day. I noticed a slight increase in my foot pain and muscle stiffness, but not sure if it's from the houttuynia or just...
We recently added Azithromycin 500mg to my bart regimen and at about 1 week in I herx'd big time, or at least I assume it was a herx. Aside from the intensified leg and feet symptoms going off, I had...
If it makes you feel any better I also went through an anxious period of time where I went from one scary disease to another. I'd do my research on my current symptoms, focus on the worst-case...
I had an experience from homeopathy that is hard to discount. I developed a cough a few years ago after eating and my wife (the nurse) said it was probably reflux. I thought she was insane because...
A-bart is very strong. I would start on a very low dose, maybe 1 drop a day for a week or so to see how you react and then increase a drop at a time. I started with 5 drops per my LLMD 2x/day and...
I'm 3 1/2 months in to bart treatment with the first 2 months on bactrim and doxy. Progress was slow and my bart symptoms just waxed and waned. Then we swapped doxy for rifampin and almost...
Hopefully you will be able to stay on the rifampin for the duration. I was on it for 6 weeks and really felt like it was making improvements in my remaining bart symptoms, but one of my liver enzymes...
Yes I had slightly elevated blood work for the liver, but it was only the ALT. My LLMD confirmed it was mildly elevated, but I don't think he likes taking any chances so he had me stop. The Bactrim I...
My LLMD told me to stop the Rifampin today due to the mild liver inflammation that has occurred after only 6 weeks on it. He's switched me to Azithromycin 500mg 1x/day, which I'll take with the...
I have been bitten by ticks here and there since a teenager, but many many times since 2005. In 2013/14 I started having some weird symptoms. After a few doctor visits that revealed nothing and a few...
I have had the vibrations as well, usually in the legs, and mostly before starting treatment. Mine seemed to only happen early in the morning when waking up and would go away after rising. Lately it...
This is encouraging to hear. My LLMD is not in Fridays so I will carry on until he tells me differently. Yes the lab my pcp uses seems to have a higher upper limit than others I saw when researching...
The article was certainly written by those with a comprehensive view of the true state of all things in the lyme world. It pulls no punches and even cites the conflicts of interests that exist on the...
Thanks that's good info. I'm going to call today and see if my doc received them. I'm bit concerned that the results contained a note that I should check with some doctor I've never heard of to see...
It was a complete liver function panel test, so there were several other things tested but only ALT was elevated. The report highlighted it and the note said mild inflammation has developed. I get...
I can give you the name of my LLMD in western mass who is very good. Email me if that would help....
Oh yes and the other thing I have noticed the last week is body-wide itching. I've read that is a symptom of some elevated liver things, but all is normal but the ALT. I'd gone all winter for the 1st...
I'm wondering how to interpret my lab test and if anyone has some understanding of it. I'm 5 weeks on rifampin now for bart and just had my monthly liver panel labs done. All looked within range...
I used A-Bart for a couple months and felt like I was on a continuous herx as well. All the bart symptoms just ramped up a bit adding only 1 drop would be noticeable. I never managed to get beyond 8...
I'm hoping for you this turns out to be nothing and you can carry on your treatments....
Yes rifampin should be taken on an empty stomach for best absorption, so that works out to 1 hour before food or 2-3 hours afterwards. I can attest to the orange pee. lol Re your question about...
Oh goody something else this bacteria from h*%l can afflict us with. Please say it isn't so. I've most certainly got bart and have no heart issues that I know of, maybe because my heart got so much...
Leg weakness was one of the initial symptoms I experienced as well. Mine was intermittent and could last for a few hours or most of the day, only to be gone again for days or weeks. My legs felt like...
I've had tinnitus for many years but it has gotten worse over the last few years, during which time I'm sure I've been infected. I was hoping lyme and co. was the reason it got worse and it would get...
Same here. With my wife being a nurse I hear all the crap about doctors. It's not all of them, but the medical system in general. Too many doctors are under too much pressure to get the patient...
Well we do hear that Lyme is the great imitator! I'm glad you chose to follow your instincts and not just accept your diagnosis. Hopefully you're on the road to recovery now. Best of luck and keep...
Hard to say. Sounds like you have not done any specific treatment for bart, so perhaps some of the things you were taking in the past was keeping those symptoms suppressed. The 3 year mark you...
I picked up some caprylic acid capsules and took about 1/3 dose on day 1 and didn't seem to have any reaction other than my tummy still feeling crappy. Day two I took 2/3 dose and later in the day I...
I went down the road of wondering about ms as well, but my own research brought me to the same conclusion as k07. My symptoms were bilateral and consistently waxed and waned in what seemed like...
Just what I needed. Thanks!...
Babesia causes petechiae - small red spots caused by bleeding into the skin. There are also possibly similar looking cherry angiomas that are harmless formations of tiny blood vessels that are normal...
No I haven't. Is it good for yeast?...
I had muscle testing done by ND when trying to figure out what was causing my current symptoms. His testing indicated a vector borne intracellular parasitic infection causing inflammation in many...
My hands fall asleep a lot more easily at night than they used to, but in my case it's a positional thing like curling my hands under my pillow and head. This rarely happened before and from what...
One thing I am confused about is will I be able to stay on antibiotics and get things under control, assuming what's going on with my stomach now is indeed a yeast issue? The small area of thrush...
Thanks everyone for all the information. Lots of good things here to think about and try, but it seems cleaning up my diet may be the most important thing for me to do. I wouldn't classify my diet...
I recently discovered some oral thrush going on, which I'm sure 5 months of antibiotics has played a role in. I'm thinking yeast may also be contributing to the indigestion and heartburn that has...
The same thing for as well, the first symptoms to appear are the last to go. For me it's been foot pain and lower leg muscle issues. Most of the other weird symptoms that came along after have faded...
My LLMD recommended Pure Encapsulations brand liposomal glutathione to my detox regimen. I looked around and ended up ordering the Core Med Science brand for cost reasons. I just received it today,...