Are you still in the hospital? Are you on a full diet? Could be an Ileus...I think many IBDers have experienced at least one after a surgery. It takes time for your intestine to wake up. Clear...
Christine, sorry you are still dealing with this issue...BUT at least they agree that their is one!! Hopefully they'll have a better solution soon....
I use a Sure Seal (www.alpglobal.com) over my wafer and I swim all summer and shower daily. Sure Seals are waterproof and breathable and hold up amazingly well to moisture. My normal change schedule...
I am a huge filter fan...but I do cover mine with a piece of Sure Seal (it's waterproof AND breathable) so I don't have leakage from the filter. I don't have problems with the filter doing it's job!!...
Christine~are you running fevers? How are you treating the boil? Do warm compresses do anything to help? If you find yourself running a fever, call your doctor. Since you still have your anus it...
cover your filter with a piece of Sure Seal! I always cover mine (I have an ileo) and can shower without the filter failing...Sure Seals are waterproof and breathable so the gas can escape and water...
Do you have a loop ileo? Think garden hose cut in half and held together...you'll have a top hole and bottom hole...unfortunately it can fill up and then empty which can cause issues with your wafer....
sorry to hear you are going through this again. I don't really have any answers to help:-( but thinking out loud: Have you met with a WOC nurse? Maybe they can give suggestions/hints on how to manage...
Sorry to hear you are having these problems! Here's my 2 cents...but I have a ileostomy so we are comparing apples and oranges. With a colostomy you shouldn't have to empty as much as an ileostomate....
I have to agree with cupcakespinkgirl...I think the food consumed during the day affects your stoma's performance (during day and at night) as well as the importance of exercise to help sleep. It's...
There are a lot of arrows pointing to the problem...they aren't listening, either :shakehead: I know you like to stay relatively close to home but have you thought about one of the bigger teaching...
It seems like I am the only one who they work for! I do cover the filter opening with a piece of Sure Seal so that it doesn't leak (sure seals are breathable and waterproof). I tend to wear my...
Mine opened at about 5 months out. Had to have it surgically cleaned and then used a wound vac and eventually wet/dry packing. I had a VERY diseased rectum with fistulas so we expected issues...just...
I'm a Crohnie...and CarenZ is spot on! I didn't not read everything on page 2, so hopefully I'm not repeating anything. I've had my ileo for about 16 years and the last 8 it's been permanent (no...
Sorry to hear that! I'm a CD patient who did have small bowel involvement BUT the majority of my issues had been rectal...so long story short I did have temp ileo for about 8 years and stayed on...