I didn't have them until I had the surgery to remove adhesions, now I have them several times a year. I don't know if it's coincidence, or if it has something to do with the surgery or maybe the...
I found some some people saying they use their teeth. Needless to say I'm skipping that advice. I've kind of managed to figure out a way to pinch it between my legs to keep it open to clean....
2 piece...
I broke my right wrist Monday and I'm having a really hard time emptying my bag! I can use all my fingers but can't move my arm down far enough to be much help. Any suggestions?...
One other thought what do you use for baths or showers? That might be loosening the seal also...
Are you using anything at all other than the paste? I honestly don't clean the area around it with anything, I just wipe off any poo or blood. The only time I use any water is if I have an irritated...
I sleep on my stomach. I have ever since the wound healed. So probably abouy 2 months after surgery. I just seem to wake up, I guess I notice it and roll over, although I usually get up to pee...
Please don't view it as giving up. View surgery as the win it is. Taking control back from a horrible disease no one should have to deal with, much less a young person. I was 21 when I got sick and...
I have seen a few other people post the same thing. If a pool said a person with an artificial leg or someone in a wheelchair couldn't swim it would be all over the news. People don't understand how...
She passed away. I'm not sure how long it has been. It was very sad....
I use a 2 piece and change once a week. I change the whole thing I hate to change just bags! I find the more often I change the worse my skin gets....
You have a lot of options left. It doesn't sound like msny drugs have been tried. That being said, when my son was 2 or so he had a period of bloody diapers, I panicked of course and decided he had...
It never hurts for anyone to ask questions about it or even meet with a surgeon. At least then if it comes to an emergency situation you have a relationship with a surgeon and an idea of what will...
I thought the same thing. Personally I wouldn't wear a bikini, I wouldn't want people to run in horror thinking someone dressed up a beached whale! But I think if anyone feels comfortable then that's...
It's so normal to be freaked out! A few days before surgery I went into a total meltdown because I was afraid that I would never be able to do a cart wheel, or that if my husband ever cheated on me...
Now that I've had surgery I wonder all the time why people keep suffering and trying all the drugs and diets and letting UC control their lives. However I understand that it's scary and something a...
I would think that they will be ok for a short time. Find a cool place in the cabin. Under the bed on the dloor would be good. As for the cold, our brilliant mailman left a box of my wafers in the...
If you haven't eaten blue food coloring yet that's interesting!...
I asked when I had UC and was on meds and it was anemia that kept me from being able to. Now after aurgery I'm UC med free and no longer anemic. I still take meds for something else they aren't...
Even if someone noticed they wouldn't think it was poop, they would just think you are a messy eater:) Today I dropped a piece of chocolate on my shortsand when I saw the spot, right where my bag is,...
After I changed my bag I noticed that the filter looked a little weird, but I cover it with a sure seal anyway so no big deal. I thought to myself "if it leaks I will just change the bag. It will be...
1. That is normal depending on what thatou ate. Try not to be concerned about what it looks like coming out. As long as the ratio of going in matches coming out you are ok. If you start to have pain...
I'm not sure if you are a male or female. I just wear 2 pair of panties to flatten it,and I tape the top of the bag to my stomach. That keeps it from flopping over....
I know you have problems with the being dependent on bags, and it does suck. But weren't you dependent on expensive medicines that could run out before surgery? I know I was. I could probably rig...
I put on weight too, mainly because I could eat nachos, cake and ice cream again. Oh, and bacon, marvelous bacon! Seriously though, the only thing to do is work out and eat less. At first I was going...
Yay glad to hear all is going well! Ask for some phenogren (sp?) or zophran to help with the yucky tummy feeling! Especially once you go to oral pain meds....
You aren't the only person unhappy. But you were already depressed before hand and the surgery has made it worse. You have admitted that yourself. I think that's made acceptance much harder for you...
That's been 3 months so it shouldn't still be hurting, but I can see it might be annoying. I have run the treadmill and outside and been fine. Might want to ask the Dr just in case....
Surgery wasn't my only option either, I hadn't tried many things at all. I was 21 when I got sick and 29 when I had surgery. All those years I should have been having fun and doing lots of things I...
In a row and my bag hasn't shown up at all. I think the key is having it empty. This past trip something showed up in my hair on the way out and on the way home there was a spot on my wrist. But my...
The great thing about poetry and sharing stories on writing forums is that it doesn't have to be good, lol. I have a site and am not any good at it, lol....
Be ready to second guess yourself 500 times between now and then. A lot of times your colon seems to know it's days are up and behaves! As for what to take be sure to take some gas-x. You can have...
This sounds corny, but I write, poems, journals just basically anything, when I get depressed or upset about something. Maybe you should join a writing site and add some short stories or poems or...
The butt thing freaked me out most too! I just couldn't wrap my head around the idea of taking out a hole, Lol. Anyway, it will hurt for a while but more than that it itched. That was the worst part....
I only drink water. I've never drank the other stuff. If I start to feel a bit dehydrated I eat something salty. One thing about your output that no one told me. It changes colors a lot! At first it...
Is your skin red all where the itching is?...
For the heaviness, if the incision has healed, tape the top of the bag to your stomach. I also wear 2 pair of underwear, much cheaper than the special underwear. I think everyone gets mental in the...
First, calm down and get some wine. :) Seriously though you won't feel like making meals at first, so stock up on sandwich stuff and frozen things. You will be able to eat more than you think when...
It's been fun so far. I go in, get the kids, we jump and run for a little bit, then we do a small sport. Like the other day we did horseshoes. Which, with kids that little, consists of keeping them...
Glad you are home! Blockages and adhesions are the devil! When I had the adhesions two years ago, it took months for me to feel "right" when I ate. I was off all foods or liquids for 4 days and all...
I get 7 days of wear time. Here is what I do. 1. Clean skin with water only. 2. I use the wafers that roll, not cut, so I don't measure. But when I did use the kind that you cut in cut the hole a...
Thanks guys! I'm really excited I like working with kids and the exercise will be good too. My first training day is Monday, I will let you know how it goes....
I got a job! I am so excited. It's not very much and it doesn't pay much at all. But it's still a job! I have been a stay at home mom (other than subbing and about 3 months of one day a week at a...
After being sick for 8 years, the thing that finally made me decide to have surgery was my son. I realized I was losing out on his life. I was at the beach with my family, standing at a counter...
Are you afraid you are going to hurt your stoma by sleeping on your stomach? You won't. I couldn't sleep on my stomach for the first 3 months or so after my original surgery and 2 months after the...
I can comment on the seat belt sign, they will let you go in case of an emergency. However, if there is a lot of turbulence and the plane is bouncing up and down, or the plane is landing or taking...
My great aunt thinks the solution for everything is vinegar. Either drinking it, or bathing in it, or soaking your socks in it and wearing them to bed. She's 87 and in pretty good health so maybe it...
I don't have problems with it anymore either. But it did go through fast, Lol....
I don't know if being stable it or in a flare makes a difference. I would think being in a flare would make it harder, since that taxes your body more. And the worse shape I was in the more erratic...
I had both surgeries at once, but I don't have pain anymore from the removal. I think it lasted about six months. That was almost 7 years ago. 2 years ago I had adhesions and had to have a surgery...