I'm currently in Boston (Belmont) and have tried 2 medical supply stores, and no luck. Any suggestions?...
Wow you are brave and very smart figuring so much out. I do think being active has something to do with stress reduction and being healthy....
My life before I got surgery was at "wish I could just die" level. Now my life is 90% of perfect! Didn't want an iliostomy but had no choice and glad it has worked out so great. PS, ran 3 marathons...
I had the same remicade reaction you did. Thought I was dying from the stuff! Had trial drugs and the normal drugs and nothing was working for long. They were going to try stem cell transplant as...
The sure seals work to keep water off flange but are not so good if you are working out hard in pool and sweating from the skin. I find they fall off real fast because you can't dry the flange and it...
Hey Matt, My story along the same lines. I had crohn's and was going to be in stem cell transplant study when they found precancer cells in colon. Said chances dying younger went right up with with...
You really got knock to the ground! It is hard when you don't feel physically up to all the stuff you have emotions about. Your mom sounds like an angel, don'tforget to thank her regularly. What was...
Sorry to read this sad post. What country gave up on you?...
WOW it's finally happening. Best of luck and God bless....
Have just celebrated the four year mark and can't believe all the turns life makes. The surprises and the frustrations and the joys. I have an illeostomy because of crohn's and cancer, no going back...
I had joint pain for a year after. Sugar can really make things worse for me.If you get lots of rest and move it can help. I like swimming to get movement that is safe and relaxing. Now it's gone and...
I had that problem and I read to leave my appliance off for for as long as I could befor reaplying. I would have to lay around in pjs and have toilet paper, paper towel,or wetones over stoma but it...
I had a hard time with food. I ate pureed homemade chicken soup ALOT. It was all the nutriens and digested easy. I do fine I eat way more carbs now than I ever did before. Some veggies are still hard...
I have end ileo and things are going along great. didn't,t have a choice but what I ended up with works for me. I agree with everybody else about personal and being sure you are ready. Good luck with...
Last night I asked about going to the ER for being dehydrated. I got great answers and support. I needed the support to know I wasn't being a hypochondriac which is a family trait starting at...
Thanks you guys I know I needed to go but just wasn't sure. Really appreciate the comments....
Been sicker and sicker the last two days with stomach ache and have hardly eaten because I will throw up. I know the flu has gone around here sl I think maybe I have that. Trying to drink liquids but...
I ran a marathon two years after my ostomy. I love to exercise and do it alot as I teach cycling classes and do triathlons all summer. Had ostomy Aug 09 and did sprint triathlon(just one) the next...
I do use powder and Cavillon skin barrier, then seal which I make from 1/4 of a seal. I am very active teaching fitness and swim and run each day and the powder keeps me from getting skin sores. The...
I had mine since Aug. 9th 2009 at the age of 54. Happy to have a good life to live....
Besides eating too late, if I have dairy, milk, ice cream, cream on some dessert, cheese, ect. it fills my bag with gas. I have had it explode and it is really awful to clean up. I have tried to...
At nights while I'm watching TV for a while, I sometimes leave my appliance off completely and cover it with toilet paper or wet ones. Then the whole skin around it can have a break and air. The...
I so relate!!lol,lol,lol,...
This is so helpful I can't begin to tell you!!!!!! I have been having issues ever since surgery. I finally got into a urinologist after a year and that didn't even come close to helping. Now that I...
Way to come out successful!!...
I sure don't eat as much as any of my runner friends! And I'm not under weight at all. I do try to focus on protein and drink Boost with extra protein in my water bottle on long runs and water if I...
Nenagirl-Leaving the skin to the air as much as possiblefor a while helped me get over 2 onths worth of those kind of sores. Still use poweder and then stuff over it with sure seal and flange. hope...
Praying all goes well. you sure deserve it!!...
MyStomas name is Bubbles. She does that alot. Not loud or embarrassing but just cute and silly. She doesn't like working too hard and so I have to learn to chew better I've decided. I have to...
Ironmum- I manaed to qualify for Worlds (Sprint distanace) in London next year. Do you know a site that would have the schedule of races? I want to know I won't be racing on Sunday if I pay all the...
I do the hairdyer thing and it works for me. Lie down when I change at night. I only use 1/3 of an eakin seal molded around the stoma and Hollister 2 piece slapped on my little Bubbles. Ostomy's...
Good Questions. Welcome to a wonderful site. Don't know that much about J-pouches but know that my Dr. thought at 53, and having crohn's it wasn't a good idea to have a j-pouch. Crohn's tends to be...
That is what a Dr. should say!! Glad you are getting some good help finally....
I use gels only last hour in races and find they keep energy up to the end. Not alot, and then water to wash it down and keep hydrated. Have tried G2 diluted and don't mind that. Also that mineral...
So track workouts always bring back memories of real hard fast training. Do you find that hard now? My immune system objects to that and I have to recover longer than I used to. I'm older now too so...
I find sunlight laundry bar good to scrub into stain, let sit and then wash with load. It is frustrating!...
Well I did your story 3 years ago and life is good! No more stomach aches all day and looking for bathrooms. I can run again and the low grade fevers and fog are gone along with all meds. My joints...
I wouldn't be here without my buddy Bubbles. Running a marathon is more challenging to stay hydrated but at least I can be active again. I just pasted the 3 year mark and lovin' life. I fought the...
I think you should get it checked out. One never knows. If they don't have any good reasons they can find it may be what I had. Nerves that didn't like lllying on a hard metal table for 6-8 hours and...
Wow Simon, Someone is watching over you!? That sounds like quite the experience. Rice and bread has always worked for me. There really wasn't much at first I could do to make it thicker. You can buy...
I would so be there if it were on Sat. Why are they all on Sunday? I do the Saturday races. Have fun!!!!...
No complications and I was feeling good in 8 weeks. I teach fitness so I took 6 months to get back to work....
I thought just like you two. I will try everything before surgery. Humira didn't work on me and neither did the other drugs. Even tried trial drugs to get the latest and greatest. Well I severly...
Welcome to the forum. I consider myself a competetive triathlete in the age groupers these days. Having said that I do a number of running races to help my tri work. I have decided I want to qualify...
Wow it all sounds kind of miserable at the moment. I just had illeostomy with entire colon out and bum sewed up tight. I ate liquid diet for 8 weeks and then graduated to blended soups for another 16...
Yes, lying on a metal table during surgery for 6 hours or whatever can kill the back muscles. Exercises mentioned are great. Front of thighs connect to lowerback and need strtching also. (Like heel...
It's so hard at the beginning. What's that saying it's not the challenge gets easier but our ability to do get better. You seem like a wonderful help for your mother. Hope you get all the blessings...
I have the same issue with the flap leaking right where is glue? on. Just have to be really gentle with the peeling on and off of the velcro. I wish they had kept the other velcor part as wll as the...
I wouldn'tgive away any information that would let somebody take over your job. It really sounds like a cheap shot because you have been sick? I saytry to keep it until you find something better. Not...
I am VERY active. Teach fitness classes,train for triathlon, running everyday and biking and swimming every other day. I couldn't seem to keep appliances on more than one swim day and the next day...