Hello and I hope you are feeling better. Proctitis of the rectal stump or other parts of the colon (diversion proctitis) is common but many people are also asymptomatic. The first couple of years...
I haven't dated much in the last 6 years since surgery....maybe a handful. With the exception of one, the others I told during a moment where topic of health and stuff came up. I told the story with...
Hi there, sorry to hear that your FAP now has become emergent. About 4 years ago, there was a young 19 year old girl on this forum with FAP. I still keep in touch with her. Her mother died of FAP in...
Hey Brian....I'm thrilled and so happy for you! You've endured enough and hope that the road ahead is a great one! I'm sorry as I can't answer your questions. Good Luck!...
Sorry to hear this, I hope that things are improving. Must not have been great having to be readmitted with a high WBC and no explanation. My small bowel and rest of body went through so many changes...
Hi there, sorry about your struggles. I still think you can decrease the opening alittle and see if that helps. Or use a moldable wafer and it takes out the guess work. Using Eakins with a moldable...
Hi there, Wanted to share my experience with you, letting you know your feelings are completely normal. I had diverticulosis of the entire colon, and after my colectomy, I developed a leak of my...
Last year at my monthly ostomy meeting at the hospital, Coloplast presented Mio. We, including the nurses, were thrilled at all the different features. Thrilled was an understatement (the ostomy...
I am completely on board with the others. There might be another colorectal surgeon within that hospital, but because this might be surgeon error, another surgeon might not want to be pulled in...
I use Medline, 5 years. The past year, they have changed their ordering process. Their customer service call center changed, and they basically screw up every order. The people answering the phone...
Congrats Marianne.....you've come so far and we all here appreciate your kind words of wisdom!! Here's to many more years of health and inspiration!...
Do you use the calmoseptine using the crusting method? Been having issues since my supplies got switched on my barrier wipe. An area isn't healing. It's open and painful. There's wound dressings I...
Hi- I'm glad your gaining the knowledge needed. The few people with colonic inertia, they were told that it was a mega colon when it was removed. The colon's muscle, and when it's not spasming...
Making an elective decision like this, is one of the hardest things to do. In an emergency situation, that is taken care of for you. Many, like you and I, come to a breaking point. Suffering is...
Hi, This is scary, and I'm glad that you've gone through all the tests. This provides a predetermination as to how things will be. Your gallbladder was removed 2 years ago, I hope that everything has...
Hi Cheryl, Bowel consistency takes a long time to return to normal. Week by week you should see some change in the consistency and frequency. Continue the stool softener and fiber. Important to keep...
Cheryl, Happy to hear your bowels are slowly moving. Advocating for yourself isn't always easy at times. You are aware of the why's and how's, but when you in the sick faze, you doubt and second...
Hope that things are better since yesterday. I am glad to hear bowel sounds. That is an improvement. Not sure why your only taking mom only once a day and at night too. Continue walking, and call...
Hi, I just want to give you my support. I too have adhesions that give me complications. My last surgical 'peek' was during my cholecystectomy, surgeon was pleased that my adhesions weren't as bad as...
Hi Cheryl, A resection and gall bladder removal....sorry to hear! All this will give a multitude of symptoms, pain in various areas. Happy to hear that surgery went well and that you were discharged...
How scary at how quickly things can change. I'm so glad that the culprit was found, despite another surgery, being open and rerouted to the other side. I hope that your mind is at ease with all this....
Dan-you've been pushing this for so long, thank you for always posting your most valuable tip. I've personally never tried it. But believe I will now. The area directly under my stoma is always red....
What a nightmare!!! Those are the pouches I use as well. I change my appliance every 7 days, and the filter usually leaks around 5, so I tape it. On some people in my support group, even the tape...
Wow, can't believe the resources out there in helping families. I saw those ostomy dolls in my support group. So cute and informative. My kids were 7 and 8. I had diverticulitis infections occurring...
I'm happy to hear that adjusting your diet is working for you. This is all very frustrating, and yes all trial and error. Those side bags, I can't remember if anyone here wears those. I've seen their...
All this is unimaginable and daunting. Planning elective surgery plays a huge mind game. For me, I never felt better after having that severely diseased colon out of me. You have to take things into...
I was so in your shoes over 4 years ago. I too had diverticular disease. I had to have my entire colon removed though. I was immediately connected, but developed a leak, and had an emergency...
Don't be scared. I know, easy to say. What we read, of those with complications, are about 10% of the complications of this surgery. The rest are living life. I too had a colectomy due to...
AFter my colectomy, I developed rosacea. 4 years later, I still can not leave the house without foundation. It was very severe in the beginning. I heard studies with rosacea, that when using a...
Good luck today!!!!! Hang in there :-)...
WOW....just read your bio. I'm so sorry for all this. You did fine for 3 years, then this. I hope that you will get through this quickly. You should be OK for take down in a few months and all this...
I was just like you. It was only until a stoma nurse helped me figure things out. Mine was imergent too, and my stoma nurse in the hospital wasn't any help. I came across this forum 4 months later...
May this be the beginning of a wonderful future. Surely traumatic being in pain with such a diseased colon and having major surgery, glad that your moving forward in a positive light. Best wishes on...
Thanks for posting!!!...
Ditto what the above members have said. From the blockage, possible vomiting, and bag filling immensely. Being post op, this is a HUGE concern. Make an appointment with your surgeon. 4 times in 10...
Hope everything moves forward with your housing situation. I understand your concerns regarding your health, trying to be on top of it and worry some of what the future holds. Wanted you to know your...
Your blog is fantastic!!!!! It is very relative to the struggles we face. The composure you've displayed is fantastic and very rewarding. Keep it going too, you will inspire others in developing self...
I have been hospitalized 4 times for a blockage. I tried everything to no avail. The last blockage, I stuck it out at home and that was a HORRIBLE idea. The ordeal was very dangerous in the end...
Time surely does fly.....it was my 4 year anniversary for my colectomy on July 26! Here's to our productive future!!!!!!!...
Keep up the good work and rest up as much as you can. Be patient with yourself and let others help you. Great outcome!!! So thrilled to hear!...
I have esophageal issues. Severe spasming. Started during my 1st pregnancy, thought it was heartburn, but knew it wasn't. 4 years later, when I was diagnosed with severe diverticular disease, I told...
I'm so grateful everything went well and it wasn't as serious as first intended. I hope you continue to do better and that the past is well behind you now!!!...
CarenZ, I hope that being here, receiving all our understanding is encouraging to you. My colectomy and connection from my small to rectum was elective, and I was nervous but so ill that I couldn't...
I hope that your mind is at ease. I wish you my very best and keep us informed as you move further!!!!...
It is a different culture here. Have spoken with many people living overseas and they are astounded at all the commercial advertisements for drugs. It is a huge problem and trying to weed out the...
Hello everyone, I sincerely hope that you are all well and having a great weekend! I wanted to approach all of you because you all are such a profoundly intelligent, empathetic and supportive bunch....
Last year I went about a dozen of times to the amusement park. And last month I spent 2 weeks in Orlando. I ride all, including those that you are lying down. The ride is over so quickly, nothing has...
I have used the Eakin slims, but my insurance won't cover those. Instead I use the thicker Eakins. I use a hair dryer during my entire application. I will put the Eakin in front of the hairdryer, and...
Wishing you all my best today and in the days to come!!!!...
So sorry for your struggles. I'm glad your feeling better in the last couple of days. I know how exhausting this is. I had constipation all my life, so understand not having a bm for weeks. It's not...