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kloz31

HealingWell Forum
>
Member Profile
Display Name
kloz31
Profile Created
1/22/2018 9:28 AM
Last Seen
3/9/2020 6:20 AM
Total Posts
123

Last 50 Posts

How long did you have symptoms before diagnosed

Hello lovely forum people. I usually reside in the UC forum. Will keep it short! Over the past year, I’ve had two spells of unusual symptoms, tingling, numbness, dizziness, muscle aches, sporadic...

3/6/2020 4:48 AM

Lupus
Advice about next medication to switch

I seem to be relatively safe on salofalk granules with little to no symptoms. All be it I’m only two years into my UC I do use salofalk suppositories every other night as well as my granules. They...

2/17/2020 11:22 AM

Ulcerative Colitis
First timer not diagnosed

Hello everyone. I’ve hopped boards from my usual place which is UC. I’ve coming looking for some advice I think, or opinions. What ever you have to offer :) I’ve been experiencing some odd symptoms...

10/10/2019 5:52 AM

Multiple Sclerosis
Elevated FCP

Ipoop! John, thank you for your reply. Yes feeling a bit strange as I would’ve assumed with a high calprotectin level that my symptoms would be worse all round. In the past they have correlated well...

9/23/2019 5:47 AM

Ulcerative Colitis
Elevated FCP

Hi guys Longtime no speak I hope everyone’s well today. Back in August whilst on holiday I had an episode of blood in my stool along with urgency. This didn’t continue the following day. But I had...

9/23/2019 3:22 AM

Ulcerative Colitis
How reliable is FCP test in under 4’s?

Yes this what I think/thought to momtoboys.. her calprotectin levels are raised though. But not sure what else can cause this. I’ve only used it with my IBD. So of course a little fear has set in....

6/26/2019 12:15 PM

Ulcerative Colitis
How reliable is FCP test in under 4’s?

Yeah sorry guys. That wasn’t well written. Apparently when you are aged under 4, the top level is raised slightly due to it being naturally higher in infants. Interestingly after the age of 4 the...

6/26/2019 9:10 AM

Ulcerative Colitis
How reliable is FCP test in under 4’s?

So to cut a long story short. My littlest one (14 months old) seemed to have a bit of re occurring mucus in her poop last month so i requested a calprotectin test. She is very well otherwise, eating,...

6/26/2019 6:25 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

So I thought I’d update you a little. Although nothing very exciting to say. 😂 Had more blood tests (surprised I have any left at this rate) All is fine, apart from my calcium is slightly low which...

3/4/2019 12:53 PM

Ulcerative Colitis
Question - Diagnosing Children with IBD

Mucus is suggestive of allergies or slight food intolerances. I have a friend who is severely gluten intolerant, and whilst chatting poop one day he told me he has mucus with most BM’s I feel for...

2/21/2019 9:41 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

I’ve had a trillion blood tests this week 😂😱 All is normal. They’ve checked everything from full count to crp and esr, cholesterol, still waiting in blood sugars. Bone health. Calcium sodium etc...

2/20/2019 2:29 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

Thanks Quincy for being reassuring 🙈😂 I’m know I’m clutching at straws here. But I’m going to hold on to those for as long as possible 😂😂 x...

2/15/2019 10:06 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

No i haven’t mentioned it yet. Yesterday I didn’t have it at all. I’m convinced it’s because of carrying the baby. Sleeping funny and anxiety. I’m going for the blood tests Tuesday so I will mention...

2/14/2019 10:58 PM

Ulcerative Colitis
Scope today. Mild proctitis involvement

Really pleased you got a good results! :-)...

2/14/2019 10:17 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

Thank you John! Very frustrating. But such is life! Hope you’re well! I shall update when I have some news .... just to continue the story 🤪😃...

2/14/2019 9:16 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

So just an update... Saw a podiatrist Tuesday. She said my feet look “good” I have regular pulses and that aren’t abnormal sounding. Which is good. Had bloods. They need to be done again as they...

2/14/2019 4:56 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

Well today I went to have bloods done and he’s order a very full blood panel. Even the nurse who I love said wow these are fancy 😂 he added to the form testing for autoimmune vascular disease. Fun...

2/11/2019 12:16 PM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

It goes back to normal when it’s regular temperature. But can also look purple when normal temp as well. Hard to tell because my feet are always a little chilly. Goes normal when I rub it. It does...

2/10/2019 11:42 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

Thanks for your reply beatUC Not really sure what’s going on really. Had a bout of what I thought was frostbite on a toe. Which then sort of left. But now that one toe randomly turns dark red or...

2/10/2019 10:43 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

Blimey you have been “busy” haven’t you. 😫 I don’t think it should be classed as whiney when nausea hits. That sucks! Fingers crossed H-pylori comes back negative 🤞🏻🤞🏻 That way you will at least...

2/9/2019 1:00 PM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

Well he’s sent off for a referral so I’ll expect an appointment in the next month. I usually avoid seeing this particular doctor which is a shame, because the practice I use is really lovely...

2/8/2019 11:32 PM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

Thank you Quincy! I do actually have a pulse in my foot. I’ve checked several time today, And I really dislike the gp I saw today. But I will still take the referral and go from there. No harm in...

2/8/2019 12:44 PM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

Will do! Thank you...

2/8/2019 8:32 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

Well that sucks. Hopefully I won’t be adding a new disease to my list 🙄🤞🏻🤞🏻...

2/8/2019 6:54 AM

Ulcerative Colitis
Does anyone here suffer with vascular issues?

So after a two week stint with a random swollen toe that has now gone down. I headed off to the gp today as I noticed it keeps going very dark purple. Anyway. He checked my foot for a pulse... and...

2/8/2019 2:41 AM

Ulcerative Colitis
Stool Test

This may or may not be gross. But I have wayyyy too many kids plastic dinner plates. They’re cheap and sit at the bottom of the bowl perfectly. I just use this and hasn’t been a problem :) I edited...

2/4/2019 2:14 PM

Ulcerative Colitis
Dirty Air / Gut Health

I understand the article, I’m sure so many things in this day and age are effecting us internally, externally and emotionally. I just wish they’d follow up with these things. Although discoveries are...

1/30/2019 10:12 AM

Ulcerative Colitis
Biopsy results came back as Crohn's

I don’t have any experiences to offer you but just wanted to empathise with how bloody frustrated you must be. If your current surgery is going well maybe just do asthe GI suggests and sit back and...

1/22/2019 10:41 AM

Ulcerative Colitis
IS this an interal-hem? Blood in boxers

Could it be that you’re so used to getting the regular 2 a day job done nice and quick that you simply just get up before it’s all out? If it leaks out that quick it could just be something left over...

1/21/2019 7:57 AM

Ulcerative Colitis
I just want to wish you all a merry Christmas

Not UC related as such. I just wanted to pop by and wish you all a merry Christmas as a lot of you have really helped ease my anxiety especially when I first got diagnosed a year ago. This site for...

12/24/2018 10:32 AM

Ulcerative Colitis
Sporadic Remission/Allergy's

Obviously be vigilant and take notice of changes, it is no joke as disease. And it is for life. But try not to waste your some what healthy days worrying about the what ifs. He’s got it now, no...

12/18/2018 3:30 AM

Ulcerative Colitis
Sporadic Remission/Allergy's

I just wanted to add that I hope your sons disease stays contained and with few problems. But also to say I started off with UP a year ago, but later discovered I have actually got pancolitis. My...

12/17/2018 3:20 PM

Ulcerative Colitis
Flat stool

Ok thanks guys. My calprotectin was over 600 when I first got diagnosed. Then it when down and down since. But I know I have/had active inflammation in at least the distal proportion of my colon in...

12/6/2018 12:16 PM

Ulcerative Colitis
Flat stool

So my calprotectin is really normal at 17 :-/ And I guess it is in line with symptoms to a degree.. They won’t give me enemas until mri results are back as they seemingly think I’m doing well on...

12/6/2018 9:17 AM

Ulcerative Colitis
How do you cope with the mental effects of uc?

It is really quite difficult at times not to worry. I too am a born worry wart and like to chatasrophise most health related things. It’s incredibly draining when you have a bad phase: My nurse likes...

12/3/2018 4:25 AM

Ulcerative Colitis
Flat stool

I’ve never heard such a saying! I like it.. I may try and use it over here in the uk and confuse people much like myself. It’s going to be a week or so before I can get any extra rectal meds such as...

12/2/2018 11:45 AM

Ulcerative Colitis
Flat stool

Ha ha, not sure what cowbell is so I’ll have to try extra rectal meds for now anyway 😂...

12/2/2018 12:00 AM

Ulcerative Colitis
Flat stool

I think this is a problem I have. I’ve been looking at the consistency to much. And unless I have a perfect shaped and formed stool I assume something has gone wrong. Although I do think this time...

12/1/2018 1:30 PM

Ulcerative Colitis
Flat stool

No and annoyingly I saw her about 3-4 weeks ago. I’m sure it would take a while to try and see her again but I will ask if I need to. I suspect it could be a hemmie also as I’ve since passed normal...

12/1/2018 11:07 AM

Ulcerative Colitis
Flat stool

Been on supps since March.. I’ve recently had to change brand due to some being discontinued. Which was a shame as I was getting along great with them. Been on oral and supps combined since July I...

11/30/2018 1:21 PM

Ulcerative Colitis
Flat stool

I need enemas by the sounds of them! Thanks for all the answers as usual. I’m hoping this doesn’t turn into anything I can’t get a hold of 🤞🏻🤞🏻...

11/30/2018 9:39 AM

Ulcerative Colitis
Flat stool

The nurse has sent me a sample pot to do before she will give me anything else or up my current dosage. Hopefully that will get done quickly. I will request enemas. Can I do this alongside...

11/30/2018 6:36 AM

Ulcerative Colitis
Flat stool

Just going once or twice a day @quincy. Thank you Sam for your reply!...

11/29/2018 11:40 PM

Ulcerative Colitis
Flat stool

Me again ... hoping for some insight whilst I await my nurses reply .. I have noticed over this past week or so that I will pass a normal poop, but alongside it will be some small flat pieces also....

11/29/2018 1:47 PM

Ulcerative Colitis
Can you help me read biopsy results please

They didn’t overly mention it in the report. But the guy that performed the scope said he saw “colitis” at the entrance of the TI. But biopsies confirmed it was nothing to worry about. My GI just re...

11/1/2018 9:39 AM

Ulcerative Colitis
Can you help me read biopsy results please

So just thought I’d update a little. Nothing much to report. But still like to fill you guys in :) as your always so good at replying to me. Had my follow up with my GI today. I asked the suggested...

10/31/2018 1:37 PM

Ulcerative Colitis
What were your early signs before a flare?

I did actually have a FCP two weeks ago as I’ve been on my oral medication a couple of months now and wanted to see where I was at. It came back very normal at <14 I also had bloods a month ago where...

10/18/2018 9:43 AM

Ulcerative Colitis
What were your early signs before a flare?

Thank you for your replies. I don’t have increased urgency or gas. I’ll keep a close eye on things tho: thankfully I have an appointment with my GI in two weeks anyway. I just feel susupicious of...

10/18/2018 8:38 AM

Ulcerative Colitis
What were your early signs before a flare?

Hello I was wondering if some of you wouldn’t mind sharing what your early signs were before a flare up? I’ve recently changed the brand of suppositories I use, as asacol appears to be discontinued....

10/18/2018 1:17 AM

Ulcerative Colitis
How do you know if proctitis has spread?

I’m not sure if you really can tell or not. Maybe for the veteran members they have more of a clue as regards to their bodies. But I initially got diagnosed with proctitis, then 6 months later I had...

10/3/2018 6:36 AM

Ulcerative Colitis
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