Vomiting is a symptom of active UC. I had quite a bit of vomiting during the last flare I had. And my UC was limited to the rectum; a nasty spot about the size of a quarter. My colon was fine. Sue...
I am not sure what the initial reason was for your IRA, but I had jpouch surgery 16 years ago for surgery. I have been told then and now that those of us without a colon will always have a degree of...
I had jpouch surgery 16 years ago; no regrets, i would make the same decision today that I did back then. Sue...
Your husband is not old, and if he is in great shape, sans the UC, he will do fine. I have known people much older who have had jpouch and ostomy surgery and they are all out living full productive...
You can find great colo/rectal surgeons in your area throught ABCRS, the American Board of Colo Rectal Surgerons. Once you have a surgeon on board, he or she will advise you on an ostomy nurse as...
I think you are an anomaly Christine, most women ostomates do not have the problem you describe. Sue...
Definitely she should be taking maintenance medication; whatever that is for her, it's different for all of us. The reason why it is important is that it keeps inflammation down; chronic inflammation...
I too felt confident on the surgery decision after meeting my amazing surgeon. My jpouch surgery was 16 years ago and I have never second guessed that decision. Life has been excellent the past 16...
I had jpouch surgery 16 years ago due to refractive disease. I had it done in two steps. I have had zero regrets. Sue...
In most forums; social media or otherwise, you will see a lot of complaints about surgery. Just like on this site, you mostly see people who are sick and needing help. I had jpouch surgery 16 years...
I don't know of anyone who has successfully treated CI by altering the microbiome. It's my understanding that CI is caused by loss of muscle tone and the ability for the body to push matter through....
Just be prepared for a long recovery; I had surgery 16 years ago, best decision I made. But it took a full year to get rid of the fatigue and joint pain caused by prednisone use. You will feel better...
Fever is a common symptom of active UC. I had them frequently when I was in a flare. Sue...
During surgery you are covered except for the areas they are working on. Sue...
Boris, I cannot. I attended a symposium last year that was held at UCLA by IBD doctors/researchers. They shared the newest take on IBD and it was looking as if there are many 'doors' that have to be...
This is normal; I had the pain and aches for a full year after I stopped taking prednisone......the gift that keeps on giving. It will eventually go away. Sue...
First, you have to be genetically predisposed to UC. Antibiotics are certainly a trigger, as is stress and food borne illness. If you don't have the IBD gene, you aren't going to just 'get' it. Sue...
According to my surgeon, quality of life is the #1 reason for surgery. If you feel that you lack quality of life, then it's reasonable to consider surgery. In hindsight I think I waited one year too...
I listened to a dietitian speak at UCLA, she specializes in jpouches and those with UC/Crohn's. She might be able to help you and will do Skype sessions for a fee. If you are willing to pay a...
It's a non-surgical program to break up lysis. My friend who traveled there was constantly being hospitalized for blockages; after this treatment she no longer has to go to the hospital. They even...
Questran is the name of the drug for acid, NCOT. I had surgery 16 years ago for UC; best health decision of my life. I had it done prior to Remicade/Humira, etc. being available; 6MP was the last...
A friend of mine has had success with a specialist in Florida. As I recall she had to spend a couple weeks there and it was $$$. If you are interested, I will get the name of the business. Sue...
The disease is unpredictable; I've know people who were diagnosed with UC and within 3 weeks of the diagnosis, they have surgery. Some cases are stubborn and fulliment. I had been in remission for 10...
I agree; you really need a diagnosis. An ostomy might not improve your situation. Sue...
You shouldn't have to travel out of state for surgery; there are good CR surgeons in Denver. I was also on prednisone when I had surgery; it just means you will likely have to have a 3-step surgery....
I lost weight; had anxiety, and ran hot all day and night. Sue...
I'm sorry for your ongoing issues; I think a permanent ostomy is a great idea for you. It is not uncommon for a jpoucher to get cdiff, but 14 times, egads!! Every surgeon has a preference for...
It's bile. Sue...
In my 16 years of having my jpouch I have never heard of surgery for fissures? Are you using a sitz bath every time you empty your pouch? If not that will help with the pain. Also, are you using...
My UC was limited to my rectum, about the size of a quarter, and that small patch led to surgery. I rode out a 2+ year miserable flare, I never imagined an ulcer that size would lead to surgery but...
I had horrible fatigue in my last two years with UC. It took about a full year to get my energy back after having surgery. I cannot positively state is was the UC alone, but perhaps the disease and...
This is normal. Your gut flora is out of balance because of surgery. Drink kefir and take probiotics. Get exercise. Stay away from gas producing foods including carbonated beverages. Sue...
Sixteen years ago I had surgery for UC; no regrets. Sue...
beatUC, Every surgery has a post op recovery; removing the colon and replacing it with a false rectum is huge and complex. It takes time for the body to learn how to adjust to its new plumbing. If...
If this is only occurring at night there is a reliable fix; kegels. Her sphincter has lost muscle tone, and when we sleep our muscles relax, hence the leakage. She should start doing kegels 3X per...
I looked at all 3 viable options; j-pouch, BCIR, and permanent ostomy. I talked on the phone with people who had each surgery and got feedback. I then made a list of pros and cons for each surgery...
It was the best decision for me and I was adamantly opposed to it. I've had my jpouch for 16 years, best health decision thus far. Sue...
Christine, As I recall in your case, age was not the issue it was overall health. We have many jpouchers who had successful surgeries that were between the ages of 69-82 when they had their surgeries...
Christine, That is just not true at all; the jpouch is an excellent choice for those faced with surgery. It has an approval rating of over 90%. It's a very difficult surgery and there can be post...
My Accountant is also a lymphoma survivor from taking Remicade. She was treated 7 years ago for it and is doing fine. Sue...
Keith, I'm sorry to hear this but for anyone who has taken prednisone for over 3 months, that is considered long term. There are many people who have unbelievable damage due to steroids; most aren't...
Yes, an antacid will help as well as metamucil wafers, not the powder. Calmoseptine is a great ointment but the best ointment for butt burn is Ilex. Be sure to apply lightly, follow the directions on...
Prednisone made me very hot and sweaty. If you want relief, ask your doctor for an RX of Effexor, at 10mg. It will completely eliminate hot flashes if yours are caused by menopause. Sue...
Eating causes peristalisis, so for many of us, yes after eating a meal we use the bathroom. But this isn't urgency like with UC; you can comfortably hold it. Sue...
I ate everything from the get go. Just try small portions of new foods and chew well. Sue...
For many of us who were very ill and malnourished for a long time prior to surgery, a huge weight gain after becoming healthy was realized. It's the body's way of forgoing starvation. Has your...
You shouldn't ever need a bowel prep again, if you no longer have a colon. Sue...
Yes, I had surgery 15 years ago, I am healthy and active. Sue...
Your husband may have fatigue and achy joints for a full year after his last dose of prednisone. I did and so have many others. It's unfortunately the drug that keeps on giving. Sue...
This sounds like a UTI. He should go see his regular doctor. Sue...