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ediekristen

HealingWell Forum
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Member Profile
Display Name
ediekristen
Profile Created
4/21/2007 11:21 AM
Last Seen
3/11/2014 7:08 AM
Total Posts
1366

Last 15 Posts

New Member

Hi Amanda, I am turning 29 in July so I am about your age as well, and have had a diagnosis of ulcerative colitis since I was 14 with symptoms of lupus since then that I always brushed off as...

3/7/2014 1:45 PM

Lupus
Diagnosis update and some plaquenil questions.

What do they do the field of view test for? What is it an indicator of?...

3/7/2014 1:34 PM

Lupus
Remission Really? PLEASE HELP?

Hello! I think you read that in mine! :) Unfortunately I guess I am flaring now and have been for several months but I had been feeling okay and not having any symptoms that raised concern for a...

3/7/2014 1:17 PM

Lupus
Back Again- ANA still positive

I went to the rheumatologist yesterday.. Apparently, he had it noted in my chart that it was SLE all along - he originally wanted to treat me with Plaquenil and discuss with my GI on whether or not I...

3/7/2014 9:55 AM

Lupus
Back Again- ANA still positive

Thanks! :) My doc called me finally and agreed that while she supposes the antibodies could still be elevated even now if it had been drug induced, the fact that I had dsDNA antibodies before is...

3/5/2014 1:45 PM

Lupus
Back Again- ANA still positive

Thanks for the reply :) I hope so too! My primary doctor (an internist) is the one who ran all these labs... First time seeing her but I love her, she's great and VERY thorough - she even wanted to...

3/5/2014 8:58 AM

Lupus
Lupus from Remicade Question

Hi indigosunrise.. I actually was diagnosed with DILE back in 2011 from Remicade when I was having a severe flare of lupus-like symptoms, a positive ANA with homogeneous pattern and a very high...

3/5/2014 7:34 AM

Crohn's Disease
Back Again- ANA still positive

Hey everyone! So back in like 2011, I had posted here as my doctors believed I had Drug Induced Lupus from being on Remicade for a few years. I had several bouts of severe lupus symptoms (I had...

3/5/2014 6:27 AM

Lupus
I wonder what would happen if we all got together for dinner....

SouthernGirl6- I agree.. I'd join! It's always nice to put a face to a name...

9/20/2013 7:54 AM

Ulcerative Colitis
Remicade - What to expect??

I haven't tried Humira, but Remicade worked great for me for about three years.. It was the only thing that helped me finally get in remission and even though I've been off it for over a year now, I...

9/20/2013 6:42 AM

Ulcerative Colitis
How do you tell a partner you have UC?

I have been lucky that I haven't been in a serious flare in the past four years of dating my now husband. I started taking Remicade shortly before we got together and it kept me healthy. But of...

9/20/2013 6:29 AM

Ulcerative Colitis
I wonder what would happen if we all got together for dinner....

I'm with somedude- I usually just eat what I want or what I have to and pay for it later, lol. And if I'm going out to dinner with friends, I load up on immodium or pepto so that I won't have to...

9/20/2013 6:17 AM

Ulcerative Colitis
New insurance makes me pay 30% of Tier III drugs

We just got new insurance as well and while it's better than no insurance, it still sucks. I have to pay 20% of everything (doctor visits, labwork, outpatient procedures, medications) which is...

9/17/2013 9:02 AM

Ulcerative Colitis
Ulcerative Colitis Help (Again)

If you're passing a lot of blood and undigested foods, and you're in a lot of pain, I don't think you should only be on mesalamine enemas. In my past experience, they always treated me with steriods...

9/17/2013 8:57 AM

Ulcerative Colitis
Vent

The bleeding can definitely be scary- especially if it's something that you didn't experience very often before- but it is very common for UC patients to have after a colonoscopy. Our intestines are...

9/16/2013 10:54 AM

Ulcerative Colitis



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