Thx I will...
Its ok As nothing can be done with nothing but obstructions. And hook up to tpn I am considering hopice exit Rj...
I would be all whole and well without the pelvic adhesions caused by the original gyn surgery that necessitated. Stoma to begin withm. If the first stoma had not cloed I would be well still without...
Obstructed on cerel and juice feb 3 but that resolved on own as I was brought to er. Gi had me on clears feb 4 to 6. On feb 7 he said try pureed food like baby food I obstructed 4 hours later and...
Thx active. That is what I thought after I got my hickman....
Thx. I need a miracle. I think I am beyond it due to adhesions on my small bowel. My short gut small bowel that is. Am now on TPN and a liquid diet. I have dumping syndrome bad. May need a g-tube to...
I know. The whole thimg is dark. I have no clue why that good stoma stenosed in after 4 years. I sure am glad o did all that travel! After the feb 3 small bowel obstructiom my gi put me on a total...
I tried to edit the above typos and the part about the saline and heparin flushes. Those are the ports on the hickman catheter that goes into my heart for the tpn. Total parental nutrition. Vna and...
NCOT, I just happened to drop in. Yes I had a great stoma for four years that I even did extensive travel with then all of a sudden a severe stenosis. This was at the fascia level and it had to be...
Will this cause a blockage is what my docs and i are trying to figure out. I was originally told to take 2 loperamide (immodium_ half hoour before each meal and 2 before bed due to my short gut...
Also this stoma redo relocation domne im boston that netted me the short gut syndrome, feels like silly putty. It is also cold though a shade of darkish pink. It is not looking and feeling viable as...
I have the hickman with tpn port and the blood draw port. How is that different from a chest port. I do not know how to balance this short gut with all these adhesionm reobstructions. In mid non thru...
Hi just got back from yet another small bowel adhesion obstruction episode jan 15 to 23. My fourth sbo and my fifth hospitalization since sept. I am on TPN thru a hickman catheter. They want me to...
Bev, this is what I need is the chest oport and tpn. When did you get back on real food? Or are yoiu stull on tpn? Thx Rosemary...
Sorry for all the typos above. This is from a cell phone....
The short bowel thing, I really wonder if I got it here or ay mayo az where I got the 3rd and 4th non working stomas. What I was told here was that they must have taken a LOT of small bowel. But...
Thx Blue. I am gradually able so far to resume a soft diet, but the short bowel syndrome necessitates eating thickeneing foods and taking immodium. The residents hesitatet to oput me back on the high...
Thx survivor. I just cannot believe all of this has happened. Need for stoma in first place due to injury/adhesions from a gyn surgery. First stoma and lysis of adhesions went fine and I was great...
Ugh! Not sure if I have posted since my oct 5 severe small bowel adhesion obstructiin. Since having my stenosed stoma relocated and revised I had a partial sbo sept 22 only 2 weeks poost op. Then oct...
It is way too long out from surgery to be post op ileus as surgery was. Sept 4th. And the projectile like quality was lkike an sbo from adhesions like I had from the gyn surgery that put me into...
5th day on ng tube and no nutrients since I totally obstructed oct 4 and was sent back to Mass General. NG tube. IV's, possible more surhery but they are trying not to. This is no life. I am ready to...
Thx judy. It's what I thought. Esp with the temperature. Rosemary...
Hi Just had my 5th stoma revision and a relocation due to stenosis that keeps recurring with stomas. No disease. Ended up needing stoma due to gyn surgery injury! Now have short gut syndrome 5 feet...
Glad you have your mom. I miss mine. I don't have anyone and am battling all this alone. I can see why u had the meltdown. Three bags. Jeesh! Then the ischemic intestine. I can see why the one day...
Phew you have been thru the mill like me and a lot of others. Yikes! How do you stay positive? I am trying to work on it. I had a cheese sand for dinner and just out out 200 cc's effluent. How can a...
Thx active for the scoop from CC and also for clarifying the WHO. I was doing the plain pedialyte so I guess was doing the WHO and did not know it. I know what you mean by the output being a crap...
Thx liz. I put bandage tape around where the tubing attaches to the bottom of the high output pouch. Once in the hospital the tubing disconnected like did with you! What a mess! I also have this very...
Hi liz, I could not get the output to thicken today but last night when I had those baby food bananas it was like liquid concrete! The tubing isn't in the stoma. Sorry if it sounded confusing. I have...
Thanks all. Active that must have been horrid when your stoma died. I was lurking and keeping up with u. Was so glad you got saved. IDK if it was ileus last weekend or what but iv's and stop of...
Is effluent still passing ok?...
Yes the joy of food again is quite something. Sleeve of saltines good idea with the salt. How did you resolve the ileus at home. Been almost three weeks now since surgery. I am wondering whether I...
Hi all, thx for all the info. I am sorry and nEed to calrify the loperamide situ. It is 2 capesules (240 mg) 4 times a day. They make me so loopy I even screwed up the post on that sorry. So that is...
Hi am very leery of going on here so please ignore if not want to read. Need constrctive suggestions as am in a mess. I had stoma revision relocation in boston with a doc who used seprafilm, made a...
Am still in bad shape and awaiting a relocation/revision of stoma to other side. Found an adhesion/colorectal surgeon with a lot of experience. Trick is staying nourished enough. SO FAR bloods OK but...
lie down in the back seat? Good luck. RJ...
Thx Kewpie, I am trying. STILL living on liquids. MUCH debate about what to do with me due to all my adhesions. MOST people do not form them like I do, so mine is not typical. I TRY and stay positive...
Kewpie, sorry i had checked in before and did not see your question had I been to Mayo. mayo az branch is where I got the two non-working stomas due to the scar tissue that I am still in holding...
Kewpie, Mayo Minnesota is awesome. Techs are great and very gentle. It is not scary at all and you will get complete workup VERY IMPORTANT. Is where I should have gone WAY BACK, but I won't go into...
Windy, Yikes, so sorry to hear this. I check in once and awhile and I was assuming all was well with you. Just an idea would it be possible to get the rectum checked for function like anorectal...
Thx i am going to contact cc and beg. Here they are postponing for no reason. THx for cat sympathy. Part of me died with her. My phys condition is slipping fast. I may be beyond repair but am going...
Thx momsi. Actually I am getting weaker had some ice cream today and praying it will pass. Harder to pass stuff. Thought I had found some help closer to home and the plan was to move stoma to other...
Thinking of you Tracy, Good luck. I don't think you would get an ileus if the intestines are not manipulated. Will be thinking of you. Rosemary...
Thanks Mrs. B. me too....
Kewpie, Be sure you have ALL the tests prior to having anything done. The sitzmark you had, the defecography, anorectal manometry, pudental nerve terminal latency test. The idea is to determine if...
Jack, you know what you have now. You don't know what you are going to get. this is a HUGE decision. If a stoma had been elective for me, I would not have done it. Wait until you are sure. A working...
AUC i have been thinking of you. Glad it was not that huge a surgery. Hope your recovery goes well. VERY scary. SO much can happen to stoma's. Sincerely, Rosemary...
Hi Mrs. B, I am in a holding pattern. Still living on liquids. LONG story. Asked some questions about adhesion barriers and what the surgical plan was where I was dealing with was told, we will...
Can have PA with a low normal B12 and high MMA. The MMA is the crucial test that most docs do not think of or know of. RJ...
LOL..... That is MBA that is the degree. I will await your email, I need your take on things. MMA is Methylmalonic acid. It goes high if one has perniscious anemia. Iron can be fairly normal. Next...
NCOT Have you had your MMA and B12 levels checked? Sometimes with an ileostomuy comes B12 deficiency as the terminal ileum absorbs B12. Shots of B12 can help a lot. Likely you are ok but just a...